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BAILEY JUNE

bailey06

May 2013

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TIME FLIES

Jun 20, 2007 09:42pm (EST)

Well, I haven't been able to post in months so I have a lot of catching up to do. Unfortunately I'm at school and don't have long. Bailey has been doing soooo good. She is trying to walk, but has not yet gotten her balance. She is also having issues with one of her feet. It wants to turn in on her when she is standing and we think she may need a brace of some sort. Next week we see the Orthorpedic doctor and he will tell us. Before this would have really bothered me but I think I am numb to things like this.
Bailey is making all sorts of noises now. She can say "bye bye". It is sooo sweet. She has a really high pitch voice like an angel. That is the only words she says but more will come.

Well, I gotta get to work so I'll write more later. I'll post some pictures later too. She is getting so BIG!!!

I hope everyone is doing well.

Amy

Posted by bailey06 | Comments: (3) | Permalink

IT'S BEEN A WHILE

Mar 19, 2007 05:59pm (EST)

I don't have very much time to get on here anymore. Bailey has come a long way with her crawling. She's getting faster and faster every day. She still is a little clumsy though.

Well, I got on here because I need to vent. I went to a new doctor today. He is a developmental doctor. He is going to refer Bailey to a neurologist. He is concerned that she is behind on many of her milestones. He wants to check out the abnormalities that the neurosurgeon found ( but SAID he wasn't concerned about). He wants to see if maybe the loss of blood from when she was born caused a stroke and is causing delays in her speech and motor skills. Now here comes the scary part. The doctor mentioned some of Bailey's facial characteristics that he was a little concerned about. For instance, she has "asian eyes" where the skin folds over in the corners. It is barely noticeable and could be normal. He also said her eyelashes are very very long. I didn't know this was a bad thing. Again he said this could be completely "normal". He said that these things were common of children with some genetic diseases. He said they were really subtle and they could just be how she looks but he wants to check on it. Wow, that was a big slap in the face. I thought she was doing so good, and she is, but then someone tells me they are concerned again. I am so weary from all the worrying. Sometimes I think if I hear another bad thing I will just break down right where I stand. I feel like I can't take much more. Another thing he mentioned was the shape of her head. He said it was very long instead of round like the "norm". I have always noticed this too but my husband has a long shaped head too so we think it may just be that. I guess we will see when we go to the neurologist. We have another CT scan tomorrow to check the fontanels again and be sure they are not closed. I have to make Bailey drink 16 oz of some liquid die. Yeah right. She doesn't even drink that much in a bottle at night.

Please keep us in your prayers and if you have any encouraging words or have experienced anything like we are going through, please tell me. It helps so much to hear that we are not alone.

I included some pictures from her 1st B-day party. She's getting sooo big.
xoxoAmy

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Posted by bailey06 | Comments: (3) | Permalink

STANDING UP

Mar 03, 2007 02:34am (EST)

My little girl is getting so brave. Well, she's been brave but she's getting more brave. She started pulling to her feet yesterday in her crib. After that I couldn't keep her down. Now, guess what!!! Today, she started pulling to her feet on EVERYTHING!!! She is coming so far in such a short time. It's amazing. Many people on SHARE have talked about how, at about a year old, their babies just started doing so many things. This has comforted me for a long time and now look. It happened to my Bailey too. Thank you all for the encouraging thoughts and prayers. We have a new baby now. I thank God for her health and her progress.

Thanks again for being there to talk to.

Posted by bailey06 | Comments: (3) | Permalink

SHE'S CRAWLING

Feb 28, 2007 05:32pm (EST)

It's been a while since I have been on here. Things have changed a lot. Bailey is crawling all over the place, pulling up to her knees, and today she started pulling to her feet in her crib. I can't believe the changes in the past month. My husband keeps saying it's like we have a different daughter. She has started babbling. She says da da all the time. She is a MUCH happier baby now that she can get around. I thought I would have more time for homework if she could entertain herself more, but now I spend all my time keeping her off of things that could hurt her. She pulls up on everything, even just the wall, but she falls a lot. You can't imagine the bumps and bruises in the last few weeks. I feel awful, but I just can't keep her down now. It feels so good to be worried about something new and something "normal".

We took a trip to the beach this weekend. We were in Clearwater, Fl. Bailey did not like it at all. It was in the middle of the day so it was very bright, very loud, and very windy. I think I will have to take her back on a morning or an evening when it isn't so bright. I love the beach and I hope she will too.

As for Bailey's therapies. The physical therapist doesn't see any delays now that she has started crawling and pulling up so she said for us to just start working on pulling to stand and cruising so she can learn to walk. We are going to have a speech therapist come and help with the speech still. She is behind on her communication skills, so we'll have quite a bit of work to do with that. I know eventually I will be writing about how Bailey is talking my ears off.

I guess that's about all. Next Saturday, we celebrate the big ONE year BIRTHDAY. I can't believe it. It seems just like yesterday the doctor told me it was time. I thank God for this year and pray there will be many more to come.

clearwater

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Posted by bailey06 | Comments: (2) | Permalink

BIG CHANGES

Feb 13, 2007 03:47am (EST)

I cannot believe the changes in my Bailey in the last week. It is amazing. She has started to come alive so much. A week ago, she couldn't even pull up on the crib. Now, I can't keep her down long enough to go to sleep. She can spin around on her butt so fast, and she just started yesterday getting into a sitting position from her tummy. It's like she just decided last week, "okay, it's time to start learning new things". I think that mother's like us appreciate the little things so much more. I almost don't even care to tell some parents about the little things that Bailey does because they just don't understand. All this time I have worried and worried about whether Bailey would ever do anything new. Now she is, and it is such little things that other kids probably did when they were six or seven months old but I am so proud. She has a mobile on her crib that has butterflies and a lamp with a colorful shade on her changing table. Now when I am in her room I can ask her, "Where's the butterflies, or Where's the lamp?" and she will look at them every time. She's finally showing us that she understands a little of what we're saying.
She still isn't babbling very much, but a little. She has started da da da a little bit, but that's all. I am looking forward to the speech therapy and the other help we will get from Babies Can't Wait. I know now that with a little help, my baby will soon be just as "smart" as other little one's her age.

I feel so much better. And I am so proud.
Just wanted to share.

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Posted by bailey06 | Comments: (2) | Permalink

BAILEY JUNE

Feb 10, 2007 03:27pm (EST)

Okay, my daughter has been on Nutramigen since I stopped breast feeding. At her 9 month check up the doctor told me to try to start giving her regular formula and see if she had any problems. She was already eating some table foods and had been doing fine. Well, just recently she has started waking up in the night alot crying, she has started spitting up a little bit again, and she even vomited her whole bottle this morning. I don't know if she just has a stomach virus or if she is having an allergic reaction to the milk. Like I said, she does fine with things like macaroni and others that have milk in them. I don't know. Has anyone experienced this?? I have also wondered about acid reflux because she doesn't nap longer than 30 minutes, but was sleeping through the night. Sometimes when she goes to sleep I hear her start choking and coughing but then she goes back to sleep.

Posted by bailey06 | Comments: (3) | Permalink

GOOD NEWS. I GUESS.....

Feb 08, 2007 08:58pm (EST)

I just got word today that Bailey was accepted into the IE program. I am glad but not glad at the same time. I guess the whole time I thought they would just tell us she wasn't that far behind. Oh well. I am glad that she's getting the help that she needs now. We have to create a plan for Bailey and decide what all services she needs.

I HATE medicaid. My husband changed jobs and my daughter is on it now. They denied her speech services because the evaluation paper they used didn't compare her to her peers and therefore did not show that she was behind. STUPID. But. the speech therapist said that she could just do it through Babies Can't Wait. She said it may not be as often as it would be if I brought her to the clinic, but we could try it for now and if it isn't enough we can to get her medicaid to approve her again.

I am really looking forward to getting started. I'm ready for her to hopefully learn new things and get on the right track. She really has come a long way, but seems to need a little push.

I'll keep you posted. Thanks for your thoughts and prayers.

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Posted by bailey06 | Comments: (1) | Permalink

STILL WAITING

Feb 01, 2007 03:56pm (EST)

Well, the lady came today for the evaluation. She asked us a lot of questions about Bailey and watched her a little. It was funny, but very few of the questions she asked we answered with "no". There were only a few things that we could say she definately was not doing. My husband said that made him feel better. Anyway, she has to write up a report and go over it with the other ladies at Babies Can't Wait and then they will let me know what they suggest. Also, they are supposed to get a PT to come and check her out too. So, I am again waiting on an answer. The way she talked, it sounded as though they were going to write up a plan for her, but she didn't say for sure.

I added a picture of Bailey's first pony tail. The second picture is after she pulled it out.

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Posted by bailey06 | Comments: (2) | Permalink

GOING CRAZY

Feb 01, 2007 03:15am (EST)

Oh my gosh. Bailey will NOT go to sleep without screaming her head off. She has just recently gotten much worse about her seperation anxiety. I don't know what to do. I have read that it doesn't hurt them to cry, and I have also read that it isn't good for them to cry. What do I do?? My husband tries to keep me from going in the room, but she will be crying so loud, and real tears, that I just can't stand it. If she was just fussing it would be different but this is real crying. I think it is just because we leave her though, because usually she stops when I go into her room and either pat her or say something to her. What do you guys think?? Should I just let her scream for a few nights? I'm scared of it causing like emotional problems or something. Any tips would be greatly appreciated even though I know every baby is different.

The lady comes tomorrow to evaluate Bailey for EI. I'm going to have an anxiety attack waiting. I hope so bad that she is accepted into the program, and there are some things they can work with her on. It would make me feel so much better. Well, I will update you when I find out something tommorrow.

G'Night

Posted by bailey06 | Comments: (1) | Permalink

WAITING

Jan 26, 2007 06:36pm (EST)

Well, the lady from Babies Can't wait called me today. She is going to come Feb. 1 to evaluate Bailey. It will be a long week, but maybe I'll get through. I think I will be okay.

I know I have been to two eye doctors and they have both said that nothing looks wrong but I swear Bailey still crosses her eyes. It's not that I think one is permenantly turned in, it's just that sometimes she just crosses them. Maybe she does it on purpose. I have been wondering about the low muscle tone. If she does have low muscle tone, and that's why she isn't crawling, maybe she doesn't have good muscle control in her eyes either. I'm going to ask the PT about that. Well, I'm just waiting now.

This picture is Bailey at a hotel in St. Augustine, Fl. They had an indoor pool so we went swimming. She absolutely loved it. I think she will be an awsome swimmer as much as she kicks her legs.

msoD99D7

Posted by bailey06 | Comments: (1) | Permalink

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