You have guest access to browse, login, or register.

WelcomeAboutShare With CareHelp
Share Your Story. Participate in online discussions about premature babies, start a blog, or just meet other NICU families. March of Dimes  
HomeCommunity CenterShare Your StoryParent to ParentGet Involved
 
SHARE HOME >  PARENT TO PARENT >  MEDICAL CONDITIONS OF OUR CHILDREN

Laryngomalacia & Tracheomalacia - All Discussions Combined Here!

weerock - 12:57pm Nov 3, 2008 EST
Mom to Leighton (30 weeks), Emerson (33 weeks), and an angel, Phillip (25 weeks)

Hi Share members,

This discussion was getting rather lengthy, so I started another discussion. The prior discussion can be found here.

This conversation is for families/careigivers of children with laryngomalacia or tracheomalacia to find and support each other, as well as ask and answer pertinent questions about this medical condition.

Laryngomalacia soft larynx, is a congenital abnormality of the laryngeal cartilage. It is one of the most common reason for infants to experience noisy breathing or stridor.

Tracheomalacia, soft trachea, is a structural abnormality of the tracheal cartilage allowing collapse of its walls and airway obstruction. It is also one of the most common reason for infants to experience noisy breathing or stridor

keywords: floppy airway, laryngomalacia, tracheomalacia, broncoscopy, chronic cough, broncolamalcia, stridor



  (older msg: 159)OutlineAll MessagesOlder ItemsOldest ItemsNewest ItemsNewer Items

stacyat - Jun 5, 2012 8:08 pm (#160 Total: 171)  

Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)!  

Ugh, I'm sorry he's having to go back for some more surgery! I hope they're able to figure out what is going on and that it's a simple fix! Hugs, keep us posted when you can!
Stacy

tucker'smom - Jun 13, 2012 10:56 pm (#161 Total: 171)  

Mom to Tucker (27 weeker, 05/26/06)  

Merri,

I'm sorry that y'all are going back for more surgery! Also, sorry about the g-tube trial not going well

I know how that feels, my son has had his g-tube for almost 6 years now, and he is finally down to about 20% tube feeding.

Let us know how it goes!

Leigh

7angels - Jul 19, 2012 9:46 pm (#162 Total: 171)  

 

it turns out to be nothing major that was causing the abcess around buddys gtupe. there was a fistula that was caused by an injury to the site over a year ago and bacteria was trapped. they opened the area drained it cleaned it and now it is healed and looks sooooo much better.

Merri

Jackie G - Jul 20, 2012 1:34 am (#163 Total: 171)  

Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6  

That's great to hear, Merri!

-Jackie

stacyat - Jul 20, 2012 2:07 am (#164 Total: 171)  

Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)!  

Wow! So glad that it was just a simple fix and it's looking great now!!
Stacy

NathansMom13 - Jul 21, 2012 1:09 am (#165 Total: 171)  

Come to ShareUnion 2012: It's the BEST weekend ever!!!  

Such great news!
Laura

shellbeeg - Jul 21, 2012 3:58 pm (#166 Total: 171)  

 

Hi-

I am the mom of a 3 boys, Connor, Nate and Jake. Jake is my newest little one born on 5/17/12 and has tracheomalacia, hypotonia, absence of the corpus callosum and overlapping fingers with contractures in both middle fingers. Jake just had a tracheostomy this week. We are hopeful that the tracheomalacia and hypotonia will get better over time, but are concerned that his neurological issue is related to the breathing and muscular issues. Has anyone had a similar experience with their little ones?

stacyat - Jul 21, 2012 4:11 pm (#167 Total: 171)  

Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)!  

Hello and welcome to Share! I'm so sorry of the difficulties that Jake is facing since his birth. How has he been doing since his tracheostomy placement? I hope to hear more about your little guy!
Stacy

liz loschinskey - Jul 21, 2012 6:17 pm (#168 Total: 171)  

I love my kids!  

Sheel,
Hi and welcome to share! Hope everything works out for sweet Jake.

Can't wait to hear more updates!

Love and Light,
Liz

shellbeeg - Jul 22, 2012 2:29 am (#169 Total: 171)  

 

So far so good. Jake is really still recovering. He has been weaned off of the morphine and now he is weaning off of the atavan. They also just moved him off the ventilator today back over to just the straight CPAP of 8 with a little bit of additional pressure (not sure what that one is called). They say so far he is doing great. I'll be seeing him tomorrow as I took today off to go to a picnic with the other 2 boys. Hopefully he'll be a little more alert than he's been since the surgery. I still won't be able to hold him yet though can't wait till I can again.

Replies to this message
  • liz loschinskey (Jul 28, 2012 10:02 pm)


  • NathansMom13 - Jul 23, 2012 1:31 pm (#170 Total: 171)  

    Come to ShareUnion 2012: It's the BEST weekend ever!!!  

    Hi! It souds like Jake is doing great since his surgery. My son didn't have the neuro problems that Jake does but he did have a trach for 3 years when he was finally discharged from the hospital. I hope you are able to hold him again soon. Please let me knowif there is anything I can do to help!
    Laura

    liz loschinskey - Jul 28, 2012 10:02 pm (#171 Total: 171)  

    I love my kids!  

    Replying to: shellbeeg (Jul 22, 2012 2:29 am)
    So far so good. Jake is really still recovering. He has been weaned off of the morphine and...

    Great news!! I'll be praying for a quick recovery and that you get to hold him soon.

    Love and light,
    Liz



      OutlineAll MessagesOlder ItemsOldest ItemsNewest ItemsNewer Items


    To post, please login or register.



     
    We are pleased to provide a forum for sharing, and remind everyone that the viewpoints, opinions and actions expressed here are those of the individuals themselves, and may not reflect March of Dimes policies or positions. Information on this site does not take the place of guidance from your health care provider. Always verify information with your health care provider before taking action. Any messages or stories shared on this site may be used in other March of Dimes marketing activities.

    Donate now!