South Carolina

Hey, Tammy!

Wow...you have been through it ALL, haven't you? I knew I was finished trying after Amanda was born at 26 weeks, weighing 1 lb. 7.4 oz. I cannot imagine dealing with all that you have been through.

I would encourage you to find someone to talk to, what you are dealing with...actually even one of the things you have had to deal with...would put even the strongest person down. You can find lots of help on the internet, but there is something more powerful in that face to face contact.

Welcome to Share!
Hugs!
Michele...another SC mom

I am new and my name is Amanda just thought I would tell the story of my miracle Hunter. I was placed on bedrest in the hospital @ 22 wks due to premature rupture of membranes. I stayed there for about 6 weeks when Hunter decided he could not wait any longer. He was born on 10-26-2006 weighing in a huge 3lbs and 14 1/4 in..(huge for a 27 wker). He was born with sepsis. We almost lost him in the first few days quite a few times. Later we learned that he developed a IVH grade II, which caused him to have hydrocephalus(water on the brain). He had to have a shunt placed when he got to 4 lbs. They placed it and all was good for about 3 days. Then it got infected... menegitis. So they removed that shunt gave him the 14 days of antibiotics.. during this time he was having seizures due to menegitis. So he was placed on seizure meds.. Finally we got to bring him home on Dec 28 06....He had to re enter the hospital for another shunt placement on Feb 12 07 and ever since he has been growing like a weed. I dont know if I said but he was born at Greenville Memorial in upstate SC.

Welcome to Share, Amanda! I kinda like that name! My daughter, Amanda, was born at Greenville Memorial 9 years ago at 26 weeks, 1 lb. 7.4 oz. I hope Hunter is doing well!!! Let me know if there is anything I can do. We still live in the Upstate!

Hugs!
Michele

Hey everybody!
  I'm not an SC girl, but I'm right across the line in Georgia. I'm exactly 45 mins. from Anderson, SC and 45 mins. from Athens, GA.... I can't cheer for the Tigers or Gamecocks, but if anyone would like to talk, I'm here as well!!
Tracy
P.S. Almost forgot the most important part....mom to 27 weekers, Taylor Rose (2 lbs. 2 oz.--lived 15 hours) and her twin sister Ansley Kate (1 lb. 4 oz.---a happy, healthy 4 year old now!!)

Hi! My name is Laverne. My husband and I have recently returned to the area from western Illinois where we have lost 7 beautiful babies. One daughter, Cassy, was born at 22 weeks 3 days b/c of IC. We actually didn't know why until 6 weeks ago. Strange since she was born 8/17/06?! When Cassy was born we were told that it was unknown as to why she was born so early, maybe IC, maybe premature labor, maybe an infection. Well when we arrived in town my first phone call I made was to MUSC to make an appt. w/ a peri. According to her, I had all the classic symptoms of IC and she was puzzled as to why I was told they didn't know why we lost Cassy. I would like to get involved with a local chapter but am finding it hard to locate one here in the lowcountry. Anyone with any info for me would be helpful. Thank-you. P.S. our other 6 losses have been due to prothrombin gene mutation. Wicked stuff.

Hi I am new to this site and I was just wondering if anyone had there baby at Spartanburg Regional. I was also wondering if anyone knew of any March of Dimes things that I could become involved with in the Spartanburg/Greenville area. I recently became a mom to Olivia who was born at 31 weeks weighing 2lbs. and 8 oz. Thank you!!!

First of all, congratulations on your new little one! I love the name Olivia, I am sure she is a beautiful baby!

Second, welcome to SHARE! I live in the Greenville area, my daughter Amanda was born at Greenville Memorial. She is now 9 years old and was born at 26 weeks.

Third, you can contact the Upstate office at 235-8576 to see what events are coming up in the Upstate. I think the next BIG event will be March for Babies (formerly WalkAmerica). I am sure they would welcome your help in the Spartanburg area or even Greenville for that matter!

You can also visit Volunteerland to find more ways to help.

Again, welcome and congratulations!

Hugs!
Michele

Attention all MUSC Neonatal Nurseries Graduates and Families! We are celebrating our Reunion on Saturday, April 12, 2008 from 11am until 2pm in the MUSC horseshoe. There will be pony rides, puppet shows, a ride-able train, inflatables, clowns, facepainting and much more!

If your baby "graduated" from the MUSC NICU or Level 2 nursery, please call 792-5700 to rsvp for the event.

Please additional information or questions, please e-mail reunion@musc.edu. We will do our Reunion celebration every 2 years- next one will be Saturday, April 10, 2010.

Respectfully submitted to all MUSC graduates, their brave parents and supportive family members,

Tracey Driggers, RN
MUSC Neonatal ICU
Neonatal Nurseries Reunion Coordinator
Infection Control Resource Nurse
driggert@musc.edu

Hi I live in Beaufort and I am having a problem getting in touch with anyone as well. Did you ever have any luck? I am a new mom to twin girls born at 25 weeks. Our one daughter lived 4 days and our other daughter is still in the NICU going on 2 months. I would love to get involved but am not sure who else to contact.

my son was in the nicu at musc for seven months and never came home. he eventually died there. i dont trust drs like how i used to and truely believe they are the cause of his death and down fall. because of them im lonely once again when it took me so long to get pregnant. i miss my son and its only been a month and a half since his death. I wish this grief on no one.

Hello-
I am new to this forum and am not really sure if this is the right way to go about this but here goes....
My son was a 30 weeker born in 2008. Most of his medical issues are fortunately resolving but developmentally we are in therapy 4 times a week at the moment. The reason I am posting is that I am looking for a local support group or even just another mom to talk to who has had a similar experience in have a preemie. I have been really struggling lately with the whole experience and feel I am just now able to focus on finding some help to deal with all of the stress we have been through. I am in the upstate in SC and have not had any luck finding anything like this yet, and could really use some help if anyone knows of anything - or could offer some help I would greatly appreciate it!

Hey again Laura!

I posted on the "new here" entry as well to say Welcome to Share! I'm from GA and visit SC often so I wanted to say HEY again!! We may be closer to one another than we know....

If you click on a name on the "who's online" list and delete that name an type in my screen name, you can Instant Message me. I'll get it when I log back in which is usually multiple times a day. I'd love to know what part of SC you live...I promise I'm not a stalker in fact I'm a teacher so I have to have background checks.... You can also click on my screen name and the email address given and I can email you back.

Again, welcome to Share!!
Tracy

Charleston SC??