Diana Rodriguez
- Jul 6, 2012 5:56 pm
(#144 Total: 253)
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Hello everyone!!
I am new to March of Dimes. My name is Diana I am 32 yrs old I just found out yesterday I am pregnant. I have a history of having my babies micro preemie. I have a 9yr old that was born at 24wks weighing 1lb 6oz. and I had twins 3 yrs ago my son was born at 21wks weighing 1lb but he did not make it  my daughter was born a week later at 22wks and she weighed 1lb 5oz. I live in Porterville Ca. I moved from Long Beach Ca. 4yrs ago. I am looking for a good doctor around Visalia Ca. If anybody knows of one please reply. thanks so much : 
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aprilfoolsbaby01
- Jul 10, 2012 2:12 pm
(#145 Total: 253)
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Hello Im Daisy Im new here also my son Bryan was born at 24 wks on april 1 2012 and hes 2 hours away from me at Joe DiMaggio in Hollywood Im so sorry for your lost I cnt imagine how it feels.Iv heard that talking to other NCIU moms helps alot and i hope it does.
-Praying for everyones babys, Daisy
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catta
- Jul 10, 2012 2:38 pm
(#146 Total: 253)
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Hi All, I'm married with one son, Emmanuel. Manny was born just shy of full term, but after birth asphyxia was diagnosed with hypoxic ischemic encephalopathy (experienced seizures, organ failure, apnea, etc). We spent 5 weeks in various NICUs in Alberta. While he wasn't premature, there aren't many support groups around for the full termers who spend time in NICU, so I thought I would join here. Manny has been home with us for about 5 months now, and he is doing GREAT. When he was 5 hours old, they transferred him to a tertiary NICU and kept him on a cooling mat that lowered his body temperature by a few degrees. He was sedated for three days, but little by little he started meeting his milestones. My husband and I have actually started a non-profit that supports and encourages NICU families. It's hard to understand what the NICU experience is like, unless you've been there. I visit with families and take in baskets (blanket, gift card, book) and coffee (including decaf!). We found that one of the hardest things was not being able to hold our son for awhile, and feeling like he was more of the nurses' baby than our own. We also had no idea what to expect when we were first admitted, and I think it would have helped if someone had explained the stages (breathing first, then feeding) that babies go through. If anyone is interested in sharing their story, it would be a privilege for me if you would take our NICU Needs survey. I want to hear from other parents on what parental needs were unmet during their NICU time. http://www.surveymonkey.com/s/B63HVFH Thank-you for listening!
Callie
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catta
- Jul 10, 2012 2:41 pm
(#147 Total: 253)
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Hi Sarah,
Congratulations on the birth of your son!
It's tough when we don't get the perfect birth experience we were hoping for. All I can say is that our miracle boys are such blessings, and our experiences will make us appreciate every milestone they meet.
I'm sure your next birth experience will be different, but even if it's not, you are a great Mommy and your son is lucky to have you.
Callie
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catta
- Jul 10, 2012 2:44 pm
(#148 Total: 253)
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Hi Amanda,
I am so so sorry for your loss. These babies change us, even if we only have our angels for a short time.
The pain of loss doesn't disappear, but healing does come. There is a time when the pain isn't as sharp, and you can smile again.
Thinking of you and your family,
Callie
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catta
- Jul 10, 2012 2:48 pm
(#149 Total: 253)
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Hi Shannon, Thank-you for the support you give to other Moms. NICU and loss is such a hard road, and no one really understands it unless they've been through it. My husband and I lost twins in 2010 and then our little boy was born with HIE because of asphyxia last year. My husband and I have started a parent support group in Alberta where we visit with NICU parents, share their fears (or happiness at the milestones reached), and bring in baskets (blanket, gift card, book) for the parents. I think it helps parents to know a little of what to expect. Would you consider completing our anonymous and confidential NICU Needs survey? It would be a privilege for me if we could hear from you. I want to hear from other parents on what parental needs were unmet during their NICU time. http://www.surveymonkey.com/s/B63HVFH Best,
Callie
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Calebs.Mommy
- Jul 11, 2012 5:36 am
(#150 Total: 253)
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hello everyone! I am a single mother of a micro preemie little Caleb. He was 24wks gestational and 1lb 06oz. He is now 28 days old and fightn with all he has. I am learning slowly about our situation but i am glad i found this website.
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stacyat
- Jul 11, 2012 2:14 pm
(#151 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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bparker2012: Hello and welcome to Share! I'm so sorry for the problems that Ethan is facing, it's so scary when you think everything is ok and then all the sudden your world is turned upside down. I hope that the doctors figure out what is going on with him so they can better help him. So glad that he is at home with you now! Diana: Hello and welcome to Share! Congratulations on your pregnancy! I wish you a happy and healthy 40 weeks with this little one! I hope you're able to find a doctor that best suits your high risk needs and helps you to feel comfortable with the game plan to get this little one as far along as possible. I'm so sorry for the loss of your twins, tons of hugs to you. I lost my twin girls about two and a half years ago at about 20w5d gestation. Have you spotted our Pregnant and Fabulous thread for other high risk mommas like yourself? Here's a link! http://shareyourstory.org/webx/.efa44a8/355 Daisy: Hello and welcome to Share! Congratulations on the birth of your son, though I am so sorry that he came so early and is in a NICU so far away. I look forward to reading more about him! Callie: Hello and welcome to Share! I am so glad that you've found Share! It's such a wonderful place for parents with all kinds of different stories to come and gain support! Calebs Mommy: Hello and welcome to Share! Congratulations on the birth of your sweet Caleb! I'm so glad to hear that he's fighting hard, I look forward to reading more about him!
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KHolley
- Jul 11, 2012 6:51 pm
(#152 Total: 253)
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Welcome to Share everyone. This is a great place to find support from others that understand.
Katie
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Emmie'sMom
- Jul 25, 2012 3:46 am
(#153 Total: 253)
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Hello. My name is Tasha and I am new to the March of Dimes Share site. I am from Indiana and I have been married to my husband, Justin, for 5 years. We suffered our first loss in 2009 with a miscarriage at 12 weeks. In 2010, we welcomed our daughter into the world at 21 weeks. She survived for one hour. I just wanted to stop in and say hello and extend my sincere wishes to the other moms here for love, support, strength and healing at whatever stage you are in. Thanks!
Tasha
Replies to this message
liz loschinskey (Aug 2, 2012 9:51 pm)
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KHolley
- Jul 27, 2012 1:15 am
(#154 Total: 253)
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Welcome to Share, Tasha. I am so sorry for your losses. This is a great place to find and offer support to those at different stages!
Katie
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Akeelah's Mommy
- Jul 27, 2012 1:16 am
(#155 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Tasha- Welcome to Share. I'm so very sorry for the losses you've endured. I hope you find a measure of comfort here as I have.
Lauren
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Gracie&Noah's Mommy
- Jul 27, 2012 9:39 pm
(#156 Total: 253)
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Hello my name is Bianca Scott, i am the mother of a 11month old Gracie and i just gave birth to my son Noah July 24 2012, he was premature, delivered at 33weeks. He weighed 3pd 12oz and was 16 in long. It's been a rocky road here and having to deal with that because i had a perfect labor and delivery with my daughter and she wasnt premature or never had any problems and now i'm having to deal with this. Its been very emotional and tough for me to deal with also; mentally and physically.
My son for the first two days they had him on a respirator to help him breathe and just today, July 27th 2012 they took him off of it and are letting him breathe on his own which has turned out really good.
He does have a problem with the left side of his lung, so they are trying to lay him more up on that side to were it is expanding more and opening.
He is doing really good so far.
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angelea
- Jul 28, 2012 5:15 am
(#157 Total: 253)
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Hi my name is Angelea. I am from Cincinnati Ohio and I am 32 years old. Ibhave been pregnant 4 tim. I have a beautiful 15 year old. I also lost 2 and I'm having a rough time with this one also.
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KHolley
- Jul 30, 2012 3:17 am
(#158 Total: 253)
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Welcome to Share, Bianca! Congrats on Noah! I am happy to hear that he is improving. Keep us posted on his progress!
Angelea-Welcome! I posted on your short story!
Katie
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NICUmomof1
- Aug 2, 2012 2:09 am
(#159 Total: 253)
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Proud mommy to Madeline 33 weeker |
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So many new mommies on here as of late. I am trying to go through and get to more but I also wanted to give out a big welcome to you all and I am so sorry you are having to go through this but we are all here for you to support you whether you need to cry, vent, laugh, whatever. We are here.
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aprilfoolsbaby01
- Aug 2, 2012 8:54 pm
(#160 Total: 253)
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Hi Im Daisy Bryans mom born at 24 wks hes so big 8 lbs but he failed hes swallow test so he wont be home for another 2 months maybe thanks to everyone on this site its realy helped me cop with all of the preemie ups and down
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liz loschinskey
- Aug 2, 2012 9:05 pm
(#161 Total: 253)
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Replying to:
Emma'sMommy (Jun 28, 2012 1:29 am)
Hi,
My name is Faby Ryan. My husband Daniel and I have been married for three and a half...
Congrats on your miracle, Emma!
She sounds like she is doing great!
I'll be praying for a quick recovery in the NICU.
Love and light,
Liz
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liz loschinskey
- Aug 2, 2012 9:51 pm
(#162 Total: 253)
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Replying to:
Emmie'sMom (Jul 25, 2012 3:46 am)
Hello. My name is Tasha and I am new to the March of Dimes Share site. I am from Indiana...
Hi Tasha, thanks for sharing your story with us. I'm sorry to hear of your babies. Know you are in the right place. It's never too late!
Welcome to the site, it's an awesome place!
Love and Light,
Liz
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KHolley
- Aug 4, 2012 1:30 am
(#163 Total: 253)
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Welcome to Share, Daisy. Keep us posted on your little guy's progress!
Katie
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CROSTHWAITE 8
- Aug 6, 2012 3:42 pm
(#164 Total: 253)
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My name is Barbara I was born in 1971 I am a premie survivor
I was born 4 months early 1 lb 6 Oz
I was # 8 child and if it were not for the.march of dimes and there donations
I wouldn't be here today
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KHolley
- Aug 6, 2012 3:47 pm
(#165 Total: 253)
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Welcome to Share, Barbara! I love hearing from preemies that have beat the odds!
Katie
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amayasmommy522
- Aug 7, 2012 12:21 am
(#166 Total: 253)
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To all the mothers out there, especially those of preemies, check out my blog site. I think it can offer a lot of comfort and support. bloggingformommies.wordpress.com
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KHolley
- Aug 7, 2012 12:04 pm
(#167 Total: 253)
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Thank you for sharing your site with us!
Katie
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TripletMommy06
- Aug 13, 2012 7:31 pm
(#168 Total: 253)
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Welcome to SHARE! I too have had a loss we had triplets born at 26 weeks Kaitlyn passed after 19 days. James and Lauren are now 6 years old. We are all here to walk with you and hold your hand. You will find lots of love here. I can't wait for update on your little one!
Dawn
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jeni1127
- Aug 18, 2012 5:43 am
(#169 Total: 253)
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Hello everyone IM new to this but IM a mom of 2 and another on the way...im 25weeks and hospitalized because my water bag is ruptured and i gotta stay here untill IM 34weeks.
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NathansMom13
- Aug 18, 2012 6:54 am
(#170 Total: 253)
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Come to ShareUnion 2012: It's the BEST weekend ever!!! |
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Hi jeni1127, welcome to Share. I hope you think of Share as a place where you can turn to for support from people who understand how hard it is to have a high-risk pregnancy. Hoping for a long 9 weeks of hospital bed-rest for you!
Laura
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KHolley
- Aug 18, 2012 2:00 pm
(#171 Total: 253)
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Welcome to Share. Keep us posted on your progress. This is a great place to find support!
Katie
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nurse629
- Aug 21, 2012 2:12 pm
(#172 Total: 253)
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My name is katie, my husband and I lost our twins less then a week ago. While I was only 12 weeks along, I am completley devastated, I had begun to imagine their lives with us and plan and get excited. I had no signs/symptoms of any problems. I went in for a routine ultrasound and the babies had no hearbeats, the doc said they died within a couple days of each other, and he was able to tell us they were identical twins. I went in for a D&C 2 days later and I feel empty, angry, guilty, sad...I am hoping with time and support I will feel like myself again and one day be ready to try again.
Replies to this message
Mason's Family (Aug 21, 2012 4:41 pm)
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Mason's Family
- Aug 21, 2012 4:41 pm
(#173 Total: 253)
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Replying to:
nurse629 (Aug 21, 2012 2:12 pm)
My name is katie, my husband and I lost our twins less then a week ago. While I was only...
Hi Katie and welcome
I am so sorry to hear about your twins. We lost our little boy Mason at 23 weeks just last week. Yes you are going to be on a roller coaster of grief but you need to know it is not your fault. I know we are going to get through this, and I know you are going to get through as well simply because we made it thus far. There is always hope. Also always remember you are not alone.
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