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SHARE HOME >  BACKSTAGE WORKROOM >  BACKSTAGE WORKROOM >  COMMUNITY CENTER ARCHIVE - 2006 >  COMMUNITY CENTER ARCHIVE - 2005 >  COMING ENHANCEMENTS TO SHARE

New User of the Share Site? Infrequent User? Can we talk with you?

Nancy White - 04:06pm Feb 9, 2005 EST
SHARE Technical Helper

Hiya. Some of us are looking at ways to help this fantastic site evolve and grow. An important part of that planning is hearing the experiences and ideas of community members. A group of core members has already been HUGELY helpful with brilliant ideas and feedback.

We'd also like to hear from some of you who may be newer to the community or less frequent users, as you may have some additional insights.

If you would be willing to have us contact you by email or phone and ask a few questions, would you please leave a note in this topic? THANKS!



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mandi19 - Feb 9, 2005 7:16 pm (#1 Total: 32)  

 

newbe

hi my name is mandi my son(kayden) was 5 weeks premie but even smaller then he should have been for his gestational age becuase of heart problems i would love to hear from ya'll my e-mail is: severlydisturbedchild@hotmail.com
-mandi and kayden-

Replies to this message
  • littleangelkisses (Mar 1, 2005 9:45 am)


  • Rebekah - Feb 10, 2005 10:47 am (#2 Total: 32)  

    Mommy to Micah (32 weeks, 4 lb 4 oz)  

    Sure!

    I'd love to help in any way! I have a 4 month old boy who was a 32 weeker. scgirl@knology.net Or if you'd lilke to call, just let me know in the email!

    Rebekah

    William's Mommy - Feb 10, 2005 11:32 am (#3 Total: 32)  

    *mother of William, 25 weeker*  

    love to help

    I'd be happy to give you any feedback you may ask for! email me at eyebright13@earthlink.net, I can give you my phone number through email if you need it!!!

    Dawn
    mother of William *ex 25 weeker*
     

    Amy Hamilton - Feb 10, 2005 12:20 pm (#4 Total: 32)  

     

    Here to help

    Yes,

    I'd like to help any way possible. My email is paddingtn5@aol.com. I've been trying to spread the word how wonderful this sight is and can be for so many families.

    Amy Hamilton (mother of 1 full term boy, two 26 wk girls 1 deceased, 1 almost 2 and doing great)

    Richelle Rode - Feb 10, 2005 12:27 pm (#5 Total: 32)  

     

    I can help here in Idaho

    My e-mail is roc69rode@yahoo.com or at work it's adm.richelle@bcchmail.org

    Working for a hospital here. I think information would be great especially with Health Fair coming up in April.

    Thanks!

    Tala's Mom - Richelle

    Nancy White - Feb 11, 2005 5:42 am (#6 Total: 32)  

    SHARE Technical Helper  

    Fantastic!

    We'll be in touch with you. You will either hear from me or Lee LeFever!

    Others, keep chiming in!

    keriann103 - Feb 11, 2005 11:20 am (#7 Total: 32)  

     

    I'm a new mother of a preemie

    I also gave birth to a 'borderline' preemie last year.

    My name is Keri and I now have 2 babies; Colin is now 13 months old and born at 36 weeks, 6 days. Hayden is 9 days old and was born at 32 weeks, 6 days.

    my email is keriann103@yahoo.com

    Melissa M. - Feb 11, 2005 12:19 pm (#8 Total: 32)  

    Mom of 25 weekers, Now Age 5 & 1.2 (3 surviving quads)  

    Hi,

    I actually am a frequent user, and would very much like to give you some feedback about this wonderful site. I never received the confirmation e-mail, so was unable to participate in the feedback via telephone. My address is balderdash12002@yahoo.com. Thanks ,

    Melissa Middleton

    Shireen Owen - Feb 11, 2005 1:35 pm (#9 Total: 32)  

     

    you can contact me

    I am a new member and also have a premature daughter. She is almost 4 weeks old and is doing great.
    my email is Shireen_Owen@astro57.webcrossing.com
    Shireen Owen

    [Last Editor: Shireen Owen, Feb 11, 2005 1:35 pm. Total Edits: 1]

    Replies to this message
  • Peggy Dominguez (Jun 7, 2005 8:54 am)


  • abears - Feb 12, 2005 8:11 pm (#10 Total: 32)  

     

    I am willing to help

    I am the mother of two preemies. Patrick born at 31 1/2 weeks due to toxemia and Hayden born at 32 1/2 weeks due to an abruption.

    You are doing a great job of educating and supporting families.

    I wish I had something like this when Patrick was born.

    Feel free to contact me.

    abears@rtconline.com

    Marcie Hebert

    bdb410 - Feb 13, 2005 11:26 am (#11 Total: 32)  

     

    I'm a mom of a preemie too~

    Hi

    I'm new here and I would like to help! I'm going through a hard time emotionally (still) and maybe I could help out some how and feel better too! Please email me pkburnett@hvc.rr.com

    Nancy White - Feb 14, 2005 11:41 am (#12 Total: 32)  

    SHARE Technical Helper  

    Fantastic, thanks again!

    I've sent emails to everyone who posted above. Any others who wish to lend a hand, just post here and we'll follow up with you. Again, thanks in advance for your feedback and insights.

    Replies to this message
  • Shannon Summers (Feb 17, 2005 8:04 am)


  • Shannon Summers - Feb 17, 2005 8:04 am (#13 Total: 32)  

     

    Replying to: Nancy White (Feb 14, 2005 11:41 am)
    Fantastic, thanks again!: I've sent emails to everyone who posted above. Any others who wish to lend a hand, just...

    Re: Fantastic, thanks again!

    Hi Nancy-
    I guess I am an infrequent user? My daughter was born at 28 weeks, 1 lb. 8 ozs., and will be 6 in April. I'd be more than happy to share any or all of our story with you. Just let me know-
    Shannon

    Kathryn Bratko - Feb 18, 2005 3:25 pm (#14 Total: 32)  

     

    new and infrequent!

    Hi my name is Katy, I had a 25weeker about a year ago, Connor. He's one of the few that didn't make it. It's been scary because I'm young, 22, and single, but this site has helped a great deal, and I'd love to get more involved, I too work at a hospital. How can I help more?
    Here's my email: Kbratko64@hotmail.com
    Thanks!
    ~Katy

    Esther - Feb 18, 2005 3:36 pm (#15 Total: 32)  

     

    new user

    Dear Nancy,
     I am a relatively new user who would be happy to be contacted per your post. -Esther Borders

    tinainoregon - Feb 18, 2005 3:58 pm (#16 Total: 32)  

     

    Hi Nancy,
    I'm what you might describe as a new/infrequent user. Feel free to contact me as well.
    Tina

    Cynthia Walk - Feb 19, 2005 7:36 pm (#17 Total: 32)  

     

    New user

    I am a brand new user - I have lost a 23 and 26 (after 2 1/2 monthis in NICU) weeker. I will be happy to try and help. My email is cwalk6@hotmail.com

    TinyMunchkinsMom - Feb 19, 2005 11:03 pm (#18 Total: 32)  

     

    Newbie

    Hi all, I am a mom of a 26 weeker, now almost 10 months old. He was diagnosed in January with failure to thrive, PVL, possible cerebral palsy, and all that stuff. Its been very overwhelming, and I am looking for some support. My email is micropreemie@yahoo.com

    Nancy White - Feb 22, 2005 2:42 pm (#19 Total: 32)  

    SHARE Technical Helper  

    Thank You!

    We've sent email to all the volunteers. Thanks! Soon we'll be back asking for more of your ideas and opinions. THANK YOU!!!

    Mia'sMommy - Feb 22, 2005 8:43 pm (#20 Total: 32)  

     

    Extremely new to the site!

    Hi my name is Sarah. I play mommy to an ex 25 weeker, her name is Mia and she just turned 2 on Feb. 18th. I would love to hear from anyone and everyone. My email address is SHartley0186@aol.com
    Thank you!
    Sarah

    Replies to this message
  • Karri (Feb 22, 2005 8:52 pm)


  • Karri - Feb 22, 2005 8:52 pm (#21 Total: 32)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: Mia'sMommy (Feb 22, 2005 8:43 pm)
    Extremely new to the site!: Hi my name is Sarah. I play mommy to an ex 25 weeker, her...

    Re: Extremely new to the site!

    Hi Sarah,
    Welcome to SHARE! Happy Birthday to Mia! My twin girls were also born at 25 weeks and will be 4 on Thursday!

    Happy to have you and Mia to join this wonderful site. You will find many supportive PoP's here. Please share your experiences with all of us and ask any questions you have. If you have had a particularly bad day come to SHARE and vent. It makes you feel much better just knowing your not alone in this big world.

    Take care and again, Welcome!
    Karri

    Felicia&Michael - Feb 22, 2005 11:05 pm (#22 Total: 32)  

     

    Re: Thank You!

    we are new users to this site and parents of a 25 weeker born at 1lb 9oz. He will be 5 yrs old in April!

    littleangelkisses - Mar 1, 2005 9:45 am (#23 Total: 32)  

     

    Replying to: mandi19 (Feb 9, 2005 7:16 pm)
    newbe: hi my name is mandi my son(kayden) was 5 weeks premie but even smaller then he should have been...

    Sure

    I am the mother of a 31 weeker who is now 5 1/2 months old. I'd love to answer any questions. smithsonl@davenportschools.org

    therese - Mar 10, 2005 7:43 pm (#24 Total: 32)  

     

    Infrequent User

    sure, i'm happy to offer feedback as an infrequent user. i'd love to be here more and i will try in the future. bellissimo@nycmail.com

    Cyril's mom - Mar 10, 2005 8:38 pm (#25 Total: 32)  

     

    New User

    I'll be more than happy to talk to you and help in any way that I can. You can e-mail me at neddy_claude@hotmail.com.

    Peggy Dominguez - Jun 7, 2005 8:54 am (#26 Total: 32)  

     

    Replying to: Shireen Owen (Feb 11, 2005 1:35 pm)
    you can contact me: I am a new member and also have a premature daughter. She is almost 4 weeks...

    For Shireen

    This may sound like a silly question, but I noticed your email was from webcrossing. I think I was assigned an email site from webcrossing when I joined this Share site because my usual was is at hotmail.com. How do you access your webcrossing email account? I can't seem to figure that one out. Maybe I am just not computer savvy!
    Thanks,
    Peggy

    Nancy White - Jun 7, 2005 12:48 pm (#27 Total: 32)  

    SHARE Technical Helper  

    It is an alias email

    Peggy, the system sets and alias so you don't have to reveal your real email address. The system then forwards it to whatever email address you registered with. Make sense?

    Replies to this message
  • Peggy Dominguez (Jun 25, 2005 11:10 am)


  • Jacobs-Nana - Jun 7, 2005 2:23 pm (#28 Total: 32)  

    Proud Nana to Jacob Aaron "My Hero"  

    Sign Me Up!!!!!

    I would be happy to share as well SIGN ME UP!!!!!
    jacobs-nana@sbcglobal.net

    Laura James - Jun 7, 2005 6:04 pm (#29 Total: 32)  

     

    my very first post!

    Yes, I am thrilled to give any input I can!

    twins' mommy - Jun 7, 2005 6:23 pm (#30 Total: 32)  

     

    feedback

    I will help any way I can!

    Nancy White - Jun 11, 2005 4:58 pm (#31 Total: 32)  

    SHARE Technical Helper  

    Thanks

    Thanks, Laura and Twins'mommy

    We are getting closer to launching the updated look and features. So the next time for feedback will be when it happens! We'll need as much feedback as possible so we can adjust anything that is needed.

    Stay tuned... news coming early in July!

    Peggy Dominguez - Jun 25, 2005 11:10 am (#32 Total: 32)  

     

    Replying to: Nancy White (Jun 7, 2005 12:48 pm)
    It is an alias email: Peggy, the system sets and alias so you don't have to reveal your real email...

    Re: It is an alias email

    That makes complete sense now! Thanks, Nancy.



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