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Pregnancy after an Anencephalic baby

krissy4 - 06:36am Apr 18, 2009 EST

I am contemplating trying to get pregnant after the loss of an Anencephalic baby in October last year.
I realise that there are precautions that you can take (ie; higher dose of Folic acid at least 3 months before conception) in order of preventing Anencephally- i also know that after having a baby with a neural tube defect the risk is higher of having another baby with a neural tube defect.
I am interested in hearing any stories of woman being able to conceive and deliver a healthy baby after losing a baby from a neural tube defect.



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Angel Love - Apr 18, 2009 7:11 am (#1 Total: 16)  

Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!!  

Welcome to Share!

I'm so sorry to hear of your loss. I don't have experience with this situation, but wanted to let you know that we're here to listen if you ever need to talk or vent. I hope that the drs. are able to give you more information regarding future pregnancies.

Tracy

KHolley - Apr 20, 2009 9:16 am (#2 Total: 16)  

 

I am so sorry for the loss of your baby. This is a great place to find comfort and healing.

Welcome.

Katie

2 here 2 in Heaven - Apr 22, 2009 8:50 pm (#3 Total: 16)  

Surviving 26 week triplet...2 angels, & a 36 week singleton.  

Welcome to Share. I am so sorry for your loss.

You may want to consult with a Perinatologist before becoming pregnant again. This is a high-risk OB. They can go over your past history and form a plan for a future one. Many of them also have a genetic counselor on staff, which could give you a more clear look at statistics. Best of luck to you.

Shonda

goodman2009 - Apr 29, 2009 10:29 am (#4 Total: 16)  

 

Hello

I have just had a son who died Anencephally just 3 moths ago and I have to say that this is the hardest thing that me and my Husband have ever went through because this was my first chid and I know what you going through, and its hard and heck

goodman2009 - Apr 29, 2009 10:31 am (#5 Total: 16)  

 

Hello

I have just had a son who died Anencephally just 3 moths ago and I decided to carry him full term and I have to say that this is the hardest thing that me and my Husband have ever went through because this was my first chid and I know what you going through, and its hard and heck

krissy4 - May 8, 2009 9:49 pm (#6 Total: 16)  

 

just wish i knew what i wanted... Part of me tells myself that i am selfish and should just be happy with the 3 children i already have, another part of me thinks that i will never be able to move on in life if i do not have another baby, i am 30 years old in July i promised myself a long time ago that i w ould not have any more babies after 30, so that is another thing that is going on in my head, the age barrier although i know that 30 is still young, if it takes a while to get pregnant who knows how old i will end up with a new born, i knew there was a reason why i started having children young i just hope that it wasn't because of this.
at 1st i said i would never ever get pregnant again i was getting out of hospital and going straight to my gp for a referal for tubal ligation - i was advised that this would be a mistake, i thought what would they know and that there was no way that i was having another baby but yet here i am 7 months later and i have not gone to my gp for that referral i just wish that i could see down the track and know now what the right choice would be.

[Last Editor: krissy4, May 8, 2009 9:52 pm. Total Edits: 1]

Kelly Pracchia - May 11, 2009 7:55 am (#7 Total: 16)  

 

Re: Pregnancy after an Anencephalic baby

I lost my daughter seven months ago, 10/6/08, she lived for a week in the NICU, she died of an infection. I, too, am really wanting to have another baby, but am so scared. I agree with you, I don't think I'll fully get over this unless I have another baby, but then I think I should be happy with the two living I have. I'm so torn, my husband is reluctant to try again, he's also so scared. I totally know where you are coming from.

Kelly

goodman2009 - May 12, 2009 12:14 pm (#8 Total: 16)  

 

Hey and I just want you to know that I complety understand where your comming from, b/c I lost my son just 3 months and I want to have aonther but I'm not sure if I'm ready to start, b/c my dontor said the same thing, that I would have to take folic acid 6-7 before we start to even have children and that the chances are less that 3% that this could happen again, so I like I said I'm right there with you.

RObin

Grace's Mom - May 12, 2009 1:02 pm (#9 Total: 16)  

^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day! (I HATE PH!)  

Hey Robin,

I have been thinking about you! I couldnt get to your myspace page the other day and I tried today and couldnt again. I may have to delete you and re-send a friend request to you to see if that works. I am waiting on a message back from Tom Anderson to see if he can just fix the problem.

Just wanted to let you know I was thinking about you and your sweet boy. I hope you had a peaceful Mother's Day.

Take care,
yolonda

Replies to this message
  • goodman2009 (May 12, 2009 7:22 pm)


  • Katelyn'smom - May 12, 2009 1:17 pm (#10 Total: 16)  

     

    Oh Krissy, I am so sorry. I wish I had an answer for you. I personally do not have any expereince with loosing a child, but did want to let you know that I am thinking of you and hoping for the very best outcome if and when you decide to try again. Please do keep us posted.

    Love, Kelly

    goodman2009 - May 12, 2009 7:22 pm (#11 Total: 16)  

     

    Replying to: Grace's Mom (May 12, 2009 1:02 pm)
    Hey Robin, I have been thinking about you! I couldnt get to your myspace page the other day and I...

    Re: Pregnancy after an Anencephalic baby

    Hye girl its just me Robin, and I still have you on my myspace and I hope that you had a blessed Mothers Day, I had on Ok day MY husband took me to Wal-Mart and bought me a 2GB MP3 player and I have to say that I love my MP3 player, still figuring out how to put music on it though, but anyways I hope that you have a rest of the week, I have a coucler comming by the house Friday so other than that I have no plans. But all next week I will be on the road with my Husband.

    goodman2009 - May 12, 2009 7:26 pm (#12 Total: 16)  

     

    Hye Krissy, I'm right there with you and I know what you are going through, b/c me and my husband just lost our son Christian James just 3 months ago and we are in the same situation and that is one of my biggest fears, will this happen again???? and the doctors have told me that I have less than a 3% chance, but I'm still scared

    Robin

    krissy4 - May 15, 2009 5:38 am (#13 Total: 16)  

     

    I have been feeling quite good recently and have decided since i am the absolute QUEEN of unplanned pregnancies - that next week i am going to see my doctor about a script for the high dose folic acid - still not sure whether i will be trying for a baby but i think it would be sooooo much worse if i fell pregnant without trying and without taking precaution of the defect reoccuring - especially as just taking folic acid daily can reduce the chances.

    Sorry for sounding irresponsible in regard to unplanned pregnancies.............but it runs in my family, my mother fell pregnant with 2 different IUD's and still got pregnant after tubal ligation???

    goodman2009 - May 15, 2009 7:14 am (#14 Total: 16)  

     

    Hye

    I know B/c right now I think that I might be and I'm realy scared that I might be b /c I can not go through this again, and I'm not sure what will happen

    Replies to this message
  • krissy4 (May 15, 2009 4:58 pm)


  • krissy4 - May 15, 2009 4:58 pm (#15 Total: 16)  

     

    Replying to: goodman2009 (May 15, 2009 7:14 am)
    Hye: I know B/c right now I think that I might be and I'm realy scared that I might be...

    Re: Hye

    Robin
    It is so sad that such a beautiful experience is clouded by fear - please try to be positive. i do hope that you are!!!! and i do hope that you have a successful outcome.
    If it is any consolation- my son was Anencephalic but previous to him i had 3 beautiful normal perfectly healthy babies- so eventhough we were in the unlucky 1% with our previous pregnancies- we are able to produce normal healthy babies.
    Try to think positive - take your folic acid, stay strong and keep good health and most of all DO NOT LOSE HOPE.

    goodman2009 - Jun 22, 2009 9:26 am (#16 Total: 16)  

     

    hye

    Hey I'm now taking the Folic Acid and I hope that it works and I know that i have less than a 3% chance of this happing again, and I'm ready to have another, but me and my Husband will start some time next year, but for now we are taking all precautions and being safe. and I hope that all goes well becasue I can go through this again, this is hard enough and to go through it a 2nd time, well i would have to be commited



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