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WELCOME, GUEST |
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(2 members)
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momtobe336 |
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lvazquez6 |
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TRACHEOTOMY IS A BLESSING IN DISGUISE!
melicolon27 |
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| Category: Home | Sun | Mon | Tue | Wed | Thu | Fri | Sat | | | | 1 | | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | 11 | 12 | 13 | 14 | 15 | 16 | 17 | 18 | 19 | 20 | 21 | 22 | 23 | 24 | 25 | 26 | 27 | 28 | 29 | 30 |
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SAD DAY!
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Mar 23, 2010 07:46pm (EST)
Well it's been a very long time since I last Blogged and within that time so many things happened I feel now looking back that my life belonged to someone else. This will not be a long blog but I felt it important to inform friends who have been checkin gup that my beautiful sweet girl past away March 7, 2010 @ 545pm. The reason is still in question, the death certificate says death by ammonia however because the medical examer was not pleased with the fact that the hospital gave two different reasons until the third was ammonia I was advised by the funeral home to make sure I have a trusting doctor or lawyer read the autopsy which my husband & myself both requested. It's very difficult to type and not cry which is not working right now so in time I will be back to give updates until then xoxoxoxoxo all my love!
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Posted by melicolon27 | Comments: (4) | Permalink
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ANNOYING
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Jan 20, 2010 06:08pm (EST)
So Tuesday came and left and Esme did not get the G-Tube I get into the hospital on Tuesday morning expecting to see the surgeon and give authorization for the G-Tube produce however when I get in Esme is as pale as a ghost and her vent settings not changing one bit (still very high). So she gets there and I'm already annoyed having gotten a phone call for a telephone authorization when I clearly told them I will be there at 9am please do not call me because I freak out 99% of the time when I see the hospital number and what did they do that's right they called me sometime I'm not sure these people have much storage in the heads for common sense anyway she tells me that with the vent settings are the level they are she feels uncomfortable opening up her abdomen because in her opinion she won't make it through the surgery basically I feel Methodist has the worst communication amongst doctors it's ridiculous because for an entire week the NICU doctors were telling the surgery team Esme was fine and all was good when I haven't seen my daughters settings change since New Years so I'm lost I have no faith in the NICU doctors I have faith in my daughters strength but not in the hands she is in I have a long weekend ahead of me I will start looking for some other place for her whether it's close or far another hospital to give her a chance at life God choose me to be Esme mother and as her mother I can't give up if by chance she has to stay at Methodist a little longer I will continue to fight to change things for her I have too 
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Posted by melicolon27 | Comments: (1) | Permalink
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IT'S BEEN A WHILE....
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Jan 16, 2010 06:29pm (EST)
Well its been awhile things for the end of the year were a bit crazy and Esme being in the NICU was not helping at all....on 12/22/09 I get a call from one of the NICU doctors saying hello your daughter seems to have MRSA so now we have to isloate her (okay well it wasn't like that but it seemed like thats how they said it) and I was freaked here I heard MRSA and I said oh no she will have open swores and other things I have heard about MRSA but it wasn't even close to that she was just isolated and put on meds of course but she had only FLU like smytoms that was all now she is getting better. So we are waiting for her G-Tube surgery to get done after this long wait I hope it's this week like they said but then again they said that three weeks ago and every week since then =-( let's see! I was told that after she gets the G-Tube done they will proably be able to adjust her settings to low ones I really hope so I pray for her to go to REHAB like ASAP!!!!! I just feel for these babies like why does this happen and if so can they just please catch more breaks it kills me to see what not only my baby goes through but the other babies in the NICU it's like we have overstayed our welcome in the NICU now it's time to move.
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Posted by melicolon27 | Comments: (3) | Permalink
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MERRY CHRISTAMS & HAPPY NEW YEAR!!!!
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Dec 26, 2009 10:46pm (EST)
Well it has been some time since I have blogged about my little critter, she is well right now she has been through many rough patches since I last updated everyone. Infections as always and now she has MRSA it's like Esme wants to have her fun before the new year because she knows she has to keep up her end of the deal so lets see how that works. Her deal being she gets better and does her part and when she comes home I will spoil her just as much as her big sis is spoiled.
Backing up a bit THE FAMILY MEETING well didn't go anywhere in fact the doctor upset me & my husband so much I had to go to patient relations and request a hospital family meeting that went okay. So far much hasn't been able to get done because of the hoildays so lets see after she gets over this MRSA!!! Whats is suppose to get done we all agreed that she needs rehab however we also agreed that she needed to go somewhere closer because I will need to learn how to take care of her and westchester was just not an opition. I have come to terms with it and I totally am making an effort to be ready for the day she goes to rehab because yes I do want her closer but the truth is there is no rehab in my brough so I will have to travel so that being said it may take me not seeing her everyday and I am sort of okay with that because I know that this is what she needs to get better and I want her better and well the end result of her being home will be worth the time apart. A very good thing about rehab will be that when I do get to see her I will be able to bring her big sis along and I know her big sis will be happy about that, it's been very hard on her knowing that her sister is sick and she can't even see her. Well that all being said I would like to wish you all
MERRY CHRISTAMS & HAPPY NEW YEAR!!!!
XOXOXOXOXOXO, FROM MY FAMILY TO YOURS!!!
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Posted by melicolon27 | Comments: (5) | Permalink
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TOMORROW'S A BIG DAY...
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Nov 18, 2009 06:08pm (EST)
Well tomorrow is a big day I will sit down with 2 of the NICU doctors I hope we can all come to some sort of an agreement as far as Esme's living arrangements. As you may know I want to bring her home and the NICU wants to send her off to a Rehab I hope we can come to some compromise. I have been doing some research about having a child home on life support and I can say it's not going to be easy but I don't know what I can handle unless I try I feel like as if I don't try I am giving up on her and that's unacceptable. Then there is a choice of sending her to a rehab that is basically unteachable for me is really not a choice I hope something else is do-able......
Any who wish me luck that something great comes out of this meeting hope you all have a great day!!! I will try to update after the meeting or at least by the weekend if not...
HAPPY THANKSGIVING!!!!
XOXOXOXOXOXOXOXOXO
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Posted by melicolon27 | Comments: (3) | Permalink
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HAVING A BAD MENTAL DAY.
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Nov 12, 2009 09:09pm (EST)
So Esme is 19 weeks old today and I feel like the NICU where she is at isn't pushing for her progress, they want to perform two surgeries on her and once she recovers they are hoping to transfer her to a rehab center. I've been researching to see if I can bring her home instead of her going to a rehab center even if it's possible. The rehab center is very far away it would take me 3 1/2 to 4 hours just to get there so about 8 hours in total of a daily commute. The thing is I would be ok with it if Esme was an only child but she's not and it's killing me just to think about it, I find myself crying and asking why did this happen. Was it because I wanted a baby so bad I push to get pregnant I really did then I fought with my husband so much because I felt like he didn't want her even when I was pregnant was it that was it because I rushed through everything I don't know. I feel so stressed out I feel like my daughter is never going to come home, I feel like also because I haven't had very good experiences with family members going to rehab centers and coming home they always end up staying there. I am not ready to give up on Esme I don't think I ever will be she's my baby and she belongs with her family. She's a daughter, a sister a grand baby, a niece etc etc....I'm venting again it hurts and I just feel so lost sometimes. I want to have a chance to be a family with her I'm not being giving that I feel like I'm being treated poorly because I don't go into the NICU flipping out and telling off the nurses and the doctors because it seems to me that those parents that do so get better results. Truth be told that's who I am but this experience has made me want to take a different approach to things so I decided to tone my mouth down so I don't scream at any given moment when something upsets me at the NICU instead I smile question and nod. I think I've been going about things all wrong again I just don't know any more, the only thing I am sure of is Esme health wise is getting better and I want to bring her home I hope and pray its possible.
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Posted by melicolon27 | Comments: (4) | Permalink
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6 DAYS AWAY FROM MY ANGEL
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Nov 10, 2009 08:49pm (EST)
Ok so I sprained my ankle last Tuesday went to see Esme Wednesday was told by the doctor that I had to stay off of my feet or I might fracture my ankle so I do. I finally go to see Esme today 6 days later and I had to walk into a not so pretty sight, Esme has a horrible diaper rash HORRIBLE!!!! I see flesh and I am so upset, here I put my trust into the nurses & doctors in the NICU because I can't even show up and my child's rash looks so very painful!!!! They say parents needs breaks ok understandable but my goodness it's issues like this that make a parent want to camp out by your babies beside. Other then that Esme is fine which is the bright side to things. I just needed to vent, thanks for listening (reading lol)!
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Posted by melicolon27 | Comments: (5) | Permalink
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NEED ADVICE
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Nov 07, 2009 04:39pm (EST)
Ok so here goes as you know Esme has a trach tube, now the doctors threw two idea's my way. First of a G-Tube the second is of sending Esme to a rehab center until she is ready to go home.
However, some nurses are telling me privately that other hospitals send babies home on the vent connected to the Trach with a G-tube and in some cases with more things. However the NICU where Esme is at doesn't so instead they are throwing the ides of sending her to a rehab center. I am not in agreement with the Rehab center idea the G-Tube sure if it is needed then ok but I resigned from work to devote my time into taking care of Esme and my older child. I feel that if we can get early intervention and a nurse service to come to the house once a day or every other day it's manageable at home.
So please if you have any information that you would like to share please do, I do appreciate it.
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Posted by melicolon27 | Comments: (7) | Permalink
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