( Desiree )
- Jun 3, 2005 12:48 am
(#1 Total: 70)
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Devin 36wks, Nia 29wks, and Cade 36wks |
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CINCINNATI'S CHILDRENS HOSPITAL
WE SPENT FOUR MONTHS AT CINCINNATI'S CHILDRENS HOSPITAL AFTER MY PREEMIE, NIA, WAS BORN. SHE WAS A 29 WEEKER WHO DEVELOPED NEC WHILE IN THE NICU. I LOVE THE HOSPITAL, DOCTORS AND NURSES THAT MAKE UP THAT WONDERFUL PLACE. THEY TOOK GREAT CARE OF NIA AND SAVED HER LIFE. THEY WERE SUPPORTIVE AND ALLOWED ME TO PARENT NIA THE BEST I COULD IN THE HOSPITAL. I WILL FOREVER BE GREATFUL FOR ALL OF THE HARD WORK THEY PUT INTO GIVING NIA BACK TO ME.
DESIREE
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Connie Mueller
- Jun 3, 2005 1:58 pm
(#2 Total: 70)
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Maumee
My son Samuel was born Nov. 6, 2003 at Toledo Hospital. He was 26 weeks, weighed 1# 10 oz., 12 in. He is now 19 months old and doing very well. Not walking yet but soon. We were told he would not live because his lungs were so damaged, plus mulitple infections. How wrong they were!! He is not even on breathing treatments anymore. We are so lucky. Hello to anyone in or around Toledo. Connie and Samuel
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Shannon Eiser
- Jun 4, 2005 11:42 am
(#3 Total: 70)
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Hey Connie and Samuel
My husband is from Toledo he thinks it is the best place on earth... Reminds me of Klinger from Mash. Anyway, Welcome to the message boards. We live in Atlanta but try to get to Toledo often to visit the family. Of course it is hard when you are on bed rest but once the baby comes we hope to make a trip!
How old is Samuel?
Shannon
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Clarasmommy
- Jun 8, 2005 6:39 pm
(#4 Total: 70)
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NE Ohio
We spent 97 days in the NICU at Aultman Hospital in Canton, OH after Clara was born at 26 w 2 days weighing 1 lb. 6 oz. 12 inches. She's been home for 3 weeks now and is doing wonderful! Today is her 4 month birthday.
Replies to this message
Karri (Jun 8, 2005 8:55 pm)
proudmom29wk (Aug 2, 2005 10:56 pm)
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Karri
- Jun 8, 2005 8:55 pm
(#5 Total: 70)
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Replying to:
Clarasmommy (Jun 8, 2005 6:39 pm)
NE Ohio: We spent 97 days in the NICU at Aultman Hospital in Canton, OH after Clara was born at...
Re: NE Ohio
Hi Katie,
Congratulations on your very tiny arrival. I love her name!! Its wonderful to hear that she's home and doing well!! Enjoy her, it goes by quickly.
Welcome to SHARE,
Karri
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Melanie Symons
- Jun 9, 2005 6:03 pm
(#6 Total: 70)
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Cleveland, Ohio
Hello fellow Ohioans. My name is Melanie, my husband and I just lost our daughter Lillyana on February 26th after 3 years of trying to get pregnant. My water broke at 18 weeks and I carried her till 23 weeks and 6 days before I went into labor. She lived for 5 amazing days in the NICU at Metrohealth Medical Center. Those were the best 5 days of our lives. We miss our little angel so much. I am so grateful for SHARE to be able to talk to other families who have experienced similar situations. Melanie 
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Stacie
- Jun 9, 2005 7:51 pm
(#7 Total: 70)
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Hi ohio glas I am Stacie just wanted to introduce my self! I hope I get to know all of you I think this place is just wonderful! I am from Cincinnnati Ohio..
[Last Editor: Stacie, Jun 9, 2005 12:52 pm. Total Edits: 1]
Replies to this message
( Desiree ) (Jun 10, 2005 1:28 pm)
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( Desiree )
- Jun 10, 2005 1:28 pm
(#8 Total: 70)
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Devin 36wks, Nia 29wks, and Cade 36wks |
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Replying to:
Stacie (Jun 9, 2005 7:51 pm)
Hi ohio glas I am Stacie just wanted to introduce my self! I hope I get to know all of...
Re: Ohio
Stacie,
I currently live in northern ky but my daughter spent 4 month at cincinnati childrens hosp. Is that where your baby was?
Desiree (Nia's mom)
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Cortney R
- Jun 30, 2005 12:58 am
(#9 Total: 70)
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Melanie,
I am so sorry to hear that you lost your baby. I know it must be very hard for you. I have a 24 weeker. she was born 24 weeks to the day and they did not think she would make it either. Her heart stopped at one point. If you ever need someone to talk to please feel free to email me. I am from Bellevue. I had my daughter at the Cleveland CLinic NICU. I know a lot of nurses that worked at Metro and CCF. I bet they took care of both our babies. Best of luck to you . My prayers are with you.
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Melanie Symons (Jun 30, 2005 1:57 pm)
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Melanie Symons
- Jun 30, 2005 1:57 pm
(#10 Total: 70)
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Replying to:
Cortney R (Jun 30, 2005 12:58 am)
Melanie,
I am so sorry to hear that you lost your baby. I know it must be very hard...
Re: Ohio
Courtney, Thank you for your kind words, your encouragement really means alot to me. Where exactly is Bellevue? I have heard of it before. Did the doctors say why you went into labor so early? If you want to talk through e-mail that is fine. You can e-mail me or we can exchange conversations through here. Melanie 
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Cortney R
- Jul 15, 2005 11:52 pm
(#11 Total: 70)
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Melanie,
Sorry i have not checked the posts in a while. Bellevue is between Norwalk and Fremont. It is also between Cleveland and Toledo.
I went into labor early because i had an imcompent cervix. I was one centimeter dilated at 22 weeks they did a cerclage and it only held for about 10 days. I delivered Emily at 24 weeks. Feel free to email me anytime cbrogers5454@yahoo.com. I would love to hear from you.
Cortney
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Brigid
- Jul 18, 2005 8:04 pm
(#12 Total: 70)
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Clevelander Here
Well, I'm actually from Cleveland but live south/east of it now, near Kent. Any locals here? I have a 26 weeker that is almost 7/4 months old and doing great. We were in Fairview Hospital. A most phenominal NICU!
Brigid bcfejes@bright.net
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proudmom29wk
- Aug 2, 2005 10:56 pm
(#13 Total: 70)
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Replying to:
Clarasmommy (Jun 8, 2005 6:39 pm)
NE Ohio: We spent 97 days in the NICU at Aultman Hospital in Canton, OH after Clara was born at...
Re: NE Ohio
Hi Katie this is Stephanie Trentons mom. Trenton will be 5 months old next week we miss seeing you guys in some ways. I am so happy that Clara is home I hope she is doing wonderful. We should get the premies together some day I would love to see the difference in Clara. good luck
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quietsmilie - Emilie
- Aug 22, 2005 1:14 pm
(#14 Total: 70)
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Mom to Jimmy (26 weeker born Mother's Day 2005) |
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Toledo Mom
Hi, I had my son (Jimmy) at The Toledo Hospital on Mother's Day (May 8, 2005). He has been home for 3 weeks now. He is doing amazingly well for a 26 weeker. We are on oxygen for feedings, but that is really about it. In the early days, we made it through a Grade 2 IVH, PDA ligation surgery, and a full month on the vent. Now our big concern is getting him to gain weight. He will undergo surgery for craniosynostosis (where the soft spot closes too soon) next month. We managed to make it through our 86 day NICU stay with NO infections - absolutely amazing since I delivered after 3 weeks of hospital bedrest for chorioamnionitis (an infection in the amniotic sac). I would love to meet other mom's with extremely premature infants. My husband is from the Sandusky area (Huron/Berlin Heights). I am from metro-Detroit. We currently live in south Toledo. See Jimmy's website for more:
http://baby.paddockpc.com
[Last Editor: quietsmilie - Emilie, Aug 22, 2005 6:17 am. Total Edits: 1]
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jonsmom12302
- Sep 1, 2005 4:08 pm
(#15 Total: 70)
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Anyone in the Cincinnati-Dayton area?
Hi. I'm new here. I was just wondering if there's anyone in the Cincinnati-Dayton area. I live in Middletown. I moved here from Texas. I've been in the area 5 1/2 years. I have a 3 1/2 year old little boy. He was born full-term, but we had some complications with the birth. We're currently in the process of having him tested for Autism. I was wondering if they still have the walks, and if there's one anywhere in the area. 
Replies to this message
( Desiree ) (Sep 2, 2005 1:43 am)
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( Desiree )
- Sep 2, 2005 1:43 am
(#16 Total: 70)
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Devin 36wks, Nia 29wks, and Cade 36wks |
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Replying to:
jonsmom12302 (Sep 1, 2005 4:08 pm)
Anyone in the Cincinnati-Dayton area?: Hi. I'm new here. :grin: I was just wondering if there's anyone in the...
Re: Anyone in the Cincinnati-Dayton area?
Hi!!!
I am the mother of a (FT) 3 year old little boy and a 19 month old (29 weeker) little girl. Nia spent 4 months at Cincinnati's Children's Hospital. This is a great website to find people with a lot of kindness and understanding. I did a walk last year in Chicago but I know they had one here.
Desiree
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AmyBeth®
- Sep 19, 2005 1:51 am
(#17 Total: 70)
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We live in NE Ohio!
We live actually North East/North Central and my little Miracle was blessed with life through Akron Children's Hospital and it's wonderful staff. Kathy B, Kathy D, Kathy V, Stephanie, Amber D, Pam C, the surgeons, neonatologists and staff.. I salute you!!
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Lindsay Silverstein
- Sep 20, 2005 10:27 pm
(#18 Total: 70)
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Here to Help
Hello fellow Ohioans,
My name is Lindsay Silverstein and I am the Director of Special Events in the Cleveland/Akron/Canton/Youngstown Division. I thank you for sharing your stories, you inspire me as I continue raising awareness and funds for the March of Dimes. I truly love my job, but it's you the families that keep me going everyday.
I have attached a calendar of event. Please, please, please contact me if you want to talk, have a question or would like to discuss other ways to get involved locally. My number is 216-518-1663 x28 or lsilverstein@marchofdimes.com
I look forward to hearing from some of you soon.
Lindsay
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LogansMom28w
- Sep 21, 2005 5:05 am
(#19 Total: 70)
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My 3 boybarians are 4, 5 and 7. |
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Oh Lindsay!!!! *standing ovation*
You guys are role models. Really! *hugs*
Darcy
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MomofEthan
- Sep 27, 2005 7:16 am
(#20 Total: 70)
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new to ohio
My son Ethan was born on April 22, 05 at 27wks in Newport News, VA. We had a great experience for the most part at the hospital he was in. We moved to the North Canton area in July. My parents are here, and I lived in New Phila 6yrs ago. It's nice to be "home." Ethan's doing well, never had to be on oxygen or heart monitor. He does have stage 2 ROP in both of his eyes and goes to Akron Children's every 2 weeks for checkups. The staff there are really great too. I'd love to meet other moms and former premies in the area. Feel free to email me. I work part time, but am home most of the time.
Dana
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Clarasmommy (Oct 1, 2005 6:20 pm)
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AmyBeth®
- Sep 29, 2005 9:08 pm
(#21 Total: 70)
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Welcome to Share!
Hi! I'm Amy, my daughter Kamryn was born last October and spent three months in the NICU at Akron Children's. I serve on several boards there and I'm also a parent mentor. You'll love this group of girls here at Share, and if you need anything PLEASE feel free to contact me Blessings, Amy
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Clarasmommy
- Oct 1, 2005 6:16 pm
(#22 Total: 70)
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Stephanie- I hope you see this! We miss seeing you guys too! Sometimes I think about our NICU friends and wonder how they're doing, but I can only picture Trenton and Simon as the tiny little guys they were when you guys went home. Clara is doing absolutely wonderful! She's almost 12 pounds now and will be 8 months old a week from today.
I'm sending you guys a card with our contact info in it. I hope I still have the right address. And when we were at follow up clinic last month and made our next appointment I saw that Trenton was scheduled right after Clara so hopefully we'll see you there!
If you get this email me some pics of Trenton.
k.barber@sbcglobal.net
clara1
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Clarasmommy
- Oct 1, 2005 6:20 pm
(#23 Total: 70)
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Replying to:
MomofEthan (Sep 27, 2005 7:16 am)
new to ohio: My son Ethan was born on April 22, 05 at 27wks in Newport News, VA. We had...
Re: new to ohio
Dana-
I live in Canton. I have a 26 weeker- a little girl who is 8 months old now. I'm including my email. There's a small group of us preemie parents who were all in the NICU together and all of the babies were born 25-29 weeks gestation. We're trying to plan a get together so maybe you could join in! k.barber@sbcglobal.net
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Cortney R
- Sep 20, 2005 10:05 pm
(#24 Total: 70)
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Want to help in Ohio
Hi. I am from Ohio and would love to help in any way I can for the Prematurity Awareness Day. I am between Cleveland and Toledo. Please, Please anything I can do let me know. My baby just turned 1 on August 1st. She was 1 pound 2 ounces and is now 16 pounds!
I want to help let people know about prematurity. I had no clue that I could ever have a premmie and I did.
Please let me help.
Love you all!
Cortney
Mother of 24 weeker Emily
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KAYLASMOM
- Aug 12, 2005 4:59 am
(#25 Total: 70)
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Help in Cleveland Ohio
After losing my daughter at 16 1/2 weeks, it thrills me to see any baby make it.
Let me know if there is anything that I can do.
Replies to this message
Reply is a moderated message, or has been moved - location not tracked.
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quietsmilie - Emilie
- Aug 22, 2005 11:23 am
(#26 Total: 70)
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Mom to Jimmy (26 weeker born Mother's Day 2005) |
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Help in Toledo, OH
My son was born on Mother's Day 2005 at 26 weeks.
Please let me know what I can do to help!
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Lindsay Silverstein
- Sep 20, 2005 10:05 pm
(#27 Total: 70)
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Re: Help in Cleveland Ohio
Hi,
My name is Lindsay Silverstein and I am the Director of Special Events in the Cleveland office for the March of Dimes. I would love for you to call me and we can chat about what areas we can get you more involved in! I admire your courage and I look forward to hearing from you.
Please either e-mial me or call me at 216-518-1663 x28.
Thanks, Lindsay
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Bryce 2lb4oz
- Nov 3, 2005 2:04 am
(#28 Total: 70)
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Part of a support group in Dayton Ohio
I havent been here for awhile and that is becasue I am busy chasign my little one around the room. He is so big and I am so proud of him. We are having a difficulty with his communication but he is doign well and I am so proud of him.
I ma trying to get a support group started in Dayton, Ohio. If anyone is interested in taking part please send me 2 email address, you name and your story. We are trying to get all that helps...
Thank you
Bryce
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Karri
- Nov 2, 2005 10:40 pm
(#29 Total: 70)
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Glad to hear that Bryce is up to the typical mischief of a toddler!!
Good luck with your support group.. what a wonderful thing to offer parents!
Take care,
Karri
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Melissa M.
- Nov 3, 2005 12:59 am
(#30 Total: 70)
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Mom of 25 weekers, Now Age 5 & 1.2 (3 surviving quads) |
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Good for Bryce! He is doing exactly what a toddler *should* be doing...teasing mom until she falls onto the sofa...completely exhausted....after chasing his sweet self!
Hope your find a way to make the support group work!
Warmly,
Melissa
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