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POLISANO BOYS X 3

[~Nic~]
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~Nic~

May 2008
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BOYS WILL BE BOYS...I GUESS

May 17, 2008 05:15am (EST)

As always things have been totally hectic in the Polisano household. Tyler food coloring the kitchen and his brother were not even close to the end of that day (see last blog)
A few mins after I had cleaned that all up and finished blogging on here I decided to suck it up and just go to NY.
   My niece's 2nd birthday party was the day after our trip up and my sister asked me to make her a cake. Not just any cake either a butterfly cake (which in all fairness is easier than it sounds but still) me being the person that I am just couldn't say no (I have a problem with that lol). Even though I was not able to be there for the party I felt compelled to do this for my sister anyway. (Hence the food coloring Tyler got his hands on.) Which by the way he only saw me use for a second and put away before he climbed on the counter in his stealth like ways and got it out of the cabinet to turn his brother blue
Anyway we are all set to walk out the door I turn to get the cover for the cake carrier... my back was turned for (I kid you not) literally a second and guess what my beautiful, wonderful, miracle, love of my life, son has done.... yup the whole damn thing all over the floor. Ruined Well at least in the midst of him smashing it he gave chrissy a piece too!!
   All kidding aside now, I just don't know what to do with him anymore. He was doing so well and having less "bad" days. But lately it seems like they are coming back in full swing again and I am just beyond frustrated. He is diagnosed with verbal apraxia and sensory integration dysfunction. Both would cause frustration and him acting out but I almost feel like theres got to be more or something I am missing. Everyday is a struggle with him and I am just exhausted! His OT told me yesterday "he's all over the map, I have no idea what to do next. I don't think I can help. He's just way too smart". Well then get me some one who CAN!

He was doing really well with his speech and therefore behaving better but now it seems as though we have done a complete 360. I dunno what to do. I have to tell you though when he has his good days they are really good!! I took him and his brothers to the circus last week and this was the best I have ever seen him. He absolutely LOOOOOVED the circus. The big top and the bleachers freaked him out (sensory) but he held on so tight to TJ's arm and just loved every second of it!!
Here are the much awaited pics of Christopher and his glasses (Even though Jessica you cheated and saw them on Myspace already lol)
Also a pic of Tyler @ the circus


Christopher Glasses


TJ & Chrissy Glasses


tyler circus
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Posted by ~Nic~ | Comments: (2) | Permalink
RAINY DAYS

May 09, 2008 09:05am (EST)

I am supposed to be taking Christopher up to NY today to pick up his very first pair of glasses He is 17 months old and probably should have gotten them a few months ago but I listened to a doctor that didnt know what he was talking about!! Don't you Hate doctors who just wont listen?? I'm sure everyone of us has a similar story... you insist you know something and the doc just yeses you to death and doesnt listen. Then in the end it almost always turns out that Mom knows what shes talking about! We know our kids best Anyway I finally found a doctor who saw what i saw with out being told and today is his big day
  I just can't get myself (and 3 kids) out of the house today! I am sooo tired, its gross and pouring rain & the thought of a 2 hour drive is just not in me today. Tomorrow TJ has a soccer game and his end of the year block party. It's just not fair for him to have to keep missing things because his preemie brothers take so much time. (Sorry bear with my mom guilt ) Sunday the place isnt open. I HAVE to some how get it together today and just go (and make it there before 5 lol). I'm not even sure why I feel like this. I am sure you all can understand the kind of day I'm having. When you just dont want to do anything you are pretty much forcing yourself because of your commitments and responsabilities. It happens to all of us sometimes. I think that is why I feel like I needed to come here and blog. It almost always gives me the pick me up I need to keep going in my most stressful and tiring times. Share and all of you are a strength to me. So thank you!!! I know I'm rambling and this is all over the place but I guess with everything that goes on in all of our daily lives it eventually catches up with us and takes a toll. I really think I just need to take a "mental health day" and do nothing but watch tv and surf the internet! lol Ok and as I was ranting Tyler has food colored Chrissy and apparently the whole kitchen floor... Deep BReaths!!! Oh someone please give me the patience.
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Posted by ~Nic~ | Comments: (5) | Permalink
JUST PICS...

May 05, 2008 06:25pm (EST)

I will definately blog about our March for babies but for now I just wanted to share some pics with you guys


Best Girls I know!


Preemie Parade


TEAM POLISANO


Tyler Walked!


Nic & Chrissy Soaked!


Kimberly Locke (American Idol season 2)


Our Preemies


Wall of hope love & rememberance


TEAM POLISANO Rain


Our Celebrities


Chrissy
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Posted by ~Nic~ | Comments: (6) | Permalink
I AM IN SHOCK!

Apr 09, 2008 06:06pm (EST)

In the few hours since I posted my last blog about how I feel like I should have done better with my fund raising I kid you not I got a whole bunch of donations... That made my little progress bar JUMP up a couple Hundred dollars!!! HOw Cool is that I am sooooo Excited! I guess I was totally underestimating my efforts lol
OMG I am so PSYCHED!!
Ok thats all just wanted to share!
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Posted by ~Nic~ | Comments: (2) | Permalink
GEARING UP!!

Apr 09, 2008 03:36pm (EST)

Gearing up for March!!

So the live chat was really cool today! Thanks girls
We have about 2 weeks to go here until our walk. So I just wanted to put up some stuff to get in the spirit...
Seriously have you guys seen these?? they're hysterical (Thanks Jessica) I'm a dork I know!!

http://ecards.marchforbabies.org/DVOHTU

I've been trying to order my shirts but we have been having some issues (anyone know a good fast cheap T-Shirt guy please pass it along) I will give you guys just a sneek peak at the back of ours
Photobucket
(without the guys logo underneath hence the issues)

I am so excited I have 2 other families that joined our team this year and its gonna be great. Btwn us though I feel like they are kickin my butt and I need to try harder is that bad that I am being competitve with my own team mates?? Rhetorical question I know its bad! In reality its that I am being competitive with myself. I feel like last year I did so much better with my own personal fundraising. It was just me so I feel like I can do better I don't know... Don't listen to me and my crazy talk LOL
My team has raised an unbelivebly AWESOME amount so far and I honestly couldn't be prouder!!



And one more time a nicer pic of our local faces...


Recolor_l_48ad7cc773f25907b842f41cd
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Posted by ~Nic~ | Comments: (1) | Permalink
BETTER DAYS... FINALLY!

Mar 31, 2008 07:48am (EST)

Finally things have been going a bit better. Easter Seals has agreed to resume Tyler's services as of today. So I'm happy his speech therapist is coming back this afternoon then on Wed they are beginning to introduce his other therapists. So hopefully that will go well
   Christopher is finally getting some teeth! He is almost 16 months old and just got his 4 front teeth but yest I noticed that his 4 back molars are cutting! About time this boy gets them
   TJ started soccer this weekend and the nicest thing I can say about that is at least he was having fun. It was freezing and there were a ton of 4-6 year olds running around some crying some hitting and tackling other kids ( I didnt think soccer was a violent sport lol) I am proud to say my son was doing neither one of those things. He just wanted "to play mom!"
  Husband went back to New York this morning but was extreamly productive this weekend putting together a playground/swingset in our yard for the boys. The instructions said something about 23-26 hours for 2 moderately skilled people Ok so he and my father in law put in about 19 hours total. The whole clubhouse/fort part is together and apparently next weekend he will tackle the swings/tunnel part! LOL
  Anyway we had our kick off luncheon last week and that was really nice! My boys did extreamly well behaving and picture taking! All 3 even kept their ties on the entire time!! Tyler fell asleep about half way thru and was actually snoring I laid him on the floor trying to keep him out of the way but the paparotzi (sp?) still found him lol
 Here are a few pics...


Therapy girls MOD Luncheon 3-07


My mom TJ and Chris MOD Luncheon 3-07


Tyler tired of being a celebrity!


Team Madison & Team Polisano accepting our awards for 7th & 8th place top raising family teams!
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Posted by ~Nic~ | Comments: (3) | Permalink
THATS WHAT YOU GET FOR TRYING TO COPY OFF SOMEONE ELSE!!

Mar 26, 2008 03:04pm (EST)

We just bascially wanted to recreate or even copy that awesome picture that some of you girls did (Carissa). The "kicking prematurity's bootie" one. By we I mean Jessica (madison's mom) and I. That is totally not how it went down at all!!
We wanted to use the pics for banners posters and what not to show the "local faces of prematurity" so in the spirit of being fair we set a date and time at our local MOD office and this is all I have to show for it!!! lol Mind you I snapped at least 20 pics and still I hope Irene (staff) got a better one!
  I must say though we did have fun. Pizza Icecream and hanging out! Anyway we are really looking forward to our kick off luncheon tomorrow morn.
   Don't worry kids Nic's got the M&M's all set for tomorrow!

Preemie Kids
Preemie Kids

Jessica Madison Nic Tyler & Christopher
Jessica Madison Nic Tyler & Chris

My Therapy group!!
My therapy group!!

  • *Darcy I resized these on photobucket so I'm sorry in advance if it doesnt work I tried 3x to make them smaller
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    Posted by ~Nic~ | Comments: (2) | Permalink
    I FEEL LIKE I'M CONSTANTLY BEING "PUNKED"!

    Mar 21, 2008 06:20pm (EST)

    I am not sure exactly if its the whole living in a completely different place (NYC- Delaware) or if things are just weird! In the past week the babies have been sick with RSV while my 5 year old is completely fine. My husband is away still and laughs a little more at me every phone call.
      Tyler spent 2 days vomitting on me. Literally! Everytime it happened he managed to get it all over me. Christopher has started walking this week also which is awesome! But now he has also figured out how to open the door into the garage. Everytime I turned around the door was open. I swear I thought we had a ghost or that I'm completely losing it and forgetting to close it!
    Then I get a phone call the other day the EI services that Tyler finally got are being stopped until further notice. No seriously that I thought was a joke. The problem... I have insurance and the EI provider doesnt like how they want them to bill for services so they are stopping the services all together. For real!
      Today in the mail I get a "mandatory summons" to appear in court as a witness for a complete stranger. I'm beyond confused. (The 1st week we moved to DE the night before christmas eve we were side swiped by another car who was deemed 100% at fault. His insurance paid for everything including a rental car. My truck was fixed and it was all officially over or so I thought) Apparently the case is the State of Delaware vs guy who hit me.
       Then the cake topper....
         I was asked to be the Team Manger for my oldest son's soccer team and me feeling so guilty that I do so much for the babies I couldn't say no. It turns out this is probably really the last thing I need right now. I went to the meeting tonight and as I'm leaving the soccer field there is a police officer standing on the opposite side of the road pointing for me to pull over. In New York something like this is usually a check point. Oh no I was being pulled over!! No lights no sirens just the officer pointing for me to pull over. For what you ask... well I was just as curious to be honest. Get this... I got pulled over for doing 36mph in a 35 !!! This guy was serious too!! WHAT KIND OF A PLACE DO I LIVE IN!!! Forget it I think I need to go back to New York! lol

    Who ever is punking me I think I've had enough really! Thanks
     
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    Posted by ~Nic~ | Comments: (3) | Permalink
    MY MARCH FOR BABIES VIDEO

    Mar 20, 2008 06:51am (EST)

     Here are a few pics of the boys from st pats and Christopher my little walking machine!


    3-17-08 009


    3-17-08 014 a


    3-17-08 005
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    Posted by ~Nic~ | Comments: (1) | Permalink
    HE'S WALKING... REALLY WALKING!!!!

    Mar 17, 2008 10:43am (EST)

    Yippeee ok I'm gonna try and contain myself long enough to blog about it!!
    Christopher is 15.5 months old he was a 34 weeker and has been a bit delayed in everyway. He was in OT from the time he was 6 months for poor tone, motor skills and strength. When we moved to DE he was just finishing up his first 6 months of EI in NY and qualified for the next 6 (In NY they stop adjusting for prematurity at 12 months so at his 1st birthday he was no where close.) We came here and he had his eval and didnt qualify for 2 reasons.
     1) he was really close to his adjusted age in many areas (they stop adjusting at 2yrs)
    2) he was a fricken superstar doing things I have never seen him do before or after that day! But my pediatrician was still concerned about his leg and kept telling me I dont care what they say at 15 months old hes getting re-evaluated (and shes not usually much of an over reacter )
       2 days after he got home from his visit to the ER (see last long blog lol) he took a few steps. But that was it!
      Last night this kid just stood up on his own (Seriously) and took off and hasnt stopped since!!! He woke up this morning had his nebulizer treatment (which would probably make me look like I'm drunk) NOT HIM!!! He got down and started walking right after his brothers!!!! He's not even dragging that leg at all he's walking perfect!
      MY CHRISSY IS A WALKING MACHINE!!!YAY OMG I'm so excited! Ok I should probably go call my husband who is still away and tell him (again see last blog)

    -------------------------------------------------------------------
    Chris and Tyler are still sick with RSV but at least there is no more vomiting on top of it lol

    Happy St Pattys Day everyone


    nic chrissy 3-17-08
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    Posted by ~Nic~ | Comments: (3) | Permalink
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