Grade III bleed

Hiya,

My son was born 8 weeks premature and developed hydrocephalus at 2 weeks old. I was told that he developed this condition due to a bleed on his brain which clotted and caused a blockage of his ventricals. Doctors could not tell me when the bleed happened or where it happened. I was told that the blood would be re absorbed by the body and in theory the blockage should have cleared and the hydrocephalus resolved. However, a 4 months old my son had an operation to have a VP shunt inserted. It has changed his life so far, he is now 8 months old and developementally is on track for a child his age. We wont know for a long time if he has been severely affected by this condition but we are in the care of the early intervention team and my son is receiving physio therapy and OT.

I know this can be a very hard time for you and your family, you find yourself playing the waiting game, looking on helplessly at your little one, praying for a miracle, knowing your doing everything you can but feeling like it just isn't enough. Your heart breaking a little more every day. Just when things seem to improve, you get a knock back. However, seeing your little one grow and thrive will keep you going. Its a long road ahead and all we can do is keep struggling on.

When I asked, Why Me, Why did this happen to my child. . . someone said. . . Its because God knew I could cope. . . and as hard as it may seem, I'm coping. You will too, and your little fighter will surprise you every day. Just believe that he will come through it.

I wish you the very best of luck. There is a website that I would like to recommend. www.sbhi.ie - you will find some information there that might help you. All the best

Dee

HELLO MY NAME IS JAMIE PAYNE AND YOUR EMAIL MAKES ME FEEL SO BETTER AND I'M SO GLAD THAT YOUR DAUGHTER IS WALKING & RUNNING AND SHE HAS CP TOO,
  BECAUSE ONE OF MY SONS WAS DIAGNOSED WITH PVL ALSO AND I'M SO WORRIED ABOUT HE'S OUTCOME IN LIFE LATTER ON
 HE'S 1 YEARS OLD
JAMIE

Hi,

My name is Tammy and I just wanted to post this to raise the spirits and give you a positive story. My son, CJ, developed a grade III IVH on both sides with hydrocephalus during the days following his birth. We were told of a grim outcome with the possibility of severe developmental delays. He underwent serial lumbar punctures to release the pressure while the bleed subsided on it's own. He did not require surgery but remained on Diamox to decrease CSF production for many months afterwards. By some miracle, he is now a healthy happy 15 year old who loves high school and singing and acting. We were told he would most likely have motor skill problems but he plays the piano like no body's business. Here is a link so you can see that there are positive outcomes out there so keep you chin up http://www.youtube.com/user/CJMarsiniMusic#p/u/3/OIbfFv-qHEY