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RYAN AND NICK

[Aileigh]

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Aileigh

May 2013
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INTERESTING DOCTOR APPOINTMENT

May 14, 2011 01:03pm (EST)

It's pretty funny how you go into a well check with expectations and sometimes you come out of it with your head spinning. That is exactly what happened!

First off-Ryan

He is 56 pounds! My little 4 pounder is in the 97th percentile in weight and 90th percentile in height! How amazing is that? Of course we had issues getting him to tolerate the bp cuff and the hearing test. He finally let them do it. And oh my, when they pricked his finger you would have thought they were ripping his arm off! Drama drama drama... can't imagine where he gets that from! I talked to the pediatrician about the ADHD. She gave us a few questionnaires. One for us, one for sitter, and one for his teachers. I got them faxed over to her Tuesday. She called me yesterday. The one we filled out puts him in the ADHD category. The one the sitter filled out puts him borderline ADHD. And the one the teachers filled out (which I don't trust BTW but that is a whole other story!) was two questions away. So she wants to try him on Focalin and see what that does. We are planning on starting it in 3 weeks. I want to get a few good weeks of observing his behavior off the medicine so that we will be able to pick up changes in his behavior better. I believe that he is ADHD. Just from my experience with my brother. My mom believes that he is ADHD. And my husband knows something is wrong... So we shall see!

Second-Nick

Yep, he didn't get a well check but I did add him to the agenda while we were there. His drippy nose kept getting worse and worse. To the point where his nose was bleeding on one side and there was yucky green gunk coming out of it. Nasty! He didn't have any other symptoms, just a yucky nose that went on for weeks. She looked at him and immediately said he has impantigo on/in his nose. Then she did Ryan's well check and came back to Nick. A closer look gave her a puzzled expression. "It looks like he has something in there!" Really? After some screaming, two nurses holding him down, husband holding the light, and me trying to keep Ryan from looking and puking she extracted stuffing from his nose that appearantly came out of a doggie (stuffed animal) that he sleeps with. Oh yeah. It stunk! Bad! Nasty! The thing is, we knew he had been pulling the stuffing out because I caught him putting it in his mouth and took doggie away from him over two weeks earlier! What a nightmare!

All in all, everyone is doing much better now. Ryan has 3 more days of preK left and shortly we will be trying a new medicine. Hopefully we will get things figured out by the the time school starts in the fall!

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (3) | Permalink
THE A'S HAVE IT

Apr 29, 2011 06:19pm (EST)

Nick has Asthma.

Ryan has either ADD, ADHD, or Aspergers Syndrome.

What the heck?!?!?

So Nick got discharged just short of a week. Thankfully when they started the CF vest, it turned things around very quickly. We had a follow up with his pediatrician the following week. She added Singulair to his mix of daily drugs. So far he seems to be doing okay. We had a couple weeks of bad allergies and drippy noses. It didn't escalate into anything more so that is a plus. We also got some invaluable information from the asthma education staff. Hopefully we stay on the right track!

Ryan.... Ugh that five year old!!! Love him to pieces, but man is he getting more and more difficult by the day. I had a long discussion with my mom and she feels strongly that he is showing signs of being ADHD. My brother had it. She can recognize the difference in behavior associated with it. I have an appointment with his pediatrician next Thursday for his 5 year well check and kindergarten physical. I will be discussing it with her and pushing to get him tested. He has been in preK for two years now. He should be able to concentrate and not act out against the teachers. Unfortunately, this week he got in big trouble and they also told me they were concerned about him going to kindergarten. We are not doing another year of preK. If I have to hold him back from going into 1st grade, then I will. But two years of preK is enough! So we will see how that pans out.

On another note, I continue to take pictures of NICU babies and their families as a part of the NICU Family Support Program at our local hospital. Unfortunately, this last weekend, a baby coded and earned his wings. (Not while I was taking pictures of him.) I ended up taking Now I Lay Me Down To Sleep type photos for the family. My heart just absolutely breaks for them. But at the same time, I am so glad that I was able to do that and I hope that someday there will be comfort in their hearts from those moments.

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (3) | Permalink
WHEN THINGS GET ROUGH...

Mar 30, 2011 12:06am (EST)

I turn to share...

I hate being gone from here, but a full time job and taking care of two kiddos keeps me pretty busy. With that said, life is rough right now.

Ryan was the preemie. Born at 33 weeks, I fully expected lots of problems from him. He has had his share of issues, but nothing like I had prepared myself for. We have been soooo lucky! Nick was the one who wanted to be a preemie but we wouldn't let him! 37 weeks was, in my mind, the magic number. Just get him there and he will be perfectly healthy! Right?

One of these days I am going to realize that life isn't exactly what we expect it to be. In fact, it isn't at all what we expect. That is why it is life I guess.

So from my preemie I expected:

To wake up at 3 am on a Friday morning to find he was breathing 68 times per minute.
To find he was running a dangerously high fever.
To give him a breathing treatment and realize it didn't even put a dent in his breathing problem.
To call my mom at 5 am for advice.
To be rushing him to the emergency room at 6 am.
To have an hour long breathing treatment with no improvement.
To have another hour long breathing treatment with no improvement.
To have his oxygen saturations drop after being put on O2.
To be put on continuous albuterol.
To be transferred and admitted to the Children's Hospital.
To see that look of complete terror in his eyes.
To have to constantly comfort him and reassure him that everything will be okay when I don't know if it will.
To take one step forward then two steps back.
To be educated on having a child with asthma.
To be by his side every moment of every day and never think twice about being somewhere else.

From my preemie I expected it... from my full term baby, I would have never thought in a million years...

The good news is that he is improving. Slowly. We have been here for 5 days now and it looks like we won't be home before 7. I have to say though, Nick is a trooper. To be 2 years 5 months old and cooped up in the same room for sooooo long, he really is handling it well! But he is ready. Ready to go home and be with his big brother Ryan. And Ryan is mad. Mad because he wants Nick "back from those doctors!"

Me too buddy, me too....

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (6) | Permalink
WHAT TO SAY...

Oct 03, 2010 06:57pm (EST)

Sitting in the airport after my 3rd Share Union... What an amazing experience this always is! So many wonderful women and a few wonderful men! Can't say enough thanks to those who made this experience so wonderful. Yes I was the "one" who fell on the way TO the bar. I am sure I will never live that one down... hahaha! Should have used a shopping cart! It was amazing reconnecting with old friends and making some new friends. Really missed those who could not come. My girl Kelly partner in crime... And several other peeps! But the time I spent with those who welcomed me back even though I have been absent for some time was amazing. When I wasn't slow motion face planting into the concrete! It has been a rough year and I promise to update ya'll soon. Thanks for welcoming my momma with open arms! The experience inspired her to do more and become more active. No matter what anyone says... Holland rocks! And it is because of all of you!
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Posted by Aileigh | Comments: (8) | Permalink
GUESS WHAT?!?!

Feb 18, 2010 01:31am (EST)

This picture, which I took, was used at the Gravens Conference in FL the beginning of this month! Meaning, the national MOD office thought it was good enough to use it in their presentation! How cool is that? It is a picture of a local NICU baby and their Journey Jewels. (These are beads they get for different milestones they reach during their NICU stay)

P.S. In case anyone is wondering, I do have a photography release on this picture in order to share it!


IMG_1763 resize

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Posted by Aileigh | Comments: (5) | Permalink
RYAN WILL BE 4

Feb 16, 2010 08:19pm (EST)

Gosh, it really doesn't seem that long! But at the same time, it feels like forever! It took me soooo long to come to terms with his birth. I don't think I will ever be at peace with it. But it is much much better.

Ryan is doing awesome these days... He has had a few rough days of preschool, but we have worked through them. His speech is amazing. I NEVER thought he would talk. I mean, when wouldn't even say Hi or Bye at his 2nd birthday and now that he is 4 and will not shut up! I love it! Some of the stuff he comes up with is so freakin cute! Last night he was eating ice cream and said "this is delicious!" I just had to laugh!

Nick, on the other hand, is not speaking. He says nothing. Nada. Zilch. I am getting ready to call First Steps and get him evaluated. He makes car noises and that is it! But he is sooo expressive. The kid has the best smile! It is sooo cute! He can just look at you a certain way and you know he is up to no good! He follows his big brother around everywhere. We have had some hitting problems from Ryan. When Nick gets in his way or gets a toy he wants, Ryan gets physical. We put him in time out and take his toys away, but nothing seems to get through to him. We are working on it.

We are all loving the new house! However, I am not loving this snow! I can't for spring so we can get out of the house! We have kept the sickies away pretty well. I really think the basement was not doing us any favors healthwise!

Not much else to report... I am doing NICU photos next week again. I can't wait for that! I LOVE LOVE LOVE doing it! If you want to check some out, go to my photography site to see just a few. I am hoping to get more releases this time so I can show you more!

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (3) | Permalink
WHAT THE HECK IS WRONG WITH ME?

Jan 12, 2010 03:31pm (EST)

Seriously....

I have two amazing boys. A wonderful husband. A new house.

But for some reason, I am bummed. Like super bummed. Maybe it is Ryan's 4th birthday coming up in a month. Maybe because we are totally and completely broke right now while we try to adjust to the new house payment. Maybe because my weight loss has stalled out a little. I am just a complete mess right now.

I think it is my lack of blogging. I haven't used my outlets in so long to get out my frustrations. I kind of slacked off on the blogging for two reasons. One-I was too darn busy. Two-I had some cyber-stalkers watching my every move. (AKA my hubby's crazy ass cousins.) They think that I am out to bash my mother in law to the ground and that is not the case. Yes, we have had our problems. Yes, I get frustrated sometimes. Yes, I can be mouthy and exaggerate for the purpose of a good laugh. Knowing that they have been lurking and waiting to pounce has kept me from my outlet! And that just makes me mad! So here's to not caring!

Whew, I feel better! Okay, so I am in need of a restructure of my life. I need to get our finances back on track. I need to step up my weight loss. I hadn't mentioned this before, but back in September I started changing my life. Exercise was the key. Inspired by my friend, Kelly, I have been exercising and watching what I eat. It has amounted to about 20 lbs lost and 21 inches lost. I still have A LONG WAY TO GO, but it is a start. My butt is a little smaller which is always a good thing! This darn cold weather is weighing on me. And we still have a good 2 months of it left!

Welcome to the complain train.... can I have your ticket please?

I need another Share Union!

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (6) | Permalink
HMMM....

Dec 11, 2009 04:36pm (EST)

Gosh, time sure is ticking away! I really need to post on here more often!

I totally missed yesterday's chat.... bummer! Lots has happened in the past couple of months. Prematurity Awareness Day came and went. I was more involved this year than I have been in the past which is good! Ryan and I made cookies (we tried to duplicate the ribbon cookies with no luck!) to give out at our local NICU. I also packed all of my fundraising stuff up (bracelets, magnets, etc.) and donated it to giveaway/sell that day. I spent the day with one of my favorite girls, Kelly Parsons jacknkatesmom, and that was fun. In between, I did mini photoshoots with the NICU babies and their families. It was so rewarding! Not to mention a day with Kelly P is a day filled with laughter, friendship, and goofiness!

We have moved into our new house! Our dream of owning a home has become a reality! Yay! I have found myself more domestic these days. I have even let Ryan do some cooking projects with me. We made turkey cookies for Thanksgiving. And I cooked my very first Thanksgiving dinner in my new house! I LOVE it! We have so much more room! Our life isn't cluttered and messy anymore. I kind of felt like moving out of our apartment was leaving Ryan's prematurity behind in a way. I credit that place with keeping him sick through the winters. Now we have hardwood instead of carpet. Hopefully it will keep the dander down and keep us all healthier! We have been utilizing our wood burning fireplace. LOVE THAT TOO!!!! And I have spent several evenings chillin out in my whirlpool tub (with a heater)!!! Seriously, it doesn't get better than that!

Ryan is doing good in pre-school. We have had a few "off" days since August, but I am happy to report that he got a "Good Behavior Award" the other day! Yay!!! Maybe we are finally making some progress! It's a learning curve, that's for sure! I have our upcoming days planned with gatherings, a cookie bake, and some quality time with the family. I can't wait! Not to mention, Ryan is super excited about Santa Claus! He REALLY knows what is going on this year and it is making it soooo exciting for all of us!

Nick turned 1! I can not believe it! He was sick for about a month before his birthday. I think Ryan brought home some nasty bugs from school and it just recirculated in our apartment. Hopefully we can all stay healthy this winter. Keeping my fingers crossed. He started walking on his first birthday. He now toddles around like a pro. He still isn't talking yet, but he knows his car and truck sounds. Jamie accuses him of being a pirate from time to time. He eats like a horse. He flat out refused baby food by the time he was 1! The kid has all four molars. And 8 front teeth. He is such a delight! We had some issues with sleeping there for a while. He was wanting to get up in the middle of the night. We finally had to just let him cry it out. That worked and we are not zombie parents anymore! Yay!

Not much else to report! Hope everyone is having a good holiday season so far. I can't wait for things to slow down so I can catch up with everyone! Hopefully soon....

Love and Hugs,
Aimee
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Posted by Aileigh | Comments: (4) | Permalink
SHARE UNION 2009

Oct 13, 2009 01:55am (EST)

I was a little apprehensive about going to SU this year. I was very active on Share until my 2nd son, Nick, was born the day of Share Union last year. Since then, my life has been sooo busy and hectic. Two kids, a full time job, a side photography business, and building a house is about to do me in. I really meant to get "acquainted" with those coming to SU that I didn't meet in 07 before I even left. Well, I pretty much failed at that! Our whole household has been sick off and on since the end of August. I simply haven't had time.

However, when I got there and started talking to you wonderful ladies, I realized that I was right where I should be. The emotions of all I have been through are getting easier to deal with, but when you sit and listen to someone else's story, it brings it all back to the surface.

I felt like I was with old friends. Some I had met before and others I had not. But it didn't matter. The love I feel in my heart for all of you runs deep. I really wanted to go to Italy. But I love Holland way more. I am more understood in Holland. I am more accepted. It is a gift that I could never get anywhere other than Share!

There were def some funny moments. The fire stands out the most! Kelly is a rock star for putting it out cause my blowing just wasn't cutting it! She still owes me a glass of water! I missed the shopping cart incident. I don't know where I was for that one! I am a little scared to see some of the photos from the late hours of Fri and Sat. I think I am a bit pickled and I know for a fact that I was hungover Monday morning and not Sunday.

The strength of this group is inspiring. I look forward to getting caught up on everyone and you can bet your bottom that I will be there for SU 2010!

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (10) | Permalink
ADHD OR JUST TERRIBLE THREE'S?

Jul 17, 2009 12:26pm (EST)

My brother had ADHD. He was diagnosed when he was about 4 or 5. I think when he started school. I can't remember. What I do remember is how annoying he was. I was a teenager at the time, so his annoyingness was probably magnified! However, I always knew he was different. He just WOULD. NOT. SIT. STILL.

About a month ago, my mom and I took a trip to Pikeville for a wedding shoot. It is a 3 hour drive. It gave us the opportunity to talk. I remember something she said to me one time. I was really complaining about how Tommy always got away with everything and basically questioning her discipline practices. She looked at me and asked me "What do you want me to do? Beat him?" Obviously my answer was no.

Ryan has been increasingly difficult to discipline. You spank him and he laughs. You put him in time out and he screams at the top of his lungs. You tell him to stop and he just keeps right on going. It's like he doesn't even hear us! He will run around the living room like a wild man. Not just a typical kid with lots of energy, but one who is seriously acting out. You threaten all of the above punishments and he just completely ignores it.

My point... On our trip, I asked her if she saw some of the same characteristics in Ryan as she did in Tommy. This was a question that I had been afraid to ask because I was afraid of the answer... "Yes" I had suspected it, but to have her confirm it was something that was difficult to hear. I have been blaming most of it on his sensory issues. She did say that in some aspects Ryan is calmer than Tommy was. At least Ryan will sit through you reading him a book. Tommy never would.

I guess only time will tell. He is going into pre-school this fall and I am hoping that this will be a red flag if he does have ADD or ADHD. We should know pretty quickly. Meanwhile, I will discuss it with his pediatrician at his physical.

Hugs and Love,
Aimee
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Posted by Aileigh | Comments: (4) | Permalink

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