MonaClare
- May 22, 2012 2:10 pm
(#96 Total: 253)
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Hello! My name is Monica and I am new to March of Dimes. My baby boy Jace was born at 24 weeks and 2 days on April 9th. His due date was July 28th. My Husband's name is Jay. This is our first baby together. We have been married for 2 yrs. I have 1 biological son who is 16yrs old (I had him when I was 17), my step daughter, 11, lives with us full time, and I have 2 step sons, 12 & 14.
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liz loschinskey (May 22, 2012 10:14 pm)
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KHolley
- May 22, 2012 4:13 pm
(#97 Total: 253)
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Welcome to Share, Monica! Congrats on Jace! I look forward to reading more about you and your family!
Katie
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MonaClare (May 22, 2012 4:17 pm)
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MonaClare
- May 22, 2012 4:17 pm
(#98 Total: 253)
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Replying to:
KHolley (May 22, 2012 4:13 pm)
Welcome to Share, Monica! Congrats on Jace! I look forward to reading more about you and your family! Katie
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liz loschinskey
- May 22, 2012 10:14 pm
(#99 Total: 253)
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Replying to:
MonaClare (May 22, 2012 2:10 pm)
Hello! My name is Monica and I am new to March of Dimes. My baby boy Jace was...
Hi Monica! Congratulations on your sweet baby boy, Jace!
Welcome to share and I hope to hear more about Jace!
Love and Light,
Liz
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angiemarie1980
- May 23, 2012 5:51 pm
(#100 Total: 253)
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hi my name is angie breahna is my daughter who was a premiee back in 2004 she spend 52 days in nicu.. she is 7 years old will be 8 in 9-7. she is being held back in 1st grade this year, im just a mother who doesnt know what to do she is very lucky to be where she is but still very behind for age. some times its kinda like her brain doesnt get things from homeowrk.. so taking baths she just doesnt seem to understand or get why we do things.. just in need for help or just someone to talk to thanks
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scardycat (Jun 1, 2012 9:31 am)
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KHolley
- May 24, 2012 12:27 am
(#101 Total: 253)
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Welcome to Share. It is so hard to decide what's right for our kids. Trust your heart.
Katie
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Team Jesse
- May 25, 2012 12:55 pm
(#102 Total: 253)
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Angie, my son was a preemie born in 2007. He turned 5 on feb 12. I can relate with what you said about sometimes her brain just doesn't get things. Now my son has been diagnosed with a few things, but we run into the same issues with him. He does really well so far in pre-k but sometimes when you ask him something or tell him something we have to repeat ourselves or explain to him what we are saying. It's just the way his little brain processes certain things. We describe it as his brain is just going off in different directions and we have really come to understand that about him. Have you asked her doctors about it?
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Salwa Mornie
- May 30, 2012 1:56 pm
(#103 Total: 253)
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Hi, my name is Salwa Mornie. I'm 34 years old and gave an emergency C-section birth a week ago to a 1.46kg girl due to a complicated preeclampsia. My daughter is now in SCBU/NICU as she was born 7 weeks earlier than she should have been. She is now hospitalised and I'm back home without her but am told to express my milk to be given to her via a tube. Everything is very difficult for me to accept at the moment but I'm trying my best to be strong for her. I found this website and feel that it could be a good emotional outlet for me. I hope to read more inspirational stories from all the mothers here.
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liz loschinskey (Jul 3, 2012 11:49 pm)
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KHolley
- May 30, 2012 5:15 pm
(#104 Total: 253)
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Welcome to Share, Salwa! Congrats on your little girl! I had my daughter at 34 weeks and she is now 6. Please feel free to ask me anything.
Katie
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Trinity8409
- May 30, 2012 5:30 pm
(#105 Total: 253)
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Hi my name is Nicole, I am a 28 year old mother that had a premature baby, I also was a premature baby. My baby was born at 32 weeks and weighed 3'14 oz. Me I was born at 26 weeks and only weighed 1'11oz. I have had 5 pregnancies and this was my first premature birth. I was scared at first but then when I got to the NICU at Miller Childrens Hospital in Long Beach the nurses really helped me and my husband. If anyone wants to follow how my baby has been doing I will try to post blogs about him everyday or when we have any new news.
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Angel Love
- May 30, 2012 8:58 pm
(#106 Total: 253)
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Welcome to Share everyone!!! I understand there are a lot of questions regarding your new little ones, but the best place to find those answers is your ped or neonatologist! It's hard to understand all that goes on in these new little lives that is different from the full term pregnancy, but those professionals are there to help. I hope to hear great updates from each of you!
Tracy 
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Kcurvey
- May 31, 2012 12:57 am
(#107 Total: 253)
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Hi, my name is Kelly and I am 28 years old that just had a premature baby. I had 2 preemies before this but they were too small to save. I just had my son Bentley on Friday, May 25, 2012. He was 14 weeks early. For the first 4 days he was doing great. Breathing on his own 12 hours after birth. Today he had an "episode" and was holding his breath. They had to bad him to put him back in rythem. I am so worried. I cant eat or sleep. I cant go to the hospital everyday because i was on bedrest and couldnt work so i dont have the gas. And we live an hour and half away from the hospital. I came here hoping to find weman that have gone through similar situations. I would just like to find out what to expect through this process. 
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Angel Love (Jun 2, 2012 2:47 am)
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stacyat
- May 31, 2012 2:17 am
(#108 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello and welcome to Share, I am so sorry for the loss of your little ones and that your sweet Bentley came so early despite your cerclage. Is there a Ronald McDonald house anywhere near your hospital? I'm sure it is tearing you apart not being able to be up there with him every second. Tons of hugs and prayers to you!
Stacy
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scardycat
- Jun 1, 2012 9:31 am
(#109 Total: 253)
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Replying to:
angiemarie1980 (May 23, 2012 5:51 pm)
hi my name is angie breahna is my daughter who was a premiee back in 2004 she spend 52...
It's Ok Angie my daughter was born at 34 weeks and she was the same especially in primary school. We held her back in grade 1 and it was a good idea. It took her a while to just get it. All of a sudden it just clicked about grade 5. It could be earlier it depends on the child.
Her teacher said she would and omg she was right.
If your are really concerned speak to her teacher about how shes going and maybe get her checked out if you feel something is not right.
My daughter is now 19 and shes doing a graphic arts course at Tafe.
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Angel Love
- Jun 2, 2012 2:47 am
(#110 Total: 253)
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Replying to:
Kcurvey (May 31, 2012 12:57 am)
Hi, my name is Kelly and I am 28 years old that just had a premature baby. I had 2...
Welcome to Share Kelly! I'm so sorry to hear of your losses, but am happy to hear of your little fighter Bentley! I know it's hard to be away from your little one, but stay strong...he feels your love!! Check with the hospital social worker to see if there is a place to stay nearby that will allow a huge discount if there's not a Ronald McDonald House. Hang on tight....it's a crazy journey, but being there as much as possible and trying to be a part of his care will help both of you. Tracy
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Ljane627
- Jun 6, 2012 6:44 am
(#111 Total: 253)
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Hello,
My name is Lisa. I gave birth to my beautiful Stella on May 13th (Mother's Day). She was 31 weeks and 3 days. I was induced due to developing preeclampsia. She is my second daughter. My eldest daughter was also early. She was 36 weeks, and stayed in the NICU for four days.
Stella is currently in the NICU and has been doing very well. Her feeding line has just been removed.
I'm hoping someone can tell me what hurdles she needs to accomplish before they will allow her to come home.
Thanks for reading...
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stacyat
- Jun 9, 2012 9:06 pm
(#112 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello Lisa and welcome to Share! Congratulations on the birth of Stella, what a beautiful name! I'm glad to hear that her feeding line has been removed, that's a huge step! Typically babies need to be able to take all of their milk or formula by mouth, they need to be able to maintain their temperature as well as heartrate and oxygen saturation within normal limits and pass the carseat test. Each hospital has different periods of time they have to do all of this in, such as 24 or 48 hours to maintain all of that. The carseat test can vary too, if they do it often it's where they have to be in the carseat and maintain their vitals for the length of time it would take you to drive home plus some extra just in case you run into traffic or other problems. I hope that helps, I may have missed something! I highly reccomend talking to your daughter's nurses and asking them exactly what their goals are for her before releasing her, they would be able to give you the exact requirements!
Stacy
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laura077
- Jun 10, 2012 5:09 am
(#113 Total: 253)
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Hi, I'm Laura. I had my little boy Drake on February 20th at 30+3 gestation. After a 34 day NICU stay, he came home on March 24th. Since then, he has been undergoing treatment for unilateral clubfoot on his left side, recently developed an inguinal hernia on the right and we had to have him taken by ambulance to our local children's hospital after a reflux episode where he became unresponsive. I am having a lot of anger and a long with it feel guilty because I know he has been amazingly healthy and everything he has to fight is completely treatable. I was so scared when I thought we may have lost him. He's such an amazing little fighter.
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AlwaysAvasMom
- Jun 10, 2012 3:31 pm
(#114 Total: 253)
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Hi My name is Helena from Freeport, NY. I am a NICU nurse so I watch the struggles of Parents who have babies in the NICU and parents who have lost their babies. I was 32 weeks pregnant and lost my little Girl Ava Lynn on May 23. Her heart stopped beating in utero from what is believed to have been an abruption. I never got the chance to see her eyes or hear her cry. She is now my little angel.
IMG_6218
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JennKlaw
- Jun 11, 2012 1:06 pm
(#115 Total: 253)
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Hi! My name is Jenn! My partner, Carrie and I, were blessed with Quadruplets that decided to join this world on March 29, 2012 at Winnie Palmer Hospital in Orlando, FL. Carrie had spent weeks there on hospital bedrest. Our little 4 pack was born at 27 weeks 5 days and were all under 2lbs at birth. They are still currently in the NICU but apart from respiratory problems, they are still currently on oxygen, they are doing well and should start coming home by the end of the this month.
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Chances mommy
- Jun 13, 2012 12:57 pm
(#116 Total: 253)
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Hi my name is angela.... Nd my son Chance passed away from SIDS in August 2008
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stacyat
- Jun 13, 2012 10:52 pm
(#117 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hello all and welcome to Share!
Laura: Goodness that must have been so scary for you! Your feelings of anger are totally normal and ok to have, you're definitely not alone! I hope that joining this site helps you to work through all of your feelings. I look forward to reading more about Drake!
Helena: I'm so sorry for the loss of your sweet Ava, I know I never imagined I would be going through the same thing as some of my patient's parents were going through. Big hugs to you.
Jen: Congratulations x 4! So glad to hear that they are all doing well, I look forward to reading more about your precious miracles!
Angela: I'm so sorry for the loss of Chance (((hugs)))
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Amanda Collins
- Jun 15, 2012 6:42 am
(#118 Total: 253)
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I gave birth to identical twin boys on June 9th, i was 27 weeks gestation. They had twin to twin transfusion and had to be taken out early. We are currently in the NICU and will be for a while, I'm having a very difficult time with it even though they are doing very well. Reaching out to get some support and advice.
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MyNameIsVictoryBecauseIveAlreadyWon
- Jun 15, 2012 6:51 pm
(#119 Total: 253)
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Hi! My name is Kristin and I am new to March of Dimes. I just wanted to take the time to introduce myself. I'm 30 years old and I live in Toledo, Ohio. I've been married to my wonderful husband, Charles, for nine years and we have two beautiful girls together. My oldest, Chyna, will be 12 this July and my youngest daughter, Denise, who was born premature, is 31 months. As you can see by looking at my username, I am an optimist and I put the Lord Jesus Christ above all other things in my life. He is my shephard, my close friend, and Lord of my life. With him I am victorious and I can do all things through him who strengthens me. On another note.  I'm here looking for a supportive, online, family. One who understands the challenges of raising a premature baby, who is willing to listen and who offers good advice; and I am also willing to return the favor (to those who want it). Be Blessed
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stacyat
- Jun 16, 2012 6:14 pm
(#120 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Amanda: Hello and welcome to Share! I'm so sorry that your boys came so early and that they're going to have to be in the NICU for awhile. Share is such an amazing place, you definitely found the right place to come for caring support!
Kristin: Hello and welcome to Share! I'm so glad you've found us, and would love to read more about your daughters!
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Jessica90
- Jun 16, 2012 9:04 pm
(#121 Total: 253)
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Hello, I am new to Share and wanted to introduce myself. I am Jessica Krimmel. I am 21, married and we have 2 gorgeous daughters, Aspyn and Keyara, who were both in the NICU. Aspyn was born with a low birth weight and Keyara was born silent and began having seizures at just 18 hours old every 15 minutes. Today they are both getting big and doing well, but our time in the NICU was a scary one. It is so nice to know that there is a place for women like me to go to share their experiences, get support and give support.
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KHolley
- Jun 17, 2012 1:31 am
(#122 Total: 253)
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Welcome to Share, Jessica! I am so glad that both of your girls are doing well after all that they have been through! Thanks for sharing!
Katie
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Kcurvey
- Jun 17, 2012 8:45 pm
(#123 Total: 253)
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Hi, my name is Kelly. I am new to march of dimes. I had my son at 25 weeks and 4 days. When he was first born he seemed to be doing good. Then when he was 5 days old he had to go on the ventalatior. He was doing ok. They went to put a bigger tube in but he ended up needing a more serious machine. He is on 100% oxygen and i feel like im losing my mind. I want him to be ok so bad. I lost 2 other babies at 22 weeks. I cant handle losing another. He has chronic lung disease. I want the doctor to tell me hes going to be fine. But i know they cant. He is 23 days old now. He just got sicker 3 days ago. I just dont know what to do with myself. I figured id come on here and try talking to ppl who have gone through this because nobody else understands. I havent even gotten to hold him yet. Ive never been so scared in my entire life.
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Jackie G
- Jun 18, 2012 2:01 pm
(#124 Total: 253)
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Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
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Hi Kelly! Welcome to Share.
I know how difficult it is to have a baby in the NICU. it's so hard to be so helpless and not know what the future is going to bring.
But don't give up, don't stop hoping, and don't stop loving him. It's the one thing only his mom can do.
You are not alone here on Share. So many of us have been in your shoes and we'll be here for you every step of the way.
Hugs,
Jackie
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nervousmom2b
- Jun 20, 2012 11:16 pm
(#125 Total: 253)
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Hi Kelly, I'm praying hard for you and your baby! I read on another of your posts about how you blame your body and how you found it difficult to bond with your baby during pregnancy. Please try and stop blaming yourself, even though it's really tough. I remember telling my husband that my body 'betrayed' me when I lost our son at 25w. Am currently 17w pregnant 4th time around (had two miscarriages in between) and am finding it hard to bond with this baby - always ready for everything to go downhill. Take care of yourself and be kind to yourself. Warmest wishes and hugs to you and Bentley.
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