Grade III bleed
RL -Tyler's mom - 12:38pm Sep 8, 2006 ESTHi,
We had our son on 8/4/06 at 27 weeks. He has been diag. w/a grade III bleed on both sides of his brain. I'm just looking to see if anyone can give any kind of info. on if they have had a similiar experience, how did you get thru it? It's hard not knowing what the future may hold for him. He's still in the NICU right now. Any help would be appreciated.
thank you
RL
My twin Boys
- Apr 22, 2010 8:09 pm
(#32 Total: 33)
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Re: Grade III bleed
HELLO MY NAME IS JAMIE PAYNE AND YOUR EMAIL MAKES ME FEEL SO BETTER AND I'M SO GLAD THAT YOUR DAUGHTER IS WALKING & RUNNING AND SHE HAS CP TOO,
BECAUSE ONE OF MY SONS WAS DIAGNOSED WITH PVL ALSO AND I'M SO WORRIED ABOUT HE'S OUTCOME IN LIFE LATTER ON
HE'S 1 YEARS OLD
JAMIE
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tmarsini
- Sep 17, 2010 1:31 pm
(#33 Total: 33)
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Hi, My name is Tammy and I just wanted to post this to raise the spirits and give you a positive story. My son, CJ, developed a grade III IVH on both sides with hydrocephalus during the days following his birth. We were told of a grim outcome with the possibility of severe developmental delays. He underwent serial lumbar punctures to release the pressure while the bleed subsided on it's own. He did not require surgery but remained on Diamox to decrease CSF production for many months afterwards. By some miracle, he is now a healthy happy 15 year old who loves high school and singing and acting. We were told he would most likely have motor skill problems but he plays the piano like no body's business. Here is a link so you can see that there are positive outcomes out there so keep you chin up  http://www.youtube.com/user/CJMarsiniMusic#p/u/3/OIbfFv-qHEY
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