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Our son Brady Allen

bradyam09 - 09:25pm Oct 15, 2009 EST

I received a phone call on a Tuesday afternoon, from the nurse at the doctor's office telling me that my test had come back with a high percentage rate of my baby having a neural tube defect. Honestly, I had no clue at the time what that meant. I was told I had to go to a local hospital and have a 3-D ultra sound done that Thursday to make sure and the doctor will explain it all. That Thursday, my husband, our daughter, my mother, and myself all went to the hospital. During the ultra sound, the baby was moving and kicking all around and looked as if he was having a ball inside. That is when we found out he was a boy and our daughter named him. The doctor came in to explain to us that our son will not make it because he has a rare condition called anencephaly.
 Anencephaly is a condition present at birth that affects the formation of the brain and the skull bones that surround the head. Anencephaly results in only minimal development of the brain. Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head.
That doctor asked us to go to another hospital for a second opinion. We did so the next day and it was true. All I could do was wait. My doctor and I discussed all about the options. No hospital would help deliver early. I was only 18 weeks along in the pregnancy. It was approximately 2 weeks after, that I started feeling more ill than normal. I was vomiting for close to 6 hours of blood and taken to the hospital. They thought it was dehydration and put ivy's all in me and filled me with liquids. After a few hours, I was sent home.
As soon as I reached home, I vomited blood again and went back to the hospital. This time I was admitted. After being treated in the hospital for a couple of days, my doctor came in and told me he had found a hospital who would help deliver our son and get me to where I am feeling well.
That day, I went to a hospital so close to home. They were willing to help. I was in that hospital for 4 days going through labor for those 4 days. The first procedure didn't work, so they repeated it. The second procedure was very painful but had to be done because on the fourth day at 2:55 in the morning, I gave birth to our son, Brady Allen McCarthy.
He was not alive when he came out. It's almost like he took his last few breaths and smiles and was gone. My husband, my mother, and I all had a wonderful, cherishing experience with Brady. We got to spend quality time with him before the nurses had to take him away. It was very hard to give our son away even though we knew he was already gone.
 



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Akeelah's Mommy - Oct 16, 2009 12:17 am (#1 Total: 14)  

A moment in our arms, a lifetime in our hearts.  

Welcome to Share. I am so sorry to hear of the passing of your sweet little Brady. I'm so thankful to hear that you had such cherished moments with him.

Share is such a wonderful place to be surrounded by those who understand. I hope you find peace and healing here as I have.

You are in my thoughts,
Lauren

Replies to this message
  • bradyam09 (Oct 16, 2009 1:15 am)


  • bradyam09 - Oct 16, 2009 1:15 am (#2 Total: 14)  

     

    Replying to: Akeelah's Mommy (Oct 16, 2009 12:17 am)
    Welcome to Share. I am so sorry to hear of the passing of your sweet little Brady. I'm...

    Re: Our son Brady Allen

    Thank you for your thought and prayers. I am new to this and have no idea how this works, so I hope you do get this. I am planning to walk in the Spring for March for Babies. However, I can not registrar yet do to my county not being on the list at this time.

    I was trying to figure out how to use this site and speak with other mothers. I don't know how to introduce myself. Like I said before, I am new at this so please bare with me.

    Kimora

    bradyam09 - Oct 16, 2009 9:09 pm (#3 Total: 14)  

     

    My little guy

    7 oz. 8 in. long


    Brady M


    Brady M


    DSCF3895

    KHolley - Oct 20, 2009 11:11 am (#4 Total: 14)  

     

    Welcome to Share. I am so sorry for your loss, it is a pain that no parent should ever have to feel. I hope that you are able to find some comfort and healing here. Thank you for sharing your pictures.

    Katie

    Replies to this message
  • bradyam09 (Oct 20, 2009 11:31 pm)


  • ^Trinity's^ Mommy - Oct 20, 2009 12:06 pm (#5 Total: 14)  

    Mommy to Jadon 34 weeker and Trinity our angel!  

    Welcome

    Welcome to Share, Im soo sorry for your loss I know as a parent of an ANGEL how hard this is for you! I hope you find all the comfort, love, and strength you need on this web site! SHARE has been my life line for the last three years, please know you are not alone! We are always here!

    Lots of Love
    ~Samantha

    Replies to this message
  • bradyam09 (Oct 20, 2009 11:36 pm)


  • bradyam09 - Oct 20, 2009 11:31 pm (#6 Total: 14)  

     

    Replying to: KHolley (Oct 20, 2009 11:11 am)
    Welcome to Share. I am so sorry for your loss, it is a pain that no parent should ever have...

    Re: Our son Brady Allen

    Thank you. I am still trying to figure this site out. I am planning to walk in memory of Brady next April and I would love to be involved in the March of Dimes organization. Again, please bare with me, I am still working on it.

    Thanks again,
    Kimora

    bradyam09 - Oct 20, 2009 11:36 pm (#7 Total: 14)  

     

    Replying to: ^Trinity's^ Mommy (Oct 20, 2009 12:06 pm)
    Welcome: Welcome to Share, Im soo sorry for your loss I know as a parent of an ANGEL how...

    Re: Welcome

    Thank you for your thoughts and concerns. I am new to this site so I am still trying to figure all this out. Please bare with me. I would like to communicate with other mothers who have been in the same situation, I myself, had been in. It's interesting and to be honest, I never knew what Brady's condition was even about until it had happened to myself. Nothing can really prepare you for this. Honestly, I looked at pictures of other babies before I had Brady and I had nightmares. Brady did not turn out to be anything like some of these pictures on the net describe or show. He was perfect in every way. It was so amazing how every little detail was there.

    Thank you,
    Kimora

    chantelle (baby ashleys mummy) - Oct 21, 2009 12:42 am (#8 Total: 14)  

     

    Im so sorry for the loss of your son,Brady and thankyou for sharing such precious pictures,he is beautiful...i know the pain you are experiencing as i too lost my son,ashley in january...my thoughts are with you...hugs..chantelle...

    Page's7 - Oct 21, 2009 6:38 am (#9 Total: 14)  

    Mom to Bethany-14(39w5d), Grace-10(35w5d), Luke-9(28w5d), Nora-2(34w3d)  

    A friend of mine lost her baby to anencephaly earlier this year. I'm so sorry for your loss... I hope that you are able to find support and comfort here at Share as you begin this new journey as the parent of an angel.

    Beautiful pictures, thank you for sharing your sweet boy with us.

    ~Page

    [Last Editor: Page's7, Oct 21, 2009 6:42 am. Total Edits: 1]

    Replies to this message
  • bradyam09 (Oct 28, 2009 10:40 pm)


  • bradyam09 - Oct 28, 2009 10:40 pm (#10 Total: 14)  

     

    Replying to: Page's7 (Oct 21, 2009 6:38 am)
    A friend of mine lost her baby to anencephaly earlier this year. I'm so sorry for your loss... ...

    Re: Our son Brady Allen

    It was hard for me to understand for a while. Honestly, I wish Brady would have lived a little while longer. However, I just know it would've been so much worse had he. MOD is like a healing process for me that I just decided I really wanted to make a difference for other people. No parent should have to go through loosing a child, but unfortunately, it does happen. You never think it would ever happen to you until one day it comes knocking on your door. Anencephaly is very rare. We were told it happens to babies 1 to 2 times a year. I don't know if that is true or not. I still haven't heard too many stories so when I do, it's interesting. I feel there should be more research out there because all the research I have found about it pretty much says the same thing. I just know in my heart, there is more reasoning. If that makes any scenes?

    Thank you for replying,

    Kimora


    GglS-103-1

    Replies to this message

  • Whosures (Oct 29, 2009 11:01 am)


  • Whosures - Oct 29, 2009 11:01 am (#11 Total: 14)  

     

    Replying to: bradyam09 (Oct 28, 2009 10:40 pm)
    Re: Our son Brady Allen: It was hard for me to understand for a while. Honestly, I wish Brady would...

    Re: Our son Brady Allen

    Kimora,
    I'm so sorry for your loss. I'm glad you have beautiful pictures and memories of your time with him.

    Please consider starting a blog. It's a wonderful way to journal. Feel free to message me if you have any questions.

    Julie

    Presleysmommy - Nov 3, 2009 10:26 pm (#12 Total: 14)  

     

    Thank you for sharing your story, and posting pictures of your beautiful boy, I just lost a daughter to the same birth defect but did not get to see or meet her, seeing Brady gives me a little glimmer of what my little girl may have looked. I had never heard of this birth defect before my little girl, so it helps to know that others have experienced the same loss.

    Replies to this message
  • bradyam09 (Nov 5, 2009 10:12 am)


  • bradyam09 - Nov 5, 2009 9:56 am (#13 Total: 14)  

     

    The Holidays

    Thanksgiving, I am thankful to have angel that I helped create, watching over his family. We love and miss you Brady Allen.

    It's that time again. My daughter, Riley Nichole and I listened to Christmas music today ( yes, there are 50 days til) and did some decorating. Not a whole lot, but some. It was so much fun. While putting up the stockings, I realized we needed one for Brady. So this year, he will get his own special stocking that we will hang every year. I also would like to have a Christmas tree outside in his memory too. I spoke of this to my husband and he liked my idea. I hope we will do it this year. I don't want nothing huge, just a tree (fake/real), that we can decorate and put his outside stones under just for him. It will be something that he can look down from Heaven and see lit up each night and know that is just for him.

    We will never forget you son.
     


    Riley Christmas card

    bradyam09 - Nov 5, 2009 10:12 am (#14 Total: 14)  

     

    Replying to: Presleysmommy (Nov 3, 2009 10:26 pm)
    Thank you for sharing your story, and posting pictures of your beautiful boy, I just lost a daughter to the...

    Re: Our son Brady Allen

    I am so sorry you too, had to experience that same thing. I had never heard of such a thing either til Brady. I am so sorry that you never got to see your little girl. That breaks my heart because I know what it was like to be able to see Brady and spend time with him even though he was already gone. It was so special and honestly wouldn't have it any other way. My doctors warned us about what was going on and we needed to see pictures on the internet and do some research. I did look at pictures. However, they looked nothing like what Brady did. Doctors told us to think of him as a baby and not a monster because there are pictures on the net that are not what we were going to experience and our son was not going to look like some of them.
    It is so interesting to know there are other people out there who have experienced this as well. It makes me want to hear more of their stories. I just don't understand why there isn't enough research out there to help prevent this. We just may never know.
    The holidays are coming up and I do have a 2 year old little girl getting ready to turn 3 at the end of this month. I want this year to be even more special just because it will be in memory of Brady.

    Please write me back, I would love to hear from you.

    Thank you,

    Kimora



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