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Laryngomalacia & Tracheomalacia - All Discussions Combined Here!

weerock - 12:57pm Nov 3, 2008 EST
Mom to Leighton (30 weeks), Emerson (33 weeks), and an angel, Phillip (25 weeks)

Hi Share members,

This discussion was getting rather lengthy, so I started another discussion. The prior discussion can be found here.

This conversation is for families/careigivers of children with laryngomalacia or tracheomalacia to find and support each other, as well as ask and answer pertinent questions about this medical condition.

Laryngomalacia soft larynx, is a congenital abnormality of the laryngeal cartilage. It is one of the most common reason for infants to experience noisy breathing or stridor.

Tracheomalacia, soft trachea, is a structural abnormality of the tracheal cartilage allowing collapse of its walls and airway obstruction. It is also one of the most common reason for infants to experience noisy breathing or stridor

keywords: floppy airway, laryngomalacia, tracheomalacia, broncoscopy, chronic cough, broncolamalcia, stridor



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stacyat - Jul 21, 2012 4:11 pm (#167 Total: 171)  

Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)!  

Hello and welcome to Share! I'm so sorry of the difficulties that Jake is facing since his birth. How has he been doing since his tracheostomy placement? I hope to hear more about your little guy!
Stacy

liz loschinskey - Jul 21, 2012 6:17 pm (#168 Total: 171)  

I love my kids!  

Sheel,
Hi and welcome to share! Hope everything works out for sweet Jake.

Can't wait to hear more updates!

Love and Light,
Liz

shellbeeg - Jul 22, 2012 2:29 am (#169 Total: 171)  

 

So far so good. Jake is really still recovering. He has been weaned off of the morphine and now he is weaning off of the atavan. They also just moved him off the ventilator today back over to just the straight CPAP of 8 with a little bit of additional pressure (not sure what that one is called). They say so far he is doing great. I'll be seeing him tomorrow as I took today off to go to a picnic with the other 2 boys. Hopefully he'll be a little more alert than he's been since the surgery. I still won't be able to hold him yet though can't wait till I can again.

Replies to this message
  • liz loschinskey (Jul 28, 2012 10:02 pm)


  • NathansMom13 - Jul 23, 2012 1:31 pm (#170 Total: 171)  

    Come to ShareUnion 2012: It's the BEST weekend ever!!!  

    Hi! It souds like Jake is doing great since his surgery. My son didn't have the neuro problems that Jake does but he did have a trach for 3 years when he was finally discharged from the hospital. I hope you are able to hold him again soon. Please let me knowif there is anything I can do to help!
    Laura

    liz loschinskey - Jul 28, 2012 10:02 pm (#171 Total: 171)  

    I love my kids!  

    Replying to: shellbeeg (Jul 22, 2012 2:29 am)
    So far so good. Jake is really still recovering. He has been weaned off of the morphine and...

    Great news!! I'll be praying for a quick recovery and that you get to hold him soon.

    Love and light,
    Liz



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