New to Share? Say Hello!

Hi everyone- Finally after 112 days in the NICU we got to bring our Princess home. She was born at 25.5 weeks and is now doing great. I am happy to see so many great folks on here, looking forward to moving through this experience with some great support.
Thank you!

Hello my name is Elizabeth. On February 18, 2009 I gave birth to a beautiful 35 week old little girl Hannah Faith. She was 6 lbs 7oz. At 3 days old after only being out of the NICU for 3 hrs she did her first of 4 code blues. We discovered she had a grade 1 brain hemorrhage. We never did find out what was causing her breathing difficulty or why her heart rate would drop. On March 11, 2009 at exactly 3 weeks old my little angel slipped from my life while in my arms. Its hard to believe she is gone. I don't know how to help my other children through this when I'm barely getting through myself. I have poured myself in this years walk. We will be walking as a family in memory of my precious angel.

Morgan's mommy~ Welcome to Share! I hope to hear updates as you get a chance!!

Tracy

Elizabeth~ Welcome to Share! I'm so sorry to hear of sweet Hannah's passing. I know the heartache that goes with losing a daughter and still can't imagine the pain you must feel after 3 awesome weeks of her life. Please know that we're here to listen any time you need someone who "knows" to talk to.

Tracy

Morgan, we were in the NICU for a long time too....121 days. Glad to hear you were able to bring your princess home!

Shonda

Elizabeth, welcome to Share. I excitedly read that Hannah was in the NICU just 3 days......then my heart fell as I read the rest of your story. I am so sorry for the loss you are experiencing; no parent should ever have to go through this.

We lost two of our triplet sons in the NICU, it was heart breaking. My thoughts are with you. I'm sure your angel would be very proud of you and your efforts in this year's walk.

You may want to check out the Families Who Have Lost a Baby link located in the Parent to Parent section. I found it very helpful when I first joined Share.

Shonda

Hi im Melissa. This is my first time here. I need people to talk to that knows what im going through. I have a 2 year old daughter named Ava and my pregnancy with her was perfect. Then I found out I was pregnant again and at 22 weeks gave birth to my 2nd daughter Emma. She passed away before she was delivered. She was a beautiful baby. Now iam pregnant again with my baby boy and i am 23 weeks and 6 days. At 22 weeks was told i had to be on bedrest. I am scared out of my mind. The worst thing is not being able to do everything for my daughter. Thanks or listening.

Melissa,

Welcome to Share! I'm very sorry to hear of the loss of your little Emma and that bed rest is keeping you from being able to do things with Ava. I'm glad that you have found Share. There are lots of mommies here that have been in similar situations.

I look forward to hearing more about your family!
Take good care,
Lauren

Hi, Im Mary Ann. I have never done this before. My daughter McKenna was born March 2nd, 2009 at 19 weeks due to my incompentent cervix. She was so tiny that her heart couldnt make it through labor and she was born sleeping. Im having a difficult time finding anyone who truly understands what a loss that is. We are now trying to decide if we would like to try again, and if so, how soon. I cant seem to get past the thought that this may happen again and I dont think I could deal with losing another child, though I am sure many mom's have. I am also not sure how I will find a balance between greiving for the daughter I lost and loving the child I would be carrying, Lord willing. Any thoughts or just anyone to talk to would be wonderful.

~mary ann~

Hi Mary Ann. I am so sorry to hear about your loss. My name is Melissa and Feb. 10, 2008 I lost my baby girl Emma. I was 22 weeks pregnant when I had her. For myself that day was the worst day of my life. I needed help myself and needed someone to talk to that knew how I felt and I didn't find them. I took pictures of my Emma and put her all through my house and that helped me out a great deal. I understand how scary it is to try again. I am now 24 weeks pregnant with a baby boy and have been on bedrest since 22 weeks. I am scared out of my mind. I go to the doctor every week so we can keep an eye on everything. I am also on 2 different meds. There is hope. Don't force yourself to try again right away. You will know when you are ready. Take extra time for yourself. I hope that we can keep in touch and once again i am so sorry for your loss.

Hi:

I loss my son Lance December 13th 2008 at 22weeks. I truly do understand your pain. I know I want to try again but I am scared beyond my mind of this happening again. I was told that I too have an incompetent cervix. I am opting to get a cerclage and 17P shots. I suspect that I went into pre-term labor. But the doctors truly dont know. I am going to have to call out all the stops and even do bedrest if necessary. I know that you will be able to love the child you will be carrying and be very greatful for the next. It is very difficult to think about the what-ifs and what the child you lost might be like if they were alive and with you. I go through that every day. But with time you will be able to cope.

-Ashley

Mary Ann,

Welcome to Share. I am terribly sorry for the loss of your daughter. You have certainly come to a place where sadly there are many mommies living after the passing of one or more of their babies, myself included.

Share is such an amazing place. I encourage you to check out everything that it has to offer and know that we are always here to listen.

Lauren

he , i'm amanda. i'm new to this site, i'm 16 years old today actually. joined because i am interested and i'm doing everything i can to help. am raising money right now for research and march for babies. i'm interested to hear peoples stories; and i'm actually really nervous because my sister is 4 months pregnant right now. does anyone have suggestions for a healthy birth?
thanks for everything.

Hi, my name is Ruth Weeks and I just wanted to share my story. Well, I lost my first baby back in January of '08. Her name is Chloe, the doctors never could tell me any explanation as to why I lost her. My husband and I are now 6 months pregnant with a little girl named Hope who was diagnosed with a life-threatening illness called Alobar Holoprosencephaly. We're told she has a 3% chance of surviving to and through birth. I just wanted to get our story out and get everyone praying for our little Hope that she makes it and gets to come home with us. You can see her page at chloeandhopeweeks.blogspot.com
Thanks so much,
Ruth and Scotty Weeks

Amanda-I think that it is so awesome what you are doing! Welcome to Share. Congrats on being an aunt soon.

Ruth-I am so sorry for all that you are going through. Unfortunately many moms here have been through loss. This is a great place to find comfort and healing. We are here for you.

Katie

Welcome to Share, Melissa! I was on bedrest during my second pregnancy too. My son was 16 months when my daughter was born. During his 10-16 months, I felt like I was missing out on watching him grow and develop. My mother moved in with us to take care of him (I couldn't lift him in/out of bed, his high chair, car seats, steps) and it was frustrating. I'd lay on the couch and watch him toddle around, he'd often come over and give me a hug.

Hard as it was, I knew that it was the best thing for my baby. You see, my son is a surviving triplet born at 26 weeks. His brothers passed away in the NICU. I'd do anything to try and ensure my daughter arrived safely....which she did at 36 weeks.

Hang in there, you can do this and Share is here to help. You may want to check out the On Bedrest? link in the Parent to Parent folder.........it will offer great support.

Welcome!

Shonda

Hi, Mary Ann! First let me say I am so sorry for the loss of your daughter, no parent should ever have to go through such a loss.

I would suggest contacting at Perinatologist (high risk OB) in your area before becoming pregnant again. Your IC should qualify you, your normal OB can refer you. A Peri can go over your past history, form a plan for a new pregnancy and follow you very closely though out it. They may measure your cervical length for a while and perhaps place a cerclage (a stitch in the cervix).

We lost two of our triplets in the NICU and later went on to have a daughter. I was very nervous during her pregnancy. I feared losing another baby, yet knew I was in very good hands with my Peri. Once I passed 26 weeks (when our triplets) were born, I felt better.

What surprised me was how different my pregnancies were, physically, mentally and emotionally. My daughter arrived fine, and as I look back, I'm so thankful that I had such wonderful support.

This is a very personal decision, one that only you can make. I wish you the best on this journey. Also know that it is okay to continue to grief your loss.

Shonda

Amanda, as a mother of four preemies...I thank you for walking and raising money to help the March of Dimes further their mission and help families.

The best thing your sister can do is have regular doctor visits, live a healthy lifestyle (eating well, no drinking or smoking) and taking folic acid with can help prevent birth defects.

Welcome!

Shonda

Ruth, welcome to Share. I am so sorry to hear about your loss of Chloe. Losing a child is the hardest thing a parent can go through....at least I think so.

I admit I had to Google Alobar Holoprosencephaly to understand what it is. I am so sorry you are dealing with this on top of your loss. I do wish you and Hope the best, you will be in my thoughts. I'll be sure to visit your blogspot, I have one two... < mytwolittlewonders.blogspot.com

Welcome!

Shonda

Hi Everyone!!

I am new to this! My name is Kristin and I have 2 preemie babies and 1 full term baby! I had my daughter Taya who is 5 full term and my son Cameron who was born at 34 weeks and is now 2.5 and perfectly healthy and I just had my Little Miracle Cooper on December 17, 2008 at 24 weeks!! He spent 93 days in the NICU and has been home 1 month and so far he is completely healthy!! He is 4 months corrected and 1.5 weeks adjusted!

I look forward to meeting everyone and hearing about everyone's stories!

Kristin

Hi Kristen!! Welcome to Share and congratulations on all of your children. It is nice to hear they aer all doing well!

Shonda

Kristin~

Welcome to Share!! I'm so happy to hear that all of your children both preemie and full term are doing well now! I hope to hear more about these amazing kiddos soon!!

Tracy

Hello I am also new to the site and I would like to share my story with you. Back in 2003 I had a baby girl named Ashlyne. She was born at 24 weeks and she weighed 1 pound 9.3 ounces. She was in the NICU for 85 days. She has had 6 eye surgeries. She developed an eye disease called ROP. I was exactly were you have been, scared, and just wishing that you could do something. Well through the many doctor visits and surgeries, she is doing fine. We go to speech therapy, occupational therapy, and physical therapy. She is legally blind. She can see to get around but she has learn braille. Recently I had another baby. He is healthy, I thought I would never have anymore but I guess the good Lord wanted me to have another. He was a little surprise. I am here to talk anytime you need someone to ask questions and I will answer them if I can. Your babies and families are in my prayers.

Welcome to Share!! Congratulations on both Ashlyne and your special surprise!! I'm so happy to hear that Ashlyne is doing well. These little tiny ones have so much to teach us as mommies don't they!! Simply amazing!! Thank you for sharing your story with us and for being willing to offer support to others.

Tracy

Hello I'm new to this site. I'm seeking comfort with the loss of my son, he was born 2 days ago at 21 weeks. I have a incompetent cervix, and my amniotic sack was coming out....the hospital and myself did the best we could to prolong labor and delivery. Chances were very slim, but we prayed and prayed and kept the faith. I am still shocked that he was born. I do realize that my Lord needed Christian for greater things....

Hey, I am new here, I have a 2month old son who was 5weeks preemie when he was born. He was 6lbs.7oz.s when he was born but even though he was a big preemie, he still had preemie lungs and was born with namonia. He had to stay in the NICU for 2weeks. I was lucky enough to be able to stay in the hospital with him to be able to pump milk for him and feed him every two hours. I made sure I took every chance I could to be with him. I had an emergency c-section with my daughter/ prolapsed cord, so I was hoping for the scheduled c-section like I was supose to have. But like I was affraid of it didn't work that way. I had precampsia. Went for my first sress test and found out I went from mild to severe preclampsia and they said I had to have him that day. Sence I wasn't allowed to be awake with my daughter I was really wanting to be awake with my son. And was supose to be able to if it had went like we had hoped. They said I'd be having him around 5pm. so I made my fiance go home to get the camera, my mom, my daughter and future step son. And while he was gone they said sence I took my blood thinning shot the day before I couldn't have the epidural so they were taking me right away to go have him and wouldn't wait for my fiance cause they said he couldn't be in the room anyway sence I had to be asleep. So once again I couldn't be awake and to top it off couldn't have my fiace with me to take pictures or help calm me down or anything. And that is my last kid. I have vey difficult high risk pregnacies can't handle going through that again.
 Anyway, I think one, of the most difficult things anyone can go through, is having to worry about the possibility of losing a child. And having to see them on the oxygen and having I.V.'s wheither it is in the imbilical cord or the head or where ever else really sucks, and is hard to have to see. But I was blessed with the best doctors and nurses. Even in my pregnacy. Having the best doctors and nurses who are extremely nice and helpful make things so much better to deal with everything. I know I am and always will be forever grateful to all of them for everything.

I am so happy to here someone who hasn't lost faith because of something so terrible cause I believe even when something like that happens it was for a reason like there migght have been severe problems god saved the baby from. I bet he will give you a healthy happy baby in the future. He likes it when people don't lose faith. My cousin had losed a baby after some miscarrages and finally had another one who had a whole in his heart and had to have heart surgery now he is great. I know how hard that is, I don't normally get to have the baby. I have something wrong with my blood that causes it to clot easily in the sac with the baby causing an atomatic miscarrage. I just found out the reason when I was preg. last time, cause for once had a doctor who cared enough to find out why and gave me medicine to help prevent it. It still tried to happen though in my second trimester so I got got more meds and got stuck on blood thinning shots daily, till he turned 6 weeks old.
 Here's a pic. of me and my fiance. Oh sorry I do type slow.

I am not very expereinced with the computer so I don't know if this is actually going to you but I'm here for you if you ever want/ need a friend my email address is cherie7769@yahoo.com if you want to email me easier cause I don't know if I can always get back to this spot.

Welcome to Share! I'm so sorry to hear of your loss. Please know that many of us have also experienced a loss and know the heartache that you're feeling. We're here any time you need someone to talk to.

Tracy

Welcome to Share and congratulations on the birth of your son. I know it's hard to see all that is attached to your child when they're in the NICU. I hope that your son will continue to grow and mature and will be home happy and healthy. Keep us posted!

Tracy