Nebraska

Hello. I am new to this site. I thought it would be good to get some support from other moms who have been through a similar situation. In January, my husband and I found out we were pregnant. We were so excited to become parents. We went to the doctor at 8 weeks and had an ultrasound done to check out the heartbeat. Well to our surprise, there were 3 little heartbeats!! We were in shock, considering we had gotten pregnant naturally without fertility. Our doctor had said, he would see us back in 4 weeks. Hopefully there would be 3 heartbeats, but there could be 2 there could be 1. We went back and found that we had lost little Alex. I had about 2 days grieving time, but I had to remain strong for my other two babies. My pregnancy was great! I wasn't sick, I felt good. I went to my high risk doctor May 5, 2005 and everything looked good. Our two little girls were growing just fine. I got to celebrate Mother's day with my husband. One gift that I wanted the babies to give him was just a few kicks, to let him know they were in there. That night before I went to bed, he felt the babes kick. What a perfect end to mother's day!

That night at 3:00 am I woke up and had leaked fluid. We went to the hospital. I was put on bedrest, and was told I would probably be there until I delivered. I was there May 9 and held out until May 15. Our precious little girls were born at 22 weeks 5 days. Kaylee Grace weighed 15 oz and Claire Elizabeth weighed 14 oz. They were perfect in every way. My husband and I got to spend a very precious hour with them before they were taken up as angels to God. It has been one of the hardest things that we have ever had to go through in our lives. My husband has been a wonderful support. We just recently joined a local support group, and I decided to go to counseling for my grief. Because I figure, if the resources are out there, why not take advantage of them. There are times I feel very alone, as if no one can relate and the world just keeps moving as if nothing has happened. Has anyone else had this similar experience? I would love to hear from you. We can be a support for eachother.

I am so sorry for your lost of 3 precious little angels. We sit and ask ourselves why would god do this but there is a reason for everything. Your handling it good, and we're all here for you. I've had 3 preemies. One at 32 weeks and 2 at 27 weeks. My 27 weekers were twin boys. And they are precious. And I am so glad to have them. I am almost lost my boys. And at that point I was devestated but they were fighters. I am so sorry once again and I am here to talk if you need to.. And ALWAYS rememeber your 3 little ones are up there watching down on there mommy waiting till the day you met them again... Good luck...

Mother of ( 32 weeker, 37 weeker, and 27 week twins)

Hello: This is Pam with the Education Department of the March of Dimes. I'm one of the moderators for the Share site. Welcome to the Share community.

My sincere sympathy to you and your husband for the loss of your dear babies. I am glad to hear that you are seeking help during this difficult time through counseling and your support group.

There are families on this site who have had also lost their babies. They provide important support to each other. If you go to the Message Boards and scroll down the topic list, you'll see a board for families who have lost a child.

The March of Dimes has information on grief and loss on our Web site. If you are interested, here is the link: http://www.marchofdimes.com/pnhec/572.asp

Wishing you and your husband the best.

Is there anyone here from Nebraska that has lost a baby?

my husband and i have decided to move back to nebraska in the near future. the health care in arizona sucks. and you get no help. i would like to move closer to my family, who have been helping us out in arizona. i would like my mom to see the girls more often. it sucks that no one comes out here to visit. we can't really go anywhere because of joslyn. it would be too much on her. the only thing that is holding us back is insurance, and we have to stay in our house, so we don't loose money. would someone mail me if you are from omaha. thanks.

Hello SheShe,
My name is Lori Caporale and I am new at this website. I was reading your story and I am so sorry for your loss. I too lost my son in the NICU. That was 16 years ago but the pain and heartache still continues everyday. I live in Lincoln, Nebraska and my son was born at St. Elizabeth hospital in 1989. I had many complications during my pregnancy. He lived for 12 days. If you ever need a friend I am here to talk.

Your Friend,
Lori

Our daughter was born in July of 2004 with gastroschisis and was in the hospital for 60 days. She is now 3 and is the light of our live. If anyone would like to talk about the NICU, gastroschisis, preemies or anything just let me know.

Carleen

hi im joslyn's mom. we moved here june 21, 2007 and have really enjoyed being back home. we are now renting a house out in millard and joslyn has her services here at home. she is receiving speech, ot, and pt. she is also taking classes with her early intervention at the y. since she is turning 3 this month, they are keeping the service cord. til aug. im getting nervous about that. what happens if i need help or if i need help with anything? i wont know who to turn too. maybe her early intervention? she will be going to preschool with these services come aug. let me know what you think about who i should turn too. thanks, tina

My granddaughter was born early with her intestines outside. She has had her 4th surgery at 3 months old. Due to blockages they have a colostomy bag on her for the second time. She will go home with the bag and her TPN until she grows enough to try and reconnect her intestines. She is beautiful and has been through so much. Thanks for the hope you give all grandmothers.

My darling sister miscarried in 2006 and the pain was terrible. her son was 15 weeks developed. on thiursday the 19th june 2008 she finally gave birth to a son, joshua.
Joshua was born with a fairly severe case of gastroschisis and it was believed that he would have to have many surgeries to correct it. After only one surgery everything was back where it should be and he's doing really well. I am so happy that things have turned around and i'm sure that they will for everyone else as well. have faith.
much love guys
x0x0x

I've created a site for parent's of gastro babies. I'd love for you to share your story with the site. Please check out, http://gastroschisis.net and send your story to me on the 'your stories' page.

Thanks!
Lisa

I am 30 weeks pregnant and I found out when I was 6 weeks pregnant that my baby has gastroschisis been really hard for me.can some one tell that ever thing will be ok. My doctor say she is small she is 2.10oz right now.

Hello and welcome to Share! I'm so sorry to hear of your little girls diagnosis. I'm sure you are so scared of what is to come for her. I don't have any personal experience with a little one that has gastroschisis but I did a quick search and found a few postings that other members had done about it that you may find helpful.

http://shareyourstory.org/webx/.efa48c5/4

http://shareyourstory.org/webx?14@@.ef6767b!discloc=.ef67681

Please keep us posted when you get a chance!
Stacy

My daughter was diagnosed with gastroschisis when I was 18 weeks pregnant. After reading a ton of stories I was convinced she'd be early, and quite small. Luckily she went completely to term, 39 weeks, 1 day by scheduled c-section. She weighed 8lbs, 9ozs. She was the biggest baby in the NICU. When she was born her intestines & stomach were outside of her body, but they were able to push her stomach back inside the day she was born and gradually the rest of her intestines over the next 5 days. She had her surgery to close up her belly at 6 days old and started feeding by bottle the next week. She came home 2 weeks, 6 days after she was born and she is the absolute best baby. The only thing I've noticed is A LOT of gas and she does throw up about once a week. Good luck <3