esgf
- Jan 26, 2012 1:07 pm
(#5 Total: 11)
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Abigail's Mom (29 weeks, 3/21/05) |
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Tiffany- I think the weight progress (or lack thereof) was the most frustrating for us b/c it did seem like it was something you should be able to fix. After 5 years at the GI and a lot of extra calorie formula, she is still sleight but tall, but that is from a recent growth spurt. I would expect alot of blood work at the GI the first time to rule out some allergies and anamolies.
Good luck and let us know how it works out.
Ellen
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TSprouse0109
- Feb 21, 2012 1:48 am
(#6 Total: 11)
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Update:
So we went to the gi and he had my baby go get an upper gi test done and that came back normal. He then had us try erythromsin to try to make her stomach empty faster but that didn't work. She even decreased in her feeds now. So we may have to admit her into the picu to get a feeding tube put back in. But, her pediatrician thinks she may have Russell silver syndrome so we are now doing the genetic testing for that and going to see a geneticous in September. This is so stressful. And because she isn't gaining enough weight we can't start rice cereal and baby food. Which is making me think that she might get further behind with her feeding development because she is 6 mo adjusted today and almost 8 mo old. I just which I had some answers.
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stacyat
- Feb 21, 2012 2:51 am
(#7 Total: 11)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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I'm so sorry that the erythromycin didn't work for her and she's going to have to have another surgery. I'll keep you both close in my thoughts and prayers and hope that all goes well and that they figure what is going on with your sweet girl. Hugs!
Stacy
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TSprouse0109
- Feb 21, 2012 4:36 am
(#8 Total: 11)
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Stacyat, thanks. Thankfully the feeding tube goes in her nose so no surgery but thank you for Caring!!!
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liz loschinskey
- Feb 22, 2012 12:47 am
(#9 Total: 11)
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Thanks for the update and I'm sorry you aren't getting the answers you need for your sweet girl.
Keeping you in my prayers.
Love and Light,
Liz
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esgf
- Feb 23, 2012 4:56 pm
(#10 Total: 11)
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Abigail's Mom (29 weeks, 3/21/05) |
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I am sorry that you are still searching for answers. Try not to worry about starting solids, they can get everything from the various formulas but it is hard to watch and wait. Please keep us updated and good luck.
Ellen
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NathansMom13
- Feb 28, 2012 2:12 am
(#11 Total: 11)
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Come to ShareUnion 2012: It's the BEST weekend ever!!! |
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Is it possible the erythromycin caused belly pain so she wanted to eat less? My son has been on it for the same reason, to help with gastric emptying and it always seems to have the reverse effect because it causes belly pain and then he doesn't want to eat. Good luck.
Laura
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