Mcabrera1028
- Apr 2, 2009 3:03 am
(#2 Total: 172)
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Hello
My name is Maria, I'm new to this site. I joined because I realized I needed to share my experience with people who have gone through or are going through similar experiences. My son's name is Eduardo and he was born on October 28 at 23 weeks. He only weighed 1lb 7oz & 11in. Long. He was born via emergency c-section and has had to fight for his life from the second he was born. When the doctor pulled him out of me he was not breathing and it took them 30 minutes to get him to breath. He was then rushed to the Nicu. Looking back at this moment brings tears to my eyes because I almost lost him without getting the chance to hold him. He spent 4 months and two weeks in the Nicu at Childrens hospital. Since be was a Micropreemie he had many different complications. To this day he has had 5 surgeries and many other different procedures. He is having a surgery #6 in about a month. He is now home and is doing great. The number one reason I joined this site is to give other parents hope. They gave my son a20% chance of surviving. At the time that was a very horrible thing for me to except. I just wanted my child to be ok. I wanted thedoctors to tell me he was going to be ok, but ofcourse all they could say was to take things one day at a time. I listened to them and I think it helped me from going insane. My heart goes out to all of you with preemies and micrpreemies.
Replies to this message
beavlynn (Apr 20, 2009 10:13 pm)
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KHolley
- Apr 2, 2009 5:49 am
(#3 Total: 172)
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Welcome to Share Maria. I am so happy to hear that your son is doing well after all that he has ben through. Good luck with his upcoming surgery. Keep us posted.
Katie
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BABYDYLAN
- Apr 9, 2009 8:05 am
(#4 Total: 172)
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Dylan Reece Upchurch
Dylan was born October 1, 2008 at 24 weeks. He was delivered via C-Section and the doctors had a really hard time getting him to take his first breath. He weighed 1lb 5 oz and was 11 inches long. This was a very difficult time due to him being so small and couldnt breath on his own. They lost me in recovery. I hemorraghed (sp) and they couldnt stop the bleeding. This was the most trying time in our life. Dylan had his first surgery November 19th. It was a PDA ligation to fix the valve going from his heart to lung. The 2nd surgery was December 10th. It was laser eye surgery. Then as we were getting ready to go home in January... it was discovered that his PDA had reopened. So we sent to Washington, D.C. for a second PDA ligation. Dylan was discharged from NICU on February 12, 2009. He went for his 1st Pediatric appointment in our hometown on February 23 and he was flown back to UMC to the PICU. Dylan was back on the vent, sedated, and paralyzed at this time. He was extremely swollen. Turned out he had chylothorax (fat built up in the lungs). The doctors then placed a chest tube in and drained his lung. He was in the PICU for 3 weeks and his milk changed and his heart medicine increased. He was discharged from the PICU on March 16th and is now home and doing good. He is on 150cc of oxygen at home right now.
I thank each and every Nurse, Doctor, Nurse Practioner, and other medical teams that assisted in Dylan progress. I wouldnt have made it through the 4 months in the NICU without the caring nurses. Their friendship and MUCH PRAYER was my ROCK!!
baby 004
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iphone 4-1-09 005
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2 here 2 in Heaven (Apr 9, 2009 8:11 am)
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KHolley
- Apr 9, 2009 8:09 am
(#5 Total: 172)
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Congrats on Dylan! He is such a cutie. It sounds like you had great support during all of your hospital stays, that really helps. I am so happy to hear that he is home and doing well.
Welcome to Share.
Katie
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2 here 2 in Heaven
- Apr 9, 2009 8:11 am
(#6 Total: 172)
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Surviving 26 week triplet...2 angels, & a 36 week singleton. |
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Replying to:
BABYDYLAN (Apr 9, 2009 8:05 am)
Dylan Reece Upchurch: Dylan was born October 1, 2008 at 24 weeks. He was delivered via C-Section and the doctors...
Re: Dylan Reece Upchurch
Welcome to Share! Dlyan is just adorable!
Shonda
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Angel Love
- Apr 9, 2009 8:20 am
(#7 Total: 172)
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Welcome to Share! That smile could melt a million hearts!! I'm glad that Dylan is doing well now and hope that he continues to grow and thrive!! Tracy 
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sandy & Jayden
- Apr 9, 2009 10:56 am
(#8 Total: 172)
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Wonderful to be a mom
Hi my name is Sandy and I have a 1 yr old son that was born at 37 months with the cord around his little kneck and loss of oxygen to the brain. He has been diagnosed with CP. He has a G-tube because of all the tubes when he was born he refuses to eat so we have to feed him through the tube. He is getting better every day, but it is so scary to think back to all that my little boys has been through and I just feel so bad that in some way I might have done something to make my beautiful baby sick. I love him with all my heart and I was just wondering if there are other parents out there that are going through the same thing. 
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KHolley
- Apr 9, 2009 11:27 am
(#9 Total: 172)
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Hi Sandy. Welcome to Share. I know that many mom's deal with guilt, feeling like they should have done something different. I know that I dealt with it after my daughter was born early.
If you head over to the Parent to Parent section, there are many mom's over there with children that have CP and g-tubes. It's a great place to connect.
I am so glad that you found this site.
Again, welcome!
Katie
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RoxySunshine
- Apr 9, 2009 11:34 am
(#10 Total: 172)
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Roxanna Liliana Sunshine Thomas
My name is Kayla, I am new to this site. I am from Oklahoma. My daughter was born March 25, 2009 at 26 weeks. She weighed 2 pounds and was 14 inches long. At 2 days old, we found out that she has IVH, which are hemorrhages in the brain. She has 3 of them, and they were a grade 1, but have progressed to a grade 3. At 3 days old, she had to have PDA ligation surgery. But, they were able to take her off of the vent for 3 days last week, but then she got too much fluid on her lungs and was retracting, so they put her back on. She has lost weight and is now 1 pound and 13 oz. But, she is a strong and beautiful lil girl and I know that we will make it through this!
DSC_0740
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stacey8220 (Apr 25, 2009 8:26 am)
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Angel Love
- Apr 9, 2009 2:07 pm
(#11 Total: 172)
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Kayla and Sandy~ Welcome to Share!! I hope that all goes well for your babies and that you have great news to share with us on your next post!! Tracy
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AngieD
- Apr 9, 2009 2:19 pm
(#12 Total: 172)
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Emily Grace
I am new to the site and wanted to say hello. My little Emily would have been 2 on April 20. She was born at 26.5 weeks and only weighed 13.5 ounces. She was a whopping 10 inches long. She stayed in the NICU for 5 months and was in PICU for 3 months. She was home with us for 4 weeks. It was the best weeks of our lives. I miss her so much and I can't believe she has been gone a year already. She made it to 10 months and 11 pounds. She was such a fighter and little miracle. We are walking this year in the March for Babies in memory of her. I just wish she could have been there to walk with us.
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2 here 2 in Heaven (Apr 13, 2009 12:00 pm)
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Lokweesha
- Apr 13, 2009 11:56 am
(#13 Total: 172)
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Introducing Myself
My name is Sarah and I gave birth on February 24, 2009 to an almost 27 week old baby boy, 1 lb. 8 oz. Its now been 7 weeks post partum and I've recovered from the emergency c-section, but baby boy is still in the NICU and expected to be there a long time. He has an IVH Grade II but it seems to be resolving itself. He has been having some digestion issues, but can go for a few days on full feeds before he decides that he doesn't want to digest it anymore. He seems to have a bacterium in his stool, so he is on isolation.
His biggest issue is his lungs. He has been ventilated all 7 weeks, with a one day break trial extubation that failed when his lung collapsed. They put him on steroids for a little while, but he didn't react well to them stomach-wise. He keeps having fluid buildup so the possible re-extubations keep appearing and then disappearing.
I know its a rollercoaster experience, but Im getting a little tired of the ride. I just want my baby all to myself!
Attached is a picture from the one day he was extubated. He's a little over 2.5 lbs now.
AidanSmile
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2 here 2 in Heaven (Apr 13, 2009 12:03 pm)
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2 here 2 in Heaven
- Apr 13, 2009 11:59 am
(#14 Total: 172)
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Surviving 26 week triplet...2 angels, & a 36 week singleton. |
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Sandy, welcome to Share and congratulations on your son.
Kayla, congratulations on your daughter...I've read your blog.
Shonda
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2 here 2 in Heaven
- Apr 13, 2009 12:00 pm
(#15 Total: 172)
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Surviving 26 week triplet...2 angels, & a 36 week singleton. |
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Replying to:
AngieD (Apr 9, 2009 2:19 pm)
Emily Grace: I am new to the site and wanted to say hello. My little Emily would have been...
Re: Emily Grace
Hi Angie, welcome to Share. I'm so sorry to hear of your loss. It is wonderful that you are walking in honor of Emily this year.
We lost two of our triplets (25 and 26 weekers) during the first two weeks in the NICU. It has been six years, and we continue to walk.
Shonda
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2 here 2 in Heaven
- Apr 13, 2009 12:03 pm
(#16 Total: 172)
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Surviving 26 week triplet...2 angels, & a 36 week singleton. |
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Replying to:
Lokweesha (Apr 13, 2009 11:56 am)
Introducing Myself: My name is Sarah and I gave birth on February 24, 2009 to an almost 27 week old...
Re: Introducing Myself
Sarah, welcome to Share. Recovering from a c-section while having a baby in the NICU is like a double whammy. I remember thinking it was a bit unfair for any mother.
My 26 week son was on a vent the first 7 weeks too, even on high frequency. I hope things calm down soon for you......welcome to Share.
Shonda
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Angel Love
- Apr 13, 2009 12:10 pm
(#17 Total: 172)
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Sarah~
Welcome to Share and congratulations on the birth of your precious little boy! I hope that he'll continue to grow and get stronger so that he'll be home with you soon. The ride is tough, but hang in there! Tracy
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KHolley
- Apr 14, 2009 5:50 am
(#18 Total: 172)
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Sarah-Welcome to Share. The NICU really is a rollercoaster, keep hanging on, it sounds like you have quite the fighter on your hands.
Angie-I am so sorry to hear of your loss. Share is a great place to find comfort and healing. Welcome.
Katie
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Morgan's Mommy
- Apr 14, 2009 10:55 am
(#19 Total: 172)
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New to this great place!
Hi everyone- Finally after 112 days in the NICU we got to bring our Princess home. She was born at 25.5 weeks and is now doing great. I am happy to see so many great folks on here, looking forward to moving through this experience with some great support.
Thank you!
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2 here 2 in Heaven (Apr 15, 2009 6:58 am)
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Hannah Faith's Mommy
- Apr 14, 2009 11:25 am
(#20 Total: 172)
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Hello
Hello my name is Elizabeth. On February 18, 2009 I gave birth to a beautiful 35 week old little girl Hannah Faith. She was 6 lbs 7oz. At 3 days old after only being out of the NICU for 3 hrs she did her first of 4 code blues. We discovered she had a grade 1 brain hemorrhage. We never did find out what was causing her breathing difficulty or why her heart rate would drop. On March 11, 2009 at exactly 3 weeks old my little angel slipped from my life while in my arms. Its hard to believe she is gone. I don't know how to help my other children through this when I'm barely getting through myself. I have poured myself in this years walk. We will be walking as a family in memory of my precious angel.
28994_1236470424252hannah_thumb[1]
Hannah shirt
Replies to this message
Angel Love (Apr 14, 2009 1:00 pm)
2 here 2 in Heaven (Apr 15, 2009 7:02 am)
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Angel Love
- Apr 14, 2009 12:59 pm
(#21 Total: 172)
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Morgan's mommy~ Welcome to Share! I hope to hear updates as you get a chance!! Tracy
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Angel Love
- Apr 14, 2009 1:00 pm
(#22 Total: 172)
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Replying to:
Hannah Faith's Mommy (Apr 14, 2009 11:25 am)
Hello: Hello my name is Elizabeth. On February 18, 2009 I gave birth to a beautiful 35 week old little...
Re: Hello
Elizabeth~ Welcome to Share! I'm so sorry to hear of sweet Hannah's passing. I know the heartache that goes with losing a daughter and still can't imagine the pain you must feel after 3 awesome weeks of her life. Please know that we're here to listen any time you need someone who "knows" to talk to. Tracy
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2 here 2 in Heaven
- Apr 15, 2009 6:58 am
(#23 Total: 172)
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Surviving 26 week triplet...2 angels, & a 36 week singleton. |
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Replying to:
Morgan's Mommy (Apr 14, 2009 10:55 am)
New to this great place!: Hi everyone- Finally after 112 days in the NICU we got to bring our Princess...
Re: New to this great place!
Morgan, we were in the NICU for a long time too....121 days. Glad to hear you were able to bring your princess home!
Shonda
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2 here 2 in Heaven
- Apr 15, 2009 7:02 am
(#24 Total: 172)
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Surviving 26 week triplet...2 angels, & a 36 week singleton. |
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Replying to:
Hannah Faith's Mommy (Apr 14, 2009 11:25 am)
Hello: Hello my name is Elizabeth. On February 18, 2009 I gave birth to a beautiful 35 week old little...
Re: Hello
Elizabeth, welcome to Share. I excitedly read that Hannah was in the NICU just 3 days......then my heart fell as I read the rest of your story. I am so sorry for the loss you are experiencing; no parent should ever have to go through this. We lost two of our triplet sons in the NICU, it was heart breaking. My thoughts are with you. I'm sure your angel would be very proud of you and your efforts in this year's walk. You may want to check out the Families Who Have Lost a Baby link located in the Parent to Parent section. I found it very helpful when I first joined Share. Shonda
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melissap
- Mar 28, 2009 10:09 am
(#25 Total: 172)
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beautiful daughter, loss of a daughter, and now pregnant and on bedrest
Hi im Melissa. This is my first time here. I need people to talk to that knows what im going through. I have a 2 year old daughter named Ava and my pregnancy with her was perfect. Then I found out I was pregnant again and at 22 weeks gave birth to my 2nd daughter Emma. She passed away before she was delivered. She was a beautiful baby. Now iam pregnant again with my baby boy and i am 23 weeks and 6 days. At 22 weeks was told i had to be on bedrest. I am scared out of my mind. The worst thing is not being able to do everything for my daughter. Thanks or listening.
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2 here 2 in Heaven (Apr 16, 2009 6:41 pm)
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Akeelah's Mommy
- Mar 28, 2009 8:52 pm
(#26 Total: 172)
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A moment in our arms, a lifetime in our hearts. |
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Melissa,
Welcome to Share! I'm very sorry to hear of the loss of your little Emma and that bed rest is keeping you from being able to do things with Ava. I'm glad that you have found Share. There are lots of mommies here that have been in similar situations.
I look forward to hearing more about your family!
Take good care,
Lauren
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McKennaGrace's_mom
- Mar 29, 2009 3:42 pm
(#27 Total: 172)
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melissap
- Mar 29, 2009 8:20 pm
(#28 Total: 172)
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Replying to:
()
The loss of a daughter, and the gain of an angel.: Hi, Im Mary Ann. I have never done this...
Re: The loss of a daughter, and the gain of an angel.
Hi Mary Ann. I am so sorry to hear about your loss. My name is Melissa and Feb. 10, 2008 I lost my baby girl Emma. I was 22 weeks pregnant when I had her. For myself that day was the worst day of my life. I needed help myself and needed someone to talk to that knew how I felt and I didn't find them. I took pictures of my Emma and put her all through my house and that helped me out a great deal. I understand how scary it is to try again. I am now 24 weeks pregnant with a baby boy and have been on bedrest since 22 weeks. I am scared out of my mind. I go to the doctor every week so we can keep an eye on everything. I am also on 2 different meds. There is hope. Don't force yourself to try again right away. You will know when you are ready. Take extra time for yourself. I hope that we can keep in touch and once again i am so sorry for your loss.
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ashleylb_84
- Apr 14, 2009 3:57 pm
(#29 Total: 172)
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Replying to:
()
The loss of a daughter, and the gain of an angel.: Hi, Im Mary Ann. I have never done this...
Re: The loss of a daughter, and the gain of an angel.
Hi:
I loss my son Lance December 13th 2008 at 22weeks. I truly do understand your pain. I know I want to try again but I am scared beyond my mind of this happening again. I was told that I too have an incompetent cervix. I am opting to get a cerclage and 17P shots. I suspect that I went into pre-term labor. But the doctors truly dont know. I am going to have to call out all the stops and even do bedrest if necessary. I know that you will be able to love the child you will be carrying and be very greatful for the next. It is very difficult to think about the what-ifs and what the child you lost might be like if they were alive and with you. I go through that every day. But with time you will be able to cope.
-Ashley
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Akeelah's Mommy
- Mar 29, 2009 4:42 pm
(#30 Total: 172)
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A moment in our arms, a lifetime in our hearts. |
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Mary Ann,
Welcome to Share. I am terribly sorry for the loss of your daughter. You have certainly come to a place where sadly there are many mommies living after the passing of one or more of their babies, myself included.
Share is such an amazing place. I encourage you to check out everything that it has to offer and know that we are always here to listen.
Lauren
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amandaxjo
- Apr 15, 2009 10:03 am
(#31 Total: 172)
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Amanda.
he , i'm amanda. i'm new to this site, i'm 16 years old today actually. joined because i am interested and i'm doing everything i can to help. am raising money right now for research and march for babies.  i'm interested to hear peoples stories; and i'm actually really nervous because my sister is 4 months pregnant right now. does anyone have suggestions for a healthy birth?
thanks for everything.
Replies to this message
2 here 2 in Heaven (Apr 16, 2009 6:54 pm)
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