esgf
- Apr 16, 2012 12:35 pm
(#157 Total: 171)
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Abigail's Mom (29 weeks, 3/21/05) |
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Merri- I am so sorry about the teeth. The mouth injuries are so bloody and upsetting to everyone. I hope he feels better.
Also, I am sorry your daughter left her daughter behind. I hope that now that they have found the cause of the wheezing she will be able to "catch up " a bit. Will she be able to get therapy?
Take care,
Ellen
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7angels
- Apr 16, 2012 5:21 pm
(#158 Total: 171)
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Ellen: They have already begun therapy, 2 weeks now. My son that knocked his teeth out saw the dentist today to be fitted for a partial only to find out that two more teeth on the top that were damaged have to be extracted tomorrow and the four on the bottom are loose. if they dont tighten up then they might extract those to. when we left the dentist office my car got rearended!
To make things even more crazier my oldest son was admitted last night due to bike wreck. he has severe concusion and multiple abrasions and 12 stitches. looks like he can go home today.
Im ready to put my family in a padded bubble!!!!!
Buddy has had a 30 day trial of not using his gtube. however he has lost 4 pounds so it doesnt look like we will get rid of that anytime soon.
Merri
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7angels
- Jun 5, 2012 6:10 pm
(#159 Total: 171)
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Buddy had to see ped surgery today. They have finally decided to do exploritory surgery to see why he keeps getting infections around the gtube. Worse case they will have to relocate the gtube. The 30 day trial off tubefeeds was not a success so we will have to continue feeds. He has had the gtube for 2 1/2 years now. they said he would probably only use it for 6=8 weeks. So much for that. I will keep you guys updated.
Merri
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stacyat
- Jun 5, 2012 8:08 pm
(#160 Total: 171)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Ugh, I'm sorry he's having to go back for some more surgery! I hope they're able to figure out what is going on and that it's a simple fix! Hugs, keep us posted when you can!
Stacy
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tucker'smom
- Jun 13, 2012 10:56 pm
(#161 Total: 171)
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Mom to Tucker (27 weeker, 05/26/06) |
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Merri, I'm sorry that y'all are going back for more surgery! Also, sorry about the g-tube trial not going well  I know how that feels, my son has had his g-tube for almost 6 years now, and he is finally down to about 20% tube feeding. Let us know how it goes! Leigh
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7angels
- Jul 19, 2012 9:46 pm
(#162 Total: 171)
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it turns out to be nothing major that was causing the abcess around buddys gtupe. there was a fistula that was caused by an injury to the site over a year ago and bacteria was trapped. they opened the area drained it cleaned it and now it is healed and looks sooooo much better.
Merri
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Jackie G
- Jul 20, 2012 1:34 am
(#163 Total: 171)
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Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
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That's great to hear, Merri!
-Jackie
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stacyat
- Jul 20, 2012 2:07 am
(#164 Total: 171)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Wow! So glad that it was just a simple fix and it's looking great now!!
Stacy
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NathansMom13
- Jul 21, 2012 1:09 am
(#165 Total: 171)
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Come to ShareUnion 2012: It's the BEST weekend ever!!! |
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shellbeeg
- Jul 21, 2012 3:58 pm
(#166 Total: 171)
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Hi-
I am the mom of a 3 boys, Connor, Nate and Jake. Jake is my newest little one born on 5/17/12 and has tracheomalacia, hypotonia, absence of the corpus callosum and overlapping fingers with contractures in both middle fingers. Jake just had a tracheostomy this week. We are hopeful that the tracheomalacia and hypotonia will get better over time, but are concerned that his neurological issue is related to the breathing and muscular issues. Has anyone had a similar experience with their little ones?
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stacyat
- Jul 21, 2012 4:11 pm
(#167 Total: 171)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello and welcome to Share! I'm so sorry of the difficulties that Jake is facing since his birth. How has he been doing since his tracheostomy placement? I hope to hear more about your little guy!
Stacy
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liz loschinskey
- Jul 21, 2012 6:17 pm
(#168 Total: 171)
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Sheel,
Hi and welcome to share! Hope everything works out for sweet Jake.
Can't wait to hear more updates!
Love and Light,
Liz
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shellbeeg
- Jul 22, 2012 2:29 am
(#169 Total: 171)
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So far so good. Jake is really still recovering. He has been weaned off of the morphine and now he is weaning off of the atavan. They also just moved him off the ventilator today back over to just the straight CPAP of 8 with a little bit of additional pressure (not sure what that one is called). They say so far he is doing great. I'll be seeing him tomorrow as I took today off to go to a picnic with the other 2 boys. Hopefully he'll be a little more alert than he's been since the surgery. I still won't be able to hold him yet though can't wait till I can again.
Replies to this message
liz loschinskey (Jul 28, 2012 10:02 pm)
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NathansMom13
- Jul 23, 2012 1:31 pm
(#170 Total: 171)
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Come to ShareUnion 2012: It's the BEST weekend ever!!! |
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Hi! It souds like Jake is doing great since his surgery. My son didn't have the neuro problems that Jake does but he did have a trach for 3 years when he was finally discharged from the hospital. I hope you are able to hold him again soon. Please let me knowif there is anything I can do to help!
Laura
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liz loschinskey
- Jul 28, 2012 10:02 pm
(#171 Total: 171)
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Replying to:
shellbeeg (Jul 22, 2012 2:29 am)
So far so good. Jake is really still recovering. He has been weaned off of the morphine and...
Great news!! I'll be praying for a quick recovery and that you get to hold him soon.
Love and light,
Liz
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