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WELCOME, GUEST |
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(2 members)
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GABYMENDEZ6 |
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theAgirls6 |
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High blood pressure-need advice!YummyMummy - 11:49am May 2, 2009 ESTPrincess Sophia (25 wks)I am writing this on behalf of my friend, who is also a mother to a premature child. Her son was born 14 weeks earlier and is 20 months old now. He is doing well and is right on target for his milestones for his corrected age. However, all among other "preemie"things he had along the way, he developed a high blood pressure right before he was ready to go home from the NICU. He has been on the medication to correct his blood pressure ever since and can not BE without it. His mother has been struggling to find answers to why this is happening to him, but had been unsuccessful so far. The doctors seem to just hope he will eventually grow out of it and don't try to get to the bottom of it. She is my good friend and I trust her judgment when she is worried that there might be something more to it than just "growing out of it". They've done all possible tests(kidneys, MRI's e.t.c.) and they all came back normal. I was wondering if anyone here had the same problem and maybe can give us any input on this situation? Thank you for listening!
Angel Love
- May 2, 2009 12:34 pm
(#1 Total: 4)
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Hmmm....that's a challenge! I don't have experience with this situation, but I'll check with those at the MOD office to see if they can offer any insight. I hope that your friend is able to find the answers that she needs for this sweet little boy. Tracy 
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Sammy V's mom
- May 6, 2009 8:15 pm
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My little boy has also suffered from hypertension. He was 3 months old when he was diagnosed with it. His kidney ultrasounds were also normal, but it was believed that it was due to tiny blood clots in his kidneys that were caused by his umbilical artery line. We were told that about 10% of preemies suffer from hypertension. We were even told that babies that have a traumatic birth experience (premature birth) have a more difficult setting a baseline for their blood pressure. We were told that he would most likely outgrow it around 1 year of age, but we treated him daily until then.
When he turned one, he did seem to outgrow it, but has continued to have difficulty regulating it. He would drop extremely low and then also have extreme highs. He was later diagnosed with dysautonomia and then later with mitochondrial disease. It is unsure now if his early hypertension was due to his disease or if it was from kidney damage from the umbilical artery line.
He now is 2 1/2 and we are now treating hypertension again!
I hope your friend can find answers. I just know that our renal doc was not alarmed by my little boys hypertension. He seemed to think it was fairly common in preemies.
Missy
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YummyMummy
- May 7, 2009 9:43 am
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Thank you for your replies! It's true, to get to the bottom of it is almost impossible, when so much was done medically in the beginning to save their lives.. benefits vs risks,, i guess my friend just hopes her son will outgrow it eventually and won't have to be on this medication for the rest of his live. 
Missy , I hope your boy is doing better !
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Katelyn'smom
- May 12, 2009 12:46 pm
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I am not familiar with the high blood pressure dilemma, however wanted to jump in and let you know that I will be thinking of your friend and her little boy. I'll be interested to see what the findings are. Keep us posted.
Love, Kelly
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