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WELCOME, GUEST |
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(2 members)
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lvazquez6 |
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Angel Bella …6 |
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EMMA'S MOMMY 10
Emma's Mommy 10 |
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| Category: Home | Sun | Mon | Tue | Wed | Thu | Fri | Sat | | | | 1 | | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | 11 | 12 | 13 | 14 | 15 | 16 | 17 | 18 | 19 | 20 | 21 | 22 | 23 | 24 | 25 | 26 | 27 | 28 | 29 | 30 |
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STILL 19 LBS
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Mar 23, 2010 08:59pm (EST)
Well Emma continues to be the apple of our eyes. She recently had her appointment with the pediatric pulmonologist and she said that Emma’s lungs sound very good. She is reducing the amount of breathing treatments from 2x a day to 1x a day. She doesn’t take any other meds, except albuterol as needed. She did mention that she wants Emma to start gaining weight. She is currently 19.3 lbs. She doesn’t gain easily, but she is 29 and ¼ in tall. She is very petit, yet tall. She is a very finicky eater. I feel she has some sort of texture aversion when it comes to food. She recently has been willing to try new foods and textures, so that is something we need to continue working with her. She is walking around furniture, but won’t let go unless we hold her hands. I think shell walk on her own soon. She recently started wearing shoes, so she’s learning to leave them on. She took them off a lot in the beginning, but I think she is getting used to them. When she walks we noticed that she would drag her left foot a bit and then take her step, so the physical therapist gave us some exercises for her to do to improve her walk. She doesn’t drag that much anymore, but we continue to work with her. The Regional Center also recently came out and did an assessment on Emma. They said cognitively she is where she should be at 12 months adjusted. However, she is behind in her language. They are starting her up with a teacher once a week to work with her speech and she is being referred for and evaluation by an occupational therapist. The nurse who came to do the evaluation said that because of how her palette is formed, that might have something to do with speech, but we’ll see what the specialist says. She does sign some words and I’m trying to teach her to sign so that she can communicate with us, so I’m not too worried yet. I know she understand everything we tell her. To me she is the smartest girl in the world. Anolther thing she is doing is waking up at about 3:30am every night and playing or staying awake until 4:30 am. I don't know if it was the time change or what, but I hope she goes back to her regular pattern soon.
We’ve also been getting out a bit more. Emma loves to be outside and she loves people. We are still careful about people who are sick and we try to be careful. We recently took Emma to Chuckie Cheese’s for the first time, and she loved it. We did wipe things down with wipes before she sat in anything and we did keep her away from this child who looked very ill. I don’t’ understand how people can take their SICK kids to such a public place an expose other children. Makes me crazy. Anyway we stayed away and Emma was ok. She got her first official balloon and she loved it. Overall Emma is doing very well. She does have an upcoming bronchoscopy/possible larynoscopy coming up. The ENT needs to make sure that she doesn’t continue to get subglottic cysts in her airway, so that should be happening next month some time. We are excited about Easter and the summer coming up. I would like her to take swimming lessons or some type of class where she can socialize with other kids. She loves kids very much, or people in general. She is a social butterfly. Anyway that is the update. Thank you to all who continue to keep Emma in your thoughts and prayers.
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Posted by Emma's Mommy 10 | Comments: (0) | Permalink
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SLOWLY GROWING
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Feb 21, 2010 09:13pm (EST)
Well, its been a while since I posted. Not much different. Emma is doing well. She is 15 months old ( 12 months corrected). She is saying only a few words, but she sure knows more than she speaks. She is almost 30 inches tall and she weighs 19 lbs. For some reason she has been at 19 lbs for a long time. She does not gain weight. Pediatrician doesn’t seem to be worried, but I’d like to see her gain some. She has become a very picky eater. She has regular milk twice a day, sometimes three and she eats three small meals a day with snacks. If she likes the food being offered she’ll eat the whole thing, but if she doesn’t then it’s a few spoonfuls. So anyway it’s a battle to get her to eat. I’m not sure if I need to start worrying about her speech, but the pediatrician says not yet. So I won’t . She is walking around furniture and takes a few steps, but she won’t let go yet. She is still a little afraid, but she’ll get there. She is getting taller, because she outgrew her old infant care seat. We had to go out and get her a new one. So she is growing, but not gaining.
Other than that she is well and still being feisty and more and more rambunctious.
On a personal note my husband and I have decided that since we can’t have anymore children, we are looking into adoptions. ( Well not that I can’t have anymore children, but the possibility of having a preemie is more than 80% , and I’m not willing to take that chance) We actually have our orientation appointment this upcoming Friday. I’m excited and nervous and looking forward to this new and exciting chapter in our life. Emma loves children and I really don’t want her to be an only child. So were looking into it, to see if adoption is right for us. I’ll keep you all posted.
Anyway that’s about it for now. Nothing else major going on. Thanks to everyone who continues to keep Emma and our family in their prayers and well wishes.
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Posted by Emma's Mommy 10 | Comments: (6) | Permalink
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NEEDS TO GROW
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Jan 26, 2010 09:39pm (EST)
Well, its been a while. Emma is growing slow and steadily, but she is not gaining weight easily. Last time we weighed her she was still 19 lbs. The good news is that she is now drinking whole milk, so that should help her gain. She transitioned beautifully from formula to whole milk. She loves it. She actually wants it all the time, but we try to only give it to her in the morning and in the afternoon and once during the day after lunch. She eats food and has her favorites. The only issue she has had is that with these new changes she become constipated. That has been hard to deal with. We started to give her a lot of prune, sweet potatoe and yogurt along with a teaspoon of flax seed oil. We also give her prune juice, and that seems to help.
Other than that she is beautiful and spunky. She's throwing kisses and talking up a storm. We can't understand what she is saying, but she sounds cute. She loves chocolate, (of course, shes a girl) and she stands everywhere, but wont take a step by herself. She is still afraid. She also has so much hair, it looks like a wig.
We are also getting prepared for her baptism sometime this summer. She still has her doctors appointments here and there, but we are slowly strolling along.
Thanks to everyone for your continued prayers and well wishes for our sweet Emma.
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Posted by Emma's Mommy 10 | Comments: (2) | Permalink
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REFLECTION OF 2009
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Jan 03, 2010 11:49am (EST)
Well I want to start of by wishing everyone a Happy New Year. This year has been one of many ups and downs for me and my family and one with many worries and joys. As I read through the other blogs of families who are going through many of the things we have gone through…..loss of our first born Ruben 2002 and Emma’s NICU journey in 2008/2009, I marvel at how we got through each one of those journeys. I become saddened to know that many families are going through the holidays with the pain of losing a child and having to put of a happy face for family and friends while all you want to do is curl up and hide. I know your pain. I also know the feeling of having our child in the NICU for 98 days, and the pain of having to leave her every night, while we get some much needed rest (which feels selfish to take). I know the pain of spending the holidays with our daughter in the NICU. Although many of the NICU staff become like extended family to us, we would have rather had our daughter home with us instead. This year we have been very fortunate to have Emma home with us. We feel blessed and fortunate to have our miracle child here. To us, Emma is our little miracle.
To all of the families who are having a rough time with the holiday season, I wish their was something magical that I could say to you to make it better, but their isn’t. Just know that many of us have gone through it and we (I) always have an ear to lend and a kind word to share, like many of you have shared with me over this last year. Thank You.
As an update on Emma, well she is well. She did get a slight bug a few days ago. Two days of a fever with a lot of nose discharge (boogies), but she is well now. She also had a bug in her tummy that made her bowls loose, but she is better now. She is crawling everywhere and she is getting braver and braver when it comes to standing in different places. She was evaluated by the Regional Center and she is doing well overall except her speech. Apparently she should be saying bi-syllabic words, but she isn’t. I know she understands everything, but her speech seems to be her only delay. In the last few days we have heard a lot more babbling and I’m hoping the speech comes soon. At her last meeting with the pulmonologist she mentioned that she wanted Emma to gain some weight, but it’s easier said that done. She does not gain weight fast. So I’m not sure what to do with that. Her pediatrician is not worried, but it’s in the back of my mind. She is currently in the 10th percentile and I guess they want her to be in the 50th percentile, so it’s something I need to work on. She continues to get her monthly dose of Synagis and she is up to date with all her shots. Her eye doctor said that she is doing really well with her glasses. She is using her right eye more than the left, so patching might be needed in the future. So we’ll have to see.
Now the Ferber method. Well our sweet Emma is in the habit of sleeping in her crib until about 3am when she wakes up and then wants to come to our bed. The time kept creeping up on us. It started at 3am, 12 am, and now we just put her down and she won’t stay in her crib. So let’s just say she ends up on our bed a lot earlier than we would like. So we decided to try this Ferber method. Let her cry for 5 minutes, then go in to soothe her, then leave and return in 10 minutes, then leave again and return in 15 minutes. Well after about the second round, she cried so much she threw up all over her crib and well, let’s just say she is back on our bed. So we are in search of a better method that would help our kangaroo addicted child. Any advice would be appreciated.
And finally my honey and I decided to have some child free time the other day. My sister was very gracious to offer to watch Emma while we went to the casino for a few hours. Well, this separation anxiety is very serious. My sister and her husband spent the entire four hours that we were gone, trying to keep Emma from crying her eyes out. She cried the majority of the time and was searching for her mommy and daddy. It was nice to be out, but all we could think about was our sweet Emma. When we got back she gave us the pout and her “I can’t believe you left me cry” and then was all smiles again. It was priceless. Thank you Alma and Chuy for entertaining our Emma. She surely kept them on their toes.
To our family and friends thank you for being understanding and for respecting our wishes when it came to visits and outings. Our sweet girl is well because of your prayers and your well wishes. We were supposed to keep it on the down low this holiday season, but we didn’t. We ventured out many times and our sweet Emma did well. We are still cautious and we still are worried, but we wanted her to have the experience of being with our family who also loves her very much. I wish everyone a great new year, and I hope this year brings us all peace and love.
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Posted by Emma's Mommy 10 | Comments: (2) | Permalink
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SLOW AND STEADY
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Dec 05, 2009 11:22am (EST)
Well, I haven't posted for a while. I've has some trouble with the website, but I hope that has been corrected. Well, we are gearing up for Christmas. I am very excited that our sweet Emma will be home for her 2nd Christmas. Her first Christmas we spent in the NICU, so this is a special Christmas for us.
Well our sweet Emma is crawling up a storm. She is all over the house. She has her two front lower teeth and looks cute. She is getting her Synagis monthly, she got her regular flu shot and her H1N1 flu shot as well. She has her bronschoscopy last week and they did find more cysts in her airway, but they were not as big as the last time and they were not causing any respiratory distress. The pulmonologist said her lungs have healed well from the pneumonia and she still wants her on the pulmicort breathing treatments. The pulmonologist also wants Emma to gain some weight, but her pediatrician says no that Emma is fine with her weights, so go figure. Emma currently weighs about 18.5 lbs and he measures almost 28 inches. She is beautiful and spunky and we feel so very blessed.
We are getting ready to take Christmas pictures here at home and we hope that goes smooth.
Anyway all is well and we hope that things stay that way. We are keeping it on a down low this Christmas, here at home.
Anyway thank you to everyone who continues to send prayers and well wishes to our sweet girl.
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Posted by Emma's Mommy 10 | Comments: (5) | Permalink
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