hannahsmommy1117
- Jan 30, 2012 3:11 am
(#1 Total: 253)
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Hello!!
I am new to March of Dimes and just wanted to introduce myself. My name is Brooke Taylor I am 28 years old from Parkersburg WV. I have been married for 5 1/2 years to Robert. We welcomed 2 amazing girls into our life on Nov. 17th (National Premature awareness day) at 24 1/2 weeks pregnant. Leah Denise came first, she was 1lb and 1oz. Hannah Jayne was our 2nd weighing 1lb 5 1/2 oz. Leah passed away 9 days later on Nov. 26th. Hannah is still in the NICU in Charleston WV and now weighs 3lbs 8oz. Its a hard road but we are making it, somehow. I would love to talk with people who have lost babies or have babies in the NICU.
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liz loschinskey
- Jan 29, 2012 10:14 pm
(#2 Total: 253)
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Hello and welcome to share! I look forward to hearing more about your precious daughter Hannah!
I too, have an angel in heaven. And We've spent 4 months in the NICU with our daughter, who is now 2.
Love and Light,
Liz
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Angel Love
- Jan 30, 2012 3:11 am
(#3 Total: 253)
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Welcome to Share!!! I'm so sorry to hear about Leah's passing and know the heartache of losing one twin. I hope that Hannah will continue with her strength and determination and will be home sooner than later. My survivor spent 2 1/2 months in the NICU and is now 8 years old! I hope that you'll continue to share Hannah's accomplishments and know that we're here to listen when you need to know that others understand about the bittersweetness of those accomplishments without Leah. Hugs to you!
Tracy 
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jfrieson
- Feb 5, 2012 4:44 pm
(#4 Total: 253)
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Hello, my husband and I welcomed our little boy jule 5 6 weeks early. He ended up staying in the hospital for 7 days although it wasn't as long as most of you it was still very hard for us! He came into is world as an amazing little gift. He was able to stay with us for about 15 minutes but then remained in the nursery for the remainder of his time there. He did have a moment where he stopped breathing which was terrifying then from that moment on he fought hard to come home. I decided to start a team because I was blessed with my healthy baby and would like to help others as well.
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lvazquez
- Feb 5, 2012 4:53 pm
(#5 Total: 253)
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Mom to Donovyn (32 weeker), Tristyn (34 weeker), and Naethyn (30 weeker born sleeping) |
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Welcome to Share Brooke. I am sorry to hear the sad news of your li'l girl's passing. I'm the mom of an angel too. It's been nearly 3 years now and it's a tough journey as you know. November is the month that I became a mom for the first time. It's a very special month for us. You've experienced so much and it must be hard to process it all. My biggest hope is that Hannah Jayne will meet her NICU goals and when she's ready, come home to you. The pictures of your girls are super precious and I hope one day you will tell Hannah all about her big sis Leah growing up in heaven. Continue to take it one day at a time and know that we're here for you.
Lindsay
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lvazquez
- Feb 5, 2012 4:55 pm
(#6 Total: 253)
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Mom to Donovyn (32 weeker), Tristyn (34 weeker), and Naethyn (30 weeker born sleeping) |
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Welcome to Share jfreison. Congratulations on your baby boy Jule! Anytime there is a NICU stay, it's rough. I'm glad to know that your little one met his goals and was able to come home to you. I bet he is bringing you many smiles and is the joy of your life:)
Lindsay
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jlperry613
- Feb 10, 2012 4:56 pm
(#7 Total: 253)
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New to sys!
My name is Jennifer. I am the mother of an angel son who was taken to heaven due to a birth defect. I am also the mother of 3 healthy and active boys! I am a huge fan of March for Dimes. It is one of the greatest feelings in the world to be part of such an amazing organization. I just had the opportunity to visit Tallahassee and meet with legislative members to shine some light on the Florida birth defect registry as well as the amount of babies who are born addicted to prescription drugs. I was honored to see a bill passed which would make it mandatory to test newborns for congenital heart disease. It was the most amazing experience! 
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Akeelah's Mommy
- Feb 9, 2012 5:40 am
(#8 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Jennifer, welcome to Share! I'm so sorry to hear of your sons passing. What amazing things you are doing in his honor! The ripple our little ones, no matter how short their time shared on the earth is, can be amazing!
Best,
Lauren
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tucker'smom
- Feb 10, 2012 4:56 pm
(#9 Total: 253)
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Mom to Tucker (27 weeker, 05/26/06) |
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Hi Jennifer,
Welcome to Share! I am so sorry to hear of the loss of your son.
What an amazing way to honor him, by helping get the bill passed that will require testing of all newborns for CHD. Way to go!!
I hope to "see" you around the site,
Hugs,
Leigh
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kellyjrt64
- Feb 16, 2012 4:34 am
(#10 Total: 253)
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hello my name is kelly i just lost my baby boy he was 22 weeks and 4 days he lived for 3 hrs and he was born on 2-2-12
im only 19 haha but i need help and i have no idea how to have closer i guess i need a nother mom to talk to
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Akeelah's Mommy
- Feb 16, 2012 5:49 am
(#11 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Kelly- I'm so very sorry to hear of the loss of your sweet son. This journey is so difficult, you're so right, talking to other moms helps tremendously. I hope you will share more about your son- there are many here who would love to hear your story, myself included. There is also a thread for mommas who have experienced loss here, http://www.shareyourstory.org/webx/.ee81e32/ Hugs momma, and I'm so very very sorry.
Lauren
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KHolley
- Feb 16, 2012 1:58 pm
(#12 Total: 253)
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Welcome to Share, Kelly. I am so sorry for your loss. This is a great place to find others that understand. We are all here for you.
Katie
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Jen S. M.
- Feb 17, 2012 5:27 am
(#13 Total: 253)
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Hello. My first baby went home to be with the Lord after seven months in utero. She was born on Feb 7, 2008. We still miss her.
I have since gone on to birth two more beautiful, healthy daughters. (3 y/o and 7 m/o)
I would encourage all parents to hang in there and trust in the Lord. It will get better I promise!
Check out my blog for more thoughts about this. http://jensmauthor.blogspot.com/
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KHolley
- Feb 17, 2012 2:08 pm
(#14 Total: 253)
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Welcome to Share. I am so sorry for the loss of your sweet little girl. This is a great place to find others that understand.
Katie
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saidysilva
- Feb 22, 2012 6:00 pm
(#15 Total: 253)
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My name is Saidy. My baby girl Edith passed away one week ago. It has been excruciating. She had a condition which I also have called spondylo ephipheseal dysplasia and lung disease. Both were lethal, her ribcage was so small not allowing her lungs to fully expand. She was born on February 3rd at 7:48 am, and passed February 15th at 2 pm. Her time here was short but also very meaningful. She was born at 39 weeks. THe doctors knew that she was an SED baby but did not know she had bad lungs or a bad ribcage. My husband and I continue to hurt and remember her. This is tough.
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Akeelah's Mommy
- Feb 22, 2012 7:30 pm
(#16 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Welcome to Share Saidy. I'm so very sorry to hear of the loss of your sweet Edith. You've come to the right place to find support from other mommas. Please know I will keep you in my thoughts.
Lauren
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dokken&tristonsmom
- Feb 23, 2012 8:04 am
(#17 Total: 253)
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Hello I'm new to this so let me start at the beginning. I had my first son Dokken at 40 wks to the day  10/18/10. Found out 8/4/11 I was pregnant again. Didn't make it very far started bleeding in the end of Oct. Then on November 2nd I woke up and felt as if I had wet the bed. Didn't really think much of it but 2 days later it happened again called my dr and he told me to go the er I was only 19wks so there wasn't to much the could do. I was in and out of the er for a few more weeks the stayed at 22 for a wk with antibiotics. Then sent to a level 5 hospital and was there til his birth 1/2/12 28wks 5days gestationhe was in the level 5 hospital for a mmonth and 4 days then transported closer to home. He is on 3 liters of pressure and in between 21-25% oxygen he had a brain bleed which I didn't find out about till he wastransferred closer he also has VSD. We still have month or so before he can come home  This so hard. But I'm truly blessed with my 2 boys.Well thanks for reading sorry its so long.
Replies to this message
cathyd173bx (Mar 26, 2012 9:03 am)
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mzbluesam
- Feb 23, 2012 3:28 pm
(#18 Total: 253)
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Welcome! Hang in there. I pray that your little one will be fine.
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nstallings2010
- Feb 28, 2012 11:44 am
(#19 Total: 253)
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Hello,my name is Taki I am a mother of 2 beauutiful kids. My first child was a full term healthy pregnancy but my second wasn't. I was induced at 32 weeks due to severe preeclampsia.She was 3lbs 10oz,stayed in the NICU for over. 2weeks to gain weight.although I don't remember much of anything due to the fact,I was under a lot of meds for the Preeclampsia. A year later she's as healthy as can be and has beat a lot of the odds.
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stacyat
- Feb 28, 2012 9:37 pm
(#20 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello Taki and welcome to Share! I'm so glad to hear that your little girl is doing fantastic after such an early arrival!
Stacy
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KHolley
- Feb 29, 2012 4:54 pm
(#21 Total: 253)
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Welcome to Share, Taki. I am so happy to hear that your daughter is doing so well! Thanks for sharing!
Katie
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Jdallos
- Feb 29, 2012 9:56 pm
(#22 Total: 253)
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Hello everyone,
My name is Jim and I am new to share. I have a 28 month old toddler named Stella who was a 23 week micro preemie. She was born on October 20th 2009 at 1 pound 6 ounces and spent 200 days in the NICU at Henry Ford Hospital Detroit. Stella had just about every major medical problem on the preemie check list but survived them all and is now a healthy happy 2 year old. You can read all about Stella's medical problems and her journey in my profile and on my blog which is called "Stella's Daddy Speaks". My goal in posting this blog is to help other NICU parents by sharing our story and my advice for getting through the NICU journey. I don't have all of the answers, but we did spend 7 months in the NICU and we did go through almost every major medical procedure that a preemie could have, so I do have some helpful guidance to offer if you would like it. I hope some of you who are going through this experience now will take advantage of my offer and contact me for any help that you may need. I am always willing to listen and to talk.
Stella Park-1
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KHolley
- Mar 2, 2012 1:10 am
(#23 Total: 253)
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Welcome to Share, Jim! Stella is so adorable! It's always so nice to see dad's on here, totally different perspective.
Katie
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liz loschinskey
- Mar 4, 2012 5:21 am
(#24 Total: 253)
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Hi Jim! Welcome to Share! I just want to squeeze Stella...such a cutie with her glasses! Keep us updated on things, definetly keep coming back.
Love and light,
Liz
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MegsK4
- Mar 4, 2012 7:21 pm
(#25 Total: 253)
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Hi, my name is Megan (Meg for short). I have 2 daughters, Arianna and Gabriella. Arianna was a full term baby, and Gabriella was a premature baby. Glad to find this site.
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AngelSavannahRae
- Mar 5, 2012 2:55 am
(#26 Total: 253)
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Hi everyone. My name is Courtney and I live in Illinios. Im 29 and have been married to my husband Scott for about 1 1/2 years. Ive just recently became a mommy to an angel. I had my sweet baby Savannah Rae on 2/27/12, she only weighed 1lb and 9oz. She was in the NICU for 4 days before going to heaven. Im so heart broken and have never been so sad. She is so beautiful and I miss her so much. I feel if I talk to others who have gone through a similar thing might help me through this a little easier.
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stacyat
- Mar 5, 2012 4:05 am
(#27 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Helo Meg and welcome to Share! I look forward to reading more about you and your girls!
Hello Courtney and welcome to Share. I'm so sorry for the loss of your little Savannah. You have definitely come to the right place, I found share about two weeks after losing my twin girls and it has truly been my lifeline. It's so comforting talking to other women who know what I have been through. Many hugs to you.
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mommyslilangel2/7/12
- Mar 5, 2012 8:50 am
(#28 Total: 253)
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Hey, my name is Miranda. Me and my ex had our first baby Adisyn on February 7th 2012. I was not due til march 17th but when I went in for my regular check up and my ultra sound that day, me and my ex found out that Adisyn had passed away a couple days prior. I just turned 34 weeks and had to go through the labor. Knowing Adisyn was not alive made it even harder on me to go through the labor. Me and my ex are taken things really hard. Everyone keeps telling me that it would be better on my behalf if i seek help to get through this. i am having a hard time talking about what i am going through and letting people in to help me cope with my loss.
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Akeelah's Mommy
- Mar 5, 2012 5:03 pm
(#29 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Miranda- I'm so very sorry for the loss of your sweet Adisyn- I love her name. This is a wonderful place to meet other mommas who have been through similar situations. The pain of loosing a child is unbearable, sharing the journey with others eases this pain.
Meg- Welcome to Share! I hope you will share your girls' stories here!
Courtney- I'm so very sorry to hear of the loss of your lil' Savannah. It's a pain no mommy should ever know yet so many of us do. I hope you find a measure of peace here as I have. The mommas around here are awesome and so supportive.
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liz loschinskey
- Mar 6, 2012 11:41 pm
(#30 Total: 253)
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Miranda, Courtney, Welcome to Share!
Very sorry to hear of your loss. Please know you are not alone in this. Please, come by anytime you need to vent, cry, laugh or just sit.
Meg, welcome to Share as well! Please keep us updated and continue to share of your girls!
Love and light,
Liz
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