Kaylie's Gramma
- Mar 9, 2010 12:33 pm
(#12 Total: 117)
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Granddaughter with pulmonary hypertension
Hi, my granddaughter, Kaylie, was born Mar 3 and is being treated in NICU for pulmonary hypertension and a bacterial infection. Her mommy, my daughter, is just 16 years old but bravely staying strong and we're hoping to get information and support from other families who have been through this too.
Replies to this message
Angel Love (Mar 9, 2010 1:54 pm)
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Angel Love
- Mar 9, 2010 1:54 pm
(#13 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
Kaylie's Gramma (Mar 9, 2010 12:33 pm)
Granddaughter with pulmonary hypertension: Hi, my granddaughter, Kaylie, was born Mar 3 and is being treated in NICU for pulmonary...
Re: Granddaughter with pulmonary hypertension
Welcome to Share!! Congratulations on the birth of your sweet granddaughter. I'm so sorry to hear that she's not feeling well, but hopefully the drs. will have it all under control quickly. My daughter had both of those situations while she was in the NICU, but is a healthy happy 6 year old now. Keep us posted on how things are going!! Tracy 
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jaydenchristopher
- Mar 19, 2010 3:03 pm
(#14 Total: 117)
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Preemie son with pulmonary hypertension
My son is currently in the NICU with pulmonary hypertension. It was pretty severe but with the help of a medication called sildenafil citrate, otherwise known as VIAGRA and nitric oxide his pulmonary hypertension is improving. As you may already know this is some ride you and your daughter are on. If I could be of any help please let me know. Sometimes speaking with people who are going through the same thing you are helps.
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lmcolem1
- Mar 22, 2010 7:14 pm
(#15 Total: 117)
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New to Share
Hello. My name is LaToya and I gave birth to Laila on February 27th. She was 30 weeks and 1 day gestational. She has been in the NICU every since. I really find myself in a place where I NEED to talk to others in my situation. Today, Laila began to have irregular heartbeats. It's hard going to the hospital knowing that I will have to leave her there. I'm finding comfort in my Faith, and I know I'll find support here on Share.
Replies to this message
stacyat (Mar 23, 2010 2:31 am)
Angel Love (Mar 23, 2010 1:07 pm)
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stacyat
- Mar 23, 2010 2:31 am
(#16 Total: 117)
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Replying to:
lmcolem1 (Mar 22, 2010 7:14 pm)
New to Share: Hello. My name is LaToya and I gave birth to Laila on February 27th. She was 30...
Re: New to Share
Hello and welcome to Share! Congratulations on the birth of your sweet daughter Laila! I am sorry to hear the challenges that she is facing in the NICU right now. I have not experienced the rollercoaster ride of the NICU, but I know there are many other moms here that have. I see you've already found the parent to parent section, which is a great place to meet other moms who know have been where you are. I hope your daughter is on the road to coming home quickly.
Stacy
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Angel Love
- Mar 23, 2010 1:07 pm
(#17 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
lmcolem1 (Mar 22, 2010 7:14 pm)
New to Share: Hello. My name is LaToya and I gave birth to Laila on February 27th. She was 30...
Re: New to Share
Welcome to Share LaToya and congratulations on Laila!! I'm so sorry that she's having to hang out in the NICU. I hope that the heartbeats will even out for her and things will settle down. Please know that we've been there and know how difficult this is, and we're here to listen any time you need to talk. Tracy
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sonibunny1
- Apr 11, 2010 6:12 pm
(#18 Total: 117)
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Angel Love
- Apr 12, 2010 1:17 pm
(#19 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
sonibunny1 (Apr 11, 2010 6:12 pm)
New To Share: Hi! My name is Soni and my daughter is Eliana. She is 3 months old actual, 7...
Re: New To Share
Welcome to Share!! Congratulations on Miss Eliana's arrival!! I'm in N. GA so unfortunately I'll have to stick with meeting everyone from this site at Shareunion in October. You should try to come to that as well!! It's in Atlanta this year and is organized by March of Dimes. I look forward to learning more about this beautiful little girl. Tracy
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BabyDylanXoXo
- Apr 12, 2010 9:20 pm
(#20 Total: 117)
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Hello
Just wanted to say hello and that I am new here. I gave birth to baby Dylan at 27 weeks he is now 16 days old. This is my first child and the NICU is def filled with a lot of different emotions. I pray for him everyday and I know that he has a long way to go but he is strong! If anyone wants to talk feel free to message me, I would love to talk to people who are experiencing the same thing as me, thanks.
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Angel Love (Apr 13, 2010 5:41 pm)
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Angel Love
- Apr 13, 2010 5:41 pm
(#21 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
BabyDylanXoXo (Apr 12, 2010 9:20 pm)
Hello: Just wanted to say hello and that I am new here. I gave birth to baby Dylan at...
Re: Hello
Welcome to Share and congratulations on Dylan's arrival!! My daughter was born at 27 weeks as well and I got to hold her for the first time at 15 days old so I understand many of the emotions that you may be experiencing. I'm proud to say that my tiny girl who was such a fighter early on is now a perfectly healthy 6 year old who doesn't slow down for anything so be prepared for days to come!! I hope to hear wonderful updates in the near future! Tracy
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juliannasgma
- Apr 13, 2010 7:58 pm
(#22 Total: 117)
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hi im the grandma of a sick baby.my daughter is 28 wks pregnant they say the baby she is 1lb she has a zero chance of making it but shes a fighter . she has a virus called cmv.dare i continue to hope shell make it
Replies to this message
Angel Love (Apr 14, 2010 12:51 pm)
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Angel Love
- Apr 14, 2010 12:51 pm
(#23 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
juliannasgma (Apr 13, 2010 7:58 pm)
hi im the grandma of a sick baby.my daughter is 28 wks pregnant they say the baby she is...
Re: New to Share? Say Hello!
Welcome to Share!! I'm so sorry that your family is facing uncertainties with this little one, but stay strong, these little ones can definately prove others wrong at times!! I hope to hear positive updates on this little one. Is the baby already here or just predicted to be here soon?? Tracy
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*fingers crossed*
- Apr 15, 2010 6:33 am
(#24 Total: 117)
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Replying to:
sonibunny1 (Apr 11, 2010 6:12 pm)
New To Share: Hi! My name is Soni and my daughter is Eliana. She is 3 months old actual, 7...
Re: New To Share
Hi Soni!
Glad to hear your little one is doing well. I also have an Eliana~ well, actually, a Kaitlyn Eliana. She was born at 32 weeks and I thought Eliana was a very appropriate name as it means, "I am the God who answers prayers"... I'm thanking God for your 'answered prayer' as well! .... Julie
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Lineah
- Apr 16, 2010 7:19 am
(#25 Total: 117)
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Hello everyone
Hello to all. This has been a long time comming for me. My son Hunter was born weighing only 1 lb 13 oz. We spent 3 months in the NICU. He is now 5 years old! This I cannont believe. In the trials that was faced I was also able to personally witness a miracle from God watching him grow outside the woumb. Now I am expecting again, and to be honest, scared to death. With my son, he was my first, and I did not know what to expect...but now that I know more I find myself paranoid. I would love to talk with others on here as well as help be an encouragement to those facing the daily challenges of life in the NICU. Take care to all!
Linea
Replies to this message
Angel Love (Apr 16, 2010 6:25 pm)
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Angel Love
- Apr 16, 2010 6:25 pm
(#26 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
Lineah (Apr 16, 2010 7:19 am)
Hello everyone: Hello to all. This has been a long time comming for me. My son Hunter was...
Re: Hello everyone
Welcome to Share Linea!! Congratulations on Hunter's birth and successful fight! I know that there are lots of others on the sight who have had other pregnancies following a premature arrival. You might find the Parent to Parent section helpful. The Crazy with Kids thread has lots of moms that have had other pregnancies after a preemie! Tracy
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Hopingandwaiting
- Apr 18, 2010 7:31 pm
(#27 Total: 117)
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New to Share
Hi Everyone. Thank you all for sharing your stories as I've found them to be very comforting. My sister gave birth yesterday to two beautiful twin boys at 25 weeks. I am consumed with worry right now and want to be as supportive as possible. Could someone please recommend books I could read to help me prepare for the long road ahead? Also, does anyone know of a poem or prayer that I could pass on to her to help her through these early days of waiting and hoping?
Replies to this message
Angel Love (Apr 19, 2010 1:05 pm)
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Angel Love
- Apr 19, 2010 1:05 pm
(#28 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
Hopingandwaiting (Apr 18, 2010 7:31 pm)
New to Share: Hi Everyone. Thank you all for sharing your stories as I've found them to be very...
Re: New to Share
Welcome to Share! Congratulations on the birth of your nephews!! I know that this is all difficult for your entire family. I will say from the parent's standpoint, it means a lot for everyone to be there for you...especially just to let you cry or talk about everything. It's also nice to have someone to provide updates so that you're not on the phone after long days at the NICU. I don't know of books or poems to recommend, but I do remember being told to focus on the good things and take one breath at a time. It's less overwelming that way. I hope to hear great updates on this cute pair soon. Keep us posted. Tracy
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balletgirl1980
- Apr 21, 2010 10:10 am
(#29 Total: 117)
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New to being a mom
Hi,
My name is Heather and I am mom to boy/girl twins who were born at 31 wks 6 days. IUGR and PIH were the culprits for my emergency c-section. My daughter came out weighing 2lbs 14oz and was 15inches long. She was screaming  My son came out at 4lbs 6oz and 17in long. He took a couple of breaths and then decided to let the nice neonatologist do it for him. He was on a vent for three days and nasal cannula for 3 more. The both were on TPN and had umbilical lines. Those 25 days were the longest of my life. When you leave the hospital after 96 hours, you feel like your whole world will cave in. I did get NICUits after about 18 days. I still am dealing with the postpartum depression and my feeling that I somehow caused them to be early. I still worry about developmental delays. My twins are 5.5 months old now and growing like weeds! We are breastfeeding when I am home and I pump at work. Breastfeeding preemies is hard work at first until they figure it out!
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Angel Love (Apr 22, 2010 2:21 pm)
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Angel Love
- Apr 22, 2010 2:21 pm
(#30 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
balletgirl1980 (Apr 21, 2010 10:10 am)
New to being a mom: Hi,
My name is Heather and I am mom to boy/girl twins who were...
Re: New to being a mom
Welcome to Share and congratulations on your kiddos!! I'm so happy to hear that they're doing well now, and kudos to you for keeping up with the hungry tummies of two!! You're truly blessed! I look forward to hearing more about this amazing duo soon. Tracy
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My twin Boys
- Apr 24, 2010 2:14 pm
(#31 Total: 117)
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Twin Boys born at 24 1/2 weeks
Hello,
My Name is Jamie and I have 1yrsold twin boys that were born preemies they weighed 1lb 8 & 1lb 4 very small !!!
One of my sons got NEC and had to get some surgeries to remove the bad intestines and he got PVL also.
They are doing fine now but the one with PVL is delayed with doing things, and
I'm looking for people who 's been in my shoes that we can talk
please respond back.
Replies to this message
Angel Love (Apr 25, 2010 2:19 pm)
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Angel Love
- Apr 25, 2010 2:19 pm
(#32 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
My twin Boys (Apr 24, 2010 2:14 pm)
Twin Boys born at 24 1/2 weeks: Hello,
My Name is Jamie and I have 1yrsold...
Re: Twin Boys born at 24 1/2 weeks
Hey Jamie! Welcome to Share!! Congratulations on your boys and their amazing fight. I'm sure that there are other parents who are facing similar situations with their early arrivers. You may want to check the Parent to Parent section. There are many discussions already started about needs for kids and if you want you can start a new one with your own questions. I look forward to hearing more about these sweet boys!! Tracy
Replies to this message
Whosures (Apr 28, 2010 6:55 am)
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Whosures
- Apr 28, 2010 6:55 am
(#33 Total: 117)
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Replying to:
Angel Love (Apr 25, 2010 2:19 pm)
Re: Twin Boys born at 24 1/2 weeks: Hey Jamie! Welcome to Share!! Congratulations on your boys and...
Re: Twin Boys born at 24 1/2 weeks
Hi Jamie!
Welcome to Share. Congratulations on your little miracles. I hope you'll think about starting a blog so we can keep up with you.
Julie
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Hadiyahsmommy
- Apr 29, 2010 6:37 pm
(#34 Total: 117)
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still in NICU
HI
I had my little girl at 24 wks and 5 days. She just turned a month old on Monday. She's eating (through a tube, of course), growing and breathing very well. She was extubated and put on CPAP yesterday! she's having some spells but the nurses keep saying that's very normal and they don't think she's having them due to fatigue, so they're going to keep her on it for the time being as long as she doesn't seem like she's working too hard. I'm just SO glad that she's doing well! she had a PDA which cleared up with medication and an IVH, which cleared up on its own. I'm just waiting for her to gain some more weight and get some control over things so we can go HOME!!!
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Angel Love (May 1, 2010 4:08 pm)
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oliviasmommy2010
- Apr 30, 2010 8:27 pm
(#35 Total: 117)
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My Third Baby
Hi everyone, My name is Cyndi and I am new to share. My daughter Olivia was born on April 21, 2010 at 34 weeks 2 days. She is my third baby and my first premature birth. She is currently in the NICU, but doing well. I have started a BLOG, Miss Olivia's Journey, to help me thru this trying time. I have also found your comments very encouraging, so thank you all.
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Angel Love
- May 1, 2010 4:08 pm
(#36 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Replying to:
Hadiyahsmommy (Apr 29, 2010 6:37 pm)
still in NICU: HI
I had my little girl at 24 wks and 5 days. She just turned a month...
Re: still in NICU
Welcome to Share!! It sounds like your little one is quite the fighter. I hope that each day will give her the rest and the calories to accomplish her goals to come home soon. Cyndi~ Welcome to you as well. I'm going to head over to the blog section to learn more about this sweet little girl. Tracy
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AydensJourney
- May 6, 2010 10:29 pm
(#37 Total: 117)
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Hello!...Introducing My Micro Preemie!
Hello, my name is Athena & I am new to this site... Id like to introduce you all to my lil miracle. My son Ayden was born @ 23 weeks & 1 day gestation weighing only 1lb 3oz. He was born on August 5th and was transfered from NICU to NICU in and out of our state until March 26th. It has been a long Journey but our little man is finally home.!....Read his story @ http://AydensJourney.blogspot.com ...please leave us a comment and let us know if his story helps/inspires you in the least as that is why I am telling his story! 
aydenlong
exibati
osu
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stacyat
- May 7, 2010 5:37 am
(#38 Total: 117)
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Hello and welcome to Share! I read your blog here and peeked at your blogspot one. What a little fighter you've got! I'm so glad that he is finally at home with you! Congratulations!
Stacy
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Angel Love
- May 13, 2010 10:27 am
(#39 Total: 117)
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Looking forward to seeing you at Shareunion October 1-3 in Atlanta, GA!! |
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Welcome to Share!! What a cutie!! I hope to hear wonderful updates soon. Tracy
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*fingers crossed*
- May 20, 2010 6:22 am
(#40 Total: 117)
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So tiny!
Wow! Ayden was so small. What a miracle to be so young and pull through! God is so Good! You know he's here to do something special in this world. I'm so happy to hear that you finally got to take him home- what a journey! Keep us updated
Julie
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Breezy
- May 22, 2010 12:00 am
(#41 Total: 117)
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Hello
Hello. My name is Bree' and i am new to this site. My son Elijah was born a micropreemie Feb. 03,2009 at 24 weeks weighing 1lb. 14.5oz. and 13in. long. He spent three long months in the NICU. But after PDA ligation surgery, laser eye surgery, and six months in a DOC band I have a healthy, active, happy 15 month old son. I also have a two month old son who was born full term and healthy March 22, 2010. I joined share to share my story and inspire others.
Replies to this message
Angel Love (May 22, 2010 2:03 pm)
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