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Brooke Robertson - Dec 14, 2005 8:51 pm (#27 Total: 56)  

 

Misty

Once you register online you can print out a sponsor page to keep track of all your donations. You can also set up a personal web page with MOD and people can make donations online. Last year I sent letters to all my friends and family telling them about our story, explaining the mission March of Dimes and why I was raising money. I gave them the option to send checks to me or go to my web page to make and online donation. You can view my web page at www.walkamerica.org/2miracles for an example. I hope this helps and good luck on your fund raising. I haven't started on my fund raising yet. Let me know if there is anything else you need help with.

Brooke

isamar - Dec 22, 2005 11:35 pm (#28 Total: 56)  

ISAMAR ALEXIS PADILLA MALDONADO  

YOU GIVE ME HOPE

I HAVE A24 WEEK PREEMI AND I AM STILL DEVASTATED... THAKS FOR SHARING YOUR STORY...

isamar - Dec 22, 2005 11:39 pm (#29 Total: 56)  

ISAMAR ALEXIS PADILLA MALDONADO  

MY 24 WEEKER IS SO BEAUTIFUL

I WOULD LIKE TO POST PICTURES BUT I DONT KNOW HOW TO.. ONCE I GET MY NEPHEWS AND NIECES (TEENAGERS)IWQILL ASK THEM FOR INSTRUCTRIONS.

Replies to this message
  • Nancy White (Dec 23, 2005 5:06 am)


  • Nancy White - Dec 23, 2005 5:06 am (#30 Total: 56)  

    SHARE Technical Helper  

    Replying to: isamar (Dec 22, 2005 11:39 pm)
    MY 24 WEEKER IS SO BEAUTIFUL: I WOULD LIKE TO POST PICTURES BUT I DONT KNOW HOW TO.. ONCE I...

    Re: MY 24 WEEKER IS SO BEAUTIFUL

    Hi Isamar

    To post a picture, it needs to be a .jpg or .gif

    When you are posting, look at the box below all the smiley faces that says "Attachments". Click on the "browse button and find the picture you want to post on your harddrive. Choose the picture and click ok. Then after you fill in your message in the text area, click the "post my reply" button and the image will show up with your message text.

    isamar - Dec 28, 2005 11:44 pm (#31 Total: 56)  

    ISAMAR ALEXIS PADILLA MALDONADO  

    MY BABY

    SHE WAS TRANSFERED TO RUSH HOSPITAL THEY WERE OK I GUESS.. ST. JOSEPH NURSING CARE IS BETTER THE NURSES WERE SO UNPROFESSIONAL AND MATURE. DYING TO LEAVE FOR LUNCH I KNOW THEY HAVE TO HAVE A LUNCH BUT THEY DONT HAVE TO KEEP ON REPEATING IT WHILE TAKING CARE OF MY BABY AS IF THEY ARE MORE CONCERNED OBOUT THAT AND LAUGHING OUTLOUD SO RUDE, I DONT KNOW I HOPE SHE GETS A BETTER NURSE TOMORROW..

    littlemomof_4 - Jan 7, 2006 1:44 am (#32 Total: 56)  

     

    Brooke Robertson

    Hi Brooke. I just wanted to Thank you for helping me get started with the Walk America thing. I talked to the lady that works here in the Tulsa office and she is gonna put me on the mailing list. If you ever want to talk you can either call or write. Here is my address (823 East 60th Place North Tulsa, Okla.). Here is my number(918 425-6637). Thank you again, Misty

    Replies to this message
  • Brooke Robertson (Jan 9, 2006 1:54 am)


  • Brooke Robertson - Jan 9, 2006 1:54 am (#33 Total: 56)  

     

    Replying to: littlemomof_4 (Jan 7, 2006 1:44 am)
    Brooke Robertson: Hi Brooke. I just wanted to Thank you for helping me get started with the Walk America thing....

    Misty

    I was happy to help. Good luck with your fundraising. I hope that walking in honor of your daughter will help you to heal. Please let me know if there is ever anything else I can do to help.

    Brooke

    littlemomof_4 - Jan 9, 2006 8:24 pm (#34 Total: 56)  

     

    Brooke Robertson

    Thanks again for helping me get started. I know that it will help me to walk for Jocelyn but, I am also gonna walk for my other daughter. Her name is Sophia and she was 5 weeks early. So, I am gonna walk for both of them. Thanks again, Misty

    klmlucky - Jan 25, 2006 10:27 pm (#35 Total: 56)  

     

    I had a daughter at 26 weeks and she passed away 2 months later.

    How can I get involved in Oklahoma March of Dimes?

    Replies to this message
  • Brooke Robertson (Jan 28, 2006 5:53 pm)


  • littlemomof_4 - Jan 26, 2006 6:24 am (#36 Total: 56)  

     

    klmlucky

    Hi my name is Misty. Are you logged in already? If you are than there shouldn't be any problems. Where are you exactly from here in Oklahoma? I live here in Tulsa. If you are logged in and you have your pass word put in than once you come in to the Oklahoma site than you can talk to anybody. Sorry for the loss of your baby. I know what it's like to lose a baby because I lost mine last year and she was only 3months old. If you need some more help just let me know. God bless, Misty *littlemomof_4*

    Brooke Robertson - Jan 28, 2006 5:53 pm (#37 Total: 56)  

     

    Replying to: klmlucky (Jan 25, 2006 10:27 pm)
    I had a daughter at 26 weeks and she passed away 2 months later.: How can I get involved in...

    Hi my name is Brooke and I am the March of Dimes Ambassador Family for the Oklahoma City area. I am so sorry to hear that you lost your daughter. My heart always breaks when I read of parents losing there children. This is exactly why the March of Dimes is so important to me.

    I would love to help you get involved with the March of Dimes in your area. There are several March of Dimes offices and events throughout Oklahoma. Let me know what town you live in and I can get you the number for an office near you.

    Brooke

    lilliesmom - Jan 29, 2006 9:39 am (#38 Total: 56)  

     

    mom of 26 weeker and new 28 weeker

    I had my second preemie on December 29, 2005. He was 28 weeks and weighed 2 pounds 9 ounces. He is doing very well and is up to 3 pounds 6 ounces now. He is no longer on oxygen or any IVs, just the feeding tube. We are so blessed that he is doing so well and will probably be home in 2-3 weeks. The doctors have told us that he has a brain bleed, but I can't seem to find out what excatly that means and what the possible complications may be. They don't seem to want to go in to details about much. We have also been informed that his bones are slightly transparent. When our daughter was born in June 2004 she didn't have any of the complications that he is having. If anyone can shed some light on these things I would greatly appreciate it. Thanks!!

    Laura Kerr - Feb 1, 2006 3:17 am (#39 Total: 56)  

     

    my son had a brain bleed

    my son had a brain bleed. he was born at 23 weeks, he had a grade 3 on the left and a grade 4 on the right. The grade 4 was the maxiumim bleed. it was very massive. they didn't expect him to live the first week. He has a shunt. Which drains his celebral spinal fluid. From the brain bleed he developed something called hydrocelphas. It is water on the brain. it's something that is a result of a brain bleed. Usually a brain bleed is from being early. A person's blood carries oxygen, well with a premature baby basically you're not ready to do that. Well when that change happens, it causes the brain bleed. Like I said my son had a massive bleed. I don't know what kind yours had, but usually long term conplications comes from the grades 3 and 4. My son was diagonosed with celebral palsy. He has it on one side of his body, His left side of his body is really tight. He is compared to a stroke patient. He gets PT, OT and speech therapy. He is almost 2 years old now, and doing good. Naturally he is developmentally behind, not walking, crawling, or sitting without support, but his therapist says that they see a change in him daily. and they have high hopes for him. But everything will be okay trust in the Lord and stay strong. There have been times I have been so depressed and down, but I promised myself I would never let my son see it. love your baby with all your heart no matter what happens or the complications it may have. I have always said that the Lord wouldn't give a special child to just anyone. He gives them to people he knows is strong enough to handle them and people who will take care of them. i suggest you go to a book store and get books. I bought a book at Books a million, called Preemies, its about 500 to 600 pages and I have learned so much. We lived in Fort Smith AR, I saw you are from Oklahoma, please write back I would love to talk more. There so much that I can tell you about.

    Replies to this message
  • lilliesmom (Feb 5, 2006 8:08 am)


  • lilliesmom - Feb 5, 2006 8:08 am (#40 Total: 56)  

     

    Replying to: Laura Kerr (Feb 1, 2006 3:17 am)
    my son had a brain bleed: my son had a brain bleed. he was born at 23 weeks, he...

    Re: my son had a brain bleed

    Thank you so much for the info. it helped a lot. We have tried to find books on preemies but the bookstores here don't seem to carry them. I guess I am going to have to order them from online. We made it through my daughter being in the NICU for 8 weeks, but she didn't have any medical conditions other than just being a preemie. With my son that is not the case so it is getting harder to just wing it on our own and the doctors this time are not as willing to sit down and explain things with you. My son is at OU Medical Center which is where my daughter was as well. It is a teaching hospital so you just get stuck with whatever resident is there at the same time you are. My daughter is the same age as your son. Her birthday is June 14th, when is your son's? Do you still live in Arkansas?

    lilliesmom - Feb 11, 2006 8:29 am (#41 Total: 56)  

     

    WalkAmerica

    I was just wondering if anyone knew if there was a kickoff for the walk planned here in OKC?

    Replies to this message
  • Brooke Robertson (Feb 12, 2006 8:35 pm)


  • littlemomof_4 - Feb 12, 2006 4:35 am (#42 Total: 56)  

     

    lilliesmom

    You might want to ask Brooke Robertson? She knows alot about it there.

    Brooke Robertson - Feb 12, 2006 8:35 pm (#43 Total: 56)  

     

    Replying to: lilliesmom (Feb 11, 2006 8:29 am)
    WalkAmerica: I was just wondering if anyone knew if there was a kickoff for the walk planned here in OKC?

    Re: WalkAmerica

    To lilliesmom:

    Hi my name is Brooke Robertson and I am the OKC March of Dimes Ambassador family. I will be speaking at the kickoff and I would love to meet you. The kickoff for WalkAmerica is February 28th at the NW Expressway Marriot and you need to call the OKC March of Dimes office at 943-1025 to RSVP by February 17th. Before you RSVP for the kickoff you need to register to participate in WalkAmerica (if you haven't already). You can register online at www.walkamerica.org, or you can call the March of Dimes office.

    Thank you for your participation. I hope to see you there.

    Brooke

    strongtwinsmom - Feb 17, 2006 3:25 pm (#44 Total: 56)  

     

    Also from Oklahoma

    I just wanted to say hello and put myself out here. I am from Oklahoma also.....near OKC. I have b/g twins that turned 19 months old yesterday. They were born 6 weeks early and spent only 10 days in the NICU. They weighed 4.12 lbs. and 4.4 lbs. and were 18.75 inches at birth.

    On their due date, my daughter became very ill and was checked into Children's Hospital at the OU Med Center. She was there for 2 weeks. She had Pyloric Stenosis but it took them nearly 2 weeks to diagnose it b/c she was a preemie. She had to have a central line put in b/c she nearly died of dehydration at 7 weeks of age. Now she is doing fine but b/c of being a preemie and b/c of her setbacks at such an early age, she has had to overcome some obstacles. She started Soonerstart at 5 mos. of age and is still active in it although she is about get graduated out!

    Anyway, I just wanted to introduce myself to all you other Okies out there.

    littlemomof_4 - Feb 18, 2006 5:33 am (#45 Total: 56)  

     

    strongtwinsmom

    Hi my name is Misty. I am from Tulsa and I would like to say hello and welcome to Share. I have four girls but recently lost my 3 month old last year. My two year old is in SoonerStart. I like the Childrens Hospital there in OKC. Talk to you soon! Misty * littlemomof_4*

    strongtwinsmom - Mar 4, 2006 6:43 pm (#46 Total: 56)  

     

    I am sorry to hear about your 3 month old. Thanks for welcoming me here. It is good to get to know other moms especially ones that have been through this same ordeal. How is Soonerstart going for you? We have another therapy appointment this coming week. Hopefully it will go well.

    momof_4girls - Mar 16, 2006 5:58 am (#47 Total: 56)  

     

    strongtwinsmom

    Sorry I haven't been on here in a while. Soonerstart has been going okay just not making any progress with my 2 year old. She only says momma when she wants. Right now it is sometimes hard b/c I don't have my 3 month old. My sisters baby gives me some peace b/c I know Jocelyn is telling me that when I take care of my nephew that it is okay with her. If you want you can e-mail me any time (momof_4girls@yahoo.com). I will talk to you later. Misty

    phone number and address removed

    [Last Editor: James SooHoo, Mar 16, 2006 5:25 am. Total Edits: 1]

    jjluvaj - May 16, 2006 10:51 pm (#48 Total: 56)  

    Proud mommy angels on earth and in heaven!!!  

    New from oklahoma

    I am from weatherford, but right now I'm in the military and I won't be back out there til August, however, I just wanted to say hi to the oklahoma family. Also I was wandering if anyone knows of a good perinatologis tor High risk ob in my area. It's been so much trouble finding one. I jus tfound out I am pregnant a third time(1st lost to misc, 2 nd born 3mnths premature, died at 4mnths old) I am very nervous on this pregnancy. I don't want to loose another one, I don't think I could handle it. Sorry for the rambling.

    Jennifer

    aka1434 - Feb 6, 2007 6:01 pm (#49 Total: 56)  

     

    Looking for Locals

    Hi, I am from OKC and want to find people from my area and maybe start a play group/ mommy day after my son is born next month. Just looking for local people to talk to.

    Kim

    dkrasser - Jul 27, 2007 3:16 am (#50 Total: 56)  

     

    New From Oklahoma

    Hi Everyone

    I am new to this site. My husband and I are first time parents to twin girls born at 28 weeks. They were born November 11, 2006.
    Kenli was born weighing 2lbs 6 oz and was 14.8 inches long and Kenzi weighed 2lbs 11 oz and was 15 inches long. Kenli had a harder time in the NICU. She was placed on NEC watch two different times and Kenzi just had the typical preemie behaviors. Those were the brady's and the apnea. They each had two blood transfusions. We were truely blessed not to have any other problems. We left our NICU family on January 4, 2007. The girls both came home on apnea monitors. They were both on those for 6 months. Kenli and Kenzi are now almost 9 months old. They are rolling every where, almost crawling, and cutting teeth. I thought the day would never come that I would get to bring my babies home. Now here they are. Time really does fly. My husband and I just want enveryone in this situation to remember to keep the faith. There will be many ups and downs. We know the rollar coaster ride you are on. So we would love to hear any stories anyone would like to share. Good luck to you all. God Bless.

    Danessa and Levi

    meagan - Aug 26, 2008 5:06 pm (#51 Total: 56)  

    my baby just passaway  

    Re: New from oklahoma

    hi my name is meagan

    if you want to drive to okc you can see my high risk dr he is really good he did averting for me untillhe could do no more if so let me know i will give you his number

    meagan

    altland1014 - Dec 3, 2008 12:55 am (#52 Total: 56)  

     

    OKLAHOMA

    He I was just wondering if there was any oklahoma mommies on here anymore

    lilliesmom - Feb 16, 2009 7:41 pm (#53 Total: 56)  

     

    Fundraiser

    Hey everyone! I live in the OKC area and am trying to put together a consignment sale fundraiser to benefit the March of Dimes. I am looking for anyone who would like to be a consigner. We did a sale last August and it went well but I really need more people to consign items to sale. If you are interested please let me know and I can give you more information about it. Thanks!

    lilliesmom - Feb 16, 2009 7:43 pm (#54 Total: 56)  

     

    Re: OKLAHOMA

    I am an Oklahoma mommy. There doesn't seem to be many of us left though. I live in Bethany which is in the Oklahoma City metro area.

    TonyaP - Feb 19, 2009 9:31 pm (#55 Total: 56)  

     

    Twenty six weeker with level 3 and 4 bleed

    Hi, I am new to this site and was hoping to meet other moms with similar stories. I have a beautiful baby boy born at twenty six weeks having a level three bleed on the left side and a level four bleed on the right. My husband and I were asked to withdrawal support for him when he was two days old. He will be seven months tomorrow and doing well.

    ercrooks - Nov 10, 2009 6:45 pm (#56 Total: 56)  

     

    Mommy of 2 preemies!

    Hello everyone! I'm an Broken Arrow mommie of 2 premature babies....well....they aren't babies anymore. Lincoln was born March 10, 2007 at 31 weeks and Lauren was born April 8, 2008 at 33 weeks. Both had no problems but to feed and grow. Lincoln was in the NICU for 25 days and Lauren was in for only 7. It's amazing the difference. But they are both healthy and so smart...you would never guess they were born premature. Until I had 2 I had never known anyone who had premature babies or even losses. I have a girlfriend you had her 1 baby girl at 28 weeks the same day that I had Lincoln so we had a support group just the 2 of us! I also have a girlfriend you lost 2 baby boys due to IC but with a successful TAC put in was able to have a beautiful baby girl.
    My heart goes out to all you preemie mommies who have babies in the NICU. Keep praying and know that God is with them. And those with angel babies you are in my thoughts and prayers.

    I've attached a pic of my kiddos!


    IMG_5338



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