New to Share? Introduce yourself & say Hello!

Michele

I am so sorry for the loss of your sweet angel Tony. I hope the days get brighter and easier. I know the road is rough, but somehow through our losses we find strength we never knew existed.

Many blessings,
Helena

Hello I am Danyetta Blackmon. I was pregnant st 26weeks. I was in labor for 7 hours not knowing at church. God had his hands all around and on me & my baby boy. Darnell Jarmaine Blackmon was born December 31, 2011, at 26 weeks. He came 1 week after my father Rev. Dr. Donlad Blackmon past. He came into this world breathing on his own. He was named as University at Birmingham NICU CHAMP. Questions were asked like" How is he breathing on his own?" I simply answered by saying BIG GOD is doing this. He never had a breathing tube. Darnell only has minor health problems. He is known as My Peanut. Darnell is my miracle/angel sent from heaven.

My name is Isabelle, I'm 28 and I gave birth to my beautiful twin boys Ian and Eli on November 20th 2012 at 24 1/2 weeks. Both of them are doing fairly well. Ian a bit better than Eli. Eli was the donor for the twin to twin transusion which caused me to go into labor. Eli was transfered to Children's hospital on day 8 for possible surgery on his bowel. But the lil guy is such a fighter that a surgery wasn't needed. At this time they are in 2 diffrent hospitals ind 2 different NICUs, but both are stable. My husband and I are very blessed and continue to be amazed by the strength these two boys have. I'm praying everyday for their strength and fight to keep going. They are my little angels.

Hello Danyetta and welcome to Share! I would love to hear more about your little miracle boy and how he is doing now, sounds like he is a little fighter! And coming up on one year old too!
Stacy

Hello Isabelle and welcome to Share! Congratulations on the birth of Eli and Ian! I'm glad to hear that they are both currently stable and hope that they continue to make great strides forward in coming home eventually. That must be so tough having them in two separate hospitals right now and having to split your time between the two of them. I hope that they're able to be transferred to the same hospital soon, please keep us updated when you can!
Stacy

Hello.

I am 35 yrs old.. just married to my best Friend.. I was 27 Wks pregnant of our first little boy... in spite of being taking insulin for type 2 diabetes, all exams and ultrasounds looked normal.. I started having contractions and little bleeding so I decided to go to L&D just for peace of mind, I was admitted that same day because of being considered High risk. I stayed for 3 days took steroids shots and was discharged.. 2 days later I woke up with contractions every 3 minutes, drank lots of water and lay down all day hoping it would go away, then I started bleeding and in the middle of the night I decided it was better just to come and get checked again... I was low in fluid and 3 cm dilated.. they took me in again.. 3 days in the hospital with contraction every 3 - 5 minutes, taking magnesium and antibiotics our little boy decided it was time for him to be born.. so on Dec 4th 2012 at 5:55AM Liam cried for the first time.. 27 weeks 3 days gestational age.. 2lbs 5oz and 14" long... Now he is in the NICU and he will probably be there for about 3 months.
This is just the beginning of our long journey of living every day the day to day of NICU and I come here looking for encouragement from these very brave Mommies who have and still do endure this daily heart aching task that is to see our little baby attached to the tubes and machines and trying to be positive everyday longing for the day we will take him home.
Much Love to all.

HI - I wanted to reach out to you and let you know you are not alone in your thoughts and your pain. I was pregnant with twins , a boy and a girl. I lost my daughter at 23 weeks and my son Damien was born at 27 weeks weighing 1 lb 5.5 oz. It was such a hard time to be happy and sad at the same time. I did not find many people who could understand my situation and felt lost for a long time. Damien spent 151 days in the NICU and is now a healthy 1 and a half year old. If you would like to talk, have any questions, or just need someone.... my email is tdobson1@psdnet.org
Take care,
Torri

micropreemieme: Hello and welcome to Share! Congratulations on the birth of your little guy, though I'm sorry it came much earlier than expected. I'm so glad you found Share when you're just starting your preemie journey, it's such a huge wealth of information and support! I look forward to hearing more about your little Liam!

Torri: Hello and welcome to Share! I'm so sorry to hear of the loss of your little girl, I can't imagine how confusing it must be to be mourning the loss of one while celebrating the accomplishments of the other. So glad to hear that Damien is doing fabulous now after his long stay in the NICU! I would love to hear more about him!

Stacy

@ Amanda Collins my twin girls were born with twin to twin transfusion at 27 weeks 2 days and are healthy and very happy 9 year old 4th graders...HANG IN THERE and PRAY alot...FAITH MOVES MOUNTAINS as it did with my girls...stay strong my dear..I will be praying for you...GOD BLESS YOU and YOUR FAMILY

Thank you, But time seems to be bringing me further down than up, I just hope I find the strength to pull thru

Hello ladies! I want to introduce myself. My name is Paoal yanez. I am 22 year old and currently in college a full-time student, mommy to Samuel Alexander Paz, and a part-time worker. Samuel was born Feb.28, 2012 at 32 weeks. I feel not many can relate to me having a preemie baby, and I just hope I can get to talk to everyone and hear everyone's stories and how they got through it all or are getting through it all.

Much love,

Paola

Ooops! Spelled my own name wrong Paola Yanez...happens when you are trying to multi-task

Hi Paola and welcome to Share! Well if you've found somewhere to fit in with people who know what you're going through, you've found the right place! I would love to hear more about your sweet Samuel!
Stacy

Malutaro-
The journey after loss is a roller coaster with many ups and downs. It's not a linear jouney, I found that I was up and down for a long while.

I encourage you to check out our loss thread, you're not alone.

http://shareyourstory.org/webx/.ef9d38c/452

Lauren

Hi my name is merri. I'm an old timer here but it has been a very long time since I've posted. My son, buddy, was born f/t on feb 18,2006. He was born with severe noisy/strioder breathing but the drs kept saing he was fine. Well I had to get ugly and demand some answers. At 6 months old he was officially diagnosed with trachoe/larngo malacia, asthma,gerd. Since birth his life has been a rollercoaster. He has had lots of pnemonia,uri and surgeries./scopes. He has been hospiallized many times. He is now 6 and still at 20% occlusion with the malacia. He also has a gtube after having a nissen done at which time he was diagnosed with a lazy esaphagus and couldn't swallow food past the nissen. Due to obstructive sleep apnia he had adnoids and tonsils removed. As you can see a mom knows when somethings not right with your child. I'm so glad I pushed the drs to do scopes when he was 6 months old. He does have some undiagnosed issues such as chronic fatigue and sporatic tachicardia(fast heartrate) no one seems to know why. Overall he is doing welll for now. January/february are the worst two months for him to get sick. Anyhow I just wanted to say hi, I'm back, and buddys doing ok.

Merri

Hey Merri, welcome back! Mommy always knows best and knows when something is going on with our little ones! I'm glad to hear that overall he's doing fairly well, and hope that he's able to avoid all of the sickies that come with winter time!
Stacy

HELLO EVERYBODY!!MY NAME IS MARICELA DIAZ, I WOULD LIKE TO KNOW IF SOMEONE HAS THE SAME PROBLEM AS MY BABY SHE WAS BORN ON 12-05-12 SHE WAS A FULL TERM BABY AND THIS IS THE REASON WHY I DONT UNDERSTAND WHY SHE IS VERY SICK RIGHT NOW AT FIRST SHE HAD A PROBLEM IN HER LUNGS AND NOW SHE HAS A LOT BRAIN DAMAGE.THE DOCTORS ARE EXPLAINING ME EVERYTHING BUT I JUST DONT GET IT.IF SOMEONE HAS A PROBLEM LIKE THIS I WOULD LIKE TO KNOW THAT MY BABY IS NOT THE ONLY ONE.THANKSSS!

HI! I'm a new mom to Kyle who was born 12/11/12 at 31 weeks. He is in NICU but is such a fighter! I'd love to connect with others who are in similar situations. Its difficult to relate to "non-NICU" moms right now. Thanks!

I have introduced myself a couple of weeks ago. I had my beautiful twin boys on November 20 th at 24 1/2 weeks. They both surprised us and the medical staff over and over. Yesterday morning Eli suddenly took a turn for the worse. He had problems with his oxygen and kept dropping his heart rate. They took some blood and found out he was battling a nasty infection. The team tried everything to help my little boy. His kidneys started to fail due to low oxygen levels. He did not respond to anything the team tried. By 5 pm they informed my husband and I Yhat there is nothing else they can do for him. My world ended and my heart broke into pieces. By 8.45 pm my little Angel Eli Michael went to heaven. His twin brother continues fighting an infection as well in the NICU. We are very blessed that we had 31 days to get to know him, love him hold him and Gell him everyday Yhat we love him. But today my heart is heave and the fear continues for my boy ian.

Hi, I'm Kassandra and I'm a mother to my one and only daughter Jaslene who is now in heaven. My princess was born September 28, 2012 and left me on November 5, 2012. My Jaslene had a condition called Gastroschisis, her intestines were outside of her stomach instead of inside. I found out she had that condition when I was 16 weeks with her. Doctors said people with babies like that usually abort the pregnancy. But others fight this. Well I tried and thought we could fight this. Abortion was not an option. My pregnancy was not a normal one. I had to stay in a far away special hospital away from my family and home for two weeks until I had my baby. After I had Jaslene, she had to stay in the NICU for a month. It killed me, not being with her every second. Her surgery went good but her feeding reactions with her stomach were not. It got worse and she got sicker. Finally she just couldn't fight it anymore. It hurts me everyday that I dont have my first and only born daughter. But I know she's my guardian Angel and she's apart of my life everyday.

So sorry your baby girl lost her fight. Know you are not alone. We have our little angel in heaven since Friday.

Much love through this difficult time.

Isabelle

Marciela, I'm so sorry to hear your lil' girl is so sick. Things must be so confusing. I hope that doctors are able to discover what seems to be going on. Please keep posted when you can.

KJsMom- Congratulations on the birth of your son. I hope your NICU stay is uneventful and short as possible! There is a thread for parents currently in the NICU that you might find helpful: http://shareyourstory.org/webx/Share%20Home/Parent%20To%20Parent/InTheNICU/

Isabelle- I am so very sorry to hear of the loss of your sweet lil' Eli Michael. Thank you for sharing his picture, so beautiful. There are moms on Share who have endured the loss of one twin and traveled the bittersweet journey of continuing the fight for their other twin. My thoughts are with you as you navigate these waters.

Kassandra- Welcome to Share. I'm so sorry to hear of the loss of your Jaslene. What an amazing lil' girl to have fought so hard. You are so right, our angels continue to be huge parts of our lives, and are always held gently in our hearts.

Best,
Lauren

I'm Courtney a 21 year old mother to a 28 Weeker been in the nicu for 4 months. Got a tracheostomy an feeding tube. His doing wonderful an were working on getting home now I would love to know everyone's story.

Hey Courtney and welcome to Share! I'm so glad that you're working on getting your guy home, I'm sure that this has been the neverending four months for you. I know we've had another couple of moms on here that have brought their little ones home with both a trach and a feeding tube and could give you all their experiences! Hope you find Share to be your second home like I have!
Stacy

Hi there!
My name is Crystal. I'm mommy to Adam, 5, and Lilliana. Lilly is my TigerLilly - she was born just a few days ago, January 10th, via c-section at the gestational age of 35.5 weeks.
She came out doing just fine, but later she started having problems breathing, and regulating her temperature and blood sugar. The first day was a bit rough, she was on CPAP and sugar water.
She's still in the NICU, off of CPAP and stepping down off oxygen, under bililights and on a bili blanket. She's taking my breast milk like a champion.
Though this is not my first experience with NICU, it's a whole new level of worry and fear. It's nice and a relief to know that I'm not the only one going through this, and that I'm not going crazy.

Hi Crystal,

Welcome to the World Lilliana! What a great nickname- Tiger Lily. I hope her NICU stay is short and uneventful. Keep posted when you can. Blogging is a great way to keep a journal of her progress.

Lauren

Hello Crystal Welcome to share and congrats on the birth of your little Tiger Lily! I hope you NICU stay is short. Cant wait to hear more about her and her progess!

Samantha

Hi Kassandra and welcome to Share!

I'm so sorry to hear of your beautiful daughter Jaslene. Please know you are not alone. I lost my first and only son on his week birthday.

Please keep coming back and keep us updated on you!
Love and Light,
Liz

We are from Lincoln, NE. My husband, my 5 year old son and myself went out to Sidney, NE to visit family for Christmas when I started feeling very very uncomfortable. I had severe back pain and very bad pain across my stomach right below my chest. My husband took me to the ER in Sidney where they did an ultrasound and gave me pain medicine. They came in and told me that I was getting life flighted to Presbyterian/ St. Luke’s Hospital in Denver, CO. My husband wasn’t able to fly with me. He had to drive himself (2.5 hour drive). The flight was an hour long. I got to the hospital at about 1am and went in for an ultrasound. The dr came back into the room and asked how much longer until my husband would be here because we were going in for an emergency c section. My husband at that time was about 10 mins away. He came into the room and I had to tell him that we were having our baby that night. The nurse threw him scrubs and told him to change quick. They wheeled me into the operating room where I got a spinal block and my husband came in. Our baby boy was born at 3:43am on Sunday 12/30/12. He was born at 26 weeks at 1 lb 6oz and 12 1/4 inches long. He is now in the NICU at Presbyterian/ St. Luke’s. I stayed in the hospital from Sunday through Friday and then I was discharged. I stayed until this past sunday but decided to come home because my 5 year old needs me to and we were already very tight on finances and this whole ordeal pushed us over. I had a very tough pregnancy so I was let go from my job because I was sick to much. I started watching a couple kids so I could stay home.

Our baby boy is named Julius James. His oxygen levels have been up and down since he was born. He had a PDA which they tried to close with medicine but it didn’t last so being home this week is hard enough since we are 8 hours away from Julius but to make it even worse I got a phone call yesterday afternoon from his doctor telling me that his PDA reopened and they decided to do surgery on his heart in an hour. It was the longest hour of our lives! He did wonderful with the surgery and they also put in a permanent IV line in his neck since they were having trouble getting a central line in because of how tiny he is. He has had 3 blood transfusions so far. He turned 2 weeks on Sunday. We are going to try to get out to Denver every weekend until he comes home but money is tight and it is an 8 hour drive. We filled out the Medicaid forms at the hospital since Julius was born under 1200 grams.

I would like to know what resources are out there for micro preemies.

Thank you

Jennifer Frack

Hello Jennifer and welcome to Share! Congratulations on the birth of Julius! I am so sorry for his early birth though it sounds like he's quite the trooper! I'm not too sure what resources there are other than maybe staying at the Ronald McDonald house if there is one there. You may also check in with his nurses about getting into contact with a social worker, they may be able to find you some resources locally to help your family out. Tons of hugs, and I look forward to reading your updates!
Stacy

Jenn Welcome to Share! Congrats on the birth of your sweet boy. Please contact the social sercvice people I know when my sone was born they talked to me about disablilty help for babies born premature. That might be of some help. heres a link I found when I did a quick search!

http://www.socialsecurityinsider.com/2009/11/premature-and-low-birth-weight-babies-may-qualify-for-social-security-disability-benefits/

I hope it helps!

Samantha