stacyat
- May 12, 2012 1:33 pm
(#1 Total: 7)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello and welcome to Share! I'm so sorry for the difficulties that your little one is facing. I don't have any experience with this myself but I don't think the ileostomy bag is going to hold her back for very long. It may possibly delay her rolling over in that direction or staying on her tummy for a little while but it'll be something that she's used to from early on so it will just be normal for her. It might take her a little longer to figure out how to do it so it's comfortable for her, but she'll figure it out! Hugs!
Stacy
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NathansMom13
- May 13, 2012 11:13 pm
(#2 Total: 7)
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Come to ShareUnion 2012: It's the BEST weekend ever!!! |
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Hi and welcome to Share. I am so so sorry that you are going through so much right now with your little girl. I don't have any experience with the ileostomy/colostomy but, like Stacy, I don't think it will hold her back for very long. One of the best things about kids is that they are so resilliant and figure things out quickly. She will figure out how to move around with the ileostomy bag, without hurting herself. She might take a little longer to figure it out but she'll get there. Hugs!
Laura
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Kicky
- May 29, 2012 1:03 pm
(#3 Total: 7)
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Hello, My daughter has Hirschsprungs (large bowel + 55cm of small bowel removed) and is now 2 1/2. She had her ileostomy at 15 days and then her pull through at 8 months. I understand your concerns. No an ileostomy will not hold back her development. My daughter didn't like tummy time - I can imagine it wasn't comfortable. Our daughter has been an inspiration in strength, determination and perserverence. Stay strong - feel free to email me if you have any questions
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stacyat
- May 31, 2012 2:05 am
(#4 Total: 7)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello and welcome to Share Kicky! I'm so glad that your daughter is doing well, thank you so much for offering your words of advice and support here!
Stacy
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KirBearsMommie
- Jul 20, 2012 6:11 pm
(#5 Total: 7)
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Hi ElysMommy,
My son who is now 12 days old also has this rare disease. He just had surgery yesterday and is doing well. He was detected with this disease very early, a few hours after he was born. Things have been tough for us but now things are looking like they will be alright. so do not feel as if you are alone when it comes this disease because it has affect more people than we think. Glad that your daughter is doing well and hope to hear good things in the future.
Replies to this message
liz loschinskey (Jul 20, 2012 6:18 pm)
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liz loschinskey
- Jul 20, 2012 6:18 pm
(#6 Total: 7)
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Replying to:
KirBearsMommie (Jul 20, 2012 6:11 pm)
Hi ElysMommy, My son who is now 12 days old also has this rare disease. He just had...
Hello and welcome to Share!!
Thank you for sharing your sweet son with us.
I hope to read more updates soon!
Love and Light,
Liz
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stacyat
- Jul 21, 2012 3:14 am
(#7 Total: 7)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello and welcome to Share KirBearsMommie! I'm so glad to hear that your little guy is starting to do better! I would love to hear more about your little fighter when you are able!
Stacy
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