THE ANSWERS! MNGIE, A RARE FORM OF MITO

stacyat
Feb 17, 2010 08:44am (EST)

Though I am sure this is a scary time for you, I am very glad that you guys finally have a probable answer as to what is causing all these problems for Quinn! A mothers instinct truly is best, I'm glad you pushed them and finally got a diagnosis and made the doctors see that something really was wrong. I think you definitely should let all the other doctors know! Maybe it will be a humbling experience for them to know! Thinking of you!
Stacy

AandO
Feb 17, 2010 01:38pm (EST)

I SO get your frustration with doctors not even being willing to test for something that you KNOW could be the issues. They did that to me concerning Olivia. I was told she was 'too pretty' to have the syndrome that she DOES have.

I'm so sorry that you and Quinn are facing this, though. I can't imagine what you're going through.

Please keep us informed and feel free to vent, rant, cry out your frustrations. We get it and you're not alone.

Tommie

Dgraces Mom
Feb 17, 2010 01:40pm (EST)

I know you are scared, you have every right to be and there is nothing I can say that is going to diminish that fear. However, Sarah, you did it. Q's story is one that I followed closely so much to the point when you disappeared for a while I sent you an email just to check on you guys. You are one of mommy's here that taught me to advocate and fight for the things my daughter needed to be the best person she could be. I have always admired you. Quinn has a diagnosis that proves what you have known all along. It sounds like Q has a group of doctors that plan on helping get the disease under control. Hang in there Mommy!

Hugs and Love,
Yolonda

KHolley
Feb 17, 2010 07:35pm (EST)

I can only imagine how scared you are for her. I hope that the confirmation gives the doctors a direction to go from here. Remember, we are all here for you.

Katie

Angel Love
Feb 17, 2010 09:58pm (EST)

Hopefully the drs. will be able to give you a direction to go from here. This is the answer that you've been searching so hard for, but with that answer comes more questions. I hope that you'll find that happy medium so that you don't have to live life scared of what's coming next.

Tracy

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