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THE MCTRIPLETS
McTriplet Mommy |
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SCHOOL CONFERENCES AND ISAAC AND SULLIVAN'S FOUR-YEAR APPOINTMENTS
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Oct 25, 2008 08:09pm (EST)
I am so embarrassed that I blogged about Lorne's four-year appointment... the boys, in general, at four - but never about Isaac and Sullivan's doctor's appointments, their growth and development, etc.
I don't have the stats in front of me and I can't remember it all to the number - but the appointments sure went well!!
Sullivan was 35 pounds and 39 inches - 25% for height and weight (I think...). They both had to get flu shots at their appointment and Sullivan seriously didn't even flinch. No crying - but no whimpering, no cowering and no flinching. He made eye contact with me and got his shot - that was it.
Isaac was 29 pounds and 36 inches (I think...) on the chart for BOTH measurements!!! My "little" Isaac is finally on the chart - 3-5% but still, for a child who hasn't been on the growth chart in three years, 3rd percentile is HUGE!!!  He did great with his shot as well - as expected. He is doing great with his GHT and a little flu shot was "nothing."
(That's what we call a "hard return" you all - that fancy line there that means I am now switching topics.... thanks, Carissa!)
The boys' conferences were freaking incredible. I know this is a family site and that isn't the nicest way to say it - but seriously, we were SO excited about the outcomes!
Scott and I LOVE all of the boys' teachers. We've discussed how we wonder how the boys were matched with their teachers because the matches are SO perfect. Lorne's teacher compliments his personality (and while Isaac's and Sullivan's teachers are great - there is no way they could handle Lorne!!), Isaac's teacher is sweet and LOVES him, Sullivan's teacher is awesome.
There was no unexpected "bad" news. There were some concerns - Lorne's sensory seeking behavior and lack of attention, Isaac's vision and Sullivan's speech - but nothing we didn't already know.
The positive reports were huge - especially Lorne's. I think I can speak for both Scott and myself that we really have no concerns for Sullivan. He is "behind" cognitively but only because he wasn't exposed to some of the things his brothers were, his speech articulation is pretty "bad" - but nothing I don't feel will "catch up." This is a smart kid. He doesn't know all of the shapes and numbers and letters - but can do puzzles and word searches and things. Isaac is SO well loved and I just feel his personality will outweigh any problems. His main concerns remain vision and orientation and mobility (related to vision and getting around safely). Lorne's teacher reported that he is SO off task sometimes, that he is SO disruptive at times - but boy is this kid SMART! She said he counted to 87 (my FOUR YEAR OLD!) before he said, "I'm tired, I'm going to stop now." I mean, seriously.
So - life is good here. I am still basking in the memories and experiences that is "Share Union." I can't express to you how much you all mean to me - just knowing that you "get it" means the world to me.
Take care,
Kara
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Posted by McTriplet Mommy | Comments: (8) | Permalink
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THE TEXAS TRIP
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Oct 21, 2008 06:55pm (EST)
So my trip to Texas actually started in Austin. Scott and I made the 12 hour drive to our friends' house and visited with them for three days. It was a great get away and some much needed "couple time." Our friends have lived in Austin for six or seven years and this was our first visit. They are both from KC so we see them several times a year when they come "home" but we were so excited to visit them on THEIR turf (and not have OUR responsibilities getting in the way! )
Friday Scott and Olivia dropped me off at the airport so I could fly to Houston. The flight was incredibly smooth and uneventful (I don't necessarily "hate" flying but I get verrrrrry motion sick) and I arrived right on time and to a voicemail from Angi. I connected with her (Phoenix's Mom) and Elizabeth (ehbeagle), we hopped a shuttle to the hotel and we even got that redneck Angi to drink wine with dinner!
When we walked back to the hotel, we walked to the bar. This gorgeous blonde was sitting there by herself and we assumed she may be with Share. Oh my - this was my long lost BFF Kelly (Katelyn'smom)!! LOVE me some Kelly P. Friday night we just hung out and talked and drank and talked and drank. Awesome.
Saturday I had the luxury of sleeping in and then I headed down to check in. It was so exciting to see this group of women standing there - and I didn't necessarily recognize all of them right off (would have recognized their kids in a heart-beat - but some are better than others of putting pictures of *themselves* in their blogs!!) but knew they were with Share.... and once names were exchanged, it was like we'd known each other for years. I was SO excited especially to meet Leigh (Tucker's Mom) as we'd talked on e-mail for the past two years!
I had a hard time explaining to my parents why I was going to Houston. Scott really got it I think - but my parents were like, "Okay, so this is for work?" "Um, no." "Okay, this is a volunteer conference?" "Um, no." (well, kind-of) I always say I have some of the absolute greatest friends and family. I have friends who have dropped everything to drive twelve hours when they heard about Scott's accident just to be with us. I have dozens of friends who brought food, mowed the lawn, sent cards and e-mails etc. when the boys were in the NICU and we were no where to be found. Scott and I both have incredibly close families who are super supportive... but none of them really "get it." To be in a room when forty people who "get it" - even *without* me explaining what "it" is - is an incredible thing.
Share Union itself was awesome. Jaclyn (LilyGrace'sMom) had THE best games and ice breaker games. Oh my - we were giggling for two days! Totally awesome. Dr. Lowenstein's presentation about the NICU from a dad's point of view was great. The PAD panels, the coding info, the scrapbooking, the NICU family support presentation, all of the info at SU was great and I walked away not only saying that I'd had fun and met some great women - but I really had a renewed sense of importance and urgency as a volunteer. (The family teams presentation was okay - the woman who facilitated it really *thought* she was funny.... I wasn't all that impressed.  ).
The remembrance ceremony was, as usual, absolutely amazing and the highlight of the weekend. Seeing ALL of our children honored and remembered, for a few moments getting to mourn what it is we lost - whether that be a child, the vision of a perfect pregnancy, years of our lives spent in and out of the hospital, the dream of what our children would grow up to be - just knowing that it is okay to be upset and getting to decompress.... we all need to do that once in a while! Thanks to Grammy for sitting with me and HUGE kudos to Shonda, Carissa's video and everyone involved for an amazing ceremony.
Everyone who was able to come - it was awesome to meet you. Those who weren't - start saving your money for D.C., I guarantee you will not regret it. It is an amazing experience that I will treasure always. This was my third SU and the best one yet. I would also like to make a public apology for the Share-pardy game.... I get rather competitive. Love my new duffel bag though!
When it was time to leave Kate St. Clair, Megan Sheriff and her mom and I took the "shuttle of death" to the airport. I am really surprised we survived AND that no one got carsick. The boys were thrilled to see me at the airport when I returned (since we drove down my mom and the boys picked me up and Scott drove back himself Sunday). Sullivan ran up to me, crying, and said, "I just missed you SO MUCH!!" At least he didn't cry *before* I was home on the phone.
I am happy to be home - but would not leave the experience for anything. Now we're back to life - back to reality. Started swimming lessons yesterday and had a soccer game tonight. Tomorrow is parent teacher conferences - I'm sure I'll have an update after that. I am dropping the boys with another triplet mom for a few hours so Scott and I can both go (and, in turn, watching her 3 Friday morning....) so it should be interesting. Isaac is SO well loved, Sullivan is a rule follower by definition - Lorne I am a bit worried about.
Take care, XOXO - miss you all already!
Kara
10-17-08 kara angi elizabeth dinner
10-18-08 BFF Kelly Ponnnnnnnnslllllllller
10-19-08 boys waiting at airport
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Posted by McTriplet Mommy | Comments: (15) | Permalink
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THE MCTRIPLETS AT FOUR...
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Oct 11, 2008 06:24am (EST)
I can't believe these kids. It's so funny, we had a kind-of hard day around here.... yet it is SO relative. A "bad day" for my three-year old triplets was like, lock-myself-in-my-bedroom, scream-and-cry-for-hours, cannot-take-this-another-minute, gotta-have-a-cocktail kind-of day.. A bad day for my four-year old boys is more like, I-need-a-few-minutes-to-breathe... but then I'm okay kind of day. I hardly lock our child locks any more (keeping in mind all of our dangerous cleaning supplies, etc. are all way out of reach (even for me!)), they can buckle themselves in their carseats, we can go for a walk in the neighborhood without a stroller, I can send them upstairs at a friend's house to play in their child's bedroom and not be too worried, etc. Last year, we changed all of the locks on ALL of our interior doors so they could be locked from the inside (locking us all (cough, cough, the boys) OUT of the room but we put the key on the top of the door jamb so the adults could get in) because they just could not follow directions like "Stay out of the office." Now we never lock the doors. Four-year-olds are CAKE compared to two- and three-year olds. They are so much fun - they understand sarcasm. They have a sense of humor. They can verbalize what is upsetting - or exciting - to them. They can be "reasoned" with. They are like these little people, not babies... gasp!! All three boys are at the same school this year and LOVE it. They ride the bus and, while they are in different classes, are very excited to see each other in the halls and at recess. They love their teachers and their school - not one of them has EVER cried or said they didn't want to go so we are lucky in that regard. The past year has been entirely uneventful, medically, (never thought I'd EVER be able to say that!!!!) and the boys continue to do well.
As for the boys individually...
Lorne - this wonderful child continues to struggle with "Sensory Integration Disorder." This little boy is SOOOOOOOO "sensory seeking"... as in he *constantly* needs "input".... he needs to touch, feel, smell, mouth (and did I mention touch?) new things. He, at times, seems quite physically unable to sit still to save his life. I keep trying to remind myself that he truly can't help it but it can be VERY frustrating even to those of us who love him most. Besides this (which is HUGE and exhausting but we're hoping he learns how to cope with it more throughout the years) he is doing *amazingly* well. I mean really, really well. He is a SMART cookie - he knows numbers, letters, spelling, letter sounds - his memory is completely ridiculous. He continues to struggle with some of the fine and gross motor milestones but those are things we feel will come in time... the cognitive stuff was much more concerning and we really don't feel concerned about it much at all any more. Lorne continues to struggle with feeding ("eating") but is "getting there." He will now put things in his mouth, chew and even SWALLOW a little (all of which would have seemed like a DREAM a year ago!!!!) but still relies on his feeding tube for 99.99% of his nutrition. We also continue to thicken the liquids he drinks because he still has a paralyzed vocal chord due to his prolonged intubation at birth... this can lead to aspiration (fluid in the lungs that he basically "swallows" down there himself) so we're careful.
Lorne is SO excited about life in general. He is very, very affectionate (sometimes to a fault - we're working with him on "personal space") and loving. He has a very hard time sharing things and seeing others' point of view - but can be very sympathetic to those who are hurting and is the first to run to the freezer for an ice pack or offer his brothers a hug and say, "It's okay...." when they are hurt. If someone is in time-out in our house there is a 75% chance it's Lorne, but he is learning. Considering where this little miracle came from - born at 23 weeks gestation weighing 1 lb 5 oz and spending the first five months of his life in the hospital - he amazes us literally daily. He has a permanent visual impairment that he has learned to compensate for and will continue to learn how to adapt to. Lorne has a hard time relating to peers at times but for those of us who know and love him - his hugs and kisses are absolutely priceless.
Isaac continues to be our little sweetheart. I have NEVER met anyone who doesn't love and gush all over this child. Seriously. We can be at a playgroup for three hours and he just entertains himself and doesn't cry or fight - he is so go with the flow. That being said, if he *does* throw a fit... look out! Of the three boys, Isaac throws the least fits (by far!) but throws the worst fits (BY FAR!!!). He is very easy going and very sweet. His voice and personality is one of his greatest attributes when he meets new people I think. He has Lorne's outgoing personality - but with a sense of maintaining personal space and not invading others' areas. Seriously - we go out to dinner or to the grocery store and by the time half-an-hour has passed, he is best friends with *everyone* in the room. His smile is truly amazing! Maybe he'll be a politician. I hope I am always able to remember his adorable voice and his giggle and how his little arms pump so fast when he runs.
Isaac continues to struggle with his size though I can no longer say he struggles with growth (hooray!!!!!). Isaac is our smallest by far (I'm anxious for their doctor's appointment next week where we find out his and Sullivan's weight/height and how much they've grown since last year....) but is growing and, most importantly, healthy. He eats like a little piggie and is growing well. Isaac also has a permanent visual impairment he will have for life and, while he is doing very well, his vision loss is much more obvious than Lorne's on a day-to-day basis. He struggles when we enter new environments - especially outside in bright sunlight. His vision teacher has recently told us that he may be a Braille reader, at least in school, but he will have good enough "residual vision" to go out to dinner and read a menu, to go a store and read price tags, etc. Scott and I are still "dealing with" these realizations ourselves - but Isaac is doing GREAT and loves school. He has a "best friend," Arianna, who is in his class. These two are soooooo cute together!! She is all he talks about and I got to meet her and her mom at a PTA meeting last Tuesday and she seemed SO excited to see him as well. Very cute. We often tease that Isaac is in his own world ("Planet Isaac" as Scott says) but it's just that he's so easy going. He is content singing and playing by himself.
Sullivan... oh Sullivan. It's so funny that we labeled this little guy (quite accurately) "Trouble" in the NICU just weeks, er days, okay *hours* after birth. Sullivan has *definite* opinions on how things should go. He knows the RIGHT WAY - just ask him. He is VERY particular about his toys, his clothes, his things, almost anything. Not to the point of concern - just to the point of wanting to pick up his stuff and knowing where things go. He throws awesome fits almost daily but I think it's mostly b/c he's tired (he is the only one who usually falls asleep on the bus on the way home from school still). He has the strongest personality but usually I mean that in a good way. Sullivan is an *awesome* helper and can be trusted with most jobs. I would *never* dream of sending Isaac or Lorne to the basement to get supplies (paper towels, pull-ups, etc.) but don't think twice about asking Sullivan to do it - I know he will take his "job" very seriously and always follows directions. He is the only one we EVER allow "alone" in the basement, garage, etc. and send on jobs throughout the house - including helping his brothers. I often worry how Sullivan will accept his role in the family as the brother withOUT a permanent disability... the helper. If there is only one of our sons who drives, it will be Sullivan and I worry that he may feel "obligated" to "take care" of his brothers. As for NOW - he *LOVES* his role as "protector" to his brothers. When they get off the bus each day, Sullivan walks in the middle of I & L, holds both of their hands and walks them to class. He loves to help his brothers look for things or do things (his fine motor skills have always been exceptional so he helps button, zipper, put on shoes, etc. for his brothers) and just simply LOVES to help.
Sullivan (KNOCK ON WOOD) has never ever been admitted to the hospital and, while he has a significant speech delay, I think I can speak for most of the family to say that we have no long-lasting concerns for this little cutie. He is much more shy and "cautious" (I almost said "scared") than his brothers. He is SO stinkin' smart - but not necessarily "testable" smart when it comes to school at this point... he doesn't know all of the shapes, colors, numbers and letters that his brother does but he can do word searches and problem solve and do puzzles. He will learn the other things - this kid picks things up fast and will do well in school and in life. He loves to tattle on his brothers or "remind" them what to do but is really SO very good to both of his brothers. He really likes to take care of him which is adorable.
So - that's the update on my four-year olds. This birthday was honestly very hard for me... their first birthday was a HUGE celebration - I cannot believe that we all survived (literally) that first year. That second year brought so many great things like Lorne's development, discontinuation of oxygen/medical dependence and Sullivan's "all clear" from his cardiologist. Year three was just a "normal" year for us which was great and our first of the sort.... but four-year olds - I think since we *didn't* have many other kinds of concerns as far as their development or health the year just kind-of slipped away... and now I am the mom of these three little people. Not babies. Not toddlers.... this little beings with their own thoughts and feelings and inside jokes.
Loves it.
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Posted by McTriplet Mommy | Comments: (13) | Permalink
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LORNE'S FOUR-YEAR OLD APPOINTMENT
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Oct 01, 2008 12:10pm (EST)
This morning I took Chomps to his yearly well check. It went great! He was a little nervous when they called his name - the poor child has learned to FEAR doctors. But he did awesome! He was 39 BIG inches and 35 HUGE pounds! He is in the 25th and 50th percentiles, respecitively.
The appointment itself with the doctor went great. Lorne wanted *nothing* to do with the gown he was supposed to wear and I was sure as heck not pushing that. So he just sat in his new Thomas underpants. The doctor was SO impressed with his development. Cognitively and socially he is *ahead* (AHEAD!!) of his actual age. And she didn't even ask him the hard questions that he could have answered like his address, phone number, spelling his name (and everyone else's in the family!), etc. (as an aside I also ran in to his vision and O&M teachers Monday when I picked them up from school - they also commented on how GREAT Lorne was doing and how SMART he is!!) Physically he was hit or miss - some right on, some below - but we already knew that. That's why he gets PT and OT still. Nothing huge - just like buttoning buttons, hopping on one foot, etc.
I asked her, "Can you believe this is my little 23 week preemie?!" I love our doctor - we've seen her since the boys came home and she always acts just as proud of them as I am when we go in there. Lorne had to get a flu shot today and laughed - just like Isaac. A little whimpering but no big outburst like I expected. I told him I was so proud of him and he said, "I'm so proud of me, too, Mom." 
We also had our first soccer game last night - so adorable. All of those kids running around chasing the same ball with NO concept of the rules. Sullivan got to play "goalie" - his brothers wanted to join him! You can see Sullivan, along with Daddy and Grandpa John, trying to tell them to get OUT of the goal! It was so cute - two more games this "season" - I think it was a good intro to soccer for them.
Only THREE WEEKS until I'm headed to Texas (we're going a few days early to spend some time with friends in Austin). Can't wait to see all of you y'all!
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Posted by McTriplet Mommy | Comments: (11) | Permalink
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THE BIRTHDAY PARTY
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Sep 28, 2008 06:11pm (EST)
We had a great time Saturday at the boys' much anticipated "Thomas the Train" birthday party. Almost everyone came who was invited and the boys had a blast. There was no shortage of presents, for sure! I know many of you were in on my nation-wide search for three normal, male Cabbage Patch Dolls - we finally found them and the boys love their new BABIES! They got lots of neat stuff including some great cars, legos and movies. They also got a few clothes which they, in true four-year old boy fashion, not-so-gently tossed aside to get to something "better." They DID love their new Lightning MacQueen rain boots and new underpants though. Besides their "official" gift at the party from us (their "babies") we also got a new kitty, Toby, last week for their fourth birthday. They adore him.
They were so excited about their cakes and having their friends over - oh, to be four again.
I don't know why I cannot simply enjoy myself at these parties. I stress and stress and stress, I really don't even know what stresses me out so much. I just hate that I can't enjoy it - I guess the boys had a good time so that's the important part, right?!
boys front step
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boys cakes
9-14-08 Toby
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Posted by McTriplet Mommy | Comments: (10) | Permalink
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LORNE TURNS FOUR
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Sep 21, 2008 06:44pm (EST)
How is that possible?? How has it been four years??!!!
I feel like in my day-to-day I feel pretty much "over" the left-over feelings I once had regarding the boys' birth, etc. But the comments of, "Lorne turned four yesterday!" to not-so-close friends and aquaintences sparks comments of, "Well, didn't they ALL turn four?!" and, of course, leads to explanations of the boys' birth... which sparks more questions of, "Well, how small was he?" "How many times did you go get to see him?" "How in the world is that possible?" etc., etc., etc..... all of which always stirs up some emotion. (those of you new to my blog - Lorne was born at 23 weeks 3 days - and 18 days before his triplet brothers were born at 26 weeks)
Honestly - having three smart, healthy, awesome little boys at home - I can usually talk about the boys (though tears may come during the explanation!) and end the conversation with smile on my face. However, the topic of the boys' birth also typically brings questions of our reactions to the appointment where we found out I was carrying triplets... which leads to explanation of Scott's accident, etc. And while talking about the boys' births and struggles - then getting to end with, "Now they're four and wonderful" - the outcome of Scott's accident is purely "bad" in my opinion. He is doing great, he is amazing, he is my hero... but it has been, and sometimes still is, a daily struggle to "deal with" this still fairly new disability and the tragic way it came about. (again - those of you new to my blog... my darling husband was in an accident when I was six weeks pregnant (three days before my sonogram showed three heartbeats) at work and had to have his leg amputated as a result of his injuries. He was not able to accompany me to my first sono (where we found out they were triplets) because he was still in physical rehab after his surgery himself)
Anyhow - we took Lorne to T-Rex (think Rainforest Cafe but dinosaurs) for his birthday. He was THRILLED! There was also a sort-of a "wellness fair" beforehand sponsored by the YMCA in the same area with games, prizes, face painting, tattoos and a totally awesome children's singer... I think Lorne thought it was a huge birthday party for HIM! He got to get up on stage with Mr. Stinky Feet, he used his birthday money to buy a new "T-Rex" and all around got fussed over for an entire day. He was THRILLED when they brought out his dessert and sang to him (crack me up - this child who doesn't eat orally was SO excited about ice cream ). I'm not sure when it will happen... but both of his brothers were so excited to wish their brother happy birthday, see his presents, etc. - and were not jealous at all.
So - I am now the mom of a four year old.
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Posted by McTriplet Mommy | Comments: (12) | Permalink
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SHARE UNION!
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Sep 16, 2008 08:02pm (EST)
With all that has been going on with the boys I haven't had time to blog on Share Union.
I have so very many good friends. I have an absolutely amazing family. I have friends I've known literally my entire my life. My best friend is my mom. My awesome sister-in-law who I more close to than anyone lives ten minutes away and I talk to her almost daily. And yet... no one in my "real life" had any idea what I was going through when the boys were born. No one had had a child born early. No one was raising a child with medical needs like I had under my roof at age 12 months. No one I had ever met in person was worried about their child's development. Wondering how six months in the hospital and being poked and prodded and messed with for years would effect a child's personality. Not one person I had ever touched in real life had their child admitted - over and over and over and over - to the hospital because of a respiratory illness. I'd never seen anyone feed a child through a feeding tube in their stomach.
Then I found Share.
Through Share I found many things... compassion, empathy, understanding, advice. Most of all - and what I truly needed most - I found (almsot sadly) normalcy. I wasn't a weirdo with a sick kid. I wasn't someone to be stared at at the mall because my kid had a cannula in his nose. I was just another mom with a child with feeding issues and with growth issues. A mom with a child on oxygen. A mom whose children were suffering from ROP because of their prematurity.
Don't get me wrong... this is a place where I truly wish I didn't belong. To have a big fat, healthy, "normal" kid... I love you all - but I'd give you up for that. For my children's healths. I wouldn't wish their struggles on them just so I would fit in in this community.
But since I obviously can't change the situation - oh how thankful I am to have a place to go and feel normal. Loved. Understood. To know that there are moms who get excited as I do when Lorne chews and swallows an entire bite of mac 'n cheese. To belong to a community where other parents get as pissed as I do that they weren't able to carry their children to term where they had a better chance of being born healthy. To have friends who have scars on their bodies, and in their emotions, because of how their children are born. To be able to relate to parents who have been through what I have.
So - when I got to go to Share Union in Kansas City it was, to risk sounding cliche, magical. Amazing. Awesome. To meet these people in person was incredible. Last year was even better. This year is sure to be the best.
There is still time to sign up for Share Union in Houston. I promise - I guarantee - you will not regret coming. I'll buy you a cherry limeaide if you don't enjoy yourself.
Take care - hope to see you soon!
Kara
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Posted by McTriplet Mommy | Comments: (8) | Permalink
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BREAKING POINT
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Sep 13, 2008 01:17pm (EST)
So - I'm getting less and less patient with Lorne about eating and his feeding tube. I'm just ready for him to eat already! I think I'm getting more and more irritated because of the progress he *has* made... I know it is 99% psychological at this point as he CAN drink, put things in his mouth and chew, swallow, etc. Not only that but, while we still thicken his liquids because of his paralyzed vocal chord, he is very healthy and we aren't as concerned about aspiration, his lungs, etc. and I feel like we can push him more than we are.
All this week his stupid pump keeps giving us error messages. I have no idea what is going on with it. Thursday, it was alarming with every feed - and not just that, but it would work for a few minutes, then stop and send and error message, we'd fix it, it would work for another few more minutes, stop again, etc. This went on during his second feeding probably ten times and I finally said, "UGH!!!!"
Lorne says, "What's the problem, Mommy?" and I snapped back, "The PROBLEM, Lorne, is that I am sick and tired of feeding you through a hole in your stomach!!" To which he replies (in his typical, adorable, nothing-at-all-bothers-me voice), "Oh, okay!" and continued to stand patiently until I finally fixed it.
Ooops - probably not the best way to go about it! I also told him (yet another of my finer Mom moments...) that kids in kindergarten weren't allowed to have buttons so he'd have to get rid of it by then. Again he says, "Oh, okay." No big deal. I'm just sick and tired of it. I need to contact the feeding specialist again and see where to go from here now that he HAS made some progress in that he will now put food in his mouth, chew, swallow, drink, etc. I have several ideas on what I think *could* be some courses of action - but I of course want to check with the doctor first. One thing I'm trying to focus on with him right now is drinking more. I figure if he drinks enough Pediasure - we won't have to put that amount in his tube and maybe could just go to one feeding after bed if he drinks enough during the day. The child obviously can't live long-term on an all liquid diet, but it would bring us closer to getting rid of his tube. Maybe? Though I don't want to "band-aid" the situation and just do it right to begin with so maybe that's not the way to do it.
Anywho - just feeling a bit sorry for myself and frustrated with Chomps and the eating thing. His OT works on it twice a week at school so I need to talk to her about it, too. I'm just so frustrated about it and not quite sure where to go from here.
Tomorrow is Bikers for Babies - can't WAIT! Kansas City boasts the largest March of Dimes RIDE in the whole country. It is an awesome event and I can't wait - hoping we have good weather!
Take care,
Kara
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Posted by McTriplet Mommy | Comments: (9) | Permalink
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