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LBT
liz loschinskey |
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A COUPLE OF THINGS!
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Nov 01, 2011 03:01pm (EST)
Ok, if I'm jumbled, I apologize.
1- Tori's appointment at Children's. Boooo. I, as a parent, left there completely....I don't even know what word to use. Dr. took one look at her and asked about her diet. We go through her history...it came back to her diet. She got 7 tubes of blood taken...which she took like a champ! and a script for duocal. The Dr. sent us to a nutritionalist who made me feel even more inferior with her cartoon food groups chart, explaining the food groups to me and how I should be feeding Tori. Look lady, I feed my kid right(apparently not) she doesn't eat it. I do everything possible to ensure that kid eats right.....FAIL!
2-Halloweener was a huge success!! Pumpkins and all!
3-I will start with Tori's had a head cold since Monday.
We were given an inhaler for Tori about 9 months ago at the pulmonary Dr. "just in case". As he tells us Tori's lungs will never be normal and "don't expect her to be a track star" due to her lung capacity. Ok...great! We never had to use this and or the mask/tube looking thing to properly give it to her....EVER. Last night, trick or treating it was pouring down rain and about 45 degree's out. Before we even get to the first house Tori is wheezing, coughing, choking eyes filled with tears, snots coming out of her nose .....holy jombollies...I was concerned. Once we got her back in the house, she was fine until she fell asleep.This dry wheezing coughy....To say the least, she got to try that inhaler that was given to us so long ago.
Last night was again, cool mist humidifier and vick's on her feet.
I can't tell if it's her head cold or her lung capacity or a little of both?
4-How do I get a direct link from another site to this page....My specific page. For example...from Facebook, I can get them to the site(which I've done), but how do I get them to this story? It's prematurity awareness month and I'm trying to get people over here to read Tori's story.
ok....I think that's it!
Love and Light,
Liz
Toriladybug
pumpkins2
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Posted by liz loschinskey | Comments: (6) | Permalink
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TODAY IS HERE.
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Oct 25, 2011 01:24pm (EST)
I don't like not knowing. I hate not knowing what to expect. I HATE Children's Hospital. I don't think anyone likes going back to the place their first born died and their second born laid on her death bed. All of these horrible things are flashing. Being swaddled face down. Being sent home with someone else's prescriptions....Yes, all of the above happened there.
Like, right now, I'm sitting here thinking....Endocrinology. Hormone specialist. WTF does that mean? Does it mean some testing and a couple of hormone injections or does it mean my hormones are all messed up? You may remember me mentioning a thing called 'breast buds', where it appears as tho Tori has, for lack of a better word...Boobs. Any research I've done is excess or lack of estrogen and hormones. Well, wtf does that mean?
I'm asking for some extra thoughts and prayers for Tori today. Please.
I seem to have developed a cold of some nature. My body hurts, I can't breath through my nostrils and my throat/head hurts. Blah.
PS-Where did the edit button go? I spelled a girls name wrong over in P2P via my "smartphone" and tried to edit and had to repost?
Loveandlight,
Liz
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Posted by liz loschinskey | Comments: (5) | Permalink
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SADNESS AT THE LOSCHINSKEY'S
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Oct 19, 2011 02:36pm (EST)
Please say prayers for the Pavlik family. My best friends dad died. I will be off the grid for a few days. See you on Friday!
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Posted by liz loschinskey | Comments: (1) | Permalink
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*SHAKING HEAD*
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Oct 18, 2011 05:28pm (EST)
My wonderful beautiful daughter has figured out how to strip down naked. At home, at the grocery store, mermie and pap's...ANYWHERE.
I need help with keeping her pants and diaper on. Any suggestions?
Love and light,
Liz
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Posted by liz loschinskey | Comments: (4) | Permalink
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BOOOO.....
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Oct 03, 2011 07:22pm (EST)
Bah...Pediatrition appointment = FAIL!
Tori is not growing, height or weight. She hit the growth chart on height 6 months ago, and has fallen off.
About 12 months ago, we were diagnosed with "BreastsBuds". I thought it was fatty tissue on her chest to make it appear as if she had ....boobs. Pediatrition assured us every 3 months that this would go away on its own, give it a couple of months. Well a year later she still has them. He told us 3 months ago, if it is concerning to you we can make an appointment with Endocrinology at Children's Hosp. of Pittsburgh. The reason for this is lack of estrogen/lack of hormones. As we are being reassured not to worry about it.
Well, we are not growing. I am worried about it. She has a noticeable chest. I am worried about it. Pediatrition is now sending us to Children's because she is not growing. He says some blood work and a couple of hormone injections is 'probably' all she will need. Wtf does that mean? 3 months ago it was an option to go. Now it is mandatory to go. The appointment is already made for the 25th, 1pm. I am already making a list of questions for this Endo doctor.
Anyone else's kiddo not grow?
I worry alot about Tori. I worry about going back to Children's. Last time we were there Tori was on her death bed with RSV(and they sent us home with someone else's prescriptions), the time before that Mikey passed. The bonus to Children's her main neonatologist while at Allegheny General works there, now.
When I am scatter brained at SU, I apologize ahead of time. Booooo............
Love and Light,
Liz
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Posted by liz loschinskey | Comments: (3) | Permalink
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WOWOW!
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Sep 22, 2011 05:24pm (EST)
2 years ago, today, this time, our adventure began. A simple ultrasound appointment turned into the 2nd scariest day of my life. 26wks is scary. 1lb,1oz is scary. My first ambulance ride, scary. 2 hospitals and a dr's office, scary. Blue baby, scary. Black man bursting into my hospital room at 2 in the morning(long story), scary. G20 in Pittsburgh, security and police everywhere, slightly scary. I could go on for hours telling you how scary my day was, then the weeks, then months, to follow.
Happy Birthday, Tori! God has blessed us with a beautiful child that is mentally, developmentally and physically on track.
I love you very much!
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Posted by liz loschinskey | Comments: (3) | Permalink
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BLAH...
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Sep 19, 2011 02:30am (EST)
Today sucked. Tori's been sick since Thursday. No sleep. Daddy's been working 12-15 hour days since last week. Im miserable. Woke up late for church. Church was bad. We saw a little boy named Wyatt. Wyatt was in the NICU with Tori. He was only there for 3 weeks, but he was there none the less. Every possible flash back a mother could have of the worst days of her life came flooding back into my otherwise content little brain. I cried. And cried. The worst kind of cry when you try not to be obvious as you blow an accidental s'not bubble.
After church, I took my niece to see the lion king. This too was a crying disaster. HAKUNA MATADA for crying out loud. Again, crying like an idiot.
It was today I realized, I failed at my number one job with my son. I got a big FAIL for being a mother. I'm supposed to do everything i can, in my power for my kids. I am my children. Im nearly suprised my daughter is the way she is. Happy. Always filled with joy and smiles. It's almost as if she is truley grateful for her life.
I wish my normalcy was not crying over my kids. I am defined by my children. My life is defined by a dead child and a 2 year old. Ha! What kind of conversation could I possibly have with a person on a day like today? I day that sucks. My thoughts are scattered. I should go to bed.
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Posted by liz loschinskey | Comments: (5) | Permalink
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DISGUSTED
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Sep 14, 2011 10:23pm (EST)
This is what I watched on the news tonight.
http://www.wpxi.com/news/29184259/detail.html
Sad story of premature twins, get out of the nicu, are home for a week and the torture begins. The boy and girl are 7wks old and have broken bones through out their bodies due to excessive force from the parents.
WTF is wrong with people? Who does that?
Top story of the same newscast, 4 yr old beaten so badly he dies. Beaten because he didn't listen. HE'S 4, DUDE! You F'in idiot, I'd like to beat the shit out of you until you just died.
http://www.wpxi.com/news/29180030/detail.html
I'm repulsed by the 6 oclock news.
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Posted by liz loschinskey | Comments: (2) | Permalink
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SU
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Sep 14, 2011 06:07pm (EST)
Thank you Jen for changing my mind on going to SU. I had no intentions on going until I talked to you! I'm so excited to meet you, I feel like we've known eachother for years!
I'm extremely excited to be going to SU. I was going to wait and post this after I got my flights situated, but I'm so tickled to be coming I had to SHARE.
This will be the first time I've ever been away from my daughter for an extended period of time. First time in 2 years. I'm slightly nervous about that. Speaking of, Tori will be 2 in 8 days. Very exciting. Birthday theme, Elmo. Elmo cake, plates, napkins, table clothes, and pizza and mac and cheese. Her favorites. She will be wearing her famous bright red Elmo overalls and Elmo slippers. All Elmo, all the time in our house. My husband went as far as special ordering some rock star guitar elmo that won't be in stores until November, so it will be a late birthday, early Christmas present.
I'm really, really looking forward to meeting you guys. You've read (seen) me at my worst and best. I'ma bitch, eh? *teethy smile*
I'm stalling on getting photos ready for the remembrance ceremony. No one has seen my son except for immediate family at the hospital. The pictures from the hospital do not do him justice. He looks sick. Blue. Tiny. I will share him with you.
Baby steps, Liz.
Love and Light,
Liz
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Posted by liz loschinskey | Comments: (5) | Permalink
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