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RYAN AND NICK

[Aileigh]

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Aileigh

May 2013
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SMELLING SALTS PLEASE

Jun 19, 2012 11:19am (EST)

The look on my husbands face when I told him what mom had told me was... interesting. To say the least!

The last few months I have been having a little irregularity. One episode even merited a call to my doctor who told me to take a test just to be sure. Obviously it came back negative. When we are not TTC I don't even keep track of dates. So I know a general time, but not specific dates. Her answer was it is normal as you get a little older.. etc..

Last Monday, I took another test to find it positive. I was hysterical. I had no idea what to do or who to call. It was not planned and I was taking coumadin up until that point. It's funny because I felt like the whole world should have stopped at that point. I needed to see the doctor within the hour. But the world doesn't work that way.

Called mom, she told me to call husband first. Then both of my doctor's. My OB was on vacation and my primary care doctor wanted to see me Thursday. The next couple of days were spent getting over the shock and coming to terms with how we would add one more to our family. I have a 5 passenger vehicle so it would be cramped but we could make it work.

My mom is friends with my physician so she told me to ask him to order an ultrasound to check for gestational age. I could go to her work and she would fit me in that day. Everything went as planned until I got to her. My doctor order Lovenox shots. We discussed high risk OB's and he ordered a referral. Then I headed to mom's work.

I will never forget what she said to me... "Can I tell you something without you totally freaking out?" I am thinking she is going to tell me that she couldn't find anything or it was just an empty sac. Oh no. "There is two."

What did she just say? Two??? Hold the phone... how could there be two when we weren't even trying for one? How could our kid count double in one shot? Then she went on to explain to me that this happens a lot. And most of the time a second one doesn't make it. She told me I could even google it. LOL Which is exactly what I am known to do.

She took her pictures and did her report. She couldn't even make eye contact with me knowing how I was freaking out inside. Our plans that were laid out only hours earlier needed to be put on fast forward! Super fast forward! I spent most of the day Friday and some yesterday trying to get into the high risk OB. Luckily I got in with the one who took care of me when I was pregnant with Nick. I don't know if I will be able to continue to see her through the pregnancy.

I have an appointment with her Tuesday June 26th at 10:15 am. My mom and husband are going with me. It will probably be an hour and a half long. They will do another ultrasound. According to my mom, I was a little over 6 weeks Thursday. The one thing that did concern her was the size difference in the sacs. If you go look at the picture, one is obviously bigger than the other. Hopefully Dr. C will be able to tell us more..

And as crazy as this sounds, I am getting a little excited...

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (5) | Permalink
NEWS

Jun 15, 2012 02:59am (EST)

Okay I know I haven't posted in FOR-EV-ERRRR but I have received some pretty big news and this place is where I need to be to help me process it. Those of you who are friends with me on facebook, please please please do not share this yet. But I need my share family more than ever right now...

I am pregnant...

And there are two gestational sacs....

Total shocker for us. Not only the pregnancy but TWO?????

Oh crap!!!

Hugs and love,
Aimee
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Posted by Aileigh | Comments: (10) | Permalink
PICTURE

Nov 04, 2011 08:40pm (EST)

I just realized that ya'll haven't seen us in a long time! So here is a pic of me and my boys from this Halloween! I am sure there are many more incriminating ones of me floating around out there from Share Union, but we won't talk about that... lol

Hugs and Love,
Aimee


IMAG0210-1

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Posted by Aileigh | Comments: (2) | Permalink
GUILT

Nov 04, 2011 06:10pm (EST)

How is it, after five and a half years, that I am still harboring guilt? The funny thing is, I didn't even realize it until the weekend I spent with all of you at Share Union. Fair warning this post may be all over the place..

So first and foremost, Share Union was incredible! This was my 4th year attending and I have to say I think it just keeps getting better and better! This one, though, especially hit home. Yes, Ryan is mostly healthy and not dealing with what could have been the many complications from his premature birth BUT I didn't realize how much I blame myself for "missing" some warning signs. Or not fighting harder when I should have. I blame myself for more than I should. During the workshop on how to advocate for your child in the public school system, I bawled like a baby. It was for a lot of reasons, but mostly because I feel like I failed him by not educating myself on what I could, and should, do for him.

Yes, he has an IEP. I fought tooth and nail for it. Was it implemented properly? I am not sure. My gut tells me no. His preschool teachers, who he had for two years, seemed to be happy to be rid of him at our last IEP meeting with them. Two weeks prior to that, I caught wind from the sitter who picked him up everyday that they were concerned about him being ready for kindergarten. No teacher called or emailed me with those concerns. But I think I was as happy to be rid of them as they were to be rid of Ryan.

Of course we have since had to change schools and I am loving his k teacher! I think she is a perfect fit for him. However, I am concerned. At our IEP meeting with her, she couldn't believe that he had all the troubles that he did last year. Basing what she had seen the first month and a half of school. He has been on focalin for 5 months now for ADHD. We never got an "official" diagnosis. I expressed my concerns to his pediatrician and she had me and his teachers answer some questions. His teachers answers had him borderline and ours put him in the ADHD category. So she said lets try it and I agreed. It seems to be helping but my concerns are about him getting discharged from the special education program. That workshop had loads of valuable information for me! I know that not all teachers are like his pre-k ones were. And I know that most teachers really do care about the kids. But is helps, as a parent, to know you rights when you do get a teacher who doesn't care or isn't willing to put forth the effort to help your child succeed.

So we are currently in the middle of another evaluation... Hopefully this will give a clear indication of where is his at. Then we can move forward with a plan. I can't thank our leadership team enough for putting Share Union together. It was informative, humbling, and fun! I look forward to getting to know the wonderful ladies I met for the first time. I also treasure the time spent with those that I had met before. Share is truly a place where I feel comfortable enough to be myself, however crazy that is...

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (0) | Permalink
INTERESTING DOCTOR APPOINTMENT

May 14, 2011 01:03pm (EST)

It's pretty funny how you go into a well check with expectations and sometimes you come out of it with your head spinning. That is exactly what happened!

First off-Ryan

He is 56 pounds! My little 4 pounder is in the 97th percentile in weight and 90th percentile in height! How amazing is that? Of course we had issues getting him to tolerate the bp cuff and the hearing test. He finally let them do it. And oh my, when they pricked his finger you would have thought they were ripping his arm off! Drama drama drama... can't imagine where he gets that from! I talked to the pediatrician about the ADHD. She gave us a few questionnaires. One for us, one for sitter, and one for his teachers. I got them faxed over to her Tuesday. She called me yesterday. The one we filled out puts him in the ADHD category. The one the sitter filled out puts him borderline ADHD. And the one the teachers filled out (which I don't trust BTW but that is a whole other story!) was two questions away. So she wants to try him on Focalin and see what that does. We are planning on starting it in 3 weeks. I want to get a few good weeks of observing his behavior off the medicine so that we will be able to pick up changes in his behavior better. I believe that he is ADHD. Just from my experience with my brother. My mom believes that he is ADHD. And my husband knows something is wrong... So we shall see!

Second-Nick

Yep, he didn't get a well check but I did add him to the agenda while we were there. His drippy nose kept getting worse and worse. To the point where his nose was bleeding on one side and there was yucky green gunk coming out of it. Nasty! He didn't have any other symptoms, just a yucky nose that went on for weeks. She looked at him and immediately said he has impantigo on/in his nose. Then she did Ryan's well check and came back to Nick. A closer look gave her a puzzled expression. "It looks like he has something in there!" Really? After some screaming, two nurses holding him down, husband holding the light, and me trying to keep Ryan from looking and puking she extracted stuffing from his nose that appearantly came out of a doggie (stuffed animal) that he sleeps with. Oh yeah. It stunk! Bad! Nasty! The thing is, we knew he had been pulling the stuffing out because I caught him putting it in his mouth and took doggie away from him over two weeks earlier! What a nightmare!

All in all, everyone is doing much better now. Ryan has 3 more days of preK left and shortly we will be trying a new medicine. Hopefully we will get things figured out by the the time school starts in the fall!

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (3) | Permalink
THE A'S HAVE IT

Apr 29, 2011 06:19pm (EST)

Nick has Asthma.

Ryan has either ADD, ADHD, or Aspergers Syndrome.

What the heck?!?!?

So Nick got discharged just short of a week. Thankfully when they started the CF vest, it turned things around very quickly. We had a follow up with his pediatrician the following week. She added Singulair to his mix of daily drugs. So far he seems to be doing okay. We had a couple weeks of bad allergies and drippy noses. It didn't escalate into anything more so that is a plus. We also got some invaluable information from the asthma education staff. Hopefully we stay on the right track!

Ryan.... Ugh that five year old!!! Love him to pieces, but man is he getting more and more difficult by the day. I had a long discussion with my mom and she feels strongly that he is showing signs of being ADHD. My brother had it. She can recognize the difference in behavior associated with it. I have an appointment with his pediatrician next Thursday for his 5 year well check and kindergarten physical. I will be discussing it with her and pushing to get him tested. He has been in preK for two years now. He should be able to concentrate and not act out against the teachers. Unfortunately, this week he got in big trouble and they also told me they were concerned about him going to kindergarten. We are not doing another year of preK. If I have to hold him back from going into 1st grade, then I will. But two years of preK is enough! So we will see how that pans out.

On another note, I continue to take pictures of NICU babies and their families as a part of the NICU Family Support Program at our local hospital. Unfortunately, this last weekend, a baby coded and earned his wings. (Not while I was taking pictures of him.) I ended up taking Now I Lay Me Down To Sleep type photos for the family. My heart just absolutely breaks for them. But at the same time, I am so glad that I was able to do that and I hope that someday there will be comfort in their hearts from those moments.

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (3) | Permalink
WHEN THINGS GET ROUGH...

Mar 30, 2011 12:06am (EST)

I turn to share...

I hate being gone from here, but a full time job and taking care of two kiddos keeps me pretty busy. With that said, life is rough right now.

Ryan was the preemie. Born at 33 weeks, I fully expected lots of problems from him. He has had his share of issues, but nothing like I had prepared myself for. We have been soooo lucky! Nick was the one who wanted to be a preemie but we wouldn't let him! 37 weeks was, in my mind, the magic number. Just get him there and he will be perfectly healthy! Right?

One of these days I am going to realize that life isn't exactly what we expect it to be. In fact, it isn't at all what we expect. That is why it is life I guess.

So from my preemie I expected:

To wake up at 3 am on a Friday morning to find he was breathing 68 times per minute.
To find he was running a dangerously high fever.
To give him a breathing treatment and realize it didn't even put a dent in his breathing problem.
To call my mom at 5 am for advice.
To be rushing him to the emergency room at 6 am.
To have an hour long breathing treatment with no improvement.
To have another hour long breathing treatment with no improvement.
To have his oxygen saturations drop after being put on O2.
To be put on continuous albuterol.
To be transferred and admitted to the Children's Hospital.
To see that look of complete terror in his eyes.
To have to constantly comfort him and reassure him that everything will be okay when I don't know if it will.
To take one step forward then two steps back.
To be educated on having a child with asthma.
To be by his side every moment of every day and never think twice about being somewhere else.

From my preemie I expected it... from my full term baby, I would have never thought in a million years...

The good news is that he is improving. Slowly. We have been here for 5 days now and it looks like we won't be home before 7. I have to say though, Nick is a trooper. To be 2 years 5 months old and cooped up in the same room for sooooo long, he really is handling it well! But he is ready. Ready to go home and be with his big brother Ryan. And Ryan is mad. Mad because he wants Nick "back from those doctors!"

Me too buddy, me too....

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (6) | Permalink
WHAT TO SAY...

Oct 03, 2010 06:57pm (EST)

Sitting in the airport after my 3rd Share Union... What an amazing experience this always is! So many wonderful women and a few wonderful men! Can't say enough thanks to those who made this experience so wonderful. Yes I was the "one" who fell on the way TO the bar. I am sure I will never live that one down... hahaha! Should have used a shopping cart! It was amazing reconnecting with old friends and making some new friends. Really missed those who could not come. My girl Kelly partner in crime... And several other peeps! But the time I spent with those who welcomed me back even though I have been absent for some time was amazing. When I wasn't slow motion face planting into the concrete! It has been a rough year and I promise to update ya'll soon. Thanks for welcoming my momma with open arms! The experience inspired her to do more and become more active. No matter what anyone says... Holland rocks! And it is because of all of you!
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Posted by Aileigh | Comments: (8) | Permalink
GUESS WHAT?!?!

Feb 18, 2010 01:31am (EST)

This picture, which I took, was used at the Gravens Conference in FL the beginning of this month! Meaning, the national MOD office thought it was good enough to use it in their presentation! How cool is that? It is a picture of a local NICU baby and their Journey Jewels. (These are beads they get for different milestones they reach during their NICU stay)

P.S. In case anyone is wondering, I do have a photography release on this picture in order to share it!


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Posted by Aileigh | Comments: (5) | Permalink
RYAN WILL BE 4

Feb 16, 2010 08:19pm (EST)

Gosh, it really doesn't seem that long! But at the same time, it feels like forever! It took me soooo long to come to terms with his birth. I don't think I will ever be at peace with it. But it is much much better.

Ryan is doing awesome these days... He has had a few rough days of preschool, but we have worked through them. His speech is amazing. I NEVER thought he would talk. I mean, when wouldn't even say Hi or Bye at his 2nd birthday and now that he is 4 and will not shut up! I love it! Some of the stuff he comes up with is so freakin cute! Last night he was eating ice cream and said "this is delicious!" I just had to laugh!

Nick, on the other hand, is not speaking. He says nothing. Nada. Zilch. I am getting ready to call First Steps and get him evaluated. He makes car noises and that is it! But he is sooo expressive. The kid has the best smile! It is sooo cute! He can just look at you a certain way and you know he is up to no good! He follows his big brother around everywhere. We have had some hitting problems from Ryan. When Nick gets in his way or gets a toy he wants, Ryan gets physical. We put him in time out and take his toys away, but nothing seems to get through to him. We are working on it.

We are all loving the new house! However, I am not loving this snow! I can't for spring so we can get out of the house! We have kept the sickies away pretty well. I really think the basement was not doing us any favors healthwise!

Not much else to report... I am doing NICU photos next week again. I can't wait for that! I LOVE LOVE LOVE doing it! If you want to check some out, go to my photography site to see just a few. I am hoping to get more releases this time so I can show you more!

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (3) | Permalink

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