Grade III bleed

my baby was born 8/20/07 he was 29 wks the day after he was born they told us he had a grade 3 bleed a week later they told us he has hydro (something) sorry forgot what it was called my lil one has never been on oxygen since he was born he has been breathing on his own he is now almost on full feeds. It gives me such a good feeling about my lil one to hear all ur stories i hope ours turns out some what ok and that our lil gets more healthy i would appreciate any advice this is our 1st baby and ours biggest blessing.

Hello. My name is Rachael Lane. I was born on May 22, 1984. When I was born, my umbilical cord was pinched stopping the blood from flowing to my brain. As a result, I had a class four brain bleed. I have cerebral palsy. I am missing about 75% of the left side of my brain. My apgar scores were a one and seven. An apgar score is a method for assessing an infant’s health condition on a scale from zero to ten. Because of my health condition, I had a high risk of dying. The doctors said that I would never be able to walk or talk. I am missing the part of the brain that controls speech. However, the doctors didn’t know what God could do. Around my first birthday, my family found me standing in my crib. Miraculously, I started walking and talking around the time that I was one and a half years old. I learned to play the harmonica and occasionally play in church. I learned to drive and earned my Associates in Arts Degree majoring in Business Administration. I attend First Baptist Church of Land O Lakes. There, I work with the children’s ministry. Although I have made many decisions in my life, I made the most important decision in my life on May 31, 1998, a decision on where I am going to spend eternity. At an age of fourteen, I received Jesus Christ as my only hope for Heaven. Without God, I would not be where I am in my life today. I would like to tell you how you can receive Jesus Christ as your Savior. There are five things that you need to believe so that you can know that you are going to Heaven.
First, the Bible says in Romans 3:23 “For all have sinned, and come short of the glory of God;” Sin in this verse means the wrong things that we do. We’ve all sinned. We’ve all done things wrong. Secondly, Romans 6:23 says “For the wages of sin is death; but the gift of God is eternal life through Jesus Christ our Lord.” Wages in this verse means payment. Death in this verse is talking about an eternal separation from God in a place called Hell. Because we’ve sinned, we have a price to pay. In order for us to pay for our sin ourselves, we have to go to Hell to do it. Thirdly, Ephesians 2:8-9 says “For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: Not of works, lest any man should boast.” Grace in this verse means undeserved, unmerited favor. It in this verse is talking about eternal life. Eternal life is a gift from God. People don’t work for a gift, but they receive a gift. Our good works cannot save us. Isaiah 64:6 says that “all our righteousnesses are as filthy rags.” When we are at our very best, God still sees our goodness as filthy rags. Heaven is a perfect place. In order for us to get to Heaven ourselves, we have to be as perfect as God and none of us are. Fourthly, Romans 5:8 says “But God commendeth his love toward us, in that, while we were yet sinners, Christ died for us.” Commendeth in this verse means demonstrated. Yet sinners in this verse means while we were yet in our sin. The good news is that Jesus Christ has already paid the debt so that we can go to Heaven. Jesus Christ came down from Heaven, was born in a manger, lived thirty-three years of a perfect, sinless life and died on the cross to make the payment for our sin. After Jesus Christ died, he was buried. That wasn’t all, Jesus Christ rose again on the third day and is in Heaven right now. Fifthly, John 3:16 says “For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.” Perish in this verse means go to Hell. All we can do to get to Heaven is believe that Jesus Christ is the only way to get to Heaven. John 3:36 says “He that believeth on the Son hath everlasting life: and he that believeth not the Son shall not see life; but the wrath of God abideth on him.” Believe in this verse means to put your trust in. Putting your trust in Jesus Christ alone is the only way to get to Heaven. If you would like to receive Jesus Christ as your personal Savior, then pray a simple prayer like this:
“Dear God in Heaven,
I know that I’m a sinner. Because I’ve sinned, I deserve your punishment which is to spend eternity in the place called Hell. I know that there’s nothing that I can do of myself to earn eternal life. I believe that your Son Jesus Christ died to pay for my sin and right now, I am trusting Him alone to be my Savior, my only hope to get to Heaven. Thank you for forgiving me and giving me the gift of eternal life. In Jesus name I pray, Amen.”

does anyone have a premature baby who has a grade three bleed with vision delays??? my baby has a grade three bleed shes 10 months now and doesnt see anything the doctors say that she has vision delays and we have to wait it out ...i am inpatient already please help...

Hiya,

My son was born 8 weeks premature and developed hydrocephalus at 2 weeks old. I was told that he developed this condition due to a bleed on his brain which clotted and caused a blockage of his ventricals. Doctors could not tell me when the bleed happened or where it happened. I was told that the blood would be re absorbed by the body and in theory the blockage should have cleared and the hydrocephalus resolved. However, a 4 months old my son had an operation to have a VP shunt inserted. It has changed his life so far, he is now 8 months old and developementally is on track for a child his age. We wont know for a long time if he has been severely affected by this condition but we are in the care of the early intervention team and my son is receiving physio therapy and OT.

I know this can be a very hard time for you and your family, you find yourself playing the waiting game, looking on helplessly at your little one, praying for a miracle, knowing your doing everything you can but feeling like it just isn't enough. Your heart breaking a little more every day. Just when things seem to improve, you get a knock back. However, seeing your little one grow and thrive will keep you going. Its a long road ahead and all we can do is keep struggling on.

When I asked, Why Me, Why did this happen to my child. . . someone said. . . Its because God knew I could cope. . . and as hard as it may seem, I'm coping. You will too, and your little fighter will surprise you every day. Just believe that he will come through it.

I wish you the very best of luck. There is a website that I would like to recommend. www.sbhi.ie - you will find some information there that might help you. All the best

Dee

HELLO MY NAME IS JAMIE PAYNE AND YOUR EMAIL MAKES ME FEEL SO BETTER AND I'M SO GLAD THAT YOUR DAUGHTER IS WALKING & RUNNING AND SHE HAS CP TOO,
  BECAUSE ONE OF MY SONS WAS DIAGNOSED WITH PVL ALSO AND I'M SO WORRIED ABOUT HE'S OUTCOME IN LIFE LATTER ON
 HE'S 1 YEARS OLD
JAMIE

Hi,

My name is Tammy and I just wanted to post this to raise the spirits and give you a positive story. My son, CJ, developed a grade III IVH on both sides with hydrocephalus during the days following his birth. We were told of a grim outcome with the possibility of severe developmental delays. He underwent serial lumbar punctures to release the pressure while the bleed subsided on it's own. He did not require surgery but remained on Diamox to decrease CSF production for many months afterwards. By some miracle, he is now a healthy happy 15 year old who loves high school and singing and acting. We were told he would most likely have motor skill problems but he plays the piano like no body's business. Here is a link so you can see that there are positive outcomes out there so keep you chin up http://www.youtube.com/user/CJMarsiniMusic#p/u/3/OIbfFv-qHEY