You have guest access to browse, login, or register.

WelcomeAboutShare With CareHelp
Share Your Story. Participate in online discussions about premature babies, start a blog, or just meet other NICU families. March of Dimes  
HomeCommunity CenterShare Your StoryParent to ParentGet Involved
 
SHARE HOME >  PARENT TO PARENT >  FAMILIES WHO HAVE LOST A BABY

Frustrated...

ajy - 08:20am Feb 8, 2010 EST

Can I just say that I am extremely frustrated with the lack of resources or information regarding infant loss. I search through different web sites, blogs, etc. not a lot of hits or no one has responded in years... Granted I know most times than not babies live go home and everything is great. But what about those moms who have lost their baby and are going through the worst pain in their life. I keep searching but what I realized is what am i searching for. No one or thing can heal this unbearable pain. Nothing can bring me comfort. My support group only meets once a month but i feel I need more. I guess the only thing there is to do is just suck it up and bear it. That just seems so harsh for moms who really need support and cant find it. Sorry just needed to get that off my chest!



  OutlineAll MessagesPrevious MessagesEarliest MessagesRecent MessagesMore Messages

Jackie G - Feb 8, 2010 10:23 am (#1 Total: 8)  

Mom to Kimberly (25 wkr, now 6 yrs!) & Matthew (38.5 wkr, almost 4 yrs!)  

It's sad to say that you are right, no one seems to have that much info about Infant loss. It seems the subject is taboo which is just depressing.

A friend of mine who lost twins a number of years ago has highly recommended this website to a number of people. I honestly can't say I've spent time on it, but figured I would pass it along:

National Share: Pregnancy and Infant loss support

Hugs,
Jackie

lpolin2 - Feb 9, 2010 9:56 pm (#2 Total: 8)  

 

i also lost my baby.

My daughter Olive Hope, was born at 28 weeks, and lived for four months before passing away January 22, 2010. She had a grade four brain bleed that resulted in hydrocephalus. Her shunt surgery resulted in meningitis that took her life. I miss her every day. Have you read the book, "Tear Soup?" I just read it and loved it. It's short but talks a lot about taking the time to grieve that you need to, about people's expectations of you, and about finding those close friends to walk this journey with you...at your own pace. I've been blogging...rustylynette.blogspot.com and have been reading this blog of a women who lost her firstborn as well...http://thespohrsaremultiplying.com. Her daughter died last April of 2009 and if you go to the blog archives I found it helpful to read posts of another grieving mother.

Grace's Mom - Feb 10, 2010 1:38 pm (#3 Total: 8)  

^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day!  

You are so right about nothing being able to end the unbearable pain. I went to group, private therapy sessions, and church and was really dissappointed in each venue. Then it hit me, there is no quick fix. There is no one place or no one thing that is going to fix it. I have to go through it and learn to live my life with this affliction.

I certainly hope that you find what you are looking for, but until then, please know that we are all here for you!

Take good care,
Yolonda

crazylee53 - Feb 11, 2010 9:38 am (#4 Total: 8)  

 

you're not alone here!

There is no quick fix or long term fix for the feelings from losing a child or children! Just know that there are many of us on this website and anything you say here is understood. In April I am doing the March of Dimes walk to honor my girls that I lost last year. This seems to be helping me knowing I have some control over doing something (raising the money and getting my family together to honor my angels). Give yourself time and cut yourself some slack. Sending you healing thoughts. Lisa

EvanMichael1/26/10 - Feb 11, 2010 3:34 pm (#5 Total: 8)  

 

Evan in my heart forever

Its only been two weeks today since i loss my son EvanMichael he was born 1/26/2010 @ 30 wks weighing 1lb 3oz he lived for two days but on 1/28/2010 he had a pulmonary hemorrage caused from PDA and he passed. I didn't get the opportunity to feed him or just do the things that mother would for her child and I get frustrated with myself sometimes because I wonder did I visit him enough or did he even know I was there I wish I couldve had more time with him but I know everything happens for a reason and I'm relying on my faith in God to help me through this.

Replies to this message
  • Jackie G (Feb 11, 2010 5:46 pm)


  • Jackie G - Feb 11, 2010 5:46 pm (#6 Total: 8)  

    Mom to Kimberly (25 wkr, now 6 yrs!) & Matthew (38.5 wkr, almost 4 yrs!)  

    Replying to: EvanMichael1/26/10 (Feb 11, 2010 3:34 pm)
    Evan in my heart forever: Its only been two weeks today since i loss my son EvanMichael he was born...

    Re: Evan in my heart forever

    I'm so sorry about Evan. I think no matter what the situation is, you would still be wondering "what if". It's totally natural, but the what-ifs can drive you crazy. So try not to 2nd guess yourself too much.

    I hope that Share can help bring you some peace. There are lots of moms here that have, unfortunately, walked in your shoes. They are a great source of support because they truly know how you feel.

    Hugs,
    Jackie

    esg1 - Feb 11, 2010 5:48 pm (#7 Total: 8)  

    Abigail's Mom (29 weeks, 3/21/05)  

    Welcome to share. I am so sorry about the passing of your son. People here have found this a good place to vent, cry, get comfort and chat. Other people find that all of this works best in conjunction with group therapy, therapy, pastoraling counseling and tlaking with friends. I hope that you find some friends and comfort here (I know I have) and that we see you around often.

    Take care.
    Ellen

    Angel Love - Feb 11, 2010 5:58 pm (#8 Total: 8)  

     

    Welcome to Share!

    You are so not alone here!! There are too many of us who understand your heartache. Please know that any time you'd like to talk or vent your frustrations we're here to listen with understanding.

    Tracy



      OutlineAll MessagesPrevious MessagesEarliest MessagesRecent MessagesMore Messages


    To post, please login or register.



     
    We are pleased to provide a forum for sharing, and remind everyone that the viewpoints, opinions and actions expressed here are those of the individuals themselves, and may not reflect March of Dimes policies or positions. Information on this site does not take the place of guidance from your health care provider. Always verify information with your health care provider before taking action. Any messages or stories shared on this site may be used in other March of Dimes marketing activities.

    Donate now!