AlwaysAvasMom
- Jun 10, 2012 3:31 pm
(#114 Total: 253)
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Hi My name is Helena from Freeport, NY. I am a NICU nurse so I watch the struggles of Parents who have babies in the NICU and parents who have lost their babies. I was 32 weeks pregnant and lost my little Girl Ava Lynn on May 23. Her heart stopped beating in utero from what is believed to have been an abruption. I never got the chance to see her eyes or hear her cry. She is now my little angel.
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JennKlaw
- Jun 11, 2012 1:06 pm
(#115 Total: 253)
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Hi! My name is Jenn! My partner, Carrie and I, were blessed with Quadruplets that decided to join this world on March 29, 2012 at Winnie Palmer Hospital in Orlando, FL. Carrie had spent weeks there on hospital bedrest. Our little 4 pack was born at 27 weeks 5 days and were all under 2lbs at birth. They are still currently in the NICU but apart from respiratory problems, they are still currently on oxygen, they are doing well and should start coming home by the end of the this month.
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Chances mommy
- Jun 13, 2012 12:57 pm
(#116 Total: 253)
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Hi my name is angela.... Nd my son Chance passed away from SIDS in August 2008
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stacyat
- Jun 13, 2012 10:52 pm
(#117 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello all and welcome to Share!
Laura: Goodness that must have been so scary for you! Your feelings of anger are totally normal and ok to have, you're definitely not alone! I hope that joining this site helps you to work through all of your feelings. I look forward to reading more about Drake!
Helena: I'm so sorry for the loss of your sweet Ava, I know I never imagined I would be going through the same thing as some of my patient's parents were going through. Big hugs to you.
Jen: Congratulations x 4! So glad to hear that they are all doing well, I look forward to reading more about your precious miracles!
Angela: I'm so sorry for the loss of Chance (((hugs)))
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Amanda Collins
- Jun 15, 2012 6:42 am
(#118 Total: 253)
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I gave birth to identical twin boys on June 9th, i was 27 weeks gestation. They had twin to twin transfusion and had to be taken out early. We are currently in the NICU and will be for a while, I'm having a very difficult time with it even though they are doing very well. Reaching out to get some support and advice.
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MyNameIsVictoryBecauseIveAlreadyWon
- Jun 15, 2012 6:51 pm
(#119 Total: 253)
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Hi! My name is Kristin and I am new to March of Dimes. I just wanted to take the time to introduce myself. I'm 30 years old and I live in Toledo, Ohio. I've been married to my wonderful husband, Charles, for nine years and we have two beautiful girls together. My oldest, Chyna, will be 12 this July and my youngest daughter, Denise, who was born premature, is 31 months. As you can see by looking at my username, I am an optimist and I put the Lord Jesus Christ above all other things in my life. He is my shephard, my close friend, and Lord of my life. With him I am victorious and I can do all things through him who strengthens me. On another note.  I'm here looking for a supportive, online, family. One who understands the challenges of raising a premature baby, who is willing to listen and who offers good advice; and I am also willing to return the favor (to those who want it). Be Blessed
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stacyat
- Jun 16, 2012 6:14 pm
(#120 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Amanda: Hello and welcome to Share! I'm so sorry that your boys came so early and that they're going to have to be in the NICU for awhile. Share is such an amazing place, you definitely found the right place to come for caring support!
Kristin: Hello and welcome to Share! I'm so glad you've found us, and would love to read more about your daughters!
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Jessica90
- Jun 16, 2012 9:04 pm
(#121 Total: 253)
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Hello, I am new to Share and wanted to introduce myself. I am Jessica Krimmel. I am 21, married and we have 2 gorgeous daughters, Aspyn and Keyara, who were both in the NICU. Aspyn was born with a low birth weight and Keyara was born silent and began having seizures at just 18 hours old every 15 minutes. Today they are both getting big and doing well, but our time in the NICU was a scary one. It is so nice to know that there is a place for women like me to go to share their experiences, get support and give support.
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KHolley
- Jun 17, 2012 1:31 am
(#122 Total: 253)
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Welcome to Share, Jessica! I am so glad that both of your girls are doing well after all that they have been through! Thanks for sharing!
Katie
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Kcurvey
- Jun 17, 2012 8:45 pm
(#123 Total: 253)
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Hi, my name is Kelly. I am new to march of dimes. I had my son at 25 weeks and 4 days. When he was first born he seemed to be doing good. Then when he was 5 days old he had to go on the ventalatior. He was doing ok. They went to put a bigger tube in but he ended up needing a more serious machine. He is on 100% oxygen and i feel like im losing my mind. I want him to be ok so bad. I lost 2 other babies at 22 weeks. I cant handle losing another. He has chronic lung disease. I want the doctor to tell me hes going to be fine. But i know they cant. He is 23 days old now. He just got sicker 3 days ago. I just dont know what to do with myself. I figured id come on here and try talking to ppl who have gone through this because nobody else understands. I havent even gotten to hold him yet. Ive never been so scared in my entire life.
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Jackie G
- Jun 18, 2012 2:01 pm
(#124 Total: 253)
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Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
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Hi Kelly! Welcome to Share.
I know how difficult it is to have a baby in the NICU. it's so hard to be so helpless and not know what the future is going to bring.
But don't give up, don't stop hoping, and don't stop loving him. It's the one thing only his mom can do.
You are not alone here on Share. So many of us have been in your shoes and we'll be here for you every step of the way.
Hugs,
Jackie
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nervousmom2b
- Jun 20, 2012 11:16 pm
(#125 Total: 253)
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Hi Kelly, I'm praying hard for you and your baby! I read on another of your posts about how you blame your body and how you found it difficult to bond with your baby during pregnancy. Please try and stop blaming yourself, even though it's really tough. I remember telling my husband that my body 'betrayed' me when I lost our son at 25w. Am currently 17w pregnant 4th time around (had two miscarriages in between) and am finding it hard to bond with this baby - always ready for everything to go downhill. Take care of yourself and be kind to yourself. Warmest wishes and hugs to you and Bentley.
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amayasmommy522
- Jun 27, 2012 1:28 pm
(#126 Total: 253)
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My name is Josephine. I'm 21, not married, but I am with my daughter's father. My baby girl Amaya was born at 24 weeks and 6 days gestation. She weighed 1LB 1oz. Now, at 5 weeks old, she weighs 2LB 5oz and she is breathing 50% on her own. Everyday when we go to visit her in the NICU, we feel as if we are looking at a new baby (in a good way). You can tell she is packing on the pounds and she can't wait to get out of there just as much as we can't wait for her to get out! I really hope my story encourages you all to stay positive in a very hard time. Besides, if you're not staying strong for them, who is?
Replies to this message
charlieXmom (Jun 27, 2012 1:47 pm)
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charlieXmom
- Jun 27, 2012 1:47 pm
(#127 Total: 253)
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Replying to:
amayasmommy522 (Jun 27, 2012 1:28 pm)
My name is Josephine. I'm 21, not married, but I am with my daughter's father. My baby girl Amaya was...
Before you know it, she will be home!! My charlie was 2lb4oz at birth, was in the nicu for exactly 8 weeks, and now he is a bouncing happy 12 lb little boy! she will get there too I know how hard having a baby in the nicu for an extended period of time can be... keep hanging in there and stay positive!
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Emma'sMommy
- Jun 28, 2012 1:29 am
(#128 Total: 253)
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Hi,
My name is Faby Ryan. My husband Daniel and I have been married for three and a half years. We were extatic when we found out we were pregnant and it was really happening this time (we had three miscarriages before this pregnancy). Emma is a twin, but we sadly lost her twin in our first trimester. My daughter Emma Isabella Ryan was born May 3,2012 at 27 weeks gestation. She was 1lb 20z 103/4" Emma has been in the NICU 55 days today. Emma is our little miracle and a little fighter. She has been through so much already. She has been on an occilator vent since she was born, has gone through a PDA ligation surgery and is currently on steroid treatment to help with all the fluid and inflamation of her lungs. My little miracle continues to fight!
Replies to this message
liz loschinskey (Aug 2, 2012 9:05 pm)
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heathervizza
- Jun 29, 2012 3:02 am
(#129 Total: 253)
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Hi i'm Heather, I am 21yrs old.
I recently had twin girls at 24 weeks on april 18, 2012.
Maddison was the biggest she was 1lb 5oz and clarissa was 1lb 1.3oz.
The girls are still in the NICU. Maddison is now 3lb 3 oz and clarissa is 3lb 2.3 oz. It is very stressful to be a parent of the NICU to say the least. The girls are both still on the oscelator and oxygen levels still pretty high. its scary! Both girls have also had about 5 blood transfusions each.
I'm so proud of my girls and all they've accomplished, theyre doing good with their feed, they're both up to 9ml / hr! they've almost tripled their birth weight. however their lungs are still in pretty bad shape. Since they've been on the oscelator for so long, the tissue between their lungs and bloodstream had developed scaring which makes it hard for the oxygen to get from the lungs to the bloodstream. The only way to help this scaring is by lowering the girls oxygen and mean pressure, but the girls arent allowing that too much. so all we can do is pray.
Both maddie and clarissa have exhibated themselves twice and exhibated a few other times as well, its very scary we didnt know if maddie was going to make it the first time. All we can do is hope and pray that theyll get better.
We recently signed up for the march of dimes and will be walking on sep. 16 , and the girls will be in an article in the newspaper through the march of dimes! My fiancee and I are very excited!
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Jackie G
- Jun 29, 2012 11:32 pm
(#130 Total: 253)
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Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
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Welcome to the newbies! I hope you find Share to be as wonderful of a place as I have!
-Jackie
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LivingForMyBoys
- Jul 2, 2012 8:46 pm
(#131 Total: 253)
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My name is brandi i am 22 years old I have 3 wonderful little boys and two months ago i had two more boys~twins~ born at 27 weeks-13 weeks preemature, they were 1lb and 2lbs i have never had preemies before,or any nicu expirience, twin "a" had too many complications and god called him home,twin b is almost 3 months old and is finally 5lbs,he is comeing home soon and i dont know what to expect? does anyone have advise of things i can do for the house before he gets to come home?
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Sarah E Hazlett
- Jul 2, 2012 9:05 pm
(#132 Total: 253)
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hi, my name is sarah and i'm a 27 yr old new mother. everett was born at 28 wks 2 days, at 2 lbs 10 oz, and now he's 34 wks at 4 lb 1 oz. i had hoped to have a natural homebirth but got the exact opposite. on good days, i believe it was the Great Mystery's way of teaching me surrender, acceptance, and patience. on bad days, I wonder if I'll ever be able to have a full term baby, or a VBAC. BUT, every day I am concious that my son is a MIRACLE!
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arobinson
- Jul 2, 2012 10:02 pm
(#133 Total: 253)
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Hi, my name is Amanda and I'm 29 years old. I had our first baby, Patrick, on May 1, 2012 at 25 weeks 1 day. I was in the hospital on bedrest for 8 days before he was born. I had severe pre-eclampsia and HELLP syndrome, but still felt completely fine, but the doctors decided he needed to come out before I got sicker. I had had a completely normal and easy pregnancy before then. Patrick lived for 37 days in the NICU before he couldn't fight anymore, and passed away on June 7. I am still having a pretty rough time...
Replies to this message
liz loschinskey (Jul 3, 2012 11:59 pm)
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Mary X
- Jul 3, 2012 3:48 pm
(#134 Total: 253)
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Dear Amanda,
I'm very sorry that Patrick passed away. I hope that you can always find support and understanding among all of the Moms on Share and lean on us whenever you need to.
<<<<Hugs>>>>>
Mary
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Mary X
- Jul 3, 2012 4:39 pm
(#135 Total: 253)
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Dear Brandi,
I'm very sorry to hear that one of your twins passed away. I'm grateful that his twin is doing well and may be coming home soon. Nevertheless, I also wanted to welcome you to Share and hope that you will find comfort and support here.
Sincerely,
Mary
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Mary X
- Jul 3, 2012 4:41 pm
(#136 Total: 253)
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Dear Sarah,
Welcome to Share. I'm glad to hear that Everett is doing well. Keep us posted on his progress.
Sincerely,
Mary
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mrsmaxson
- Jul 3, 2012 8:40 pm
(#137 Total: 253)
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Welcome to Share. We have so many new moms lately, I can't keep up with everyone.
Amanda, I am so very sorry that Patrick didn't make it. Losing your first child, or any child, is heartbreak that cannot be expressed in words. I hope that you have support and are finding moments of peace as you mourn your son.
To all the NICU moms: Hang in there! Wishing you and your little ones all the best.
Shannon
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liz loschinskey
- Jul 3, 2012 11:49 pm
(#138 Total: 253)
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Replying to:
Salwa Mornie (May 30, 2012 1:56 pm)
Hi, my name is Salwa Mornie. I'm 34 years old and gave an emergency C-section birth a week ago to...
Salwa, hello and welcome to share!
I can't wait to hear more about your daughter!!
Keep us updated when you can.
Love and Light,
Liz
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liz loschinskey
- Jul 3, 2012 11:59 pm
(#139 Total: 253)
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Replying to:
arobinson (Jul 2, 2012 10:02 pm)
Hi, my name is Amanda and I'm 29 years old. I had our first baby, Patrick, on May 1,...
Amanda, Hi and welcome to Share! I'm very sorry to hear of Patrick. Please, on your rough days, come here, we can help you.
Love and light and may peace find you soon,
Liz
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aaliyahsmom
- Jul 4, 2012 12:45 am
(#140 Total: 253)
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My name is Amber. My husband and I lost our 4 month old on December 26, 2011 to SIDs. There are not many people who know the grief of losing an infant so I am hear looking for support. 
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brookeg
- Jul 4, 2012 7:48 pm
(#141 Total: 253)
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Hello and welcome to share Amber. I am so sorry for the loss of your baby. I wish no one had to find this site due to the heartache they are going thru. It has been over 2.5 yrs since I lost my son and while the pain has eased it is till there with me everyday. It feels like my grief is my last link to my son.
I have found so much support thru this site and I hope you can as well
brooke
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AlwaysAvasMom
- Jul 4, 2012 8:41 pm
(#142 Total: 253)
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Hi Amber I am so sorry for the your baby. I lose my little girl on May 23. Logging onto share and meeting others is such a big help. Many of the people I have meet have been amazing sharing their stories. I was suppose have Ava in July 12 via c section. I have found that the grief at times is unbearable but I find joy in the moments I did get with Ava.
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bparker2012
- Jul 6, 2012 1:55 am
(#143 Total: 253)
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I am a mommy to 3 wonderful little boys. Our oldest, Bradley,is 5 yrs of age and Sam, our middle child, is 2 yrs of age. My youngest, Ethan, was born June 12th and was a NICU baby. He went to the NICU initially for respiratory problems but the doctors soon discovered he has a heart defect and is also being tested for genetic abnormalities, amongst other things. All of this is new to my husband and I, as we had no clue that something was wrong with our precious one, despite 4-D US and prenatal testing. We recently just got home and the last few weeks are just now sinking in for me. Ethan has a road ahead of him but we are so glad to finally be home. God has blessed us throughout this difficult time by showing us endless support from friends, church family, and our family. My prayers go out daily to all of the sweet babies who remain in the NICU, babies that have been in the NICU, and their families.
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