PAULA
josie1204 - 03:12am Mar 30, 2012 ESTMy baby Paula was born at 25the weeks. Since her birth my home was the hospital. Seeing her fight to survive day by day. Since her birth she had intestinal problems struggling with her feeds. She went through two surgery her heart murmur and her intestine. Once she had her intestine surgery she was doing well. I carried her everyday and every minute I could we did kangaroo everyday. Paula was a joy and always fought with the nurses and R.T she would hate her nasalcanela and her feeding tube. She would always take it off and make the nurses run to put it back on. The nurses would just laugh since she always did what she wanted and with her small body weighing 3pnds and 6ounces she would put a fight while doing her cares. The nurses loved her so much she caught their attention since she was such a fighter. My baby was doing great doctors would tell me she will be coming home soon. After 2mnths my baby died unexpected within minutes. She died on march 17 2012 morning. Doctors say it was a disease called NEC which we never new she had. Now all our dreams are gone and I can't cope with her death since doctors thought she was doing great and coming home in 3 weeks. I miss my baby and still in shock I keeping thinking its a bad dream. She was going to be taken off her oxygen already and all she had to do was grow. I feel alone and confused since I don't understand what happen. My husband and I are trying to cope but its hard. She was our first baby after trying 6yrs and now she is gone. My little angel.
cathyd173bx
- Apr 12, 2012 2:11 am
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So sorry for your loss..Hugs...I had my charlize on march 12,2012 @ 26 weeks.she had a preferation(small hole in gut) acouple of weeks ago to where we almost lost her.They put a drain in her side and Ive been noticing as well as her dad that her side had beening turning blue.When we ask the docs they say its just bruising or"wait and see process".Which kept driving us insane.So now come to found out they now say she has NEC but they have to deal with her brain issue which she 'll be sent to another well know children's hospital.I'm glad that shes going there not because they are said to be the best but also because the more we pressed the docs the more they seem to not know or have an answer for this thing she suddenly diagnosed with.I'm deathly afraid that my charli may not make it only because we were this close to lossing her the 1st Intestinal surgery.My heart and prayers go out to you and yours...xoxoxox
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mrsmaxson
- Apr 13, 2012 1:50 am
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I'm sorry I missed your original post. Losing a child is devastating. Losing one after trying for so long is unthinkable! My twin sons, who were conceived after three cycles of IVF died shortly after birth. It still comes as a shock sometimes that they were here then gone so quickly.
Paula was beautiful. My heart just breaks that she was gone so quickly. Just try to take life one breath at a time. It's all we can do.
Wishing you hope and healing,
Shannon
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