mama britlyn
- Nov 1, 2008 11:22 am
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Angel Love
- Nov 1, 2008 11:24 am
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Replying to:
()
I am new here: I was actually searching how to grieve the death of my 25week son Issaiah when I...
Re: I am new here
Welcome to Share! I too have lost a child and know the overwelming heartache that goes along with it. Please know that we're here to listen and offer support whenever you need us. Tracy 
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angelmummy6
- Nov 1, 2008 6:38 pm
(#3 Total: 50)
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New Here
I am new here... My husband and I lost our precious babies about 3 weeks ago and we are just realing from it and i have been searching for others who have gone through this horrible experience as well. we had an early m/c in 2006, and early m/c of twins in 2007, and we lost triplets at 29 weeks on 10/13/2008... hope to meet others who i can relate to and can grieve with 
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Angel Love
- Nov 2, 2008 5:20 am
(#4 Total: 50)
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Replying to:
()
New Here: I am new here... My husband and I lost our precious babies about 3 weeks ago...
Re: New Here
I'm so sorry to hear of your losses! Your family has been through a lot. Just remember that all you are required to do is take one breath at a time.... That's my advice to everyone who is going through something like this because sometimes just saying that you're required to breathe is too much to think about...just one breath seems attainable. Please know that we're here any time you need to talk. Tracy 
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Janvi
- Nov 4, 2008 7:33 pm
(#5 Total: 50)
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In search of new hope
Hi Everyone,
I joined this site a few months ago, also started a blog called "Que sara sara", but have not been able to keep up, w/ all the work involved w/ a preemie. I also have a 5 yr. old son, so all in all it was just too much work!! It's all about our daughter, who was a 30 weeker, w/ a grade IV bleed on one side & hydrocephallus that is in a "resolving" state, w/out a shunt. She is 9 months old, 6.5 months adjusted. A recent MRI turned out really good showing no possible brain damage. But she is still delayed on her motor skills. She rolls over but does not sit up yet. She does not have high or low tone in her body, but does fix one of her arms, & likes to use the other hand for most activities. My request to anyone & everyone reading this , is ,if you have a had a similar situation, or currently going thru one, please share it w/us, especially a positive one. Our daughter goes thru PT & OT once a week, & DT & speech once a month. We are seeing great results from OT w/ her hand.
Thanks a lot in advance...
Janvi
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GradyGabbyAbby
- Nov 6, 2008 5:36 am
(#6 Total: 50)
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*One miracle with us,Gradon is now 10 years old. His sisters Gabrielle Lynn & Abigail Marie, watch over us in heaven.* |
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Replying to:
mama britlyn (Nov 1, 2008 11:22 am)
I am new here: I was actually searching how to grieve the death of my 25week son Issaiah when I...
Re: I am new here
I am so sorry for the loss of Issaiah. Losing a child is a heartache that no parent should ever have to endure.
I'm so glad that you found SHARE. There are many of us that have walked in your shoes, myself included.
It's comforting to know that your not alone as you grieve your son.
Welcome to SHARE.
Wishing you peace and healing,
Colleen
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mikie'smommy
- Nov 7, 2008 12:21 pm
(#7 Total: 50)
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Hi I'm new here
Hello everyone!
I have been a member for a few months now, but this is my first post. I was looking for info on trying again after pre-eclampsia. I have a beautiful 23 month old. He was born at 35w 6d, after 3.5 weeks of bed rest, spiking blood pressure and an emergency c-section. My husband had to go it alone, since no family was allowed in the room with us. He is still terrified, and who can blame him, watching my blood pressure spike and Mikie's (our little guy) heart rate keep dropping. It was very scary and I am thankful everyday for our healthy little guy and wonder if I am just being selfish wanting another one. I lost a sister after she gave birth to my niece and that fear lives in my husband and I everyday. Thank you all for sharing your stories! They are very helpful and inspiring to those of us out here in computer land!
Well wishes to all!
Kristen
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mommyof4kids
- Nov 7, 2008 1:09 pm
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New here.
Hi everyone,
I'm brand new to this website, I kind of wish I'd found it a little while ago, but I'm glad I've found it now. I'm looking for someone to help me cope with my daughter being born at 34 weeks and 6 days and having a cleft lip and palate. My youngest son who is now 16 months old was also in the NICU for much longer than Shayla was, but I'm still trying to cope with the feelings of perhaps I did something wrong during my last two pregnancies because my first two were born at full term and perfectly healthy. Anyone with advice or ways to cope would be greatly helpful and appreciated.
Thanks
Shella Pearson 
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Angel Love (Nov 7, 2008 2:38 pm)
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Angel Love
- Nov 7, 2008 2:38 pm
(#9 Total: 50)
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Replying to:
mommyof4kids (Nov 7, 2008 1:09 pm)
New here.: Hi everyone,
I'm brand new to this website, I kind of wish I'd found it...
Re: New here.
I think we've all had those guilty feelings after our premature arrivals. I know that for me, I felt like it was such a simple task....I should've been able to do it! It does get easier....and we're here to talk to any time it's too overwelming. Tracy 
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Mac0925 (Nov 9, 2008 8:05 pm)
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red36
- Nov 7, 2008 5:18 pm
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Mommy of Blake (full-term), Madi (stillborn @ 28 weeks), Lauryn (full-term) |
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Welcome!
Share is here to help, comfort, and inspire!
It's also a place to make lasting friendships!
Here are some books I thought might help you on your grieving journey...they helped me TONS!
These 2 books are AMAZING!
They help to ease and understand a little better.
"We were gonna have a baby, but we had an angel instead"
by Pat Schwiebert and Taylor Bills
"Empty Arms: Coping After Miscarriage, Stillbirth and Infant Death"
by Sherokee Isle and Arlene Appelbaum
This book is more of a kicker...
"An Empty Cradle, A Full Heart"
by Christine O'Keeffe Lafser and Phyllis Tickle
Love and Luck,
Erin
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lweger
- Nov 8, 2008 4:57 am
(#11 Total: 50)
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Miscarriage
Hello I am lela, family calls me maggie.
I had a miscarriage in 2004 april. I was three month's along.
well I am no longer w/my husband and on halloween i found out i am pregnant. so happy so excited and i have two boys 5 and 3 so a girl would be nice.
well yesterday i wasn't bleeding alot but i was bleeding. i figured i was about 7 wks along. went to ER, and bottom line they said they don't know for sure that i need to come in monday and have a test done that will say i am pregnant or that i lost it.
they said maybe i am just not as far along as i thought.
my period was early last month and this is about the time i would have my period. i am so scared. i don't want to loose another one i can't handle it
now i have to sit all weekend taking it easy hoping i am still pregnant and find out monday i am not.
how awefull. my five year old is down about it.
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Angel Love (Nov 8, 2008 3:24 pm)
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Akeelah's Mommy
- Nov 8, 2008 10:40 am
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A moment in our arms, a lifetime in our hearts. |
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Maggie,
I'm so sorry your pregnancy has not started how you imagined. I know this weekend will be tough. Please know we're here for you and will keep you in our thoughts this weekend.
Take good care,
Lauren
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Angel Love
- Nov 8, 2008 3:24 pm
(#13 Total: 50)
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Replying to:
lweger (Nov 8, 2008 4:57 am)
Miscarriage: Hello I am lela, family calls me maggie.
I had a miscarriage in 2004 april. I was...
Re: Miscarriage
Welcome to Share! I'm so sorry to hear of your loss in 2004 and I"m sorry to hear that there are complications now. I pray that the visit next week will bring good news. Please know that we're here any time you need someone to talk to. Tracy 
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Mac0925
- Nov 9, 2008 8:05 pm
(#14 Total: 50)
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Replying to:
Angel Love (Nov 7, 2008 2:38 pm)
Re: New here.: I think we've all had those guilty feelings after our premature arrivals. I know that for...
Re: New here.
I am new here.....
I had an US at 26 weeks and they found that my amnio was really low.(whole story in short story under Clarences story) With bed rest it seemed to get better. I had been working so hard in a very manual labor job and I blamed myself for the problems. I was overworked and wasn't getting enough sleep or eating as well as I should have been. My son is 2 months old now and even though he is doing well..I guess I still harbor some guilty feelings. I think its normal.
I am so glad to have found others who can empathize with all we go through.
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Angel Love (Nov 10, 2008 1:28 pm)
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Angel Love
- Nov 10, 2008 1:28 pm
(#15 Total: 50)
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Replying to:
Mac0925 (Nov 9, 2008 8:05 pm)
Re: New here.: I am new here.....
I had an US at 26 weeks and they found that my amnio...
Re: New here.
I'm so glad to hear that your son is doing well. It's a long journey for all of us....even us mommies who want to blame ourselves. Tracy 
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Honey Rae
- Nov 11, 2008 1:39 pm
(#16 Total: 50)
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New Member
Hi I just signed up. I wished I could've found this site when my daughter was in the NICU. Someday's I thought I was going crazy. I felt so alone. I'm so happy and blessed to have her in my life. At first I didn't think it was possible. She is a healthy little girl who will be turning 1 in a week. But it is still hard when I read others stories or when I look at her pictures when she was just born. I'm looking forward to sharing my story and hopefully helping others along the way. Honey Rae
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Plis
- Nov 11, 2008 7:56 pm
(#17 Total: 50)
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Sad Mom
I give birth to 36 weeks baby boy on 27 Oct 2008. My baby lives for only 9 days. The doctor diagnosis my baby as borderline premature with spesis and meningitis. Spesis & meningitis??? I wonder how my baby infected with it. Everytime I went to the NICU room to see him, i feel so sad.... I can only hope miracle could happen to my baby. Now, I still grieving for my baby lost. I don't know how to cope with this lost until I found this site. It really help me alot.
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jsheamiller
- Nov 11, 2008 8:55 pm
(#18 Total: 50)
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Hello!!
Hello to all
I am new here and I wanted to say hello. This is just a little bit about me. I am the mother of boy girl twins who were born at 25 weeks in May of 2008. My son was in the NICU for 4 months and my daughter 3 months. I learned a lot during that time and realized also how blessed I am. Two years before I had my twins I gave birth to my 1st daughter at 22 weeks she lived for an hour and there is not a day that my husband and I are not thankful for that gift. She went peacefully in my arms and the only thing she ever knew was love. I hope to meet people who know what it is like to have a child born so early.
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lilmelt
- Nov 12, 2008 3:45 pm
(#19 Total: 50)
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hello
My son Ke'Shawn was born on October 19,2007, and he was a twin his twin De'Shawn died while was pregnant with them. After his birth Ke'Shawn was in the NICU for about four and half months and during those months was a hard road for him. When Ke'Shawn was born he had alot of problems and in November he went into to kidney failure. Now he is 1 years old and is still having problems in and out the hospital. In April of 08 he had to get a GJ tube put in because he wasn't eating any more, then in August he had to get a Trach put in because he was having problems breathing on his own.
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rydian9
- Nov 12, 2008 3:49 pm
(#20 Total: 50)
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hello
Hi! I am a mother of three boys - my youngest born Oct 8th at 25 weeks 3 days gestation. We are still in the NICU - just looking for some more support. 
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Josiahsmama
- Nov 12, 2008 10:29 pm
(#21 Total: 50)
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Hi, I'm Lisa I delivered 10/19 due to PPROM at 25 weeks my son Josiah Kayd was born he was in the NICU right away he lived for 13 hours and 1 minute, but his little body wasnt ready for this world. It is unfrtunate to meet you all this way but a blessing to have the support
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slquiroz
- Nov 13, 2008 10:49 am
(#22 Total: 50)
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New Member
Just wanted to say hello and take a moment to introduce myself. My name is Stephanie and I am the mother of 3 wonderful children, the youngest a preemie. Her name is Molly and she is now 15 months and doing wonderfully. So well that at times it is easy to forget how small and fragile she once was! Molly sees a variety of therapists to assist with her development and is prone to respitory related illnesses. She has the most beautiful smile... 
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Angel Love
- Nov 13, 2008 2:41 pm
(#23 Total: 50)
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I just wanted to take the time to Welcome each of you to Share! I hope that you find friendship, support and comfort here on the site. Any time you need to talk, we're here... Tracy 
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Tamatha Boudreaux
- Nov 14, 2008 2:18 pm
(#24 Total: 50)
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Hi
I'm new to this sight and I need some support. I have a premature child in NICU. I would like to chat with others.
 100_1060
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Angel Love (Nov 14, 2008 2:22 pm)
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Angel Love
- Nov 14, 2008 2:22 pm
(#25 Total: 50)
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Replying to:
Tamatha Boudreaux (Nov 14, 2008 2:18 pm)
Hi: I'm new to this sight and I need some support. I have a premature child in NICU. I...
Re: Hi
Welcome to Share!! I'm so glad that you have found Share. This is definately a place where you can find others who know what you're feeling and can offer support. We're always here....
Congratulations on your sweet baby!
Tracy 
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kaikanelee1
- Nov 14, 2008 11:49 pm
(#26 Total: 50)
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New to the blog, Veteran to the game
Hi everyone! First off, I'm so sorry to hear about your loss and I send my blessings to your families.
I'm new to the blogging thing, but I've been a mother to preemies 3 times! I had a 36, 24, and 27 weeker. All boys! I thought blogging would help keep me grounded and help sort my thoughts and feelings with some respectable privacy. Everyone asks how I'm doing and I say fine, but the truth is that I'm not sure how I am. I think I'm still in shock that this could happen to me for the third time. And just because I've been there before doesn't make it any easier. I guess I just wanted to vent without the inconvenience of faking a smile and saying everything is ok. Is that allowed? 
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Angel Love (Nov 15, 2008 8:09 am)
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Angel Love
- Nov 15, 2008 8:09 am
(#27 Total: 50)
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Replying to:
kaikanelee1 (Nov 14, 2008 11:49 pm)
New to the blog, Veteran to the game: Hi everyone! First off, I'm so sorry to hear about your...
Re: New to the blog, Veteran to the game
Absolutely!!! Welcome to Share! It's okay to "spill your guts" here without the weird looks or the calls to the psychiatrist. We understand the stresses and strains and the longing for a full term baby. We're always here to listen or talk any time you need us. I look forward to hearing more about these precious little boys! Tracy 
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flygirl33313
- Nov 15, 2008 9:42 am
(#28 Total: 50)
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New to Share
Hi everyone. I'm new to this site and wish I had logged on a couple of months ago while we were still in the NICU. My daughter, Ayla Joy, was born in September at 28 weeks. This is our first child and I'm looking for support on a whole range of issues, from breastfeeding a preemie to coping with the feelings that go along with a premature child. I'm looking forward to exploring the site and hearing stories and advice from others.
Thanks,
Laurinda
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heathermom4
- Nov 15, 2008 11:48 am
(#29 Total: 50)
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NICU again
Hi I'm Heather and this is the SHORT version
DD A- 38 weeks, Turners Syndrome
DS E- 30 weeks, 7 weeks in NICU
DD R- 33 weeks, 5 weeks in NICU, PDA
DD ?- due in March, know we won't make it that far
Anyone else gone through a pregnancy expecting another Preemie?
Heather
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LifeofMine
- Nov 15, 2008 4:40 pm
(#30 Total: 50)
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New here
I just found this site a week ago and I just decided to sign up. I have a daughter Anja who was a 24 weeker and she is 2 years old now. i am currently 33 weeks pregnant with my 2nd child who is a boy and we are going to name him Travis. I have been on bed rest in the hospital since I hit 23 weeks. I had a very hard time keeping this pregnancy I will hopefully be having my son in the next few weeks. I am praying he will be big and healthy.
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Angel Love (Nov 16, 2008 9:47 am)
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