Dealing with news about your babies IVH or bleed...

Michael was born November 21, 1982 at 27 weeks. My husband and I were told by the doctor's that we should give him up for adoption due to the many serious health problems he would have. I told the doctor I would NEVER give up my child. We went through a lot him and I, the struggles, tears, arguments (with my mother in-law) and the joyful experiences was worth giving birth and keeping Mike in my life. At 26, soon to be 27 Mike enjoys working on and with computers, reading, writing, fixing gadgets and knows a lot more then me (at times). He has Cerebral Palsy due to the bleed on the left side of the brain. He is not in a wheel chair. He walks with a limp, talks very well and has graduated high school. He went to college for a year, but he doesn't know exactly what he wants to do other then repairing computers. He loves to watch horror, comedies, and thrillers. Mike takes walks every other day at least 2 miles.
At the age of 15 years old Mike was working at a grocery store here in Florida. He started having seizures about the same age. The doctors told me when he went into puberty it may happen. He knows when they are coming on before they happen. They are called complex Focal seizures. He use to have approximately 3 to 4 per week. He still has them but they are slowing down and only happening 1 time per month. Thankfully he knows what to do before they come on. He will lay himself down on his right side, sometimes spitting up fluid and they only last approximately 4 minutes. Mike is aware when he is having a seizure, he can talk through it. The doctor now is saying he may have to have surgery to stop them all together. I am praying this will not have to happen.
Anyway, ladies I know I was a bit much explaining what happens when Mike has seizures, but no one told me what would transpire if it ever happened. I am letting you all know that it is a possibility. Talk to your doctors about Epilepsy and CP.

Blessings to All in Yeshua's Name. Amen.

Welcome to Share. I am sorry about MIke's continuing seizures but it sounds like he has led a wonderful life with the encouragement and love of his wonderful mother. I hope you will get some answers about the surgery soon.
Please keep us updated.
Ellen

Hello and welcome to Share. I am sorry that Mike continues to have seizures. Im glad that they are slowing down. Although I wish it was not a part of his normal, I think it is awesome that he knows what to do to ensure he doesnt hurt himself or choke while seizing. I am really in awe! He absolutely sound like an amazing warrior. I am sure he has proved many scary white coats and their worst case scenarios wrong in his 15 years of life.

Thank you so much for sharing his story!

God Bless

Yolonda

william is now 5. He was born at 28wks and when he was 2wks old he had 3 massive bleeds grades 3, 4, and 5. He had to have a blood transfusion with both 4 and 5. It was hard when he had that ultrasound and it showed that he had brain damage from the 4 and 5. We had no clue at first how to even go about it. All you can really do is be there for her. All any of us can really do is wait and see how things will play out. There is no way to prevent it. I will pray for your daughter tonight and i wish you and your family the best of luck.

hugs,
felicia