BoNr@23weeks
- Apr 26, 2009 6:23 pm
(#60 Total: 158)
|
|
|
|
My son is five months and spent 5 months in the NICU. He weighted 1lb 7oz at birth and had many surgeries. He is at home and doing awesome weighting 9lb 13oz
|
|
 |
|
Neely1206
- Apr 30, 2009 11:33 pm
(#61 Total: 158)
|
|
|
|
80 Days in the NICU
Our daughter was born 3 months premature and only weighed 1 pound 6 ounces and had to spend 80 days in the NICU. She actually came home about 3 weeks earlier than the doctors had thought that she was, because when she started nippeling her food she just took off, and within a couple of days she was nippeling everything. She's been home for 2 months now and is doing amazing, she weighs 9 pounds 3 ounces and has been off oxygen for 2 weeks now.
[Last Editor: Neely1206, Apr 30, 2009 4:35 pm. Total Edits: 1]
|
|
|
|
mommy1preemie1fullterm
- May 9, 2009 4:54 pm
(#62 Total: 158)
|
|
|
|
87 days
my son was born 26.6 weeks and he was transfered MANY times back to different hospitals but he got sent home after 87 days...hes home on a pulse ox. and oxygen hes only been home for 6 days today was his due date...good luck!
|
|
|
|
Katelyn'smom
- May 22, 2009 2:24 pm
(#63 Total: 158)
|
|
|
|
Many of you already know our story, but did just want to jump on and add it into this thread. Katie was born at 32 weeks and weighed 3 lbs. We ended up in the NICU for 147 days. She was diagnosed with Congenital Cytomegalovirus a couple of days after birth. We sat around supporting her, 'waiting' for her little body to kick the virus on its own per doctors orders. After 2 1/2 months of seeing her viral load of CMV come back the same, her liver enzymes get worse, her red blood cell count and platelet counts continue to decrease, a bout of aspiration pneumonia, etc. We decided that enough was enough. My husband contacted the leading CMV Specialist out of Baylor University and she consulted with our physician over the phone and via email. The Specialist stated that typically, in Texas anyway, the treatment is to start a 6 week experimental drug called ganciclovir as soon as a positive CMV comes back (in Katie's case 2 days after birth). So.... central line was placed, 6 week treatment of ganciclovir was given, and miraculously her body, her labs, her enlarged spleen and liver.... got increasingly better. Following the treatment on the very last day, she promptly went into surgery and the central line was removed and she came home to us..... after 147 VERY long days.... I hope that this will help someone out there.
Love, Kelly
|
|
|
|
Melissa-Rae
- Aug 26, 2009 7:41 pm
(#64 Total: 158)
|
|
|
|
Im the Mother of a Preemie, My son is proof that miracles happen. |
|
|
34 Weeker
My son was born at 34weeks weighing 5pounds 10ounces
Spent 7 days in the NICU. Felt like an eternity
|
|
|
|
Jace's Mommy
- Aug 29, 2009 11:02 pm
(#65 Total: 158)
|
|
|
|
24 weeker.
My little guy was born 2-21-09 and FINALLY came home on 6-29-09. 129 days after he was born. He is doing great!
|
|
|
|
PookiesMom09
- Sep 8, 2009 3:31 am
(#66 Total: 158)
|
|
|
|
24 weeker
My little bug was born 4-8-09 and is still in the NICU 153 days and counting. every baby is different. I'm hoping to have her home by Christmas.
|
|
|
|
sarahc
- Sep 11, 2009 6:13 pm
(#67 Total: 158)
|
|
|
|
27 weeker
My little boy was born in October 2007 at 27 weeks (2 lb 10 oz). His only major challenge was premature lungs. He was sent home after 71 days with oxygen for feedings. He is now fully caught up developmentally, 90+ percentile in height, and will be turning 2 soon.
|
|
|
|
JuJuBee8209
- Oct 5, 2009 5:24 am
(#68 Total: 158)
|
|
|
|
My little monkey was born August 2 and arrived home September 21st. She was 28 weeks and 2 days gestation when she was born.
|
|
|
|
AJLB
- Oct 7, 2009 11:45 pm
(#69 Total: 158)
|
|
|
|
25 weeker
My daughter was born May 20th, 2009 and came home on August 20th, 2009. She spend 92 LONG days in the NICU. We are so happy to have her home and she is doing well!
|
|
|
|
olivejuice044
- Oct 15, 2009 11:43 am
(#70 Total: 158)
|
|
|
|
My daughter was born at 28 weeks and 5 days and was in the NICU for 42 days! She came home over a month before her expected due date!
|
|
|
|
Dgraces Mom
- Oct 16, 2009 3:38 pm
(#71 Total: 158)
|
|
|
|
^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day! (I HATE PH!) |
|
|
My daughter was born at 23w1d and she spent 122 days in the NICU. She came home 2 days after original due date.
|
|
|
|
PookiesMom09
- Oct 17, 2009 5:22 am
(#72 Total: 158)
|
|
|
|
24 weeker, going on 194 days. just over 6 months. still not sure when she's coming home.
|
|
|
|
LilliannasMommy
- Oct 19, 2009 5:05 am
(#73 Total: 158)
|
|
|
|
Lillianna was 32 weeks and 2 days, weighed 3lbs 15 oz and will be coming home today! She has spent 26 days in the nicu. she now weighs 5lbs.
|
|
|
|
WRZSIMON
- Oct 23, 2009 6:46 pm
(#74 Total: 158)
|
|
|
|
God is awesome
Born at 24.5 weeks gestation,1lbs 4 oz, spending 533 days in the NICU, 7 surgeries later my Zachary is finally home. if anyone had babies with tpn and ng tube, advice is greatly appreciated.
everytime I look at my baby it reminds me that there is a God.
Replies to this message
Jackie G (Oct 25, 2009 1:24 am)
|
|
|
|
Dgraces Mom
- Oct 24, 2009 11:53 pm
(#75 Total: 158)
|
|
|
|
^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day! (I HATE PH!) |
|
|
Congratulations on Zachary's birth and his discharge from the hospital. I know you are beyond excited having him home. Enjoy him.
Take good care,
Yolonda
|
|
|
|
Jackie G
- Oct 25, 2009 1:24 am
(#76 Total: 158)
|
|
|
|
Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
|
|
Replying to:
WRZSIMON (Oct 23, 2009 6:46 pm)
God is awesome: Born at 24.5 weeks gestation,1lbs 4 oz, spending 533 days in the NICU, 7 surgeries later my...
Re: God is awesome
I agree that our babies are proof that miracles exist!
-Jackie
|
|
|
|
esgf
- Oct 26, 2009 12:18 pm
(#77 Total: 158)
|
|
|
|
Abigail's Mom (29 weeks, 3/21/05) |
|
|
Congratulations on Zachary's birth and welcome to Share.
Ellen
|
|
|
|
necey21
- Nov 24, 2009 1:41 am
(#78 Total: 158)
|
|
|
|
my daughter
my daughter was in the nicu for 4 months. That felt like a life time but now she's home. Hang in there, it'll happen!
|
|
|
|
matiden1234
- Dec 8, 2009 1:36 am
(#79 Total: 158)
|
|
|
|
My Little Miracle Jaden
My son was born on 9/9/09 at 25w1d, 1 lb 10 ozs, kicking and screaming. He is now 5lb 4ozs. This has been a roller coaster ride as you all know, hopefully he will be home soon as he is nippling every other feed but he will probably be sent home on oxygen. Any advice on how to handle this as I am so scared. Thanks.
|
|
|
|
Jackie G
- Dec 8, 2009 1:48 am
(#80 Total: 158)
|
|
|
|
Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
|
|
There are lots of moms here on Share that have dealt with babies coming home on O2. Unfortunately, I am not one of them (or maybe fortunately, depending how you look at it). I'm sure someone with some experience will chime in soon!
Good Luck!
Jackie
|
|
|
|
joeandkel43605
- Dec 15, 2009 8:29 pm
(#81 Total: 158)
|
|
|
|
Layla
My granddaughter was born at 29weeks she weighed 3p6oz and she spend 56 long days in the nicu... She is doing great she is 10 weeks and weighs 8p 5oz
|
|
|
|
Jackie G
- Dec 16, 2009 12:45 am
(#82 Total: 158)
|
|
|
|
Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
|
|
Congrats on your granddaughter! I'm so glad to hear she is doing well.  -Jackie
|
|
|
|
Dgraces Mom
- Dec 16, 2009 2:13 pm
(#83 Total: 158)
|
|
|
|
^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day! (I HATE PH!) |
|
|
Congratulations on the birth of your granddaughter. Enjoy her.
Take good care,
Yolonda
|
|
|
|
Malena9
- Jan 7, 2010 10:19 pm
(#84 Total: 158)
|
|
|
|
My son was born at 26 weeks.....
Hello, I am new here and need emotional support,please. My second son was born on Dec. 23, 2009, at 26 weeks. If anyone has a happy similar story please reply. Thank you
Replies to this message
Jackie G (Jan 8, 2010 2:08 am)
|
|
|
|
Jackie G
- Jan 8, 2010 2:08 am
(#85 Total: 158)
|
|
|
|
Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
|
|
Replying to:
Malena9 (Jan 7, 2010 10:19 pm)
My son was born at 26 weeks.....: Hello, I am new here and need emotional support,please. My second son was...
Re: My son was born at 26 weeks.....
Well, I am happy to give you a hopeful story.... On December 24th we celebrated my daughter 6th birthday. She was born at 25 2/7 weeks and is now a happy healthy kindergartner. Her teacher says she is very smart and such a sweet kid. She spent 93 days in the NICU before she was able to come home and did spend some time in physical and occupational therapy. But most people nowadays are shocked to hear how early she was born... you would never guess if you saw her today.
So don't lose hope, your story is quite capable of having a happy ending. And on those low days, please know that we will be here to give you a shoulder to lean on.
Hugs,
Jackie
|
|
|
|
esgf
- Jan 8, 2010 4:15 pm
(#86 Total: 158)
|
|
|
|
Abigail's Mom (29 weeks, 3/21/05) |
|
|
Hi and Welcome to Share! My daughter was born at 29 weeks and is now 4 1/2 and on track in preschool. She spent sometime in speech therapy but now will not stop talking or singing. So don't lose hope. The NICU can be a roller coaster of good days and bad but I found taking each day one at a time was sometimes helpful. Be gentle with yourself. It is ok to cry and vent and this can be a good place for all of those things, if you feel comfortable.
We look forward to hearing all about your son.
Take care,
Ellen
|
|
|
|
ladykaykay
- Jan 30, 2010 2:18 am
(#87 Total: 158)
|
|
|
|
My son was born at 29w 3d weighing 3lbs7oz spent 42 days in the NICU that was really hard for me each day/eve. Now tht he's been home for 5 days now its still hard bcuz I'm nervous sometimes and my husband diesnt understand he's a preemie he's not a fullterm healthy baby.
Replies to this message
Dgraces Mom (Jan 31, 2010 1:41 pm)
|
|
|
|
Dgraces Mom
- Jan 31, 2010 1:41 pm
(#88 Total: 158)
|
|
|
|
^i^D'Lon Grace^i^ ~ Forever 3 ~ Missing you every second of every day! (I HATE PH!) |
|
|
Replying to:
ladykaykay (Jan 30, 2010 2:18 am)
My son was born at 29w 3d weighing 3lbs7oz spent 42 days in the NICU that was really hard for...
Re: How long was your baby in NICU?
Hello ladykaykay and welcome to Share. Congratulations on the birth and homegoing of your son. Yes the NICU ride is a very scary one. My daughter was in there 122 days and was just taken off the ventilator at day 42. Your are right it is very scary having them home, but I promise you will get into the routine of things and although the fear will still be there, you will start to relax and enjoy baby more.
Congratulations again. I look forward to hearing more about your precious son.
Take good care,
Yolonda
|
|
|
|
Brittany Davidson
- Feb 6, 2010 2:36 am
(#89 Total: 158)
|
|
|
|
hi! we had our baby at 32 weeks 2 days, he had IUGR and weighed 2 pounds 14.2 ounces....we brought him home after just 20 days! Doesn't seem like you have much longer!! hang in there!
|
|
