charlieXmom
- Jun 27, 2012 1:47 pm
(#127 Total: 253)
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Replying to:
amayasmommy522 (Jun 27, 2012 1:28 pm)
My name is Josephine. I'm 21, not married, but I am with my daughter's father. My baby girl Amaya was...
Before you know it, she will be home!! My charlie was 2lb4oz at birth, was in the nicu for exactly 8 weeks, and now he is a bouncing happy 12 lb little boy!  she will get there too I know how hard having a baby in the nicu for an extended period of time can be... keep hanging in there and stay positive!
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Emma'sMommy
- Jun 28, 2012 1:29 am
(#128 Total: 253)
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Hi,
My name is Faby Ryan. My husband Daniel and I have been married for three and a half years. We were extatic when we found out we were pregnant and it was really happening this time (we had three miscarriages before this pregnancy). Emma is a twin, but we sadly lost her twin in our first trimester. My daughter Emma Isabella Ryan was born May 3,2012 at 27 weeks gestation. She was 1lb 20z 103/4" Emma has been in the NICU 55 days today. Emma is our little miracle and a little fighter. She has been through so much already. She has been on an occilator vent since she was born, has gone through a PDA ligation surgery and is currently on steroid treatment to help with all the fluid and inflamation of her lungs. My little miracle continues to fight!
Replies to this message
liz loschinskey (Aug 2, 2012 9:05 pm)
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heathervizza
- Jun 29, 2012 3:02 am
(#129 Total: 253)
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Hi i'm Heather, I am 21yrs old.
I recently had twin girls at 24 weeks on april 18, 2012.
Maddison was the biggest she was 1lb 5oz and clarissa was 1lb 1.3oz.
The girls are still in the NICU. Maddison is now 3lb 3 oz and clarissa is 3lb 2.3 oz. It is very stressful to be a parent of the NICU to say the least. The girls are both still on the oscelator and oxygen levels still pretty high. its scary! Both girls have also had about 5 blood transfusions each.
I'm so proud of my girls and all they've accomplished, theyre doing good with their feed, they're both up to 9ml / hr! they've almost tripled their birth weight. however their lungs are still in pretty bad shape. Since they've been on the oscelator for so long, the tissue between their lungs and bloodstream had developed scaring which makes it hard for the oxygen to get from the lungs to the bloodstream. The only way to help this scaring is by lowering the girls oxygen and mean pressure, but the girls arent allowing that too much. so all we can do is pray.
Both maddie and clarissa have exhibated themselves twice and exhibated a few other times as well, its very scary we didnt know if maddie was going to make it the first time. All we can do is hope and pray that theyll get better.
We recently signed up for the march of dimes and will be walking on sep. 16 , and the girls will be in an article in the newspaper through the march of dimes! My fiancee and I are very excited!
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Jackie G
- Jun 29, 2012 11:32 pm
(#130 Total: 253)
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Mom to a 25 weeker who is now 8 years old and a 38.5 weeker who is now 6 |
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Welcome to the newbies! I hope you find Share to be as wonderful of a place as I have!
-Jackie
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LivingForMyBoys
- Jul 2, 2012 8:46 pm
(#131 Total: 253)
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My name is brandi i am 22 years old I have 3 wonderful little boys and two months ago i had two more boys~twins~ born at 27 weeks-13 weeks preemature, they were 1lb and 2lbs i have never had preemies before,or any nicu expirience, twin "a" had too many complications and god called him home,twin b is almost 3 months old and is finally 5lbs,he is comeing home soon and i dont know what to expect? does anyone have advise of things i can do for the house before he gets to come home?
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Sarah E Hazlett
- Jul 2, 2012 9:05 pm
(#132 Total: 253)
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hi, my name is sarah and i'm a 27 yr old new mother. everett was born at 28 wks 2 days, at 2 lbs 10 oz, and now he's 34 wks at 4 lb 1 oz. i had hoped to have a natural homebirth but got the exact opposite. on good days, i believe it was the Great Mystery's way of teaching me surrender, acceptance, and patience. on bad days, I wonder if I'll ever be able to have a full term baby, or a VBAC. BUT, every day I am concious that my son is a MIRACLE!
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arobinson
- Jul 2, 2012 10:02 pm
(#133 Total: 253)
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Hi, my name is Amanda and I'm 29 years old. I had our first baby, Patrick, on May 1, 2012 at 25 weeks 1 day. I was in the hospital on bedrest for 8 days before he was born. I had severe pre-eclampsia and HELLP syndrome, but still felt completely fine, but the doctors decided he needed to come out before I got sicker. I had had a completely normal and easy pregnancy before then. Patrick lived for 37 days in the NICU before he couldn't fight anymore, and passed away on June 7. I am still having a pretty rough time...
Replies to this message
liz loschinskey (Jul 3, 2012 11:59 pm)
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Mary X
- Jul 3, 2012 3:48 pm
(#134 Total: 253)
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Dear Amanda,
I'm very sorry that Patrick passed away. I hope that you can always find support and understanding among all of the Moms on Share and lean on us whenever you need to.
<<<<Hugs>>>>>
Mary
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Mary X
- Jul 3, 2012 4:39 pm
(#135 Total: 253)
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Dear Brandi,
I'm very sorry to hear that one of your twins passed away. I'm grateful that his twin is doing well and may be coming home soon. Nevertheless, I also wanted to welcome you to Share and hope that you will find comfort and support here.
Sincerely,
Mary
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Mary X
- Jul 3, 2012 4:41 pm
(#136 Total: 253)
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Dear Sarah,
Welcome to Share. I'm glad to hear that Everett is doing well. Keep us posted on his progress.
Sincerely,
Mary
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mrsmaxson
- Jul 3, 2012 8:40 pm
(#137 Total: 253)
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Welcome to Share. We have so many new moms lately, I can't keep up with everyone.
Amanda, I am so very sorry that Patrick didn't make it. Losing your first child, or any child, is heartbreak that cannot be expressed in words. I hope that you have support and are finding moments of peace as you mourn your son.
To all the NICU moms: Hang in there! Wishing you and your little ones all the best.
Shannon
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liz loschinskey
- Jul 3, 2012 11:49 pm
(#138 Total: 253)
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Replying to:
Salwa Mornie (May 30, 2012 1:56 pm)
Hi, my name is Salwa Mornie. I'm 34 years old and gave an emergency C-section birth a week ago to...
Salwa, hello and welcome to share!
I can't wait to hear more about your daughter!!
Keep us updated when you can.
Love and Light,
Liz
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liz loschinskey
- Jul 3, 2012 11:59 pm
(#139 Total: 253)
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Replying to:
arobinson (Jul 2, 2012 10:02 pm)
Hi, my name is Amanda and I'm 29 years old. I had our first baby, Patrick, on May 1,...
Amanda, Hi and welcome to Share! I'm very sorry to hear of Patrick. Please, on your rough days, come here, we can help you.
Love and light and may peace find you soon,
Liz
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aaliyahsmom
- Jul 4, 2012 12:45 am
(#140 Total: 253)
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My name is Amber. My husband and I lost our 4 month old on December 26, 2011 to SIDs. There are not many people who know the grief of losing an infant so I am hear looking for support. 
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brookeg
- Jul 4, 2012 7:48 pm
(#141 Total: 253)
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Hello and welcome to share Amber. I am so sorry for the loss of your baby. I wish no one had to find this site due to the heartache they are going thru. It has been over 2.5 yrs since I lost my son and while the pain has eased it is till there with me everyday. It feels like my grief is my last link to my son.
I have found so much support thru this site and I hope you can as well
brooke
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AlwaysAvasMom
- Jul 4, 2012 8:41 pm
(#142 Total: 253)
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Hi Amber I am so sorry for the your baby. I lose my little girl on May 23. Logging onto share and meeting others is such a big help. Many of the people I have meet have been amazing sharing their stories. I was suppose have Ava in July 12 via c section. I have found that the grief at times is unbearable but I find joy in the moments I did get with Ava.
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bparker2012
- Jul 6, 2012 1:55 am
(#143 Total: 253)
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I am a mommy to 3 wonderful little boys. Our oldest, Bradley,is 5 yrs of age and Sam, our middle child, is 2 yrs of age. My youngest, Ethan, was born June 12th and was a NICU baby. He went to the NICU initially for respiratory problems but the doctors soon discovered he has a heart defect and is also being tested for genetic abnormalities, amongst other things. All of this is new to my husband and I, as we had no clue that something was wrong with our precious one, despite 4-D US and prenatal testing. We recently just got home and the last few weeks are just now sinking in for me. Ethan has a road ahead of him but we are so glad to finally be home. God has blessed us throughout this difficult time by showing us endless support from friends, church family, and our family. My prayers go out daily to all of the sweet babies who remain in the NICU, babies that have been in the NICU, and their families.
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Diana Rodriguez
- Jul 6, 2012 5:56 pm
(#144 Total: 253)
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Hello everyone!!
I am new to March of Dimes. My name is Diana I am 32 yrs old I just found out yesterday I am pregnant. I have a history of having my babies micro preemie. I have a 9yr old that was born at 24wks weighing 1lb 6oz. and I had twins 3 yrs ago my son was born at 21wks weighing 1lb but he did not make it  my daughter was born a week later at 22wks and she weighed 1lb 5oz. I live in Porterville Ca. I moved from Long Beach Ca. 4yrs ago. I am looking for a good doctor around Visalia Ca. If anybody knows of one please reply. thanks so much :
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aprilfoolsbaby01
- Jul 10, 2012 2:12 pm
(#145 Total: 253)
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Hello Im Daisy Im new here also my son Bryan was born at 24 wks on april 1 2012 and hes 2 hours away from me at Joe DiMaggio in Hollywood Im so sorry for your lost I cnt imagine how it feels.Iv heard that talking to other NCIU moms helps alot and i hope it does.
-Praying for everyones babys, Daisy
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catta
- Jul 10, 2012 2:38 pm
(#146 Total: 253)
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Hi All, I'm married with one son, Emmanuel. Manny was born just shy of full term, but after birth asphyxia was diagnosed with hypoxic ischemic encephalopathy (experienced seizures, organ failure, apnea, etc). We spent 5 weeks in various NICUs in Alberta. While he wasn't premature, there aren't many support groups around for the full termers who spend time in NICU, so I thought I would join here. Manny has been home with us for about 5 months now, and he is doing GREAT. When he was 5 hours old, they transferred him to a tertiary NICU and kept him on a cooling mat that lowered his body temperature by a few degrees. He was sedated for three days, but little by little he started meeting his milestones. My husband and I have actually started a non-profit that supports and encourages NICU families. It's hard to understand what the NICU experience is like, unless you've been there. I visit with families and take in baskets (blanket, gift card, book) and coffee (including decaf!). We found that one of the hardest things was not being able to hold our son for awhile, and feeling like he was more of the nurses' baby than our own. We also had no idea what to expect when we were first admitted, and I think it would have helped if someone had explained the stages (breathing first, then feeding) that babies go through. If anyone is interested in sharing their story, it would be a privilege for me if you would take our NICU Needs survey. I want to hear from other parents on what parental needs were unmet during their NICU time. http://www.surveymonkey.com/s/B63HVFH Thank-you for listening!
Callie
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catta
- Jul 10, 2012 2:41 pm
(#147 Total: 253)
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Hi Sarah,
Congratulations on the birth of your son!
It's tough when we don't get the perfect birth experience we were hoping for. All I can say is that our miracle boys are such blessings, and our experiences will make us appreciate every milestone they meet.
I'm sure your next birth experience will be different, but even if it's not, you are a great Mommy and your son is lucky to have you.
Callie
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catta
- Jul 10, 2012 2:44 pm
(#148 Total: 253)
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Hi Amanda,
I am so so sorry for your loss. These babies change us, even if we only have our angels for a short time.
The pain of loss doesn't disappear, but healing does come. There is a time when the pain isn't as sharp, and you can smile again.
Thinking of you and your family,
Callie
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catta
- Jul 10, 2012 2:48 pm
(#149 Total: 253)
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Hi Shannon, Thank-you for the support you give to other Moms. NICU and loss is such a hard road, and no one really understands it unless they've been through it. My husband and I lost twins in 2010 and then our little boy was born with HIE because of asphyxia last year. My husband and I have started a parent support group in Alberta where we visit with NICU parents, share their fears (or happiness at the milestones reached), and bring in baskets (blanket, gift card, book) for the parents. I think it helps parents to know a little of what to expect. Would you consider completing our anonymous and confidential NICU Needs survey? It would be a privilege for me if we could hear from you. I want to hear from other parents on what parental needs were unmet during their NICU time. http://www.surveymonkey.com/s/B63HVFH Best,
Callie
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Calebs.Mommy
- Jul 11, 2012 5:36 am
(#150 Total: 253)
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hello everyone! I am a single mother of a micro preemie little Caleb. He was 24wks gestational and 1lb 06oz. He is now 28 days old and fightn with all he has. I am learning slowly about our situation but i am glad i found this website.
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stacyat
- Jul 11, 2012 2:14 pm
(#151 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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bparker2012: Hello and welcome to Share! I'm so sorry for the problems that Ethan is facing, it's so scary when you think everything is ok and then all the sudden your world is turned upside down. I hope that the doctors figure out what is going on with him so they can better help him. So glad that he is at home with you now! Diana: Hello and welcome to Share! Congratulations on your pregnancy! I wish you a happy and healthy 40 weeks with this little one! I hope you're able to find a doctor that best suits your high risk needs and helps you to feel comfortable with the game plan to get this little one as far along as possible. I'm so sorry for the loss of your twins, tons of hugs to you. I lost my twin girls about two and a half years ago at about 20w5d gestation. Have you spotted our Pregnant and Fabulous thread for other high risk mommas like yourself? Here's a link! http://shareyourstory.org/webx/.efa44a8/355 Daisy: Hello and welcome to Share! Congratulations on the birth of your son, though I am so sorry that he came so early and is in a NICU so far away. I look forward to reading more about him! Callie: Hello and welcome to Share! I am so glad that you've found Share! It's such a wonderful place for parents with all kinds of different stories to come and gain support! Calebs Mommy: Hello and welcome to Share! Congratulations on the birth of your sweet Caleb! I'm so glad to hear that he's fighting hard, I look forward to reading more about him!
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KHolley
- Jul 11, 2012 6:51 pm
(#152 Total: 253)
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Welcome to Share everyone. This is a great place to find support from others that understand.
Katie
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Emmie'sMom
- Jul 25, 2012 3:46 am
(#153 Total: 253)
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Hello. My name is Tasha and I am new to the March of Dimes Share site. I am from Indiana and I have been married to my husband, Justin, for 5 years. We suffered our first loss in 2009 with a miscarriage at 12 weeks. In 2010, we welcomed our daughter into the world at 21 weeks. She survived for one hour. I just wanted to stop in and say hello and extend my sincere wishes to the other moms here for love, support, strength and healing at whatever stage you are in. Thanks!
Tasha
Replies to this message
liz loschinskey (Aug 2, 2012 9:51 pm)
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KHolley
- Jul 27, 2012 1:15 am
(#154 Total: 253)
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Welcome to Share, Tasha. I am so sorry for your losses. This is a great place to find and offer support to those at different stages!
Katie
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Akeelah's Mommy
- Jul 27, 2012 1:16 am
(#155 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Tasha- Welcome to Share. I'm so very sorry for the losses you've endured. I hope you find a measure of comfort here as I have.
Lauren
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Gracie&Noah's Mommy
- Jul 27, 2012 9:39 pm
(#156 Total: 253)
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Hello my name is Bianca Scott, i am the mother of a 11month old Gracie and i just gave birth to my son Noah July 24 2012, he was premature, delivered at 33weeks. He weighed 3pd 12oz and was 16 in long. It's been a rocky road here and having to deal with that because i had a perfect labor and delivery with my daughter and she wasnt premature or never had any problems and now i'm having to deal with this. Its been very emotional and tough for me to deal with also; mentally and physically.
My son for the first two days they had him on a respirator to help him breathe and just today, July 27th 2012 they took him off of it and are letting him breathe on his own which has turned out really good.
He does have a problem with the left side of his lung, so they are trying to lay him more up on that side to were it is expanding more and opening.
He is doing really good so far.
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