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SHARE HOME >  BACKSTAGE WORKROOM >  BACKSTAGE WORKROOM >  COMMUNITY CENTER ARCHIVE - 2006

New Here? Say Hello! June 2006 Edition

James SooHoo - 10:49am Jun 1, 2006 EST
Share Your Story Community Host

It is June, and time to start a new welcome topic!

Welcome to the March of Dimes SHARE site. Take a minute to stop in and say hello and introduce yourself! If you want to tell your story, go to Share Your Story. If you posted a new discussion to introduce yourself, you may find we have moved it here so people can easily find and greet you.



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sara lou - May 31, 2006 9:19 pm (#1 Total: 95)  

 

my angels

this is my first time at this site, I posted a blog but I can't figure out how to update it(computers are not my thing). At 30 weeks I went in for a level 2 ultra sound,routine, and found out I lost one of my baby girls.Four days later Sophia was born and spent 4 weeks in the nicu. I know her sister Isabelle watched over her. I never knew how bad the heart can hurt. My husband and I were able to hold her, but I never saw her. Sophie is now 7months and doing great. I thank God every day for her, and the short time we were able to spend with Izzy, my angel looking out for my angel here.

Sharlene+2 - Jun 1, 2006 7:13 am (#2 Total: 95)  

Mom to Taylor (14) and ^George Daniel^  

Sara,

I'm so sorry for your loss of Isabelle...she is Sophia's guardian angel now, watching over her and keeping her safe.

I wish I had magic words to make your pain go away, but all I can offer you is that I'm always here for you. Knowing you are not alone sometimes is very helpful.

As far as your blog, when you go into your blog, it'll say *Add Entry* at the top....hit that to update it. If you still can't figure it out...there's a section in Community Center to ask questions and our *techies* will help you through!!!

Hugs, hope, and healing,
Sharlene

[Last Editor: Sharlene+2, Jun 1, 2006 7:13 am. Total Edits: 1]

toni wedding - Jun 1, 2006 12:29 pm (#3 Total: 95)  

 

Our angel Zoe Eileen

We lost a granddaughter at 6 weeks and 1 day, she was born with a neuroglioblastoma which was believe to have been developing since she was a fetus. She was beautiful. This is the hardest thing we ever had to deal with. I believe children are God's most precious gifts and should be treated as such. My daughter and the rest of us have suffered such heartache. Zoe looked so perfect. She was also born with a cleft of the hard and soft which was repairable. She had big black shiny eyes and very dark skin. Our Shaman asked permission from the Elders and gave her the name of Cherokee Rose before she passed. I miss her daily as do her mother, father, grandfather, well everyone in our family. Today is a hard day for me.

Replies to this message
  • Jacobs-Nana (Jun 1, 2006 2:20 pm)


  • LogansMom28w - Jun 1, 2006 2:04 pm (#4 Total: 95)  

    My 3 boybarians are 4, 5 and 7.  

    Toni,
    I am so very sorry for the loss of your precious Zoe. My heart breaks for your daughter and the whole family. I welcome you warmly to Share, and pray you'll find comfort here.
    Darcy

    Jacobs-Nana - Jun 1, 2006 2:20 pm (#5 Total: 95)  

    Proud Nana to Jacob Aaron "My Hero"  

    Replying to: toni wedding (Jun 1, 2006 12:29 pm)
    Our angel Zoe Eileen: We lost a granddaughter at 6 weeks and 1 day, she was born with a neuroglioblastoma...

    Re: Our angel Zoe Eileen

    Toni,

    Welcome to share!!!!...I am so sorry for the loss of your precious Granddaughter....

    I am sorry today is a hard day for you, I am sure right now most all days are difficult.... My thoughts and prayers are with you....

    A couple years ago our family had the honor of meeting a beautiful little man with neuroblastoma..I am not sure if this is the same as your granddaughter or not....
    Caleb lost his battle with this as well..

    Please know we are here for you, please visit often. ..and tell your daughter we are here for her when she is ready.....

    God Bless
    Melody

    mowannariley - Jun 1, 2006 9:07 pm (#6 Total: 95)  

     

    mother of 8

    hi my name is mowanna and im a 42 year old with 2 teenagers,that im raising alone,well at least you might as well say alone.becuase i get no help,from my boyfriend.but anyways thats me. i also have 6 other children whom live with there father,so its real hard trying to deal with it.

    AmyBeth® - Jun 2, 2006 11:28 am (#7 Total: 95)  

     

    Welcome to Share!

    Thanks for joining Share! I look forward to reading your story.

    Amy

    The Mommy Who Needs Share - Jun 3, 2006 11:49 pm (#8 Total: 95)  

     

    New Here!

    Hi! My name is Shari and I have started a blog to let others know that I care about them. I hope I can be a help and a blessing to the mothers and fathers here! Since my close friend gave birth to twins at 26 weeks last year I have done an intense study on preemies so I could help her. Chat with you soon. Have a super day!

    DNASMOM - Jun 4, 2006 5:41 am (#9 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Hi Shari! Welcome to share. I will keep an eye out for your blog. I hope you get as much enjoyment from our community as I do.
    I hope your friend is doing well.


    welcome13

    burdhome - Jun 4, 2006 11:08 am (#10 Total: 95)  

     

    Hi My name is Bobbie Lee, I just had my first granddaughter born at 26 weeks, she was 1 pound 15 ounces , so far doing really good. my daughter already got to hold her and she is not on a ventilator just the tubes in her nose. she was born may 30th so she is a little over four days, the only thing so far is the little valve in her heart that has not closed, but they gave her meds and will check on monday to see if it has closed. I would love any info I can get on what to expect with a baby this small. feel free to reply or email me at burd3@cox.net. thanks so much

    Kathryn:Mom&NICU Nurse - Jun 4, 2006 1:09 pm (#11 Total: 95)  

    Marina 28w, Emma 36w, Olivia 34w 2 days  

    Welcome to Share Bobbie Lee! I hope be reading the stories and talking to us all you can find out the information that you need. Congratulations on the birth of your Grandaughter. Keep us posted on her progress!
    Kathryn

    haileysmom2006 - Jun 4, 2006 7:15 pm (#12 Total: 95)  

     

    New

    Hello eveyone im new here lol obviously! Im just learning how to navigate this site so any info would be helpfull. My name is sandy and im 23 years old i live in NC and i just had my 1st baby. The pregnancy experience was awfull i stayed sick and tired the entire time but have just found out that my gallbladder was the problem and just had it removed. I had my Baby at 30 weeks gestation and she has been in the nicu for a month now. I have so many thoughts and fears and well everything going through my head this is my 1st baby and was not expecting all of this to happen.

    DNASMOM - Jun 4, 2006 8:38 pm (#13 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Hi Sandy,
    Welcome to Share. Congratulations on your new baby girl. There is a section under Parent to Parent that is dedicated to babies in the NICU. You may find this to be helpful. There are many POP's who also have a baby/babies in the NICU. You may also find it helpful to start a blog. I would love to keep up with your daughter's progress.
    I'm sure you will find your way around this site in no time. You may also find it is very addicting!

    Karen

    burdhome - Jun 4, 2006 10:02 pm (#14 Total: 95)  

     

    thanks so much, my daughter just called and they let her hold her for the second time. she has gained 2 ounces since yesterday which puts her at 1 lb 12 oz. she is doing great so far. in about an hour she will be 5 days old lol. I am so excited she is doing so well so far, I know she will have her battles but she is very strong. so we just keep praying.

    burdhome - Jun 5, 2006 10:22 am (#15 Total: 95)  

     



    Ava 77019

    2 here 2 in Heaven - Jun 5, 2006 12:46 pm (#16 Total: 95)  

    Surviving 26 week triplet...2 angels, & a 36 week singleton.  

    I'm so sorry for your loss of Isabelle, words just cannot describe how sorry I am. I did have to smile at Sophia's story, I'm glad to hear that she is doing good!

    Welcome to Share!

    -Shonda

    Tracie C. ~ KY - Jun 6, 2006 12:25 pm (#17 Total: 95)  

     

    New to this site

    Hi, my name is Tracie, I gave birth to my son Ross at 28 wks. and 4 days. I always make sure to count those 4 days. Ross is my second son, my first Cole was full term so it ws very unusual to have my 2nd preterm. We were finally discharged from the NICU on the 15th of May after 55 days. Ross weighed 3lbs and 11 oz. at birth and as of the other day was 9lbs. even. Though now he has to have a hernia repaired and will have to have surgery. Not that I want others to go through the same thing that I am going through however it is nice to know that I am not alone. My hubby is great with support but we both have the same fears of not knowing what is ahead, and would like some normal days for our sons.

    Replies to this message
  • DNASMOM (Jun 6, 2006 3:00 pm)
  • Karri (Jun 9, 2006 7:56 pm)


  • RogerandShawna - Jun 6, 2006 1:09 pm (#18 Total: 95)  

     

    We are the parents of Sarah Grace she is our lil angel in heaven

    We recently gave birth to a lil 1lb 3oz little angel she was 11.5 inches long and she was born on March 27,2006 she was due July 18 but she came at 23 1/2 weeks she was perfect but due to toxemia i went into premmatrure labor it was a surprise i mean we had some complications in the begining but we thought that was over but our lil angel came as long as she could but we feel greatly blessed to have her as our own even though she is with Jesus we know we will see her again one day. We love you Sarah Grace. Love, Mommie and Daddy

    DNASMOM - Jun 6, 2006 2:51 pm (#19 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Sarah Grace is such a beautiful name for such a beautiful angel. I am so sorry she was taken from you so soon. I am hoping you can find some comfort here at Share. There are other parents of angels(me being one of them) who you can talk to and possibly help you through these very rough waters.

    Welcome to Share- Roger and Shawna

    Karen

    DNASMOM - Jun 6, 2006 3:00 pm (#20 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: Tracie C. ~ KY (Jun 6, 2006 12:25 pm)
    New to this site: Hi, my name is Tracie, I gave birth to my son Ross at 28 wks. and...

    Re: New to this site

    Hi Tracie!

    Congratulations on the birth of Ross. I did the same thing about adding days. My daughter was actually born at 32 wk 3 days but I just always say 33wks. Don't know why.
    Ross sounds like he is doing great since he's been home. Cole must be tickled to have his little brother home finally. I wish you much luck with the hernia operation. You might be interested in starting a blog. Mine has been helpful to me and it is great for helping me remember important milestones.

    I hope to hear more about Ross's progress.
    Welcome to Share!!

    Karen

    2 here 2 in Heaven - Jun 7, 2006 10:26 am (#21 Total: 95)  

    Surviving 26 week triplet...2 angels, & a 36 week singleton.  

    Thanks so much for joining share! I look foward to reading more!

    -Shonda

    HeidiB - Jun 8, 2006 11:06 am (#22 Total: 95)  

     

    Marcus Wayne Barker/ Heidi's Journal

    Hi Im Knew
    I just want to thank every one, I have never felt beter in my life like now. I never new that there is so many mums that are going through this pain I have. The more stories I read the more I see that Im not alone in this world.
    Thanks
    Heidi

    Replies to this message
  • Sharlene+2 (Jun 8, 2006 11:09 am)
  • LogansMom28w (Jun 8, 2006 11:32 am)


  • Sharlene+2 - Jun 8, 2006 11:09 am (#23 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: HeidiB (Jun 8, 2006 11:06 am)
    Marcus Wayne Barker/ Heidi's Journal: Hi Im Knew I just want to thank every one, I have never...

    Re: Marcus Wayne Barker/ Heidi's Journal

    We're so glad you're here at Share, Heidi..and hope you continue to share Marcus with us.


    consider yourself hugged

    LogansMom28w - Jun 8, 2006 11:32 am (#24 Total: 95)  

    My 3 boybarians are 4, 5 and 7.  

    Replying to: HeidiB (Jun 8, 2006 11:06 am)
    Marcus Wayne Barker/ Heidi's Journal: Hi Im Knew I just want to thank every one, I have never...

    Re: Marcus Wayne Barker/ Heidi's Journal

    Heidi,
    What a great message. That's exaclty why most of us do this! Welcome to the community!

    Darcy

    bokan103105 - Jun 9, 2006 1:30 pm (#25 Total: 95)  

     

    newcomer

    hi everyone, am a new mum with a wonderful daughter born at 29wks&5days. it has been a trying period but i give glory to God

    Replies to this message
  • Sharlene+2 (Jun 9, 2006 1:35 pm)
  • DNASMOM (Jun 9, 2006 2:41 pm)
  • Karri (Jun 9, 2006 7:59 pm)


  • Sharlene+2 - Jun 9, 2006 1:35 pm (#26 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: bokan103105 (Jun 9, 2006 1:30 pm)
    newcomer: hi everyone, am a new mum with a wonderful daughter born at 29wks&5days. it has been a trying period...

    Re: newcomer

    Welcome to Share! I can't wait to read your story and hear all about your daughter!!

    Hugs!


    welcome

    DNASMOM - Jun 9, 2006 2:41 pm (#27 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: bokan103105 (Jun 9, 2006 1:30 pm)
    newcomer: hi everyone, am a new mum with a wonderful daughter born at 29wks&5days. it has been a trying period...

    Re: newcomer

    Hello and welcome to Share.
    Congratulations on the birth of your daughter. I am looking forward to hearing more about you both.

    Karen

    Wilmoth83 - Jun 9, 2006 6:31 pm (#28 Total: 95)  

     

    new to share your story

    this is my first time talking about my son with others other than family.

    Replies to this message
  • DNASMOM (Jun 9, 2006 7:50 pm)
  • DNASMOM (Jun 9, 2006 8:01 pm)
  • Karri (Jun 9, 2006 8:01 pm)


  • DNASMOM - Jun 9, 2006 7:50 pm (#29 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: Wilmoth83 (Jun 9, 2006 6:31 pm)
    new to share your story: this is my first time talking about my son with others other than family.

    Re: new to share your story

    Welcome to Share.

    You may find it is easier to talk with others who have been through the same experiences. I am hoping you will find this to be a wonderful, non-judgemental community of good friends who will help you through your ups and downs.

    Share has brought alot of joy and comfort into my world. I encourage you to write a short story and introduce yourself.

    I look forward to hearing more from you soon-

    Karen

    Karri - Jun 9, 2006 7:56 pm (#30 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: Tracie C. ~ KY (Jun 6, 2006 12:25 pm)
    New to this site: Hi, my name is Tracie, I gave birth to my son Ross at 28 wks. and...

    Re: New to this site

    Hi Tracie,

    Welcome to Share. Congratulations on Ross. It's great to hear how well he's doing.

    Share is an incredible place full of supportive parents who have been where you are today. You are NOT alone. We are all here for you, as you begin this new journey with Ross; being at home with a preemie. It's much different than raising a full term baby.. but just as special.

    I also had a full term child before giving birth to my preemie twins, at 25 weeks.

    We look forward to hearing more about Ross, and his adventures.
    Take care,
    Karri

    Karri - Jun 9, 2006 7:59 pm (#31 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: bokan103105 (Jun 9, 2006 1:30 pm)
    newcomer: hi everyone, am a new mum with a wonderful daughter born at 29wks&5days. it has been a trying period...

    Re: newcomer

    Congratulations on your wonderful daughter. Having a preemie is a most difficult journey. We're very happy that you have found Share. You need not walk this journey alone, we're here for you, whatever you need.

    Welcome to Share,
    Karri

    DNASMOM - Jun 9, 2006 8:01 pm (#32 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: Wilmoth83 (Jun 9, 2006 6:31 pm)
    new to share your story: this is my first time talking about my son with others other than family.

    Re: new to share your story

    I just noticed that you already did write a short story. Sorry, I guess I should have looked at that first.

    You went through quite an ordeal with the birth of Zachary. I hope you will update us soon.

    Karen
     

    Karri - Jun 9, 2006 8:01 pm (#33 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: Wilmoth83 (Jun 9, 2006 6:31 pm)
    new to share your story: this is my first time talking about my son with others other than family.

    Re: new to share your story

    Welcome to Share. We're happy to have you, and look forward to hearing about your son.

    Sometimes it's easier to talk with others who have had a similar experience. We understand your feelings, having been in on a similar journey.

    Take care,
    Karri

    mommy2beagain - Jun 11, 2006 1:51 pm (#34 Total: 95)  

     

    Pregnant again with history of pre-term labor

    Hello!

    I am currently 6 weeks pregnant with my 5th pregnancy. I have 3 healthy girls who were all born premature. None with any long-term medical problems. I endure pre-term labor, I have for all of my pregnancies. I was pregnant last year and my babies heart stopped beating when I was 13-weeks pregnant and had to have a DNC. This is a surprise pregnancy and I am happy and extremely scared to have a miscarriage or earlier pre-term birth. Just looking for some people to talk to who may have a similar situation.

    Replies to this message
  • DNASMOM (Jun 12, 2006 7:56 am)
  • Kathryn:Mom&NICU Nurse (Jun 14, 2006 3:24 pm)


  • DNASMOM - Jun 12, 2006 7:56 am (#35 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: mommy2beagain (Jun 11, 2006 1:51 pm)
    Pregnant again with history of pre-term labor: Hello! I am currently 6 weeks pregnant with my 5th pregnancy. I...

    Re: Pregnant again with history of pre-term labor

    Hello Mommy to be.
    Welcome to Share. Congratulations on your pregnancy. I know that this must be a time filled with both joy and apprehension.
    You might want to check out the Parent to parent section. There are alot of moms who are currently pregnant after recovering from a loss. Share is a wonderful supportive community. We will be here with you for the remainder of your pregnancy and beyond! I am hoping you go clear into 35 wks or better.

    Karen

    Replies to this message
  • DNASMOM (Jun 12, 2006 7:59 am)


  • DNASMOM - Jun 12, 2006 7:59 am (#36 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: DNASMOM (Jun 12, 2006 7:56 am)
    Re: Pregnant again with history of pre-term labor: Hello Mommy to be. Welcome to Share. Congratulations on your pregnancy....

    Re: Pregnant again with history of pre-term labor

    I also wanted to add that I am very sorry you suffered a loss with your previous pregnancy. I am wishing to much strength as you move forward in this pregnancy.

    Karen

    tabkelly05 - Jun 12, 2006 11:31 am (#37 Total: 95)  

    Tabatha Kelly  

    New member

    My name is Tabatha and I just joined a few days ago. I lost my first child to prematurity. I was 21 weeks along when he was born. On August 30th, he came into this world and only shared it with us for a few moments. I do miss him and miss not being a mom but I am nervous about having another child. Any suggestions?

    Replies to this message
  • Sharlene+2 (Jun 12, 2006 11:54 am)
  • DNASMOM (Jun 12, 2006 1:01 pm)
  • Jacobs-Nana (Jun 14, 2006 9:27 am)


  • Sharlene+2 - Jun 12, 2006 11:54 am (#38 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: tabkelly05 (Jun 12, 2006 11:31 am)
    New member: My name is Tabatha and I just joined a few days ago. I lost my first child to...

    Re: New member

    Welcome to Share, Tabatha! I'm so sorry for the reason you need us, but so happy you found us. There are many of us at Share who have lost a child/children, and we're here to help you through! You are a mom, and don't forget that....you are a mom to a beautiful little angel.

    I know you're worried about having another child, and that is so normal. There is a thread on Share regarding this very issue....click here to find it....I hope it provides you some comfort and help....it always helps to know you are not alone.

    Looking forward to getting to know you more through Share and knowing more about your son.

    Hugs, hope, and healing,
    Sharlene

    DNASMOM - Jun 12, 2006 1:01 pm (#39 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: tabkelly05 (Jun 12, 2006 11:31 am)
    New member: My name is Tabatha and I just joined a few days ago. I lost my first child to...

    Re: New member

    Hi Tabatha! Welcome to Share..

    I'm so sorry for your loss. I hope you will find much comfort here at Share.

    Karen

    Jacobs-Nana - Jun 14, 2006 9:27 am (#40 Total: 95)  

    Proud Nana to Jacob Aaron "My Hero"  

    Replying to: tabkelly05 (Jun 12, 2006 11:31 am)
    New member: My name is Tabatha and I just joined a few days ago. I lost my first child to...

    Welcome to Share Tabatha!!!

    Tabatha,

    Welcome to Share!!!..I am so sorry for your loss... I do hope you will visit often.... Share is a wonderful community where you will not only be able to connect and relate to so many, but will find comfort and healing...

    I have to say I love your Name.. My Daughter in law is named Tabatha as well, she is Jacobs Mommy here on share...

    God Bless
    Melody

    Kathryn:Mom&NICU Nurse - Jun 14, 2006 3:24 pm (#41 Total: 95)  

    Marina 28w, Emma 36w, Olivia 34w 2 days  

    Replying to: mommy2beagain (Jun 11, 2006 1:51 pm)
    Pregnant again with history of pre-term labor: Hello! I am currently 6 weeks pregnant with my 5th pregnancy. I...

    Re: Pregnant again with history of pre-term labor

    Welcome to Share! I just wanted to let you know that there is a group of us that are pregnant also. We have all been through similar things. Feel free to join as under Pregnant, On Bedrest or Trying again. I know this group has been so helpful to me.
    Kathryn

    Justsmileplez - Jun 15, 2006 4:17 pm (#42 Total: 95)  

     

    new member

    Hello i recently had my first baby girl she was born 17 weeks early. WOW i was scared i have a 4 year old baby boy who was full term. My husband and i are having a very hard time coping with this we both are out of work and it is hard. My son is also feeling the pressure and stress we are sending i have yet to meet some one who has ever been through any thing like this i hope i can get support from here.

    Replies to this message
  • mallocups (Jun 15, 2006 5:15 pm)
  • DNASMOM (Jun 15, 2006 5:42 pm)
  • Karri (Jun 15, 2006 9:18 pm)


  • mallocups - Jun 15, 2006 5:06 pm (#43 Total: 95)  

     

    NEW TO THIS SITE

    We are the Malloy's from Beaver, PA. We are new to this site. We recently found out about it the other night at a scrapbooking event at West Penn Hospital. We will be starting a blog soon. But just wanted to basically introduce ourselves. Our daughter Lindsay was born in the Medical Center in Beaver on February 12, 2001. She was taken by helicopter to West Penn Hospital that evening. At 22 months we found out that she has cerebal palsy. It affects her left side. Now she is 5 and starting school in the Fall. There is alot to say and explain. We will do so in the blog we create. But we are glad to be a part of this now.

    God bless all of you,
    The Malloy's

    Replies to this message
  • DNASMOM (Jun 15, 2006 5:52 pm)
  • Karri (Jun 15, 2006 9:23 pm)


  • mallocups - Jun 15, 2006 5:15 pm (#44 Total: 95)  

     

    Replying to: Justsmileplez (Jun 15, 2006 4:17 pm)
    new member: Hello i recently had my first baby girl she was born 17 weeks early. WOW i was scared...

    Hello

    My name is Chris Malloy. Believe me, I can relate to this. When my daughter was born, I too, was out of work. My wife is a homemaker, so we had no income except unemployment. Then as the pressure built up, we realized that God does things for reasons. We strongly believe that when I lost my job it was for the sole purpose of me being able to be there. I went to the chapel and asked for guidance everyday at the hospital. My daughter came home in April and I found a job in July, right before my unemployment was going to run out. I know what its like to be scared and uncertain. Just keep the faith. God will lead you.

    I hope that I helped a little.

    God bless your family,

    Chris Malloy

    [Last Editor: mallocups, Jun 15, 2006 5:21 pm. Total Edits: 1]

    DNASMOM - Jun 15, 2006 5:42 pm (#45 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: Justsmileplez (Jun 15, 2006 4:17 pm)
    new member: Hello i recently had my first baby girl she was born 17 weeks early. WOW i was scared...

    Re: new member

    Hello,
    Welcome to Share!!

    I imagine it must have been very scary for you. How is your little girl doing?
    My husband was unemployed not long after our daughter was born. Luckily he was able to collect unemployment, but it does add to the stress of having a premature baby.

    I imagine that your daughter's premature birth has affected your son. He doesn't know what to think, only that mommy and daddy are very upset. He probably will need some extra loving and reassurance.

    I wish you and your family the best of luck. Thank you for sharing your story with us. I look forward to hearing from you soon.

    Welcome!
    Karen

    DNASMOM - Jun 15, 2006 5:52 pm (#46 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: mallocups (Jun 15, 2006 5:06 pm)
    NEW TO THIS SITE: We are the Malloy's from Beaver, PA. We are new to this site. We recently found...

    Re: NEW TO THIS SITE

    Hi Chris!

    Welcome to Share. I am glad you will be starting a blog. You have an amazing story to tell about Lindsay. It must have been hard to imagine after those first days after birth that she would come so far. Five years old already!

    I am looking forward to hearing your story.

    God Bless,
    Karen

    p.s. About 20 some years ago, I used to live near Lansdale, PA. I can't remember how close Beaver was, but I do recall the name.

    AmyBeth® - Jun 15, 2006 8:05 pm (#47 Total: 95)  

     

    Welcome New Members!

    You will quickly find that we are all brought to Share for different reasons, whether it be prematurity, birth defects or infant mortality or for some all three. We all, however, share the love for our children that is unmistakenly and undeniably the strongest bond for all of us! I can't wait to get to know you all better and I hope that you enjoy share and make this your home on the web.

    Blessings to you all.

    Amy

    Karri - Jun 15, 2006 9:18 pm (#48 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: Justsmileplez (Jun 15, 2006 4:17 pm)
    new member: Hello i recently had my first baby girl she was born 17 weeks early. WOW i was scared...

    Re: new member

    Congratulations on the arrival of your daughter. I understand how scary this all is. The NICU is unpredictable, and often times a place of great fear.

    I also understand your struggles with having a child at home. I had a two year, at the time my twin girls were born, at 25 weeks.

    Truely take one day at a time. It's hard to imagine long term. Celebrate the good days, as you will find strength in that hope, when a difficult day comes.

    You will find an incredible community here of parents who have been where you are. We're here to walk this journey with you. To cry with, ask questions to, and celebrate the good days.

    We hope to hear from you again, soon.
    Take care, and Welcome to Share,
    Karri

    Karri - Jun 15, 2006 9:23 pm (#49 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: mallocups (Jun 15, 2006 5:06 pm)
    NEW TO THIS SITE: We are the Malloy's from Beaver, PA. We are new to this site. We recently found...

    Re: NEW TO THIS SITE

    Welcome to Share. We're so happy to have you here in our community, and are anxious to hear all about Lindsay.

    I have twin girls that were born on Feb. 24, 2001, at 25 weeks. They will also be starting Kindergarten in Sept. I'm also originally from Altoona, Pa, now living in the Chicago area.

    Take care,
    Karri

    caseyamber - Jun 19, 2006 9:37 am (#50 Total: 95)  

     

    Casey new member

    Hi! I just am writing to introduce myself. I am new to this web page, but I think I am getting around on it ok. We will find out. I have a son that was born at 31 weeks 2 days. it was a huge suprise to my husband and I. He is doing great and now is home. He spent a month in NICU. I never new a place could be so wonderful and caring. My son is now 2 months old and we are arriving on what should have been his due date. (June 25 2006) We are going to have a party for him to celebrate how far he has come.
    Well I hope to get more invovled with this great organization. I also hope to use this web page as a comfort and relief area.

    Replies to this message
  • Karri (Jun 19, 2006 8:22 pm)
  • DNASMOM (Jun 20, 2006 8:59 pm)


  • AmyBeth® - Jun 19, 2006 11:19 am (#51 Total: 95)  

     

    Hi Casey!

    Welcome to Share! When I found myself to be the most confused, alone and lost in life, I found Share and I no longer feel as though no one can understand or relate. Although we all come here for different reasons, birth defects, prematurity and to remember and grieve for the loss of our newborn, we have a bond that no one can ever take away from us. We have loved a child.

    God Bless and continue to post, I can't wait to hear more about your precious son and his progress.

    Amy

    Karri - Jun 19, 2006 8:22 pm (#52 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: caseyamber (Jun 19, 2006 9:37 am)
    Casey new member: Hi! I just am writing to introduce myself. I am new to this web page, but...

    Re: Casey new member

    Hi Casey! Welcome to Share. We're happy to have you hear and look forward to hearing all about your baby boy.

    Share is an amazing community of families who have walked a similar journey. We're here to support you in any way you need.

    The March of Dimes is an incredible organization, doing incredible work. There are countless ways to be involved. In time you'll find your Niche.

    Again, we look forward to hearing all about your baby boy. It's wonderful to hear how well he's doing.

    Take care,
    Karri

    DNASMOM - Jun 20, 2006 8:59 pm (#53 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: caseyamber (Jun 19, 2006 9:37 am)
    Casey new member: Hi! I just am writing to introduce myself. I am new to this web page, but...

    Re: Casey new member

    Hi Casey

    Congratulations on your little guy. That is a pretty neat idea to have a mini party for him on his due date.

    Welcome to Share. I look forward to hearing more about your little boy.

    Karen


    WELCOME

    smiles75 - Jun 21, 2006 7:27 am (#54 Total: 95)  

     

    New here

    I'm new here and looking for support from parents that have or had a child in the NICU due to prematurity.

    My daughter was born April 19, 2006 @ 26 weeks gestation. She weighed 1 pound 10 ounces. The reason I went into preterm labor is unknown. I had a perfect pregnancy until my 26th week and my baby decided to come early. I had NO idea what I was in store for.

    Overall she has done well considering she was 14 weeks early. She spent 2 weeks with an ET tube and on the vent, her PDA was "large" but closed on its own, her brain hemorage was a grade 2 but it going away and has been stable for MANY weeks, her eye exams have been fine until this last one where we were told her eyes are not maturing as they should .. she may need laser surgery.

    Today is day 62 in the NICU ... She is 9 weeks old today (corrected age is 35 weeks). she is on a nasal canula at the lowest setting of oxygen, she is in a crib at room tempature air, she is up to 4 lbs. 5 ozs, she is taking a bottle (although she is only getting the bottle 3 times a day and sometimes takes it ALL and sometimes will only take half).

    I'm starting to REALLY dislike the NICU and feel desperate to get her out ... I feel so powerless .. I have no control over it. They tell me a couple weeks every week and I'm having a hard time coping now. I'm back at work now ... my 8 weeks maternity leave is over and now i'm struggling with the decision to leave my job or not. I want to leave to care for her but I'm worried about money. Basically I am stressed out and could use some support!

    Replies to this message
  • Sharlene+2 (Jun 21, 2006 7:49 am)
  • Karri (Jun 21, 2006 8:52 pm)


  • Sharlene+2 - Jun 21, 2006 7:49 am (#55 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: smiles75 (Jun 21, 2006 7:27 am)
    New here: I'm new here and looking for support from parents that have or had a child in the NICU...

    Re: New here

    Congratulations on your daughter! Welcome to Share!!!

    I know the NICU is hard, and it seems like it will never end...but it will...and you are NOT alone, as long as you have Share.

    I encourage you to also reach out to others in your community for support during this difficult time, people to talk to, whether it be a pastor, a trusted friend, family member, or counselor....check with the NICU to see if they have a social worker available to speak with you. It helps to find others going through a similar situation, but it also helps having someone *tangible* who can help you physically there with your daughter!!

    Hang in there, know we're all right here for you, anytime you need us. You & your daughter are in my thoughts & prayers that soon she is home where she belongs!!

    Hugs!
    Sharlene

    Sharlene+2 - Jun 21, 2006 8:55 am (#56 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Welcome to Share!!

    I hope all who enter through this thread are welcomed with open arms, knowing you are not alone, not ever, with Share around.

    We care, we understand, and we'll be here, holding your hand, each step of the way, through good days, through bad days. We'll rejoice with you over triumphs, and cry with you over bad days!!!

    Welcome...and know we care...and you're never alone!!

    hugs!


    Welcome Friends

    youngmother - Jun 21, 2006 10:21 am (#57 Total: 95)  

     

    Hello every one

    I am a little new to this but i am a mother of 2.. my 15 month old daughter and 1 week old son who is is NICU. i have posted my blog about his cobdition.
     this is my first preemie and dont really know what to expect of it,
    also would love to meet and chat with new friends on here!
     hope everyone has a wonderful day!!!! Tonya

    Replies to this message
  • Sharlene+2 (Jun 21, 2006 10:44 am)
  • Karri (Jun 21, 2006 8:56 pm)


  • AmyBeth® - Jun 21, 2006 10:25 am (#58 Total: 95)  

     

    Welcome Tonya!

    I responded to your short story but I wanted to introduce you to Share as well. You find many useful areas on Share by browsing not only the Share yourstory thread, but also the parent to parent section!

    I can't wait to get to know you better and I think you'll be a find addition to Share.

    Blessings,

    Amy


    i82847647_48363

    Sharlene+2 - Jun 21, 2006 10:44 am (#59 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: youngmother (Jun 21, 2006 10:21 am)
    Hello every one: I am a little new to this but i am a mother of 2.. my 15 month...

    Re: Hello every one

    I just read your blog and am glad to hear Jarred is doing so well.

    Look around, you'll see LOTS of information that applies to you and Jarred...and you'll soon realize that you are not alone in this...we're all here for you!!

    Again, welcome to Share!! Looking forward to getting to know you, Jarred, and your daughter more through Share!!

    hugs!
    Sharlene

    Brock Cunningham - Jun 21, 2006 11:51 am (#60 Total: 95)  

     

    James And Michaels Dad To Say Hello

    Just wanted to introduce myself. My name is Brock me and my fiance were blessed with twin boys on April 28th 2006. They spent 3 weeks in the NICU and were doing just fine. Well on June 12th 2006 we woke up to find James dead in his crib due to SIDS, so if anyone need someone to chat with I know what you are going through

    Replies to this message
  • Karri (Jun 21, 2006 8:58 pm)


  • AmyBeth® - Jun 21, 2006 11:54 am (#61 Total: 95)  

     

    Welcome to Share!

    I am so sorry for your loss!!! I have always had a fear of Sids happening as it could happen to any child. I can't imagine the pain you must feel. The same goes for you, we are all here for you!

    Amy

    LogansMom28w - Jun 21, 2006 12:06 pm (#62 Total: 95)  

    My 3 boybarians are 4, 5 and 7.  

    Brock,

    I am so very sorry for your loss, and I can't even imagine the heartbreak that your family is experiencing. I am a volunteer for the March of Dimes in your state - the State Mission Families Chair. If you'd like to get involved with family activities, and learn how you and your fiance' can help raise awareness for your cause, please email me. I'd be happy to tell you about some upcoming activities in our hometown.

    My heart breaks for your family right now. If you click on my user name above in pink, my email address is listed. I welcome you or your fiance to email at any time. I know of several moms here in the DSM area who have experienced infant loss, and loss of mulitples in particular.

    My thoughts and prayers are with you and your family.
    Warmly,
    Darcy

    GradyGabbyAbby - Jun 21, 2006 3:59 pm (#63 Total: 95)  

    *One miracle with us,Gradon is now 10 years old. His sisters Gabrielle Lynn & Abigail Marie, watch over us in heaven.*  

    WELCOME...

    I wanted to take a moment and welcome all our new comers. Please feel free to vent, cry, laugh and SHARE.
    We are always here for each other-that is what makes this community so great, we all have something in common.
    We are here for support, lean on us when you need to.

    Lots of HUGS,
    Colleen
    Mom to Gradon full term age 7 & Gabrielle Lynn our angel in heaven born at 22 weeks gestation 12/7/05

    [Last Editor: GradyGabbyAbby, Jun 21, 2006 4:07 pm. Total Edits: 1]


    Welcome-Friends-Print-C10079679

    Karri - Jun 21, 2006 8:52 pm (#64 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: smiles75 (Jun 21, 2006 7:27 am)
    New here: I'm new here and looking for support from parents that have or had a child in the NICU...

    Re: New here

    Congratulations on your baby girl. It sounds like she's doing quite well thus far. That's wonderful to hear.

    The NICU is a very scary place, and can leave you feeling powerless to most things. I know it's been a long road.. but hang in there.. you're getting closer to home each day.

    You have come to the right place for support. We've all been where you are. We're here to continue this journey with you. You don't need to go it alone. That's the beauty of Share. We all understand your fears, your desperation, and you frustrations. We will walk this path with you for as long as you need us.

    We're happy you have found this site, and we look forward to updates on your baby girl when you can.

    Take care, and Welcome!
    Karri

    Karri - Jun 21, 2006 8:56 pm (#65 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: youngmother (Jun 21, 2006 10:21 am)
    Hello every one: I am a little new to this but i am a mother of 2.. my 15 month...

    Re: Hello every one

    Tonya,

    Congratulations on your son. I haven't read your blog yet, but will do so. I wanted to take a moment and Welcome you to Share.

    We're all here for you as you travel down this new path. I also had a child at home when my twin girls were born at 25 weeks. I understand this struggle. Feel free to email me anytime through the site.. simply click on my name in pink.

    Take care, and Welcome to Share!
    Karri

    Karri - Jun 21, 2006 8:58 pm (#66 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: Brock Cunningham (Jun 21, 2006 11:51 am)
    James And Michaels Dad To Say Hello: Just wanted to introduce myself. My name is Brock me and my fiance...

    Re: James And Michaels Dad To Say Hello

    Brock,

    I'm so very sorry for the loss of James. I can't begin to imagine the heartbreak you must be going through.

    I'll be holding you close in my prayers for healing, and peace in your heart.

    Take care, and Welcome to Share,
    Karri

    grnd99 - Jun 22, 2006 9:45 am (#67 Total: 95)  

     

    New Here

    Hello all I am just getting on here to introduce myself and see how everyone is doing. My name is Tanya Karaffa and I am the mother of a former 29 weeker who is doing great now. I am also expecting in Oct. and hoping that this one will be full term.

    Replies to this message
  • LogansMom28w (Jun 22, 2006 11:20 am)


  • LogansMom28w - Jun 22, 2006 11:20 am (#68 Total: 95)  

    My 3 boybarians are 4, 5 and 7.  

    Replying to: grnd99 (Jun 22, 2006 9:45 am)
    New Here: Hello all I am just getting on here to introduce myself and see how everyone is doing. ...

    Re: New Here

    Hi Tonya! Welcome to Share... here's wishing you a long, healthy pregnancy!

    Warmly,
    Darcy

    2 here 2 in Heaven - Jun 22, 2006 11:24 am (#69 Total: 95)  

    Surviving 26 week triplet...2 angels, & a 36 week singleton.  

    Welcome to Share! Darcy guided me to your message.

    I can imagine the pain you must be dealing with. At 25 weeks I delivered one of our triplets, the other two arrived at week 26. We lost Boston in the first 2 days, Kai in 15. London is now a healthy 3 year old boy.

    While I love him like crazy, I also love and miss my other boys who didn't ever get to leave the NICU.

    -Shonda

    ada - Jun 22, 2006 8:10 pm (#70 Total: 95)  

     

    New to Share

    Hi, my name is Ada. I am the proud mother of Jacob, 4, Kaden, 1, and Keeton, his twin. Kaden and Keeton were 24 weekers, born at 1 lb and 1 lb, 6oz, respectively. We lost Keeton after 27 days due to pneumonia. Kaden just celebrated his 1 year birthday June 13. He has now been home with us for 6 months. He is still on oxygen and has a gtube due to aspiration, but he is a very happy, sweet little boy. We are a very lucky, happy family with two very beautiful boys.

    I find myself this evening because I am in search of a community of parents who understand the trials we face daily, and some understanding for the pain and sadness I am facing as Keeton's "anniversary" quickly approaches. I'm not sure I will ever get over the feeling that something is missing in my home. I love and miss my Little Man, and have such mixed feelings knowing I see his face everytime I look at my sweet Kaden. The were identical. It is a blessing to feel like I can see what he would look like, but it's such a reminder.

    Sorry to ramble on... there is much more to our story, but I will try to post that in the appropriate place!

    Thank you all for your wonderful support and special babies are born to special families...

    ada

    Replies to this message
  • Donna S (Jun 22, 2006 8:30 pm)
  • DNASMOM (Jun 22, 2006 9:03 pm)
  • Sharlene+2 (Jun 23, 2006 7:25 am)


  • Donna S - Jun 22, 2006 8:30 pm (#71 Total: 95)  

    Mom to Ryley, 26 weeker, Grace and Ethan, full-termers  

    Replying to: ada (Jun 22, 2006 8:10 pm)
    New to Share: Hi, my name is Ada. I am the proud mother of Jacob, 4, Kaden, 1, and Keeton,...

    Re: New to Share

    Hi Ada! Welcome to SHARE! I am so glad you've found us.....SHARE is a wonderful place of support, comfort and encouragement. I hope you will find peace and healing in Keeton's passing, and encouragement in the challenges you face with Kaden.

    Hugs! and again, welcome!
    Donna

    DNASMOM - Jun 22, 2006 9:03 pm (#72 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: ada (Jun 22, 2006 8:10 pm)
    New to Share: Hi, my name is Ada. I am the proud mother of Jacob, 4, Kaden, 1, and Keeton,...

    Re: New to Share

    Hi Ada! Welcome to Share

    Happy belated birthday to Kaden and a heavenly birthday to Keeton.

    I am wishing you much strength as you approach the anniversary of Keeton's passing. I am very sorry for your loss.

    You have certainly come to the right place for support. I'm sure you will find Share will live up to your expectations.
    I am looking forward to reading more of your story.

    Best wishes,
    Karen

    Sharlene+2 - Jun 23, 2006 7:25 am (#73 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: ada (Jun 22, 2006 8:10 pm)
    New to Share: Hi, my name is Ada. I am the proud mother of Jacob, 4, Kaden, 1, and Keeton,...

    Re: New to Share

    Welcome to Share, Ada! You've come to the right place for support....of all kinds...and understanding of what you're going through.

    Congratulations on your boys...and I'm so sorry for your loss of Keeton!

    Know we'll be here to help you get through his *anniversary* as this day is full of bittersweet memories and great sadness.

    I lost my son after 4months and his anniversary is just as hard as his birthday, so trust me, I understand. Know I'll be right here for you and with you, helping you through!!!

    Looking forward to reading all about Jacob, Kaden, and Keeton!!

    hugs, hope, and healing,
    Sharlene

    Isis - Jun 23, 2006 10:35 am (#74 Total: 95)  

     

    My Angel Logan

    When I was pregnant with my son Logan, I had developed Pre-eclampsia with ultimately led to him being stillborn, I gave birth to him at 29wks 2dys. He would have survived but when we got to the hospital it was too late. I didn't know how severe my pre-eclampsia was, I had minor symptoms and I didn't think it was too severe.

    Isis - Jun 23, 2006 10:39 am (#75 Total: 95)  

     

    Forgot to Mention

    When he was born he weighed 1lb 8oz, His length was 14 3/4 inches long. He was born May 28th, 2005 @ 12:45am.

    Replies to this message
  • Sharlene+2 (Jun 23, 2006 11:10 am)
  • DNASMOM (Jun 23, 2006 8:58 pm)


  • Sharlene+2 - Jun 23, 2006 11:10 am (#76 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: Isis (Jun 23, 2006 10:39 am)
    Forgot to Mention: When he was born he weighed 1lb 8oz, His length was 14 3/4 inches long. He...

    Re: Forgot to Mention

    Welcome to Share!!

    I'm so sorry for your loss of Logan!! Know you are not alone in your grief here at Share, as many of us have lost, and we understand your pain and are here to help you through each day!!

    Thank you for sharing Logan with us, and I hope you continue to visit and post, as it is healing to talk about Logan as much as you can.

    Hugs, hope, and healing,
    Sharlene

    DNASMOM - Jun 23, 2006 8:58 pm (#77 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: Isis (Jun 23, 2006 10:39 am)
    Forgot to Mention: When he was born he weighed 1lb 8oz, His length was 14 3/4 inches long. He...

    Re: Forgot to Mention

    Hi and Welcome to Share.

    I'm sorry for your loss of your dear son Logan. I hope that you will find much comfort here at Share.

    Karen

    maiya2 - Jun 24, 2006 3:18 pm (#78 Total: 95)  

     

    new mom of premature twins

    Our twin girls were born at 29+ weeks. I had had the perfect pregnancy and it was a shock when I went into premature labour and had an emergency c-section just 2 hours later. We were very lucky that our girls were mature for their age, in fact the only thing I can remember about the surgery were the doctors asking me if I was sure I was only 29 weeks along. It was the most tramautic thing to have our girls rushed out of the room without even being able to see them. They did allow me to see them a couple of hours later before they were to be transferred to the NICU but by then I was in no shape to really take in what was happening. I was not able to see the twins when I was in the hospital because we were in different hospitals. Both twins are doing great, never needed oxygen and have been tube feed for the past week. But I still feel lost and hope that this site will help.

    Replies to this message
  • Karri (Jun 24, 2006 3:53 pm)
  • DNASMOM (Jun 24, 2006 6:33 pm)
  • neurobio (Jun 30, 2006 2:23 pm)


  • Karri - Jun 24, 2006 3:53 pm (#79 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: maiya2 (Jun 24, 2006 3:18 pm)
    new mom of premature twins: Our twin girls were born at 29+ weeks. I had had the perfect pregnancy...

    Re: new mom of premature twins

    Congratulations on your girls!!

    I'm sorry to hear that you're going through the scary NICU journey. It's encouraging to hear that the girls are doing so well.

    We understand your worries, and your feelings of being lost. We've been where you are. It's kind of like being in a foreign country.. and you have to find your way around. In time, the NICU will become more familiar to you. You will focus less on your surroundings, and, in a strange way, it will begin to feel like home.

    We are here for you to talk with, cry with, and answer any questions you may have.

    We look forward to learning more about you and your family.

    Take care, and Welcome to Share!
    Karri

    DNASMOM - Jun 24, 2006 6:33 pm (#80 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: maiya2 (Jun 24, 2006 3:18 pm)
    new mom of premature twins: Our twin girls were born at 29+ weeks. I had had the perfect pregnancy...

    Re: new mom of premature twins

    Hi and Welcome to Share!!
    Congratulations on your new baby girls. I am glad you found us here at Share. The NICU experience can be very frightening to a new mom. Sometimes it may even feel like you are an outsider looking in, afraid to participate.

    You are their mommy and they need you just as much as they need the doctors and nurses.

    We will be here to answer any questions or to just give you support when you need a shoulder to lean on.

    Karen


    Welcome to Share

    maiya2 - Jun 26, 2006 9:30 am (#81 Total: 95)  

     

    thanks and update

    thanks for all the kind words and support. Our girls are doing much better. They were moved to an intermediate care nursery last week. Abigail was able to lose her iv on Friday and now it is much easier to hold both of them at the same time. Now we must wait for them to gain weight. I guess the most frustrating thing for me now is the long drive to see the girls everyday (the hospital is over 45 miles away) and I can only spend a few short hours a day seeing them. I feel so guilty because I can't spend more time with them but the drive down kills me and I am so exhausted still from surgery that 3 hours is all I can manage. Again thanks for helping me and giving me support, you will never know how reassuring it has been to know others have gone through what I have.

    Replies to this message
  • Karri (Jun 26, 2006 2:01 pm)


  • Karri - Jun 26, 2006 2:01 pm (#82 Total: 95)  

    IL Family Team Specialist - Family Teams are the Best!  

    Replying to: maiya2 (Jun 26, 2006 9:30 am)
    thanks and update: thanks for all the kind words and support. Our girls are doing much better. They...

    Re: thanks and update

    Thanks for the update! It's great to hear that the girls are doing well.

    I understand just how you're feeling. My girls were 45 minutes away from our home. It makes for a long day.. when you factor that drive in.

    You do the best you can.. that's all anyone asks. Your girls know you love them, and are there for them.

    Keep posting.. we're here for you. We love to get the updates on your sweet babes.

    Take care,
    Karri

    abby'smommy - Jun 27, 2006 6:09 am (#83 Total: 95)  

     

    New to site and looking to meet other parents

    Hi, I'm Ericka and have just recently got involved with the site, I am the mother of a 26 weeker, who is finally home. I posted our story under "our long journey home-Abby's story" but still have not received any messages or interaction. Just looking for friends who are in the same boat. Ericka

    Replies to this message
  • Jacobs-Nana (Jun 27, 2006 10:07 am)
  • DNASMOM (Jun 27, 2006 3:01 pm)


  • Whosures - Jun 27, 2006 9:37 am (#84 Total: 95)  

     

    Hi Ericka!

    I just went and read your short story. What a wonderful success story it is. I'm sure you'll meet many people here who currently are/have been in the same boat. My daughter Riley was a couple days short of being a 26 weeker. She spent 3 months in the NICU. She's four now. Keep us updated on her progress.

    Julie

    Jacobs-Nana - Jun 27, 2006 10:07 am (#85 Total: 95)  

    Proud Nana to Jacob Aaron "My Hero"  

    Replying to: abby'smommy (Jun 27, 2006 6:09 am)
    New to site and looking to meet other parents: Hi, I'm Ericka and have just recently got involved with the...

    Re: New to site and looking to meet other parents

    Ericka,

    I have read and responded to your story.. Welcome to Share!!!..I am sure you will meet many here you will be able to connect with that have or are currently experiencing the same situation you have been through....

    I look forward to hearing more about Abby...

    Hope to see you around Share!!!

    God Bless
    Melody

    DNASMOM - Jun 27, 2006 3:01 pm (#86 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: abby'smommy (Jun 27, 2006 6:09 am)
    New to site and looking to meet other parents: Hi, I'm Ericka and have just recently got involved with the...

    Re: New to site and looking to meet other parents

    Hi Ericka,
    Both Donna and I responded to your story yesterday.
    I am sorry you missed our responses. You will find that the weekends can be somewhat of a ghost town around here.

    I am sure if you post in the parent to parent section any specific questions you have about Abby, you will more than likely find someone who is going through what you are or has recently been through it.

    My daughter was a healthy 33wkr. so although she was a preemie, I'm not exactly in the same boat. I'm sorry.

    You might also consider starting a blog. This will give you the chance to update us on your journey.

    I look forward to hearing more of your story.

    I hope you will be connecting with others soon.

    Karen

    jadensmom - Jun 28, 2006 7:15 pm (#87 Total: 95)  

    mom to Jaden 29 weeker at 2lbs 4ozs  

    our 29 weeker

    Jaden was born 11 weeks early and was 2 lbs 4 ozs. due to HELLP syndrome. She was in the NICU 2 months. She is 7 months old now and weighs 14 lbs and 6 ozs.

    Replies to this message
  • DNASMOM (Jun 29, 2006 9:13 pm)


  • AustinsMommy - Jun 28, 2006 10:13 pm (#88 Total: 95)  

     

    Hi!

    I am not actually new to the site itself, but I am just now finding the "community".. usually I have just come and blogged and left. Well, I have a baby boy born July 6, 2006.. he was a 32 weeker. He is my little fighter.. we are seeing more and more of his stubborn little Irish attitude and temper (he gets that from me.. lol)... and his determination...

    Austin was born with a hole in his lung yet recovered incredibly quickly. He was on the vent for a matter of days and only spent 2 weeks in the NICU (it was FOREVER to me... it was horrible) and came home at 4lbs. Now he is a rowdy almost-one-year-old.... all into EVERYTHING... His first birthday party is on Sunday and I start crying just thinking about how far we have come!!!

    My husband and I want another child and are currently TTC.. I am scared to death. I started contracting at 24 weeks with Austin and went on bedrest at that time and it only got worse. I spent 3 weeks in the hospital before I had him fighting the contractions and then preeclampsia. My OB has given me about a 30% chance of having preE again since it was so early... that is so high.. I am so scared, but I want another baby too... I am ready.. I just don't want to go through that pain and fear and guilt ever again...

    I also have a 5 year old stepson that we are custodial of. I am trying to adopt him, actually.

    Anyways.. can't wait to get to know you all!!

    Love,
    Bronwynn


    DSC00556


    Clipboard05

    Replies to this message

  • DNASMOM (Jun 29, 2006 9:23 pm)


  • DNASMOM - Jun 29, 2006 9:13 pm (#89 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: jadensmom (Jun 28, 2006 7:15 pm)
    our 29 weeker: Jaden was born 11 weeks early and was 2 lbs 4 ozs. due to HELLP syndrome. She...

    Re: our 29 weeker

    Welcome to Share
    It's sound like Jaden has come a long way. Congratulations to her.

    Karen

    DNASMOM - Jun 29, 2006 9:23 pm (#90 Total: 95)  

    Mom to a feeder and grower born June 2004 almost 33 wks 2lb 13 oz.  

    Replying to: AustinsMommy (Jun 28, 2006 10:13 pm)
    Hi!: I am not actually new to the site itself, but I am just now finding the "community".. usually I...

    Re: Hi!

    Hi Bronwynn!

    It's nice to meet you. I will have to look out for your blog....There are so many I get lost trying to keep track! lol

    My name is Karen and my daughter was born at 32/33 wks also due to preeclampsia. She was only in NICU for three weeks and is pretty healthy considering. She just turned 2 on June 16.

    Happy early birthday to Austin! One year!!!! congratulations.

    I hope to see you around the community more.

    Karen


    for Austin

    neurobio - Jun 30, 2006 1:37 pm (#91 Total: 95)  

    Blog: Annabelle's Story: Growing Strong  

    just joined this week

    Hi everyone,

    I just joined the Share site this week, and I love it so far. I even started a blog (Annabelle's story) about life with my 31 weeker, who is now over 10 months! I never would have thought I'd have a blog anywhere, but it's nice to be in contact with other preemie moms and dads. So glad to be a part of this wonderful group. Best wishes,

    Amy

    attached is a photo of our family in the NICU, when Annabelle was 2 days old.


    family 2 days old

    Replies to this message

  • Sharlene+2 (Jun 30, 2006 1:52 pm)


  • Sharlene+2 - Jun 30, 2006 1:52 pm (#92 Total: 95)  

    Mom to Taylor (14) and ^George Daniel^  

    Replying to: neurobio (Jun 30, 2006 1:37 pm)
    just joined this week: Hi everyone, I just joined the Share site this week, and I love it so far....

    Re: just joined this week

    Welcome Amy!!

    I read your blog...Annabelle sure is a doll!! She has come a long way!!

    Beautiful family photo! Looking forward to getting to know you all more through Share! Glad you feel comfortable here!!

    HUGS!
    Sharlene

    Replies to this message
  • neurobio (Jun 30, 2006 2:29 pm)


  • neurobio - Jun 30, 2006 2:23 pm (#93 Total: 95)  

    Blog: Annabelle's Story: Growing Strong  

    Replying to: maiya2 (Jun 24, 2006 3:18 pm)
    new mom of premature twins: Our twin girls were born at 29+ weeks. I had had the perfect pregnancy...

    Re: new mom of premature twins

    Hi there. I'm new on this site, too. Like you, I also had a totally normal pregnancy that ended in spontaneous preterm labor. I was at 31 weeks, and the doctors also thought my baby seemed older than she was - lucky in a way, isn't it? Are your girls still in the NICU? My daughter is now 10 months old and doing great. It's almost hard to tell she was a preemie. Good luck to you and your family.

    Replies to this message
  • maiya2 (Jul 1, 2006 11:10 am)


  • neurobio - Jun 30, 2006 2:29 pm (#94 Total: 95)  

    Blog: Annabelle's Story: Growing Strong  

    Replying to: Sharlene+2 (Jun 30, 2006 1:52 pm)
    Re: just joined this week: Welcome Amy!! I read your blog...Annabelle sure is a doll!! She has...

    Re: just joined this week

    Hi Sharlene,

    Thanks for your responses. I've been poking through your blog entries, too. Can't wait to see some of those long-lost photos! See you around the site.

    -Amy

    maiya2 - Jul 1, 2006 11:10 am (#95 Total: 95)  

     

    Replying to: neurobio (Jun 30, 2006 2:23 pm)
    Re: new mom of premature twins: Hi there. I'm new on this site, too. Like you, I also...

    Re: new mom of premature twins

    our twins were moved out of the NICU into an intermediate care nusery a week and a half ago. They are doing so well now. The nurses put them together in the same iso unit and they love it. It is so cute to see them hold hands and stare at each other. They just started breastfeeding on Monday, they are still learning but you have to start somewhere. Both girls are putting on more than an ounce a day and the doctors are thrilled. Now we just have to wait until they reach atleast 4.5 pounds before they can come home. Thanks for the encouragement, there are some days that I feel they will never come home and I will have to visit them in the hospital for the rest of their lives. Glad your daughter is doing so well now also!! We just got the lab results back and they did find that one of the placentas had an infection and that was why I went into premature labor.



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