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WELCOME, GUEST |
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(3 members)
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daleellentiv6 |
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James SooHoo6 |
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Jackie G6 |
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Born 25 week earlier 5 weeks latertori787 - 03:48pm May 3, 2010 ESTOn March 30 th my daughter Ciara Michele was born at 25 weeks due to a low heart rate she was 2 lbs even and 13.5 inches long i was taken for and emergency c- section. after my c section i learned that my placenta had abrupted by 50% and that my daughter and i was lucky to be alive thank god that i had a OB appointment that day. well she stayed in the hospital i delivered her for a week to the day before she had any problems. but ever since they transferred her to UMC it has been a roller coaster shes was transferred because her heart rate was going up to 300 and above. all the nurses in the nicu call them her episodes because her heart rate will stay in the 130s and go right to 300 and back down the cardiologist have no idea why and she also has an arithema (where the heart takes longer to contract )she also had three wholes in her heart one being a pda which now have all closed she has a grade 2 brain bleed which have stayed the same over the last 2.5 weeks she has a staff infection in her eye and she has a staff infection in her lungs which gave her early signs of anmonnia and they gave her antibiotics to help she was on the vent of a week and then she was put on the oscillator for a week and it was a ruff week Ciaras heart rate was going to 250 the nicu team had to sedate her because she was fighting the machine and her lungs were still contracting but it seemed so long and that all my husband and i were getting was bad news the cardiologist said that the meds were helping because her heart rate wasn't in the 300 he had also told my husband and i that her heart rate being so high is damaging her body cause when her heart rate goes up her blood pressure goes down and that damaged her kidney also since the heart is pumping so fast that the heart chamber walls are getting thicker and since there getting thicken the blood that goes to our lungs to oxygenate our body she wasnt getting enough when her heart contracts the walls close completely pushing all the blood out so it takes longer for her heart to fill back up and she has two iv burns one on her hand and the other on her ankle all this happened for about a week in a half and then it was a complete turn around no arithmeas no more episodes they started feeding her put her back on the vent and they was even saying that if thinks keep going that they were going to consider taking her off all together. well that lasted about a week an a few days cause three days go it started all over again heart rates at 230 - 250 and shes not coming right back out of it. It been 12 hours 5 Hours before she comes out of it and today its been just about all day the only difference is her blood pressures been good and not dropping they put her on the oscillator again and she was taken back off today because her oxygens been good shes at about 30% some times i wonder how im ever going through this but when i go see my little girl even though she has all these tubes and wires and it just makes me want to cry and some times i do i realize that shes a fighter and shes going to keep fighting that shes going to be okay and that i have to fight with her because shes going to know if i give up...
Jackie G
- May 3, 2010 5:56 pm
(#1 Total: 4)
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Mom to Kimberly (25 wkr, 6 yrs!) & Matthew (38.5 wkr, 4 yrs!) |
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Sounds like a tough cookie you've got there.  I wish I had some great advice but I don't have any experience with this. I do remember the nicu being an absolute crazy roller coaster, some good days, some horrible ones. But don't give up hope and know that we will be here to support you in whatever way we can. Hugs,
Jackie
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CMDH
- May 4, 2010 8:32 am
(#2 Total: 4)
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Hang in there
You are being put through the ringer...but you have a fighter on your hands. Hang in there. I know every day is so very very hard but keep positive!
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Peasinapod
- May 7, 2010 11:46 am
(#3 Total: 4)
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Momma of Sky - now 6 (32 weeker), Will - 4 years old (37 weeks) and Adalynn - 21 months (37 weeks) and Ian (38 weeks) |
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Sounds like your little one is a real tough one and I am sure the NICU experience is very difficult for you. I hope your daughter is doing better soon and I hope you can find some comfort here.
Kristyn
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Davis_mama09
- Jun 2, 2010 10:30 am
(#4 Total: 4)
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My daughter was born at 25 weeks to the day. She had a rouph start and she is still fighting. She is now over 6 months old and has gotten through all of the preemie issues that are dealt with in the Nicu. My daughter is still in the Hospital for other reasons. You must have trust in your baby and that she will make it through, you must never give up hope. You will find that you have days were the room is spinning and you don't even know if you can cry any harder but trust that your baby knows your voice and if you let her know you are there she will defiantly fight for the love of her mommy. Read to her, sing to her, those are things that are key in the developement of your little one. Im so sorry for the trauma that you've been through already. I have not experienced all that you've gone through but I know the doubts that creep in and the scare of losing your new baby. I believe that dedication to my daughter has given my daughter the strength to continue in the Nicu. My idea about babies is that as long as they know mommy and family are there, they will fight. Advocate for your baby, get involved as much as you can. Ask questions, you might feel helpless in the Nicu but you can help out some with your babies care. Ask your nurses what you can do to help her help your baby. Much of this you may already know or heard but I know for myself that sometimes its good to hear reminders because you can not only loose your mind but who you are and that you are the mother of that baby. Trust me, I've been through two Nicu's too and they are three hours apart and I've been with my daughter in the hospital for 6 months straight. It is a touph and long road but keep in mind the prize, eventually if all she is is preemie then you will take her home in just a matter of months.
Remind yourself that each day is a gift and that no matter what happens your baby already loves you and will fight through what her body will allow, that means that she will fight even through what doctors will tell you she can't. My daughter is a living example of that. Also Know that it is proven typical that girls will fight for life more then boys. Doctors are puzzled by this but for those long time doctors that have been doing it for 30+years they will tell you that is what they see.
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