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I need some adviceShelly A. - 03:44am Mar 17, 2010 ESTMommy of Brady-32 WeekerI'm not sure how many people have a child with all the issues our son has, but I need some advice on feeding issues. Our son Brady is 18 1/2 months old, and has a laryngeal cleft, paralyzed vocal cords, and symetrical growth retardation. He is still drinking his pediasure from a bottle, and is still on puree food. Brady has successfully passed a swallow study a year ago, so we know it's safe for him to eat, but I would like to know if there's anyone out there who has gone through some of the same issues we are facing now. Brady still will not drink from a sippy cup on a regular basis. I leave a sippy out all afternoon on the floor while he's playing. And I always have it on the tray of his high chair during dinner. But he never picks it up to take a drink. Just he other night, he did take a few sips while playing, but that's about it. Another issue is transitioning to table food. Brady is barely able to eat a cheerio without gagging and then in turn throwing or spitting up. He is getting better with the cheerios, he has them everday at daycare, so I think that is helping. I've been trying some bread with grape jelly on, but all he does is bang it with his spoon. Brady works with his OT, and Speech on these issues, but it just seems to be taking so long. I am in need of a little encouragement, and hope that things will improve, and he can eat like a "normal" child! Thanks,
Shelly Ascherien
Jackie G
- Mar 17, 2010 4:23 am
(#1 Total: 3)
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Mom to Kimberly (25 wkr, 6 yrs!) & Matthew (38.5 wkr, 4 yrs!) |
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I don't have experience with this but I am sure there are some other mom's that do. Let me see if I can track someone down for you....
-Jackie
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esg1
- Mar 17, 2010 6:20 am
(#2 Total: 3)
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Abigail's Mom (29 weeks, 3/21/05) |
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This is a long process and patience is the key. Children with extreme eating issues often are not interested in eating b/c they feel full from their other supplements. I would just keep offering him food. I would try the puffs. They have more taste than cheerios and dissolve faster so he will get used to the idea of eating. Also wetting the cheerios helps with the choking. My daughter was/is not a big eater. For a while she loved those Gerber graduates potato dishes with vegetables and they are easy to swallow. We still have eating issues but are finally on the growth chart and patience and persistence were the keys.
Please keep us updated.
Ellen
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Grace's Mom
- Mar 18, 2010 7:14 am
(#3 Total: 3)
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^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day! (I HATE PH!) |
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Hello and welcome to Share. My daughter was not a big eater either. She had reflux, mild sensory integration issues, oral adversion, and a sensitive gag reflex. Her eating or lack thereof caused many tears. She was very protective of what went in her mouth. When she was about 1 1/2 she decided she loved mashed potatoes. So mashed potatoes was our base and slowly but surely we would add different textures of food to it although the chicken would have to be cut up into very small pieces. i would have to blend the ground beef a bit before adding it to the mashed potatoes or she would gag and vomit. Eventually we added french toast to her menu as well as mcdonalds french fries. My daughter perfered savory foods over sweets so she ate mashed potatoes or mashed red beans at just about every meal. We would boil whatever vegetable until it was soft enough to mash in with the potatoes or beans. In reality, pediasure was where she recieved most of her calories because the little she did eat was not to sustain nutrition, weight, growth or any of those things. I think you are doing an excellent job. Keep offering, that's what we did. My daughter never took to the sippy cup and we tried every brand, make and model. Her therapist even stretched a nipple over the spout and still no go. She actually went from the bottle, to a regular cup. hang in there because I know how frustrating it can be. I remember one time just crumbling in my kitchen in tears because i could not get my daughter to eat. She came in found me and said, dont cry mommy. I said i will stop if you eat something for me and with that she turned and ran down the hallway to her room  Take good care,
Yolonda
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