Rxmbajd
- Apr 7, 2012 5:45 am
(#59 Total: 253)
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Hello. My name is Robin and my husband and I welcomed our baby boy Brayden on March 29. Despite an uncomplicated pregnancy, during delivery Brayden aspirated amniotic fluid which caused his lungs and circulatory system to fail to convert from fetal functions upon birth. As such he was without oxygen for several minutes. I barley saw him for 30 seconds as the team of specialists rushed him to another hospital, Sunrise Childrens in Las Vegas, for cooling therapy in an attempt to save his life as well as preserve his brain and other organs from further damage. Brayden survived the critical day 5-6 milestone and is progressing well. We are still waiting to find out if his brain or other organs suffered permenant damage. However, he finally had the ventilator and most of his IVs removed yesterday so we finally got to hold him for the first time today! We still have a long way to go but are so grateful for the progress made! 
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KHolley
- Apr 7, 2012 8:22 pm
(#60 Total: 253)
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Welcome to Share, Shawron! This is such a great site for support, keep us posted on your little girl!!!
Clairissa-I am so happy to hear that your little guy is doing so well after an early start!
Robin-That is great news that Brayden is off the vent of most of his IVs!!! Keep us posted on his progress!!!
Katie
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stacyat
- Apr 7, 2012 9:48 pm
(#61 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Shawron: Hello and welcome to Share! I'm so sorry for your daughter's prenatal diagnosis of DA, I'm sure you are so scared for what the future will bring. So glad that you've found us, there's a great community here with many people that have walked this path before you. Many hugs!
Clairissa: Hello and welcome to Share! That's so wonderful to hear that Aiden and his little sister are doing fabulously despite their early arrivals! I look forward to reading more about your little fighters!
Robin: Hello and welcome to Share! Oh goodness, that sounds like a very scary start for your son Brayden! I'm so glad that the doctors were quick in action to give him the best chance possible. What a sweet moment that was holding Brayden for the first time, a moment you will forever remember! Keep us posted on his progress when you can!
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its a girl.. esmie reyes
- Apr 11, 2012 4:55 pm
(#62 Total: 253)
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KHolley
- Apr 11, 2012 5:58 pm
(#63 Total: 253)
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Welcome back! Thanks for the update, glad things are going well!
Katie
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stacyat
- Apr 11, 2012 9:53 pm
(#64 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Hey Esmie, welcome back!! I can't believe your little guy is already 9 months old!! Congrats on a little girl this time!! Praying for a full 40 weeks for this little one!!
Stacy
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Jessika
- Apr 14, 2012 2:46 am
(#65 Total: 253)
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Hello! New here- just posted our "short story" (aka- ramblings of our story)... hoping to connect with other families who can relate. Especially as we consider the future- how can you put your heart back out there and take a chance on another baby in the future, knowing the risks of going through the same complications? Just trying to sort out if I would ever want to take that chance again, while thoroughly savoring every moment we have with our beautiful baby boy
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melloveskeaton32112
- Apr 15, 2012 12:50 am
(#66 Total: 253)
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KHolley
- Apr 16, 2012 4:03 pm
(#67 Total: 253)
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Welcome to Share! We are glad you found us here! This is a great site to find support during and after your NICU stay.
Katie
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bhotladyintown
- Apr 16, 2012 10:44 pm
(#68 Total: 253)
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HI my name is stacey and i have a son here. I am looking for som help you can e-mail me at bhotladyintown@aol.com
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KHolley
- Apr 16, 2012 10:46 pm
(#69 Total: 253)
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Welcome to Share, Stacey! I would love to hear more about your story!
Katie
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mzlambert
- Apr 17, 2012 4:23 pm
(#70 Total: 253)
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Hi! I am ready this is day four I gave birth to Kennedy Joi April 14@11:56am at 24 weeks. It has been a whirlwind of days and moments so I solicit all encouragement and shares about 24 weekers. Glad to have this resource. I believe in miracles and expect one each day with Kennedy Joi.
Replies to this message
stacyat (Apr 17, 2012 6:23 pm)
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KHolley
- Apr 17, 2012 5:55 pm
(#71 Total: 253)
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Welcome to Share and congrats on Kennedy Joi! The NICU is such a roller coaster of emotions. We are glad you found us here, keep us posted on her progress!
Katie
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stacyat
- Apr 17, 2012 6:23 pm
(#72 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Replying to:
mzlambert (Apr 17, 2012 4:23 pm)
Hi! I am ready this is day four I gave birth to Kennedy Joi April 14@11:56am at 24 weeks. It...
Hello and welcome to Share! Congratulations on the birth of Kennedy, what a pretty name! I'm so glad that you have found Share so early into your NICU journey, and hope that you are able to find the much needed support and information that you need here. I look forward to reading more about your precious fighter! Hugs!
Stacy
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liz loschinskey
- Apr 18, 2012 7:03 pm
(#73 Total: 253)
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Replying to:
St.PattysDayGift (Apr 6, 2012 11:19 pm)
Hello everyone! Im very new to the March of Dimes. My name is Clairissa Brown,...
Clairissa, Welcome to share! My bday is 3/17 as well and you are so right...
God is Good!!
Thanks for sharing your story,
Love and Light,
Liz
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liz loschinskey
- Apr 18, 2012 7:06 pm
(#74 Total: 253)
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Replying to:
melloveskeaton32112 (Apr 15, 2012 12:50 am)
Hi everyone! Just joined the site today and trying to navigate my way through everything. My first baby boy has...
Hi Mel, welcome to Share! Please keep us updated when you can of your sweet baby boy.
Love and light,
Liz
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jessilou00
- Apr 20, 2012 4:47 pm
(#75 Total: 253)
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I'm Jessica and had twins at 36 weeks. Ones left eye didn't develop and other ones ok. Been a roller coaster of emotions
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KHolley
- Apr 21, 2012 1:28 am
(#76 Total: 253)
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Welcome to Share, Jessica! I would love to read more about your kiddos!
Katie
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jessilou00
- Apr 23, 2012 5:51 am
(#77 Total: 253)
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I posted a short story "braydens eye" we go back in five months to get fitted for prosthetic eye. Dr says hes doing fie otherwise. His twin bryson is fine and I have a six yr old son thats also fine. Just trying to find as much help as possible for brayden
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mfloersch
- Apr 23, 2012 6:31 pm
(#78 Total: 253)
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stacyat
- Apr 23, 2012 7:27 pm
(#79 Total: 253)
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Mom to Emilyn and Hailey (our 20 week angels) and Elim (our 38 week, full term miracle)! |
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Replying to:
mfloersch (Apr 23, 2012 6:31 pm)
Hello to everyone,
I'm a mom to a 28weeker, who's now 15months old.
I'm interested to see...
Hello and welcome to Share! I look forward to reading more about your little fighter! Share is an amazing place, there are blogs and short stories you can post and respond to, as well as a parent to parent section you can post questions and answer others! They're just a short click or two away at the top blue bar of options!
Stacy
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maddoxfordmom11
- Apr 24, 2012 1:53 am
(#80 Total: 253)
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liz loschinskey
- Apr 24, 2012 2:45 pm
(#81 Total: 253)
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Replying to:
maddoxfordmom11 (Apr 24, 2012 1:53 am)
I am a mom of a 28 weeker, Maddox who past away December 26, 2011. Lisa
Hello Lisa and welcome to Share.
So sorry to hear of Maddox.
Please know you are in the right place. Many of us understand exactly what you are going through. I personally lost my son who was a 24 weeker.
Please keep coming back, this place is a blessing to me, and I hope it will be for you, too.
Love and Light,
Liz
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Akeelah's Mommy
- Apr 25, 2012 5:43 am
(#82 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Maddoxmom
- Apr 26, 2012 2:54 pm
(#83 Total: 253)
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I'm new to share, and looking for other parents who have gone through similiar situations with their children. My pregnancy was perfect; I barely had any morning sickness. Then, at 28 weeks, the day after my baby shower, I went into labor. Maddox Ford was born November 7, 2011 with a rare skeletal disorder called campomelic dysplasia. This disorder only affects 1 in 200,000 babies, and is almost always fatal. With this disorder he had clubbed feet, bowed legs, one leg was shorter than the other, one arm was shorter than the other, but mainly, his chest cavity was too small to support his lung function. Most babies who have this disorder only live 2 days. He fought so hard for 7 weeks, but passed away on December 26, 2011. He made me so proud. I am so very thankful for the time I got to spend with him, holding him almost every day, and all the pictures of my beautiful baby, but it will never be enough. The what should haves and the hopes and dreams that I had for my first child haunt me. The biggest issue I am struggling with is seeing other parents with their babies.
maddox cubs
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Akeelah's Mommy
- Apr 27, 2012 1:16 am
(#84 Total: 253)
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A moment in our arms, a lifetime in our hearts. |
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Welcome to Share. What a sweetie pie your Maddox is! I'm so sorry his time here was so short. I too thought my pregnancy was just splendid until it wasn't and we said goodbye too soon to our lil' girl. The pain and would of could ofs are so very difficult, and oy, seeing other families living our dream- it feels so unfair. Share is a wonderful place to find support and parents in similar situations. There is a great thread called Living with a New Normal that you might want to check out too: http://www.shareyourstory.org/webx/.ef9d38c/254 Take good care,
Lauren
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Mary Ann C
- Apr 27, 2012 1:44 pm
(#85 Total: 253)
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Replying to:
mfloersch (Apr 23, 2012 6:31 pm)
Hello to everyone,
I'm a mom to a 28weeker, who's now 15months old.
I'm interested to see...
Hi...I am also mom to a 28 weeker...my son Jack was born April 29, 2006 and weighed 2 lbs 2 oz. This coming Sunday, he will turn 6. He is doing great!!! I shared our story last night....I meant to do so earlier and finally got to it. If i can help in any way please let me know.
Mary Ann
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Mary Ann C
- Apr 27, 2012 2:01 pm
(#86 Total: 253)
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Replying to:
melloveskeaton32112 (Apr 15, 2012 12:50 am)
Hi everyone! Just joined the site today and trying to navigate my way through everything. My first baby boy has...
Hi...my son Jack was born at 28 weeks on April 29, 2006. Jack will be 6 this coming Sunday and is doing great! I always meant to post our story so that I could help others through the roller coaster ride that we went through at the beginning. With 3 kids: a 15 year old, a 14 year old, and a 6 year old, I finally got the chance to write our story last night.
Best wishes to your family and please let me know if i can help with any questions.
Mary Ann
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savannah_2011
- Apr 29, 2012 7:17 am
(#87 Total: 253)
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Hi!
Im a late night internet searcher..lol..my daughter was born last august..althought her due date was in october..she was 9 wks early..but tried to come 13wks early..was in the hospital for a month before I had her..to make a long story short is was scary, miserable, and felt never ending..but all worth it in the end..I have a healthy baby girl! she is a very very fussy baby..but almost 9 months old with big bright eyes and a beautiful smile
ICU
100_3313
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savannah_2011
- Apr 29, 2012 7:27 am
(#88 Total: 253)
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Im sorry for the loss of leah and excited for the progress of hannah..I personally havent experienced a loss of a little one..but I was hospitalized for a month before giving birth to my daughter 9wks early..she stayed in the NICU for 5wks..it is extremely rough for any one..rather it be a day,week, month or longer..I wish I would have thought of looking at this website when I was going through all of this..it would have been nice..you all are very strong women..I am sorry for everyone who has mentioned a loss on here..and I am always here to talk..and Kelly I hope you are working on getting the closure you need..if not dont hesitate to reach out!
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im back!!!! so my miracle baby is now 9 months.. and he is big and healthy and so active... just a great baby... so now im going for my second full term baby... im now 19 weeks preggo.. and ITS A GIRL:)!!!.. had my cerclage already at 14 weeks.. started my P17 shots yesterday and had a very theral scan yesterday aswell..and according to my DR... all looks great... so yes very happy camper here!! and here we go to full term!!!! have a great day everyone... hi stacy.. hi jackie...
