You have guest access to browse, login, or register.

WelcomeAboutShare With CareHelp
Share Your Story. Participate in online discussions about premature babies, start a blog, or just meet other NICU families. March of Dimes  
HomeCommunity CenterShare Your StoryParent to ParentGet Involved
 
SHARE HOME >  SHARE YOUR STORY >  ALL SHORT STORIES >  SHORT STORY ARCHIVES - 2006

NICU babies DO get older!

SueKlein100 - 08:56am Jun 23, 2009 EST

My story may seem odd for some of you. My NICU baby is now almost 26 years old! I had toxemia and he was born at 32 weeks - not his choice. I 'crashed' and had to be iced down as they did an emergency cesarean. When I came out of the anesthetic, no one could tell me about my baby- my Karl. (I didn't realize that these were RECOVERY room nurses- caring about me- not the NICU nurses who cared for Karl). I thought he had died and no one was brave enough to tell me.

After several hours of increasing anxiety on my part, they finally brought me a polaroid (yes, we used those then) of my son. My baby. I was overcome with relief and love.

Karl weighed in at 5 pounds, 6 ounces- even that early. However, he had no sucking reflex at that age. He stayed in an isolette (incubator) for 4 days until he could keep his own body temperature up. He was fed with a 'preemie nipple' on a 3 ounce bottle. The formula just poured out if you turned it upside down. (I had little milk since it was so early). Poor Karl could only drink about an ounce, and then he would fall back asleep - happy that his tummy had something in it.

After 5 days, he was "graduated" to a "continuing care" nursery. He was in a normal cradle, and swaddled. We had to wear isolation gowns to go in and hold him.

During those days, I despaired that he would EVER get to be a full-grown child. He was our first baby- and it seemed like he would be in this 'state' forever. What really cheered me was the photos on the NICU wall of kids that were now older. Some looked HUGE- at 10 or 12 years old.

I know it seems silly - but, I was so worried and upset - seeing those kids actually grown made me determined to remain positive for Karl's future. We finally were able to take him home after 10 days. He had to be able to drink 3 ounces at a sitting first. (his Dad would tickle his feet and twirl the bottle in his mouth to keep him awake!)

Well, now Karl is almost 26. He is engaged and will be married in September. He is 6 feet 5 inches tall and over 200 pounds.

I hope this story helps someone see that NICU can be the beginning of a great life for a baby!



  OutlineAll MessagesOlder ItemsOldest ItemsNewest ItemsNewer Items

Angel Love - Jun 23, 2009 11:12 am (#1 Total: 5)  

Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!!  

Welcome to Share! Thank you for sharing your success story with us!! Some are still battling those uncertain days in the NICU and to some the memories are still so fresh that it's scary. I'm sure that you just helped many worries disappear!

Congratulations on the upcoming marriage!!

Tracy

Akeelah's Mommy - Jun 24, 2009 2:49 pm (#2 Total: 5)  

A moment in our arms, a lifetime in our hearts.  

What an uplifting story! I'm so glad you shared. I'm sure it will raise the hopes of many parents.

Lauren

Mom2Preemie - Jun 25, 2009 6:27 am (#3 Total: 5)  

 

Thanks for sharing! Great to hear how well Karl has done! My mom was actually a preemie---she was 3 lbs and is now 66! My daughter is a preemie (now a healthy active 16 mth old)---so important to share the success stories!

Congrats on the upcoming wedding too!

KHolley - Jul 2, 2009 2:06 pm (#4 Total: 5)  

 

Thank you for sharing your story! It is so nice to hear a success story for parents that have older preemies!

Katie

kristina - preemie mom & former ICU RN - Jul 4, 2009 6:06 pm (#5 Total: 5)  

26 weeker with bilateral grade 4 IVH  

Wonderful story. Thanks for sharing. Congratulations on the up coming wedding.

Best Wishes,
Kristina



  OutlineAll MessagesOlder ItemsOldest ItemsNewest ItemsNewer Items


To post, please login or register.



 
We are pleased to provide a forum for sharing, and remind everyone that the viewpoints, opinions and actions expressed here are those of the individuals themselves, and may not reflect March of Dimes policies or positions. Information on this site does not take the place of guidance from your health care provider. Always verify information with your health care provider before taking action. Any messages or stories shared on this site may be used in other March of Dimes marketing activities.

Donate now!